CSN Login
Members Online: 6

You are here

I have made my decision

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

I had my 6th treatment out of 8 of Oxaliplatin via IV drip yesterday. Since my 5th one 3 weeks ago I had been contemplating of stop my treatment after #6. Although I don't have numbness on my fingers and toes but I do feel somewhat numbness sensation go through my hands when I tap on any hard surface. I don't want to be progressed to permanently. My hair has been thinning out a bit where the dividing line is a bit scarcely shown. My friends said it's not noticeable but I do. I know I sound vain. :/

So yesterday I discussed my concerns with my oncologist who is very empathetic. He said he really would like me to finish all my 8 treatments because it will prevent cancer from returning. I guess it's like the parallel treatment of antibiotics. Even though we feel better from pain or infection after few days of taking the antibiotics but we're instructed to finish it all in order to be effective. He did however reduced another 10% and what a difference it made. Although I did feel drowsy and a bit tired after I got home so I took a nap. when I woke up this early morning, courtesy to my spoiled kitty, I actually feel pretty good. I haven't felt any hand and lips spasm and no eye twitching either. 

So with that said, I made my decision that I'm going to be a good girl and finish all my 8 treatments. If I can give 2 births naturally (no epidural) I can do this! :)

abita's picture
abita
Posts: 891
Joined: Dec 2017

Thank you!

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

Thanks Abita! Hope you're recovering well from your liver surgery. Good luck on your next 8 rounds. Stay strong and think of your kitties. :) You can ask them to reduce the dose as it had helped me and I felt the difference. You won't be losing your hair. Just remember all these side effects are temporary. I'll be thining of you. If you need to talk, message me! 

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

Glad you're done. I hope to get there eventually. Please check back from time to time so that we know how you're doing.

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

Mike, thank you so much and I sure will.  Are you in your 3rd or 4th? If I remember correctly, you started your adjuvant in December, right? Believe it or not, before you know it, you'll be reaching at your last treatment!

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

I'm in my 4th and don't think I'll do more than 6.

Trubrit's picture
Trubrit
Posts: 5294
Joined: Jan 2013

I am so happy to hear you are through, and happy to see you post. 

Happy enough that I think you deserve our friend, the Happy Dancing Man 

Time to move forward, with the added personal strength that this journey has given you. 

Enjoy yourelf and don't (try not to) fret the CT scan. They will be part of your life now, for a long time. Precious time can pass by, if you spend it fretting. 

Tru

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

Woohoo I got my little dancing man from Tru!Feel so honored. LOL!

I have since went back to work and believe it or not, it made me feel like everything has gone back to normal. No more pills to take, no more setting reminders to take the pills, no more forcing myself to eat just so I can take the pills. I feel fantastic, Blood work this Friday, keeping my fingers crossed! 

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

This is music to my ears and it sounds SO GOOD! Congratulations!!! 

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

It sure is, Phil. Thank you so much! 

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

Since my completion of my adjuvant chemotherapy on 2/2/18, I had my bloodwork done last week. My WBC is almost back to normal but my blood platelets are still a bit low. My next CT scan (with contrast) is scheduled on 5/3/18. It's 2 months away and I'm already feeling jittery. :/

abita's picture
abita
Posts: 891
Joined: Dec 2017

Those jitters are hard. Did you have tumor markers? If those went down, then you could try to remember that. My markers went down by a third and the pre surgery scan showed that the tumors shrunk by a third. I know not everyone gets tumor markers. Was your tumor removed before your chemo? So the scan is just to make sure no other cancer cells?

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

Hi Abita, yes, this CT scan is to make sure I'm clear of cancer cells.  I had my colectomy surgery back in August and follow up with the adjuvant chemo therapy. THose jitters are here to stay until I find out the result. 

abita's picture
abita
Posts: 891
Joined: Dec 2017

well, I can't say don't worry, because I know that isn't possible. But I will be hoping for the best outcome for you! I hated waiting a week, I can't even imagine 2 months. Try to enjoy the Spring (I know this is not a spring day) and feel great knowing this most likely is behind you! Plan a great Memorial Day weekend trip or adventure to distract you when your thoughts "go there".

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

Thanks Abita! I know I will get even more anxious as I get closer to that date. Ugh! At least I have my kitties keeping me busy. :)

SophDan2's picture
SophDan2
Posts: 150
Joined: Jul 2017

You have been strong throughout the treatment process, and all signs are pointing in the right direction. You will be clean and put this episode of your life in the rear view mirror. We all know that cancer can come back in the future in some cases but not all. You've had such a positive attitude throughout your teatments, keep it going and you will be found to be clean at your CT Scan.

 

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

I try to keep myself busy and it helps not to always dwell on it. Thank you so much Barry for your encouragement always! 

Pages

Subscribe to Comments for "I have made my decision"