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What cancer patients, their families, and caregivers need to know about COVID-19.

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AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

2.8cm Clear Cell RCC. Lost the kidney because the tumor was in the collecting ducts. pT1a N0 M0 Stage 1 grade 2. Was confined to kidney and they got it all. NOW it is all starting to settle :-(

Wehavenotimeatall
Posts: 479
Joined: Aug 2017

but that is a good report

Signs are good that you will never have to talk about this again

 

Now you can relax a little and get back to normal

So pleased for you

daisybud's picture
daisybud
Posts: 470
Joined: Jan 2016

Mine was 2.5 ccrcc also. Takes a while for it to settle in.  Sending you good vibes

Kim

Angiebby75's picture
Angiebby75
Posts: 196
Joined: Aug 2017

I know letting it settle will take time. I am still trying to do the same. I have good days and bad. I try to keep my mind on other things. But what I read your report sounds similar to mine which I was told was a good report other than benign.

MelBlessed's picture
MelBlessed
Posts: 71
Joined: Aug 2017

AnnissaP, that’s a great report! Now we just take it one scan at a time!!  Take care!

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Good news on report. Now back to recovery and healing.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Thank you all!! Today has been a tough one, but positive as well. Here's to another 3 weeks of resting and healing!! That is just the physical. Not sure how long the emotional side will take since it is just hitting home now. To be honest, part of me feels guilty that I am ok yet my dad died from the same disease. Strange feelings......But thanks again for the positivity!!!

kankamuso
Posts: 14
Joined: Nov 2017

... seem to be quite a usual emotion many people feel. I do when I eat anything my dad cannot because of his condition. Or when I am having fun and think "oh, perhaps he will not be able to live this"... So I understand this is confusing but just when you recognize you are thinking like this try to dismiss it as a fully and expected normal experience. Just a human experience, not a real guilt. Nothing strange here as my psycho explains to me. 

 

Best wishes and stay strong, improvement both physically and emotionally will come without noticing, slowly. Accept it and keep moving.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Thank you!!

Rockspin
Posts: 77
Joined: Aug 2017

Sounds like positive news. I had my total right kidney removed too in September. Here's hoping all scans are NED!

Rockspin
Posts: 77
Joined: Aug 2017

I go have a question though - my pathology was also pt1a grade 2 and the tumor was 3.5 cm. I was wondering what decides the grade of 2? Instead of 1. What is the difference?

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

 I thought it meant how aggressive it was (slow growing vs fast growing). Today my dr said a grade of 2 is good.

Jan4you's picture
Jan4you
Posts: 1324
Joined: Oct 2013

Annissa, well now you are on your way to FULL recovery, mind-body-spirit!

Not sure what your belief is, but I sensed your dad has been near you all the way and will continue so.

He is okay and wants you to know YOU are too! Yet on the humal level we're  all still learning, growing and waiting 

for acceptance, right?

So if you could see your daddy's happy face, what would you want to tell him now?

Sending you HUGS, HEALING and HOPE!

Jan

 

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Thank you!!!!!!! Your message means a lot to me <3

APny's picture
APny
Posts: 1972
Joined: Mar 2014

Anissa, that's a very good report. I'm sorry you lost the kidney but the important thing is that the RCC is gone. All the best to you! I hope you can start feeling a little easier now that your path report is back.

Rockspin, the grading depends on how closely the cancer cells resemble normal kidney cells. Grade 1 = closest to normal, grade 4 = very different from normal. A grade 2 is not bad at all. It may still be mostly grade 1 cells but if they find a certain number of the higher grade ones the pathologist classifies it by the higher grade.

Rockspin
Posts: 77
Joined: Aug 2017

Thanks for the info.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Thanks again everyone!! All of your messages help. I know "friends" mean well, but they have no idea. They all say " I am so glad you are better!" What is that supposed to mean? Now that the tumor is out I just go on with life like nothing happened? Just like the rest of you, my life will never be the same. I cannot say I am free of this. It was just taken out. I am still healing and will have my first scan in 3 months. Today was the day the doctor actually looked me in the face and said 100% it was cancer. When can I say I do not have kidney cancer? Is it after 5 yrs of clean tests??? 

ImNotDeadYet's picture
ImNotDeadYet
Posts: 244
Joined: Apr 2017

I hesitate to say I don't have cancer (even before my current adventures with lung nodules). Instead, I simply say that I'm surviving cancer. The way I look at it, every day that I'm above ground and breathing is a day I've survived cancer, whether I have it or not.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

That makes sense!

randyradiohill's picture
randyradiohill
Posts: 66
Joined: Aug 2017

Congrats....that report is about as good as you can expect under the circumstances.  The emotional/mental part of healing is tougher than the physical part.  It has been for me anyway.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

It definitely is tougher. It is just hitting me now!!!!

Allochka's picture
Allochka
Posts: 888
Joined: Nov 2014

Excellent report! These are very good news.

mental healing takes time. You should try to live as if nothing happened and try to limit anxiety for scan times only. But it really takes time!

stub1969's picture
stub1969
Posts: 821
Joined: Jul 2016

Hi, Annissa.  Hopefully you feel much better after reading from our Kidney Cancer family here on this site about your report.  Stage 1a and grade 2 is about as good as it gets.  Celebrate....in moderationWink

Stub 

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

to show us your smiley face.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Thanks Stub and Foxhd!!!!

stub1969's picture
stub1969
Posts: 821
Joined: Jul 2016

with Fox, Annissa.  I look forward to seeing your light shine through a picture with a smile. 

Stub

jazzgirl's picture
jazzgirl
Posts: 152
Joined: Nov 2017

Hey Annissa,

Those were the best words I heard after surgery (along with "clear margins") and I am so glad you got to hear them.  Yes, the emotional side does seem more difficult than the physical at times - for me it ebbs and flows, including those feelings of guilt.  Know that you have lots of prayers and good thoughts from people who identify with what you have been through and your path forward.  Take care.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Ok ok! I changed my picture lol. I truly appreciate all of the messages. Thank you!!!!!!!

jazzgirl's picture
jazzgirl
Posts: 152
Joined: Nov 2017

Now THAT’S a smile!

stub1969's picture
stub1969
Posts: 821
Joined: Jul 2016

Great picture, Annissa.  Like Jazz said, "Now That's a Smile!"

Stub

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

:-D

icemantoo's picture
icemantoo
Posts: 3243
Joined: Jan 2010

Annissa,

 

Keep it up for another 30 or fourty years.

 

Icemantoo

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

I hope to!!!! Lol

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Now this is how karma spreads. Great example of great news followed with a look of sincere happiness. The smiles are spreading and everyone feels a bit better. Across the board, karma healing at it's best. Nice work AnnissaP.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Thanks foxhd!!!  You are a treasure here!!!!

Angiebby75's picture
Angiebby75
Posts: 196
Joined: Aug 2017

Annisa great pic.  I had my first salon visit since the surgery it is the little things that make you feel more like your old self. A smile does a lot.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Good for you!!!!! It must have felt great!!

kiwi68's picture
kiwi68
Posts: 110
Joined: Oct 2017

Annisa,  this is great news.  Happy to hear that the pathology was as expected.   Love your happy new profile picture.  I don't know why but I keep adding one but it never shows up. User error probably.     Keep on with the mental approach to understanding what has happened and accepting and understanding it.   You will have lots to think about in the future, how you position your new health status along side all of the other considerations in your life.  I am sure you will do well at it though, you seem very in touch with your emotional health and well being so will takes whatever steps are necessary.   Best wishes for the next 3 weeks of physical recovery.  Jo xx

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Kiwi!! Thank you so so much!!!!! I appreciate your words. Maybe try deleting your current pic first then adding the new one? I updated mine that way and also just by adding a new pic. Good luck!!!

Canadian Sandy's picture
Canadian Sandy
Posts: 556
Joined: Jul 2016

Love your smile Annissa.

 

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Thank you Sandy!

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