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Was just diagnosed

Sal7864
Posts: 52
Joined: Nov 2017

with kidney cancer , 5cm growth on right kidney, meeting with specialist tomorrow for a plan of attack. My general doctor does not think it has spread. Not going to lie. I am scared as heck about this.

 

I am hoping that he only removes bad part and keeps the kidney, as I have read that if you only have one, it could be overworked causing chronic kidney issues down the roar, but don't know how true that is. I will ask my dr. tomorrow , my primary does not think that I will need and chemo or radiation, I hope he is correct

Cybball
Posts: 111
Joined: Nov 2017

Thanks Sal.  Good luck on the results.  The waiting on results seems to be one of the worst parts of this whole thing, at least at this point.  

Joy Mc
Posts: 2
Joined: Dec 2017

I just joined this chat forum.  Needless to say when most people hear the word "cancer". For me, anyway, I just "lose it"...cried for days.  I had an MRI for chronic lower back pain and when the nurse called me last month saying you have this kidney mass in your rt. kidney and need a CT scan to confirm.  My primary immediately ordered that and sure enough it came back possitive for cancer.  I see the urology surgeon today.  I feel like this is a death sentence and althought I'm 76, my Mom is 97 and I was hoping for a few more years on planet Earth to be with my family. I've been so upset, nervous, fearful, reading my bible daily, and reading what other people have written in about that size of tumor and it's hopeful in that from what I'm reading it is small.  I just have to see what the surgeon says.  I had a scan in 2013 and it didn't show anything, so in 4 years time, this tumor has gone from non existing to 2.3 cm...so I'm not one to sit around and have it watched and see if it "grows"...to get that size in 4 years tells me in another 4 years it will have spread to my lungs or ?? Just wanted to be able to "vent" to people who have my same situation and I know it's all up to the surgeon what he tells me today and my "fate".  Wish my good prayers.  Thanks and well wishes to everyone undergoing this cancer

 

Joy Mc
Posts: 2
Joined: Dec 2017

I failed to add that because of "untreated HIGH BP for a few years, I have pre kidney failure with my GFR stabe in the 40's for over 15 years.  A huge factor in that I hope the surgeon can perservce as much kidney as possible if surgery is my option.  Anyone else with kidney failure AND kidney cancer?

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Hi Joy! I do not have kidney failure but was just diagnosed with kidney cancer. Initially the scans showed a 3.6cm mass. I was to have only part of my kidney removed. The tumor ended up being 2.8cm instead but sitting more deep in the kidney than they thought. They ended up taking the whole kidney. I had a scan just at the beginning of the year and several over the last cpl of years. The tumor only showed this past August. Surgeon said I probably had it for 6-7 years as RCC is typically slow growing. At 2 or so cm it def is NOT a death sentence!!! I hope not. I am only 39 lol. It should still be confined to the kidney so they just remove it and you heal and enjoy the rest of your life. I know it is awful to hear the news, but they move quickly and you may be more at ease once all appts are in place. Take care and know you are not alone!!!! I just had my surgery 4 weeks ago!!!

Deanie0916
Posts: 414
Joined: Nov 2016

Hope you have good news or a clearer idea of what lies ahead! God bless, praying for you. 

Sal7864
Posts: 52
Joined: Nov 2017

Hi Deanie,  I'm still having some post-op issues had to have a stricture taken care of so I have to self cath two times a day for the next month and then one time a day for the month after that and every other day the month after that but I still feel dizzy at times and weak and have some abdominal pain so next week I'm going for another scan pelvis and abdomen to see if anything's going on. Thanks for asking and how are you doing?

Iceball 007's picture
Iceball 007
Posts: 4
Joined: Dec 2017

Hi Joy MC,

Try not to stress. I had a 2.7 cm mass right kidney. third person in my immediate family to get cancer (brother had stomach) and mother had pancreatic).  to treat my little tumor I had percutaneous CRYO ablation under CT guidance to "freeze" and kill my kidney tumor. This is becoming more popular for treatment of small renal tumors especially for those folks who have other health issues. I took 8 days off work. Procedure was done as outpatient under general anesthsia. they did the biopsy using a needle before the freezing and then the cryo needles are placed under CT guidance and they freeze the tumor and a small amount of surrounding tissue to make sure they get it all. the pathology showed clear cell renal cell carcinoma grade 2. I will follow with CT scan at 3 months,6month,1year and yearly thereafter for 4 more years. The Interventional radiologist that did the procedure told me due to the fact that my tumor was in the back of the kidney it would have been a tecnicaly difficult to do a partaial nephrectomy and that the tumor was in perfect spot for the procedure i had. This cryoablation is just as effective as a cure for small kidneys tumors as the tradtional partial kidney removal according to the latest studies. Talk to your Urologist before deciding on the best treatment and research on Google percutaneous cryoablation for kidney tumors which will explain further. I had minimal pain after the procedure and no complications since procedure a month ago. My prayers go out to you and continue to read your Bible it has been a comfort to me.

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