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I got good news today

ckdgedmom's picture
ckdgedmom
Posts: 166
Joined: Oct 2017

Hi ladies...

y'all have been such great support...thank you so much!

I saw my radiology oncologist today and although he didn't say I am exactly dancing with NED lets say we are in the same ballroom and he has spotted me from across the floor and is heading my way...

Quick background: I have Stage 4 UPSC....hysterectomy in Nov 2016, 6 rounds carboplatin/taxol spring of 2017, radiation to abdomen and pelvis June/July 2017 (25 rounds plust 3 brachy) and my radiology oncologist found cancer in 2 lymph glands in my neck and treated them with 30 rounds of radiation and 4 rounds cisplatin.

I had an MRI of my neck on Monday (I had a panic attack so I won't do that without sedation again) and today I went to see the radiology oncologist for results...

The good news: the lymph glands have signifcantly shrunk

the "meh" news: they are on the large side of normal but that may just be how they are

So I will have a PET scan in 6 weeks and he will decide then if I go to the surgeon to have the lymph glands removed if they light up or have not gone down more. They are near my corotid artery so surgery could be risky and could lead to some nerve damage but my RO has full faith in this surgeon (he called him while I was in the office) and so we shall see...

So NED is on my dance card...I'm just waiting my turn for him to come and ask me to dance...I think I would like to waltz...

Thank you all so much!!!! You are the best warriors I could have battling along with me...

take care ladies...

xoxo

Anice

SF73
Posts: 311
Joined: Oct 2017

These news are worthy of a big celebration. How do you plan on celebrating? So glad to hear that you have a medical team that you trust. 

ckdgedmom's picture
ckdgedmom
Posts: 166
Joined: Oct 2017

I have a bottle of champagne that I have been waiting to open since September...I didn't open it then because my doctor informed me we had to treat my neck...so tonight my aunt (who is my mom/big sister/best friend) is coming over and we are going to open it...

I have the best doctors...my oncologist is amazing and she's so on top of things and my radiology oncologist is literally named Angel...how can I lose when I have an angel on my side?

I'm blessed to have the medical care I have...

SF73
Posts: 311
Joined: Oct 2017

L'chaim!

evolo58
Posts: 293
Joined: Dec 2017

YES! It's always great to hear bright news. Hopefully, here's to years of NED. :)

ckdgedmom's picture
ckdgedmom
Posts: 166
Joined: Oct 2017

I hope I dance with him for years to come...I'm so looking foward to "meeting" him in 6 weeks...but so far so good...

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1802
Joined: Jun 2015

Anice, So great to hear this news! Celebrate tonight and have a wonderful holiday season.

Love and Hugs,

Cindi

ckdgedmom's picture
ckdgedmom
Posts: 166
Joined: Oct 2017

Thank you!!!!  I slept better last night...first time in a long time...

just very happy my kids will have a better Christmas this year than last year when I was going through my first round of chemo.  They rae 19 and 24 years old so they are old enough to know that this disease is a bear...and yesterday they were overjoyed to hear that it looks like I might be dancing with NED...

have a wonderful holiday season...we are all blessed to be here to celebrate and enjoy...

xoxo

Anice

EZLiving66's picture
EZLiving66
Posts: 1479
Joined: Oct 2015

I love coming to this board and hearing good news!  Keep us updated but for now, enjoy the good news.

Love,

Eldri

ckdgedmom's picture
ckdgedmom
Posts: 166
Joined: Oct 2017

Thank you...I'm just glad I can enjoy Christmas this year...

xoxo

Anice

NoniK
Posts: 46
Joined: Oct 2017

Thanks for sharing. I am astounded by your positivity base upon your challenges. I’m just beginning the process and fine your posts so encouraging.

ckdgedmom's picture
ckdgedmom
Posts: 166
Joined: Oct 2017

you are so sweet!

i stay positive because I believe it leads toward wellnes!  I trust my doctors and I’ve told myself since I heard the words “you have cancer” that I am a survivor. Cancer has taught me a lot about myself and my faith has been tested. But I’m here. And I know I have a future—-I want to see my kids succeed as adults, love grandchildren when the time comes and hopefully I’ll meet a man that will love me. 

Stay positiv—-I looked at each treatment as a blessing...I named my cancer EL Diablo (the devil) and me and my friends all say “Adios El Diablo”—-even my doctor says it! 

you can do this...you can beat it!

jodil
Posts: 42
Joined: Nov 2017

So glad to hear your news! Happy holidays and enjoy that champagne girl. You've earned it!!!!

ckdgedmom's picture
ckdgedmom
Posts: 166
Joined: Oct 2017

Thank you!!!!!

Still saving the good stuff until after my PET scan in January but for now a little fun bubbly to celebrate the season and the fact I am still here!

Happy Holidays and Happy 2018 to you!

saltycandy13
Posts: 167
Joined: Dec 2017

Anice, I am so happy for you!!!  I wanted to cry tears of joy.  YOU HAVE BEEN SUCH A GREAT WELCOME to me.  And I sincerely hope and pray you will continue to have nothing but good news!  You are a SPECIAL LADY.  

God Be With You!

 

Karen

ckdgedmom's picture
ckdgedmom
Posts: 166
Joined: Oct 2017

Awww sweetie thank you!

Hang in there...none of this is easy and this time of year makes it harder...

I just saw on my health portal that my CA125 is 13.3 so that is more good news...just waiting on that PET scan in January and to hear my beloved Dr (who's name is literally Angel) tell me that I am NED...

praying for you....

xoxo

Anice

SF73
Posts: 311
Joined: Oct 2017

So happy for you!

Wannabeatit
Posts: 98
Joined: Dec 2017

That is good news! Have been thinking of you. Good luck in the new year with the rest of your results

ckdgedmom's picture
ckdgedmom
Posts: 166
Joined: Oct 2017

Thank you ladies...my MRI looked good and now a good low CA125 gives me peace until my PET in January...my doctor's name is literally "Angel" so I think I am in good hands...the man is a miracle worker...

evolo58
Posts: 293
Joined: Dec 2017

Time to enjoy those holidays! Great news!

 

ckdgedmom's picture
ckdgedmom
Posts: 166
Joined: Oct 2017

Thank you evolo58!

We all should...I hope you have a wonderful holiday season

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