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Eyelids Twitching

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

After receiving my 5th IV drip treatment (Oxaliplatin) the day after Thanksgiving, I noticed neuropathy got to my eye lids. When I left the clinic and as soon as exposed to the cold air, my eyelids twitched and fluttered. My eyes started to close and I couldn't see. It lasted about few seconds then went away. It went on and off few times. I tried to put my hands over my eyes to block out the cold air but my eye lids still spasm up. I looked like I was playing peekaboo with myself. Lol. How do you even protect your eyes without blocking your vision? Sunglasses didn't work. I couldn't go outside the weekend because I wouldn't be able to see. 

Trubrit's picture
Trubrit
Posts: 5380
Joined: Jan 2013

And you may not lose one single hair on your head. 

No, I didn't wear a wig; and I only wore a hat if I was out in direct sunlight. I hate anything (but hair) on my hair at the best of times. 

And yes, it was worth it. Even now that it has grown in straight, I am not complaining. 

I just hate it when a Doctor tells their patient they won't lose their hair when on FOLFOX - I can't speak for any other chemo cocktail -  because for some of us, it happened, and being prepared for it to happen takes the sting out of a very distressful event. 

Tru

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

I know some chemo combos are likely to cause hair loss.  Also different doses can cause from either hair thinning to complete baldness. I'm not sure about other cancer but seems that almost all breast cancer patients always lose hair from their chemo. Both my surgeon and oncologist told me that there is a small percentage of colon cancer patients do lose their hair completely but most just have hair thin out. I noticed my hair thinned out a bit since my treatment started. 

Also I read that chemo can cause the change of hair texture.  Curly to straight, thin to thick, vice versa. 

Tru, you are much prettier than Gollum! 

Trubrit's picture
Trubrit
Posts: 5380
Joined: Jan 2013

I have them, Gollum doesn't Gollum emoticon (Horror Emoticons)

Thanks Lily. 

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