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How long has it been since your kidney surgery? What stage were you? Any recurrences of cancer?
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Apr 18, 2018 - 8:00 pm
April 18, 2018 Hi: 1. How long has it been since your kidney surgery? My husband's kidney removal was on Feb. 14, 2018. So, around 2 months! 2. What was your staging? His was/is PT3. (I never know if I say 'was' or 'is' when it comes to the staging) Tumor size: 5 cm. 3. After you had your kidney removal surgery, did you go on chemotherapy or any other treatments? No 4. Have you had any recurrances of cancer? If so, what happened and how long after your kidney surgery? He hasn't been checked yet.
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Joined: Jul 2016
Here you go
1. August 26, 2016
2. Stage 1Tb Chromophobe 5.3 cm greatest dimension
3. No
4. No
Stub
Joined: Apr 2018
Great answers!
Excellent! No recurrences for you!
So lucky you caught it at Stage 1.
Joined: Oct 2014
1) August 2014
1) August 2014
2)10 cm rcc, stage II
3)No
4)No
Joined: Apr 2018
You are doing really well.
You are doing really well. That's great news!
Joined: Aug 2017
Duty Done
1 Sept 2017 partial nephrectomy by Da Vinci.. four weeks after diagnosis right kidney
2 Stage 1b no grade Chromophobe RCC 4.4 cm greatest dimension ( I follow Stub in every thing I do)
3 No
4 No based on low risk screening done March 2018
6 six months on still struggling with fatigue and other wierd symptoms
Joined: Apr 2018
Excellent
I'm glad you caught it early and no cancer returning. One of the lucky ones!
Joined: Apr 2016
results are in.........
1. How long has it been since your kidney surgery?
2011
2. What was your staging?
stage 1 grade 2
Tumor size: 4.7cm
3. After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?
no cancer drugs or any treatment
4. Have you had any recurrances of cancer? If so, what happened and how long after your kidney surgery?
2016 right lung surgery lower lobe removal, 2017 left lung surgery to remove two mets in upper lobe, still no cancer drugs
Joined: Apr 2018
Thanks
Keep up the good work! ...and here's to no more cancer!!!
Joined: Dec 2017
My Info
1. How long has it been since your kidney surgery?
Eight weeks - radical neph on 2/19/18
2. What was your staging?
pT1a - tumor was 3.3 x3.4 cm
3. After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?
no
4. Have you had any recurrances of cancer? If so, what happened and how long after your kidney surgery?
Waiting on first scans and x-rays. First chest x-ray is scheduled for the end of May
Joined: Apr 2018
Thanks
I'm hoping for all clear scans for you and no more cancer!
Joined: Sep 2017
1. November 7, 2017
1. November 7, 2017
2. Stage 1 Grade 2 Clear Cell Renal Cell Carcenoma
3. No other treatment
4. Recently had 1st scans and all clear!
Joined: Apr 2018
Excellent!
Excellent on the all clear scans!
Joined: Oct 2013
Husband's stats...
1. Surgery: November 2004
2. Stage: pT3b clear cell
3. Treatment: None until January 2013. Began Sutent and have had a good response. (Mostly stable!)
4. Recurrances: Large met to pancreas discovered in December 2012. "Suspicious" lung nodes were never biopsied, but presumed to be more mets as they responded to treatment. Since then, enlarged messenteric lymph nodes which are also likely malignant. They have either remained stable or gotten smaller. Scans tomorrow!!
Joined: Apr 2018
Thanks
I'm hoping for great results on your husband's scans tomorrow!
Joined: Mar 2014
1. March 17, 2014
1. March 17, 2014
2. Stage 1 but grade 2-3
3. No treatment
4. So far so good. We're monitoring a couple of tiny lung nodules and I'm hoping they're nothing
Joined: Apr 2018
Thanks
I'm happy you are doing so well. I hope for no more cancer in your future!
Joined: Nov 2016
Here you go...hope this helps you.
Hi:
1. How long has it been since your kidney surgery?
My left kidney was removed on 8/30/2016 open nephrectomy.
2. What was your staging?
Stage 3a
Tumor size - 20 cm partially into renal vein
3. After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?
No
4. Have you had any recurrances of cancer? If so, what happened and how long after your kidney surgery?
I've had 2 CT scans with contrast, 2 ultrasounds and chest Xrays. no recurrence. Keeping an eye on a small cyst on right kidney, had some very small lung nodules no change.
Joined: Apr 2018
Wow!
Your answers give me hope!
Here's to no cancer returning!
Joined: Apr 2018
Thanks EVERYONE.
Thanks everyone for your replies so far. They have been helpful.
Joined: Feb 2018
My info
1) January 22, 2018
2.) no chemo or anything
3.) nothing so far! I had a bone scan which was clear. First set of scans in June. Day before my birthday, so they better be NED! It would be the best birthday gift ever! Haha!
I forgot- size was 3.3 cm, stage 1 grade 2 clear cell RCC
Stephanie
Joined: Apr 2018
Thanks
I hope for all good results for you and no more cancer!!!
Joined: Nov 2015
1. How long has it been
1. How long has it been since your kidney surgery?
Over four years. :-)
2. What was your staging?
Stage IV, cT2a, cN0, cM1 (bone met). Cell mRCC. 7 cm.
3. After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?
Yes. Radition. Votrient, then Opdivo. Plus Xgeva.
4. Have you had any recurrances of cancer? If so, what happened and how long after your kidney surgery?
Yes. New bone mets three years later.
Joined: Oct 2017
My turn
1. September 5, 2017 Open partial
2. Stage 1 Grade 2 Clear Cell Renal Cell Carcenoma
3. No other treatment
4. I've been scanned twice now and no cancer is visable! Yay! I am having issues with recurrent UTI's now though. Trying to get it figured out.
Joined: Dec 2012
Answers...
1. How long has it been since your kidney surgery?
Radical right nephrectomy December 9, 2012.
2. What was your staging?
At that time, Stage 3 Grade 3 (Stage 1 prior to surger, after pathology came back, it was Stage 3).
Tumor size: 6.8cm
3. After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?
I did a 1 year drug trial for Everolimus, but it turned out I was on the placebo, which I found out after being unblinded when I had a recurrence.
4. Have you had any recurrances of cancer? If so, what happened and how long after your kidney surgery?
Two years later, recurrence to right adrenal gland (the same one that had been attached to my kidney). Had adrenalectomy in February 2015. Refused a second drug trial for Votrient vs Placebo. Staging changed to Stage 4 as a result of the recurrence. So far cancer free 3 years. Followup CT scans every 3 months for chest/abdomen/pelvis and blood work.
Joined: Jun 2016
June, 2016
June, 2016
Stage 1.....1.7 cm.....chromophobe.
No chemo or any other treatment.
Sixmonth and one year x-rays/CT scans were NED, so doc put me on annual scans for now.
Joined: Mar 2018
1. How long has it been
1. How long has it been since your kidney surgery?
Radical right nephrectomy on March 8th - 6 weeks ago today.
2. What was your staging?
Papillary Renal Cell Carcinoma, Type 2, Grade 3
Tumor Size: 10 cm
3. After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?
Yes, on April 5 this year I started Oral Chemo - Cabometyx, 60 mgs. per day. Just starting my 3rd week on it today. (Apr. 19th) Side effects are beginning to increase, but we are managing them thus far. Bloodwork says liver is fine to continue with this strength treatment. Mostly doing this as they were not sure if they got everything out of the liver, and the CT Scan with no contrast does not show organs clearly. Going to ask the Nephrologist about this tomorrow, if I can have a scan with dye or contrast just to see.
4. Have you had any recurrances of cancer? If so, what happened and how long after your kidney surgery?
None so far. Just had a CT Scan a month after surgery. Still have a lot of swollen lymph nodes in the chest, but no new tumors visible. Everything is what they call "Stable."
I guess there will be another scan in 3 months, as this is quite an aggressive cancer. Happy to be NED!! But we have to watch the lymphs carefully.
Joined: Jan 2016
My info
1. Partial right robotic nephrectomy 2/2016
2. Stage 1 , grade 2
3.no
4.no
Joined: Jan 2018
My info
1. Radical left robotic nephrectomy Dec 5, 2017
2. Stage T2B (13.3 cm tumor) Grade 3
3. No other treatment waiting on ablation for new primary tumor 1.5 cm on remaining kidney
4. No metastases but new primary in right kidney. After ablation I will be NED
Cin
Joined: Mar 2017
Wife had partial neph in Marc
Wife had partial neph in March of 2017
Stage 1 @ 3.5cm RCC
No additional drugs or treatment
6 mo. Scan - NED
1yr Scan - NED
Joined: Apr 2018
Thanks, everyone.
I'm really feeling down about it all. I can't stop thinking about it.
My husband is such a good person. I keep all my worrying to myself because I just want my husband to remain happy and positive. I don't want to bring him down.
I think I've gone on too many sites and the information I read has just been so bad and it has really affected me.
The good comments above have helped.
Joined: Nov 2015
To boost your spirits,
To boost your spirits, consider posting another survey/questionaire, something like, asking members what have they accomplished, done or enjoyed since their cancer diagnosis.
Joined: Apr 2018
Thank you, rhominator.
Joined: Mar 2018
1. Left partial neph March 22
1. Left partial neph March 22, 2018
2. Originally told stage 1- tumor was 2.8- blessedly benign oncocytoma!
3/4. Just had another CT scan 4/18/2018 to check arteries- all clear! No additional followup needed. My surgeon was positive this was cancer. Just goes to show we are not in charge. Keep the faith, good news does happen!
Joined: Apr 2018
My info
1. How long has it been since your kidney surgery?
Robotic partial nephrectomy January 5 2018
2. What was your staging?
Stage 1 Grade 3
Tumor size: 4cm
3. After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?
No
4. Have you had any recurrances of cancer? If so, what happened and how long after your kidney surgery?
No Follow up in May
Joined: Jun 2017
Surgery: 03/20/2017
Surgery: 03/20/2017
Stage: 3 - 16.9cm chRCC
Other treatment: None so far
Recurrences: None so far
Joined: Mar 2017
me
May 2016
T3A
Nope
Nope.
Joined: Sep 2016
Good health to all of you
1. Sept 2, 2016 Open partial
2. Stage 1: pT1aNxMx 3.2 cm partially solid, partially cyst mass grade 2
3. No
4. No
Joined: Nov 2017
One more -
1. July 27, 2016 Open partial nephrectomy right side (born with only right kidney)
2. Staging: pT1b Renal cell carcinoma, clear cell type, ISUP grade 3; 4.7 cm
3. No chemo or other treatments
4. No recurrences. Dec 2016 CT scan showed a weird cyst or something on the left side - In CT a month later nothing appeared. It seems to fill and empty where the left kidney should have been. A little primordial kidney? I'm curious to see what they find (or not) this June. One year scan NED. Recent lab tests good; major scans coming up in June.
Joined: Feb 2018
Hopeful surgery is enough!
1. How long has it been since your kidney surgery?
March 29, 2018- laparoscopic right Hand assist (2 port holes, one 5-6 inch incision right lower abdomen)
2. What was your staging?
T1b Papillary RCC Type 2
Tumor size: 4.5 cm by 3.5 Right lower lobe- completely contained, no renal vein or artery involvement. Clear margins. No perinephric fat involvement.
3. After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?
No
4. Have you had any recurrances of cancer? If so, what happened and how long after your kidney surgery?
no- Will be establishing with an oncologist next week for my future follow up
Joined: Mar 2018
My info
1. Robotic partial sept 2016
2. Stage 1A, Grade 2
3. No
4. No
Joined: Jan 2010
Dr, says I will die of something else.
1. Nephed, 8.01.02
2, 4,2 cm
3 and 4, NO
icemantoo
Joined: Sep 2017
My doc said the same as ice man
PT1A- surgery Nov-14th/17-open left partial-12 inch strait scar
Grade 2- 1.9 cm- ccrcc
40 years old- My first and only Kidney stone so far led us to it!
Just had 6 months scan-CT of pelvis and abdominal area-NED
Xray of lungs- all look good..
No treatmention at this time.
Next scans September! !
Joined: Nov 2017
1. 11/6/17
1. 11/6/17
2. PT1b, grade 3, 5.6 cm.
3. No.
4. No. Thank God!!
Joined: Aug 2016
May, 2012
1. May 2012
2. Stage 2 (7.1 cm) Grade 2-3
3. No treatment for the first 2 years. Tumor found in lymph node in my chest in June 2014. Biopsy was negative, however assumed it to be cancerous. Radiation in October 2014 to treat tumor.Tumor shrank significantly after treatment and has not had any activity since. Have been on Votrient since February 2015.
4. No change for the last 3 1/2 years. Full body (from pelvis to chest) CT scan last January showed nothing of concern. Colonoscopy last month showed clean, no problems.
Joined: Feb 2009
Cut the bull, just go straight for facts...
1. 11 years, 10 months...but who's counting, since the original surgery.
2. T2, N1, M1. Tumor in Kidney was 12 1/2x 8 1/2 x 10 1/2; set of paracaval nodes behind it were positive for 2 of 11; left lobe of liver removed-positive mets; several wedge biopsied from right lobe that were negative; gongenitally defective bile duct and gall bladder removed at same time.
3. No treatment, as there was no suspected site that could be monitored. (Mostly experimental or trial drugs only, avail. in 2006) Just monitor with every 3 mo. CT's
4. Recurrences, Yes, 2. Enlarging node found in CT in May of 2007; needle biopsy positive, remove on 7/3/2007. And another node enlarging discovered in Late April 2008, positive on PET scan, and surgically removed in June of 2008.
5. Continue follow ups with CT's, finally stretched out to 6 mo and then yearly. A couple of scares with thyroid enlargements, esophageal thickening, etc. and went back yo 6 mo CT's and am finally at yearly CT's with intervening 6 month visits and labs.
Click on user name for more Bio info.
Good luck and hugs....we all want this to be a very long lifetime experince.
donna_lee
Joined: Jan 2018
Feb 26th....partial nec with
Feb 26th....partial nec with robot
2 cm
No
Will have 6 month in September
Joined: Apr 2018
Thanks, everyone.
Thanks again everyone. I read each and every comment.
I really appreciate all the responses. They are helpful.
Joined: May 2018
New Member - Recent Left Kidney Radical Nephrectomy
1. How long has it been since your kidney surgery?
April 16th, 2018 since my left kidney radical nephrectomy at City of Hope in Duarte CA
2. What was your staging?
pT3A, N0, M0 - Pathology confirmed RCC, Clear Cell
Tumor size: 10cm.
3. After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?
No, only one post surgery follow up so far with my doctor, he recommended potential immuno therapy consideration (if I'm eligible), going to 1st consult about that next week.
4. Have you had any recurrances of cancer? If so, what happened and how long after your kidney surgery?
No, too soon, however post surgery blood tests showed my Creatinine level back to normal (was very high) and GFR >60 (was 41)...so good indications so far. Now researching about the immuno-therapy and post nephrectomy surveillance studies and recommendations. Good information out there. Keeping a journal of my findings.
Joined: May 2017
Immunotherapy Studies
Replying to STC55, I hope you have already found the Checkmate 214 trail which was recently published in the New England Journal of Medicine. Check my profile on this site for details of my experience.
Fred
Joined: Jul 2017
July 2016
1. July 6, 2016. My left kidney radical nephrectomy
2. Tumor size-9 cm
3. No
4. No- Praise the Lord
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