Dry then not dry

Damp
Damp Member Posts: 25 Member

It has been 8 months since my combined prostatectomy/diverticulotomy, and I'm still dealing with the unpredictable incontinence.  I can go several days without much of an issue, then it flares up again.  I'm to the point where I should always wear a diaper just in case.  Is that a normal feeling to have?  I can deal with it, but it would be nice to know if it will be long lasting.  The uncertainty causes a lot of anxiety.  In addition, I have not had any life in my penis since the surgery.  Little Richard has become more of a decorative attachment.  

Comments

  • Clevelandguy
    Clevelandguy Member Posts: 767 Member
    Need more time

    Hi,

    At 8 months I would think you should give it more time.  Depending on how much damage was done when they removed your prostate it might take longer than 8 months to heal.  It took me about 8-12 months to get out of diapers and another year after that with a light pad which I wear today. Today I feel that I am about where I was before surgery.  I would be more concerned about the progress(being dryer) than the time.  As long as you show progress(month to month, not week to week) you should be heading down the right track.  Healing can be a slower than exspected process but hopefully you will get better over the next several months.  Hopefully "little Richard" will start showing signs of life, it's a slow process and little Richard will need all the help from your partner to spring back to life.  Use it or loose it is really true with this type of surgery, little Richard going to need a lot of help to get better, but then that sounds like fun to me.

    Dave 3+4

  • hopeful and optimistic
    hopeful and optimistic Member Posts: 2,333 Member
    .

    I wonder what you are doing to improve sexual health. Daily cialis?  trimex injections?,  vacumm pump, sexual activity? There are doctors who specialize in sexual health, ie. John Mulhall

    https://www.mskcc.org/blog/urologist-john-mulhall-explains-strategies-addressing-sexual-health-concerns-men

  • paulc59
    paulc59 Member Posts: 10
    3 weeks post davinci

    belly pain has finally stopped,blood coming out penis during tough bowel movements has stopped,feeling prett good except for the feeling that all of a sudden my bladder is not totally emptying!! therefore when i go to sit i leak,if i tilt forward leak,if i get into a ca,r leak,its also causing a burning sensation in my scotum area--anyone else expereince this

  • Clevelandguy
    Clevelandguy Member Posts: 767 Member
    edited December 2017 #5
    paulc59 said:

    3 weeks post davinci

    belly pain has finally stopped,blood coming out penis during tough bowel movements has stopped,feeling prett good except for the feeling that all of a sudden my bladder is not totally emptying!! therefore when i go to sit i leak,if i tilt forward leak,if i get into a ca,r leak,its also causing a burning sensation in my scotum area--anyone else expereince this

    Odd feelings

    Hi Paul,

     

    As you heal you will feel all kinds of wierd pains and strange bladder goings-ons, should start to fade as time goes on.  As far as the burning sensataion in the scrotum area it might be a diaper rash kind of thing if its on the outside.  Get a good anti-fungal powder made for jock itch on your private parts.  I use  Lotrimin Antifungal Powder every once in a while, seems to work and I get it at Wallmart.

    Dave 3+4

     

  • Grinder
    Grinder Member Posts: 487 Member
    edited December 2017 #6
    Urologists

    Still don't understand why urologists are not briefing their patients on recovery time.

    Incontinence... 3 to 6 months to show improvement, up to a year or more for complete recovery.

    ED... 1 to 2 years recovery time... But drawing blood into corpus cavernosum through vacuum pump, trimix, cialis, etc. is sometimes necessary in a regular basis.

    Can Little Richard play "Lucille" on the piano like his namesake? Never mind, I just imagined the worst image... :P

    I call mine "Stubby" now, for obvious reasons.

  • paulc59
    paulc59 Member Posts: 10

    .

    I wonder what you are doing to improve sexual health. Daily cialis?  trimex injections?,  vacumm pump, sexual activity? There are doctors who specialize in sexual health, ie. John Mulhall

    https://www.mskcc.org/blog/urologist-john-mulhall-explains-strategies-addressing-sexual-health-concerns-men

    4 weeks post davinci

    Guess im lucky--very minor leakage-think it can probably be taken care of with tissues in the underwear. These diapers and guards are so cumbersome-i cant button my trousers!! I think that is what is adding to scrotum discomfort. At the 4 week mark still no movement from Willie--a little concerned as i  use to get hard at the drop of a hat. Start small doses of viagara tomorrow--supposedly saved left side of nerves-keeping fingers crossed.

  • paulc59
    paulc59 Member Posts: 10

    Odd feelings

    Hi Paul,

     

    As you heal you will feel all kinds of wierd pains and strange bladder goings-ons, should start to fade as time goes on.  As far as the burning sensataion in the scrotum area it might be a diaper rash kind of thing if its on the outside.  Get a good anti-fungal powder made for jock itch on your private parts.  I use  Lotrimin Antifungal Powder every once in a while, seems to work and I get it at Wallmart.

    Dave 3+4

     

    cancer free at 6 weeks

    after a rather smooth rp i am happy to report i have no trace of cancer after first psa test. No pain,minor leakage,and nothing yet with willie ,but am happy that  the most important reason for the surgery route has worked out.

  • Old Salt
    Old Salt Member Posts: 933 Member
    paulc59 said:

    cancer free at 6 weeks

    after a rather smooth rp i am happy to report i have no trace of cancer after first psa test. No pain,minor leakage,and nothing yet with willie ,but am happy that  the most important reason for the surgery route has worked out.

    Congratulations

    and hoping for further improvement 'down under'

    As you probably know, that might take quite some time...

  • paulc59
    paulc59 Member Posts: 10
    edited January 2018 #10
    Old Salt said:

    Congratulations

    and hoping for further improvement 'down under'

    As you probably know, that might take quite some time...

    i have accepted that fact,if it comes sooner i will treat it lik

    like an early xmas present