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No evidence of metastatic disease vs NED ??

Angiebby75's picture
Angiebby75
Posts: 192
Joined: Aug 2017

I got the call and the nurse said that my scans were back and that there was No Evidence of Metastatic disease. She didnt say No evidence of disease. I trying to understand the difference. Should I be concerned. I didnt think to ask her the difference. I had a partial hysterctomy in 2016 because of heavy bleeding. I still have my ovaries and after surgery the doctor states she removed a cyst. But it still appear to be on there.  This cyst has been there since 2016 and on all my CTs with no real concern from doctors, was just told I can follow up with GYN now. Could that be why I was told No evidence of mestastatic disease instead of NED. Thanks again for your support.

stub1969's picture
stub1969
Posts: 800
Joined: Jul 2016

I'd say both terms are the same.  When I meet with the doctors after the scans they say No Evidence of Metastic Disease.   I fact the radiologist included that term in their write-up.

Congratulations--now celebrate!

Stub

Angiebby75's picture
Angiebby75
Posts: 192
Joined: Aug 2017

Stub thanks. This helps to know. My mind just keeps wondering.  

Wehavenotimeatall
Posts: 479
Joined: Aug 2017

But agree with stub... they can’t be concerned hence NEMD

 but very very happy you are on the path

now time for you to get that cyst sorted out

 

icemantoo's picture
icemantoo
Posts: 3227
Joined: Jan 2010

6 of 1 and a 1/2 dozen of the other.

 

 

Icemantoo

AnnissaP's picture
AnnissaP
Posts: 631
Joined: Sep 2017

Awesome!! Did you lose your whole kidney? Because I guess the only way to describe if you DID have something would be to call it metastatic since the point of origin is gone. But you don't so congratulations!!!

Angiebby75's picture
Angiebby75
Posts: 192
Joined: Aug 2017

Annisa, Yes I lost my whole kidney, and your reasoning is on the mark. I hope that’s the case.  

thanks, I hope all is well for you and  everyone

Wehavenotimeatall
Posts: 479
Joined: Aug 2017

or you could just be extra clever like Annissa

makes total sense now doh

Angiebby75's picture
Angiebby75
Posts: 192
Joined: Aug 2017

Lol she does make sense.

AnnissaP's picture
AnnissaP
Posts: 631
Joined: Sep 2017

Lol!!

Rockspin
Posts: 77
Joined: Aug 2017

My scan said the same thing - no evidence of metastic disease

Wehavenotimeatall
Posts: 479
Joined: Aug 2017

for you... long may it remain

Kat23502's picture
Kat23502
Posts: 179
Joined: Feb 2016

As a professor in the field I can assure you they are the same thing. The terminology is dependent on what physician is dictating the report. Congrats!

Angiebby75's picture
Angiebby75
Posts: 192
Joined: Aug 2017

Thanks kat and everyone. What relief, I will take a breath and pray that those results will continue for me and others on this journey.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

"You say tomAto, I say tomaato,"

Wehavenotimeatall
Posts: 479
Joined: Aug 2017

i know in essence they are the same thing

but what if you cancer teturn 

JC9
Posts: 1
Joined: Feb 2019

My wife has been fighting Rectal Colon cancer for 18 months with the doctors wanting her to have the standard radiation & kemo treatments and then the BIG OPERATION with the "**** bag". :(

We have been trying a number of alternat cancer treatments, vitamen C, diet, and hords of suppliments. Seven months ago we found a great MD here in Toronto who specializes in Alternate Caner treatments and have also been working with him. Our regular Dr's strongly again recommended the Radiation & Kemo which she finally agreed to and finished just over two months ago, during which she also had the Ozone & Vitamin IV high does drip after which we took a number of suppliments recommended by our alternate Cancer Dr.

The last week of the Rad & Kemo treatments were very rough and the weeks after were painful as expected. However her recovery time was quite short and seems to have no any long term problems and she is feeling great.

She just had her follow up CT this week and the report ended with; "NO EVIDENCE OF MATASTATIC DESEASE".  Not sure what that ment, so I googled it and found this site with the same question. Looks Very Promising.

Will see what her MRI tomorrow has to report. Hopefully & Prayerfully it will be the same. 

I'll keep you all updated.

JC9 

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