No evidence of metastatic disease vs NED ??

Angiebby75
Angiebby75 Member Posts: 208
edited December 2017 in Kidney Cancer #1

I got the call and the nurse said that my scans were back and that there was No Evidence of Metastatic disease. She didnt say No evidence of disease. I trying to understand the difference. Should I be concerned. I didnt think to ask her the difference. I had a partial hysterctomy in 2016 because of heavy bleeding. I still have my ovaries and after surgery the doctor states she removed a cyst. But it still appear to be on there.  This cyst has been there since 2016 and on all my CTs with no real concern from doctors, was just told I can follow up with GYN now. Could that be why I was told No evidence of mestastatic disease instead of NED. Thanks again for your support.

Comments

  • stub1969
    stub1969 Member Posts: 954 Member
    Don't sweat it

    I'd say both terms are the same.  When I meet with the doctors after the scans they say No Evidence of Metastic Disease.   I fact the radiologist included that term in their write-up.

    Congratulations--now celebrate!

    Stub

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488 Member
    Don’t know sorry

    But agree with stub... they can’t be concerned hence NEMD

     but very very happy you are on the path

    now time for you to get that cyst sorted out

     

  • icemantoo
    icemantoo Member Posts: 3,359 Member
    Sounds like

    6 of 1 and a 1/2 dozen of the other.

     

     

    Icemantoo

  • AnnissaP
    AnnissaP Member Posts: 632
    Awesome!! Did you lose your

    Awesome!! Did you lose your whole kidney? Because I guess the only way to describe if you DID have something would be to call it metastatic since the point of origin is gone. But you don't so congratulations!!!

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488 Member
    Ha ha

    or you could just be extra clever like Annissa

    makes total sense now doh

  • Angiebby75
    Angiebby75 Member Posts: 208
    stub1969 said:

    Don't sweat it

    I'd say both terms are the same.  When I meet with the doctors after the scans they say No Evidence of Metastic Disease.   I fact the radiologist included that term in their write-up.

    Congratulations--now celebrate!

    Stub

    Stub thanks. This helps to

    Stub thanks. This helps to know. My mind just keeps wondering.  

  • Angiebby75
    Angiebby75 Member Posts: 208
    AnnissaP said:

    Awesome!! Did you lose your

    Awesome!! Did you lose your whole kidney? Because I guess the only way to describe if you DID have something would be to call it metastatic since the point of origin is gone. But you don't so congratulations!!!

    Annisa, Yes I lost my whole

    Annisa, Yes I lost my whole kidney, and your reasoning is on the mark. I hope that’s the case.  

    thanks, I hope all is well for you and  everyone

  • Angiebby75
    Angiebby75 Member Posts: 208
    edited December 2017 #9

    Ha ha

    or you could just be extra clever like Annissa

    makes total sense now doh

    Lol she does make sense.

    Lol she does make sense.

  • AnnissaP
    AnnissaP Member Posts: 632
    edited December 2017 #10
    Lol!!

    Lol!!

  • Rockspin
    Rockspin Member Posts: 77
    My scan said the same thing -

    My scan said the same thing - no evidence of metastic disease

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488 Member
    edited December 2017 #12
    Happy

    for you... long may it remain

  • Kat23502
    Kat23502 Member Posts: 179
    As a professor in the field I

    As a professor in the field I can assure you they are the same thing. The terminology is dependent on what physician is dictating the report. Congrats!

  • Angiebby75
    Angiebby75 Member Posts: 208
    Thanks kat and everyone. What

    Thanks kat and everyone. What relief, I will take a breath and pray that those results will continue for me and others on this journey.

  • foxhd
    foxhd Member Posts: 3,181
    edited January 2018 #15
    You say

    "You say tomAto, I say tomaato,"

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488 Member
    Hi

    i know in essence they are the same thing

    but what if you cancer teturn 

  • JC9
    JC9 Member Posts: 1
    "NO EVIDENCE OF MATASTATIC DESEASE"

    My wife has been fighting Rectal Colon cancer for 18 months with the doctors wanting her to have the standard radiation & kemo treatments and then the BIG OPERATION with the "**** bag". :(

    We have been trying a number of alternat cancer treatments, vitamen C, diet, and hords of suppliments. Seven months ago we found a great MD here in Toronto who specializes in Alternate Caner treatments and have also been working with him. Our regular Dr's strongly again recommended the Radiation & Kemo which she finally agreed to and finished just over two months ago, during which she also had the Ozone & Vitamin IV high does drip after which we took a number of suppliments recommended by our alternate Cancer Dr.

    The last week of the Rad & Kemo treatments were very rough and the weeks after were painful as expected. However her recovery time was quite short and seems to have no any long term problems and she is feeling great.

    She just had her follow up CT this week and the report ended with; "NO EVIDENCE OF MATASTATIC DESEASE".  Not sure what that ment, so I googled it and found this site with the same question. Looks Very Promising.

    Will see what her MRI tomorrow has to report. Hopefully & Prayerfully it will be the same. 

    I'll keep you all updated.

    JC9