Eyelids Twitching

Hello Lily,

I was looking at Balaclavas at Costco this past Sunday and they had Ski Googles next to them. Here's an example:

I had eye twitching in the hospital following my surgery for about two weeks but I think that it was environmental. I have ragweed allergies and it was the right season and they continued after I left the hospital. If I didn't close my eyes, they would tear up after a few minutes of a lot of blinking. BTW, I have a balaclava shirt and I will wear it in full Ninja mode when it's cold and/or windy. I might need that ski mask too if I get the Oxaliplatin. I think that there are some models that will fit over glasses too.

I never had that side effect, and being in SoCal, I didn't have to deal with that kind of cold during chemo, but as I have mentioned, the strangest effect for me was an increase of floaties in my eyes. I found myself chasing little "squiggles" to the edge of my sight all the time, and wondering what that meant for my eyes. The good news is that it went away, or at least back to the normal amount................................Dave

Hi Lily,

Having completed my 12 treatments of Folfox (with Oxy) within the last 3 weeks, I realize that there is a difference between neuropathy and the extreme sensitivity to cold. It appears that your are experiencing what I was concerned about, had my treatments continued into the winter months. Unfortunately, other than stopping the Oxy, you will continue with the sensitivity to cold.

Now that I am off of the Oxy, the sensitivity to cold has ceased, however, the neuropathy is continueing in my fingertips and toes.

Those ski goggles my be a good look

Good luck Lily!

during the actual infusion.  It was to the point that I️ couldn’t read or play on my iPad.  After the infusion finished it went away but would resurface at the strangest times ( no correlation to cold or anything else).  I’m 8 months past the oxy and happy to say it’s gone.  No more twitching 

pam 

Lily Flower said:

Hey Barry and thanks! hope

Hey Barry and thanks! hope you're enjoying your life post treatment. Like I had told you before that your timing is perfect, ended right before the holidays. 

You're so right about the neuropathy and the sensitivity to cold that we feel from Oxy. My eye twitching was definitely from the cold. That Friday as I walked out of the clinic, I also felt pins and needles going up from my legs to my rear. No puns intended but it was a pain in the a$$. Lol! The last couple of days my eyes haven't twitched.

So far I haven't felt any numbness at my fingertips and toes. However, I do feel the sensation going through my fingers whenever I tap my fingers on hard surface. 

I am feelinbg better with each day! The tase buds are slowly coming back and the cold is a non-issue at this time.

You must live somewhere cold, I'm north of Boston, where it has been pretty cold already.

A sense of humor is very helpful when dealing with our circumstances. Keep warm and remember that the cold sensitivity will, subside when treatment ends. the neuropathy feelings that I am experiencing are tolerable, with the hope that they will eventually lessen over time.

Take care

Mine did the same and also the eyeballs twitched as well.  Scared the heck out of me, they told me that was one of the side effects but they never gave me a solution.  It was very annoying.  Hope that it gets better for you.  This treatment has some weird side effects and it seems to me the doctors don't tell you all of them.  Wishing you well.

Kim