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AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

I have no idea if what I posted before even made sense lol. (thanks to all the meds). I just got home and will try this again...

The tumor had grown since being found in August. According to the CT scan images they should have been able to cut out a certain-sized wedge and see clean kidney. However, everytime they cut it was still tumor. It went deeper than the images had shown. They had to remove the whole kidney because not much was left after achieving a clear area.

I have walked as much as possible. The nausea was awful yesterday and the worst today. I have taken all of your advice and def appreciate it. I will be honest and say at times the pain has been excruciating. Certain movements are way more painful. It still is not reality that I have lost the kidney.

Thank you all for the encouragement and kind words. It adds strength!!! Every minute and every step is bringing me closer to a normal, healthy life again.

 

Anyone who is currently healing or about to experience this....take all the help and encouragement you can get. We cannot do this alone. All the best to you xo.

kiwi68's picture
kiwi68
Posts: 110
Joined: Oct 2017

Annisa, glad to hear you are home and recovering.  The pain and nausea will pass.  The fact that they took the whole kidney is a shock, but I am sure in time that will settle with you.   So very glad that you through the worst of it (fingers crossed). 

 

 

icemantoo's picture
icemantoo
Posts: 3280
Joined: Jan 2010

Annissa,

 

Your recovery time has arrived.

 

 

Icemantoo

Dsmith23's picture
Dsmith23
Posts: 8
Joined: Oct 2017

I’m so glad to hear that everything went well. I’m sorry that you are having pain and nausea. Thinking of the pain terrifies me. I’m ready to have mine done and behind me!

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

When is your surgery???

Wehavenotimeatall
Posts: 489
Joined: Aug 2017

You are doing amazingly well  after your very tough ordeal

The first Seven days are tough so hang in

Now you are home you will be able to relax a little

I know it has been tough but hopefully you will be feeling calmer now that the whole thing is gone

 

Hugs

Annie

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

I am def more relaxed and comfortable at home. Thx for the message!

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Hang in there. The pain will definitely lessen. The first week is the toughest, especially getting in and out of bed. So sorry you had to lose the kidney but if he couldn't get clear margins that would have been way worse. You'll be so much better being home. Keep well!

randyradiohill's picture
randyradiohill
Posts: 66
Joined: Aug 2017

I'm glad you're home and on the mend. The pain meds made me nauseous too, so I wouldn't take them.  You'll feel much better, just listen to your body and get ready for the fatigue.  It has taken me a couple of weeks to get my energy back.  You'll do just fine....

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

that there is no advantage to pushing yourself too soon. Be kind and patient with yourself.

sandy23
Posts: 143
Joined: Jan 2017

So glad that you have this surgery behind you!!  Being a worrier myself, I know how hard it has been.  Please get plenty of rest!!

ImNotDeadYet's picture
ImNotDeadYet
Posts: 244
Joined: Apr 2017

And listen to Fox, and don't push too hard. As my favorite musician used to sing, "All good things in all good time." You've got this! 

Canadian Sandy's picture
Canadian Sandy
Posts: 637
Joined: Jul 2016

Glad it’s all over. Get lots of rest and exercise as much as you can.

foroughsh's picture
foroughsh
Posts: 779
Joined: Oct 2014

The worst part is over, wishing you speedy recovery

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

Whew!! Glad its over and you are home and not on hospital staff's schedule!

Have you tried ice?  ICE< ICE ICE~ And I used that lumbar wrap to hold and supportthose aching, sore abdominal muscles/tissues

It helped me get UP from sitting and laying down. 

And I wonder if some of this pain is also related to that trapped gas.

Yes, that hurts, a lot! BUT its gas and it will leave ...takes a few days unfortunately. 

First week is a challenge.

Sorry you lost your kidney, but now you have your LIFE!

Cancer goes with that kidney was my mindset!  I'm nearly 4 years NED.

Sending you healing hugs, kindness .. but please do not rush this recovery. 

Jan

 

Angiebby75's picture
Angiebby75
Posts: 207
Joined: Aug 2017

Wishing you a speedy recover. I have had a lot of nausea also. I ended up losing my entire kidney also. So I understand how your feeling. Your post and give me encouragement and have a better outlook

Supersum's picture
Supersum
Posts: 103
Joined: Aug 2017

Hello AnnissaP it must be good to be home you can relax and breathe deeply and start the long and gentle road to recovery, little by little, step by step, no need to push too hard.

Most ongoing pain for me (well over 4 weeks) was getting in and out of bed. You might have already read my post about it but here is the link in case you haven't.

https://csn.cancer.org/comment/1601244#comment-1601244

Try to think smart if you are having pain with other movements, think what you can do to minimise the pain. Have you sneezed yet? It's a killer. Press down in preparation, same for a cough.

You also might be interested in reading my comment here where I come out of the PTSD-closet (is there such a thing?):

https://csn.cancer.org/comment/1604042#comment-1604042

Just by waking up each day you are further along the road to recovery as time weaves its healing magic. You are over the difficult part now things will start to get better.

Bless you for a speedy recovery.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Thank you for the kind words. The bed part IS the killer. Wow! I will read your posts. You are right about the ptsd part. Our bodies heal, but what about the mental and emotional aspect? For me, reality still hasn't settled in. Kidney cancer. Surgery. Yeah right!?! It is all too crazy. So good of you to bring that up in conversation. You could really help a lot of ppl. Thanks again.

daisybud's picture
daisybud
Posts: 490
Joined: Jan 2016

You a quick recovery!

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Holy sh*tballs!!! Laughing is so painful. How do you not laugh though when something is soooo funny? Everytime you think about it you crack up. Man is it hard!!!! Lol. I hope I never sneeze :-o

Angie1496's picture
Angie1496
Posts: 154
Joined: Sep 2017

Two days after my surgery I felt a sneeze coming on... I went into full panic mode!!! I think God stepped in and made it stopped because it passed but MAN was I freaking out!!!  You are right laughing is painful!!

rdoyd2
Posts: 80
Joined: Aug 2016

Sneezing is hard too. The laughs hurt but man they made me feel good. you feel a lot better in a couple weeks.

Supersum's picture
Supersum
Posts: 103
Joined: Aug 2017

Hello Annissa how are things going have you been going on any walks outside yet?

love_of_my_life
Posts: 77
Joined: Jul 2012

Hope this recovery period is short and you are back on your feet in no time!

Rockspin
Posts: 77
Joined: Aug 2017

Glad you're home and now are on the mend also thanks for the update. I had my right kidney out on September and the pain meds made me sick so I stopped taking them it helped. To DSmith 23 good luck to you. Hope all goes smoothly and that you're on the mend soon.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Hi all!! Sorry I disappeared, but have been back to the hospital since Sunday. I was really weak and light headed. Passed out on Sat so ended up in this lovely place again lol. I was dehydrated. They did a thousand tests and everything is fine! I have been walking and feel back to life today. I should after having around 8 bags of IV fluid lol. Thank you for all of the comments and well-wishes! Will any of this ever seem real? For some reason I feel a bit anxious to get the results. Already had a shocker finding all of this out so who is to say another shock isn't in store?? Ugh...I hope it is a "good" shock xoxo.

Wehavenotimeatall
Posts: 489
Joined: Aug 2017

Great to know all well except your slight diversion

Terrible ordeal waiting on the report

Hope it is not too much longer

Keeping it postitive

randyradiohill's picture
randyradiohill
Posts: 66
Joined: Aug 2017

I know that anxious feeling very well.  My path report wasn't what I expected and it threw me for a loop.  You'll feel much better once you get the report and know what you'll be dealing with.  Make sure you drink lots of water and eat something even though you're probably no hungry.  I lived on chicken noodle soup and scrambled eggs for the first week out of the hospital.  It was 2 weeks before I even felt I could eat anything at all.  Get lots of rest...Ill keep you in my prayers.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Thanks! It is hard to drink so much when I am used to being dehydrated my whole life ahahaha. So important though. I cannot remember if you posted your results but I hope everything is ok!

randyradiohill's picture
randyradiohill
Posts: 66
Joined: Aug 2017

My path report wasn't as good as we'd hoped.  The tumor had broken containment and was starting into the renal vien.  It diagnosed as a T3a...The good news is the margins were negative as was the fatty tissue around the tumor and nothing in the lymph nodes.  My surgeon is optimistic, but I'm still a little anxious.  I had my sit down meeting  with him yesterday and he showed me a study from Sloan-Kettering in New York which puts recurrance at 8%.  Hope your's is better.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Sorry to hear that! It does sound positive though (easy for me to say). Sounds like they got it just in time. Although it broke containment, everything was clear. Also, 92% chance of never coming back!!!!!! I should have my results on Nov. 28th.

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