You are here

My CBD and THC experience so far...

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

I finally got my medicinal cannabis oil a few days ago. Quite the process here. First, I had to see a special clinic, then get referred to a doctor who can prescribe it, then have the Rx sent to the supplier, then order it, then get it delivered. There were issues with the payment because they changed the amount twice so ther whole process was several weeks. That being said, I wanted to share how it's working in case it's helpful for someone.

I got the oils but the option was also product that can be smoked or vaped. I've never smoked anything in my life and my mets are in my lung so oil is how I went. It's dropped sublingually and I have something to drink right after to get rid of the taste.

I have a CBD based oil for the morning. It has just 1% THC and 23% CBD. It's supposed to give me energy, help with pain and anxiety, I think that's about it. At night I take an oil that is 26% THC and also has Indica in it. It's supposed to relieve pain, help me sleep, help with appetitie and nausea, reduce anxiety.

I am finding so far that it really has increased my quality of life. My pain is less, I sleep like a log and only got up twice last night to go to the bathroom and three times the night before. Typically I get up 6 to 10 times. I have almost zero or very little nausea. I was lying there the first night thinking about how I had no nausea and what a great feeling it was. I'm perkier in the daytime and am not so dopey in the evening. The best part is how much better I feel physically. I'm still nowhere near normal but I do feel much better than I did. That makes tasting this crap worth it.

I'm not going to be dramatic and say that I feel hugely better but there is definitely an improvement. And it's better today than yesterday so maybe it'll keep improving? I really didn't know what to expect, if anything, and I'm pleasantly surprised.

If anyone is considering trying something like this I'd say go for it. If it helps at all it's worth it. I can't say I feel anything like a high but I've never tried drugs so I wouldn't know what that would be like anyway. I don't feel any differently mentally, anyway. I'm glad I gave it a shot. I will continue with this as long as it helps me have a better life.

It's ironic because I am one of the biggest anti-drug and anti-pot people around. Now here I am, encouraging it.

Jan 

Tunadog's picture
Tunadog
Posts: 235
Joined: Mar 2017

Laughing Works for me also. Keeps me off the Norco and helps me get a better nights sleep.

 

SophDan2's picture
SophDan2
Posts: 145
Joined: Jul 2017

I used the edibles throughout my treatment, as needed. It worked the same way for me, as the oil has for you.

I am so happy that you have some relief Jan.

Ruthmomto4's picture
Ruthmomto4
Posts: 659
Joined: May 2013

i hope it keeps getting better you deserve a break! Your not promoting for fun, it’s medicinal, which is what it really is for. I wish my husband would consider it but he is afraid he will lose his security clearance at work. 

Noneya's picture
Noneya
Posts: 35
Joined: Jan 2018

Glad it's helping.

Annabelle41415's picture
Annabelle41415
Posts: 6525
Joined: Feb 2009

I'd say if you can get some improvement, like you said, than good for you and go for it.  Glad that it is helping you and hope that it continues to improve.

Kim

Canadian Sandy's picture
Canadian Sandy
Posts: 629
Joined: Jul 2016

Happy you found something to relieve your problems. Thinking of you Jan.

PamRav's picture
PamRav
Posts: 281
Joined: Jan 2017

Glad you found something that improves the quality of your life. I love how you always report on your various  treatments and give us your experience.  

peace

pam 

SandiaBuddy's picture
SandiaBuddy
Posts: 1093
Joined: Apr 2017

Happy to hear it helps.  I guess one of the few good things about our condition is that it keeps opening us up to new perspectives.

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Last night I slept right through the night for the first time in a very long time. One of the best parts of this is the lack of nausea. I've lived with varying levels of nausea for almost a year now and to have periods where it's completely gone is really wonderful. When I do get it it's nowhere near as bad as it was. Just that makes taking this stuff worth it. I haven't had a nap for a couple of days, either, so I must be getting some energy.

I am so very grateful that I found something to make me feel better. Normal is still a long way away but this is really good for now. Summer's coming and maybe we'll enjoy it this year.

Jan

Joan M's picture
Joan M
Posts: 411
Joined: Oct 2016

I had some edibles after my diagnosis, and they really helped.  Cookies baked with green flakes.  I only ate it in the evening because they made me sleepy, and I did get a little high which I hated.  It really helped with pain, nausea and sleep.  I would like to have the benefit of the medicine without the high so I could use it during the day if needed.   

It is finally legal where I live, but not available through dispensaries yet.  When it is, I will definitely get some to help when I have nausea, pain or sleep problems.  The side effects were minimal, just got a bit dizzy. Much better than constipation from oxycotin or hydrocodone.    

I didn't like the taste either.  Why don't they just put this stuff in capsules like fish oil?

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

I have an ostomy and take straight codeine to slow it down. Otherwise liquid goes straight through me and I'm dehydrated. The last few days I'm taking half as much. The codeine also helps with pain but my pain has been cut by probably a third to a half. It's still there but so much less. 

I'm just so releived that this is helping me. I was so scared it wouldn't because for some people it doesn't. Then I'd have had nothing as an alternative. As I said, just having the nausea pretty much gone is huge.

I hope it helps you when you get some Joan.

Jan

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

...until I started radiation and chemo. THC oil, smoking it, and edibleshave helped me so much. I am so glad to hear they are improving your quality of life, Jan. Excellent news. Sleeping well and having an appetite help me feel truly alive. 

Kazenmax's picture
Kazenmax
Posts: 416
Joined: Feb 2016

Medical cannabis was not available when I was getting treatment. However, I did smoke some on a few occasions when I needed it. It's now legal in my state and I will definitely try to get it should I need more treatment. 

It should be readily available to patients who need it. I don't understand why it's so hard to get. Doctors have prescribed horrible opiods to manage pain and this has caused an epidemic. Cannabis is a much better option.

B312C
Posts: 16
Joined: Mar 2018

and good to know

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Update. My family doctor wants me to try Nabilone. He says I should get the exact same effect as the oils but it's in pill form and will be covered by insurance. So I'm going to try that for a few days instead. I'd much rather not have that taste in my mouth and have to pay full price for it. I'll report back as to how it's doing.

Jan

Annabelle41415's picture
Annabelle41415
Posts: 6525
Joined: Feb 2009

I've never heard of that.  Is that an appetite enhancer and nausea suppressor?  Exactly what can this help with.  There are so many now that have medical cards and wondering if this is an easier way to get relief without having to go through the expense of the other form.  I've heard that the other form can be very expensive even with a medical card, but I've not had to do that.  Hoping that this really helps you out - you deserve a lot of relief.

Kim

Noneya's picture
Noneya
Posts: 35
Joined: Jan 2018

Here's the FDA info on nabilone

https://www.accessdata.fda.gov/drugsatfda_docs/label/2006/018677s011lbl.pdf

It is a synthetic and has side effects you will want to watch carefully including interaction with other drugs. 

 

I don't find the taste to be bad but I make my own oil. I live in New Mexico and am able to grow my own. My neighbor suggested that I use gel caps if the flavor was bad. After learning how to remove the chlorphyll the taste is much better.  Most of mine is turned to butter and SPECIAL COOKIES are made of it. I make a batch and make the cookies 1/2 size so one or two cookies after dinner and a couple hours later I feel the relief set in and go to bed. And yes you can do the math to find out how much is in each cookie mine is about 5mg each. 

Either way start low and work up is the best advice I was given.

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

We will be making our own as well. Have 2 large ACDC strain about 2 months away from harvest. Do you use a rice cooker? This will be our first attempt.

Jan, the taste is gnarly, but I got used to it. You can put it in a capsule too. One young man I met put it on a cracker and said that helped. I sleep so soundly with the combo of Rick Simpson oil and about 12mg THC in an edible form. 

Noneya's picture
Noneya
Posts: 35
Joined: Jan 2018

I use a water distiller from amazon that way I recover my alcohol. I don't use rubbing and food grade can be expensive.

 

Tunadog's picture
Tunadog
Posts: 235
Joined: Mar 2017

I grow my own marijuana and make my own Coconut Oil Infused with Indicas. Coconut Oil has a very high fat content and absorbs more THC than Butter. I use a Magical Butter machine about $175 online. It lets you make very consistent oil or butter without a mess.

For pain I take a 50mg CanaCookie and an Ibuprofen. I don’t take opioids and get relief equivalent to a 5mg Norco and it lasts longer and NO constipation.

As many of you, I take 15 pills a day and don’t need anymore.

Love you all - get well soon 

Noneya's picture
Noneya
Posts: 35
Joined: Jan 2018

Can you make a true Rick Simpson oil with the magical butter machine or just ooil based as part of my therapy is 2 vape puff at night time so the oil goes directly to the tumor sites.

Tunadog's picture
Tunadog
Posts: 235
Joined: Mar 2017

I doesn't make RSO but you can make High Proof Alcohol and reduce it.

Here in California I can buy 85% THC Oil like RSO but commercially produced for $25 gram in a tube. It's certified clean by the state.

Rice cookers are about $15 if you want to do it yourself. (Butt then you would need lots of weed.) It's not worth making unless you process 1/2 pound. Just my $ 0.00.

Good Luck

 

Noneya's picture
Noneya
Posts: 35
Joined: Jan 2018

Guess I'll stick with the distiller. I get about 80% alcohol recovery. Thanks Tunadog saved me some money. I use a slow cooker for the butter. Thanks again!

 

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Here's an update. I've felt better than I have in about a year ever since starting the oils. I did switch to the pill form and have been doing great with that as well. I don't know if it's a coincidence or if itreally helped. The most important part is that it got rid of the nausea and now that I can eat and drink again it's making me feel better and less tired. I've also stopped taking any pain meds other than occasionally. And I sleep well. On the pill rather than the oil I haven't been getting munchies, either.

Jan

ThomasH's picture
ThomasH
Posts: 100
Joined: Jun 2016

I've been using it since I started my chemo, and I've continued using it daily since I finished. I sleep like a baby at night, I hardly have any pain at all. My weight is good, and I'm happy!

Personally, I would suggest it for absolutely everyone who is doing chemo, but for a lot of people it is a contraversial topic.

Glad you decided to try it, and I'm super glad it is giving you some relief.

Thomas

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Thanks Thomas! I almost feel normal again. Yesteerday we had a really long day and I was able to stand as long as needed and do whatever I had to do. My horse is sick and we had to go out and see what was wrong then go home and get the truck and hook up the trailer and drive him 45 mnutes to the vet. We were there for almost two hours and when we took him back to where he's boarded we spent another two hours talking to the people that own the place. I was fine but tired and slept very well. Today I feel fine. This is great!

Jan

Noneya's picture
Noneya
Posts: 35
Joined: Jan 2018

Just got backi from chemo making batch of cookies. Glad to hear your doing so much better. More people should have the accesas to it as it has helped both with feeling like dirt and got the news that in just 3 months tumors are now 45-65% shrink. Most in the lungs so Dr. continues to recommend vape. Glad you are reacting so well too.

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Hey! That's good news! Shrinkage of your tumours is excellent!!! 45 to 65% shrinkage is awesome!!! Congratulations!!

A friend's dad was recently diagnosed with colon cancer with mets in his liver. Sadly, he hasn't been well in years and they think he's too weak to do any treatments to deal with it. She got him some oils a few days ago and he was noticing a difference the next day. He'd lost 130 pounds already and just didn't want to eat. I really wish this was more available to people, too. I'm still on the pill form and I feel almost normal. Normal enough to push myself too hard and then pay for it but I'm just so grateful to be feeling so good that I want to be busy. If I end up back on chemo after my CT in a few weeks then I'll be back not able to do much again. I loathe that.

Jan

Noneya's picture
Noneya
Posts: 35
Joined: Jan 2018

Best I can do for now!

Subscribe to Comments for "My CBD and THC experience so far..."