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Who's on Deck?

airborne72's picture
airborne72
Posts: 275
Joined: Sep 2012

Tomorrow is DARCHER's surgery date.  Let's all remain mindful of and prayerful for him.

Jim 

Trubrit's picture
Trubrit
Posts: 4784
Joined: Jan 2013

and routing for Darcher. 

May the hands of his surgeon be guided. 

Looking forward to hearing updates. 

Tru

lizard44's picture
lizard44
Posts: 409
Joined: Apr 2015

Will be thinking about darcher and sending positive thoughts for successful surgery.

Grace

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

Check. We should do this for everyone who wants it.

Ruthmomto4's picture
Ruthmomto4
Posts: 624
Joined: May 2013

sending good thoughts for a successful surgery and easy recovery!! Good luck!!!

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

Praying for a great outcome for you!

May the surgeon make the best decisions and the nurses and aids take great care of you during your stay.  

--Beth

PamRav's picture
PamRav
Posts: 244
Joined: Jan 2017

me in.  Best wishes for a good outcome and a speedy recovery. 

Pam

darcher's picture
darcher
Posts: 257
Joined: Jun 2017

Getting ready to head in.   Bringing the cell but I don't know that they have wi-fi or even a signal there to post from.  At the radiation center there wasn't and here who knows.  I would think they don't want cell phones going off every 10 seconds.  It's about 5 am here and I'm due to arrive at 6:30.  Nevous and at the same time optomistic.  We'll see how this goes.  I expect to be out sometime this afternoon.   I'll keep everyone posted.   Keep up the faith.

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

All of the hospitals that I’ve dealt with lately have had WiFi. My radiation center didn’t. They will take your cell, clothes, shoes, etc for surgery and check valuables so it might be a bit before you get them back.

Best if luck and wishes in your surgery and we’ll see you on the other side. You may be quite out of it and I will certainly understand if it’s a day or two or three before seeing you. I do recommend short and sweet at first.4

darcher's picture
darcher
Posts: 257
Joined: Jun 2017

Did the surgery and went off without a hitch.  They do epidermal which is kinda nice.  No bag, no complications, and was done inside 3 hours.   Wasn’t so bad after all.  I’ll post more of the play by play in a while

Trubrit's picture
Trubrit
Posts: 4784
Joined: Jan 2013

That was quick, and you don't even sound drowsy. 

Still, be good to yourself, and take care not to overdo it, while making sure you walk plenty. 

Tru

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

Outstanding stuff and you seem a lot more lucid than I was in the evening. Get some rest and take your time posting.

lizard44's picture
lizard44
Posts: 409
Joined: Apr 2015

So glad it went well.

Grace/lizard44

lizard44's picture
lizard44
Posts: 409
Joined: Apr 2015

So glad it went well.

Grace/lizard44

NewHere's picture
NewHere
Posts: 1072
Joined: Feb 2015

Sorry I was not around for a few days, so totally missed this.  Glad it sounds like you rocked it man.

Kmessier's picture
Kmessier
Posts: 79
Joined: Nov 2016

I'm glad to hear everything went well my thoughts and prayers are with you 

m~~ Kim

Kmessier's picture
Kmessier
Posts: 79
Joined: Nov 2016

I'm glad to hear everything went well my thoughts and prayers are with you 

m~~ Kim

blessed39's picture
blessed39
Posts: 88
Joined: Dec 2016

Sounds like everything went the way it was supposed to go. I have been praying to the same guy that healed me.

Just get all the rest you can and listen to the pros. You are going to do great.  God bless you  blessed39

darcher's picture
darcher
Posts: 257
Joined: Jun 2017

Did some laps around this floor.  Found the coffee machine, thank god.  Just got a shot of something that starts with “H”  Hepiderm or something In my stomach.  It’s for blood clots as said by nhmike.   From what they’re telling me I might be out of here monday morning. The pain medicine is not narcotic.   I guess the hope is that by doing an epidermal that it won’t put the intestines to-sleep speeding up recovery.  I’m already bored and it’s only been 3 hours. I also know that I don’t know so I won’t force the issue.  Doctors orders   Getting the usual praises from hospital staff so that isn’t helpful. Well see what happens next.  i do have staples.  My first real battle scar, lol

airborne72's picture
airborne72
Posts: 275
Joined: Sep 2012

Whenever someone in this forum experiences a positive outcome the relief is shared by all.  I feel good knowing that your surgery was without incident, pain and especially a bag.

Follow their instructions.  Your immediate and most important task is to recover from the surgery so you can return to normalcy as soon as possible.  Trade a little inactive time now for a lot more active time later.  Congratulations.

Jim

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

It sounds like their surgical approach works, or you're in better shape than I am. I could not get out of bed the day of the surgery. There's a lot of education that they're going to give you (you may have had some in pre-op), and you should try to get it down by the time you leave. They may give you a Visiting Nurse to help out at home but ideally you'd have it down cold by the time that you leave. Yeah, it's heparin. Hopefully you don't have to inject yourself with it when you get home. That seems to have only happened to me here.

It can also be a stimulative environment (the nurses were very chatty) and sometimes not getting enough sleep catches up with you. There's some work in sending emails or making phone calls to friends and family too. Great job!

darcher's picture
darcher
Posts: 257
Joined: Jun 2017

i suspect they were trying out a new type of anethesia process.   Im using their in room compuror to type this and can't reallly see the words to well.  Screen is up on the wall.  Im trying to  slow myself down a little bit.   I didn't see one other person on this floor ias mobile as I was today so maybe Im  over doing it,.    I did throw up eating a big mac but what was really odd is I ididn;'t get the usual cramping  and so forth sensations just prior.  From one moment to the next it just came up.  When I get the Hemprin shots I dont feel anything at all.  I suspect it's  the meds masking the pain a bit too much.  I should have been doubled over but I wasnb't so that kind of scarred me.  However, there was no dietary restrictions.   After the recovery room they had me on Ox and had those leg compression things on.  I had the oxygen removed and they were ok with my reaction along with the leg constrates. taken off . Next item was the BP,  oxygen saturator ,and heart rate monitor.

This is where it gets strange. At first nothing was going on with it and that was just prior to me "really" waking up.  I went and got coffee and was just cruising aroung the floor and some of the looks I got were shocked as if I wasn;'t supposed to be doing that. .  Fact is.,  I didn't feel a thing.  It wasn't all peaches though.  There must have been some left over material in the colon because at one point it all came out while I was sitting on the bed.  I thought it was just gas but the bad thing was I had zero control over it.  Like when I thre up a little later, this just came out.  This I believe is attributable to the epidral Anyhow, after making a few trips for coffee etc the machine started going off with an alarm.  Low pressure and or heart low rate. 

 Nurses had to come in a couple times and piior to that they had a "risk of fall" tag on me.  One of three tags I got in preop,  That was because my BP fell beloww 100 and heart rate under 60.  I guess they figure you're much more likely to collapse.  The nurses disconnected the machine knowing that I wasn't a risk after seeing me make the trips down the hall. The nurses were a little concerned that I was able to get around with such a low BP and I did fib a little bit saying it wasn't uncommon for that to happen. I had a  strong suscpion  as to what it was.  

 On the one hand having an anathesia that strong seems like a blessing but I got a feeling I'm going to pay for it once the chemical bag goes empty.  Then again, my big fear (the colostomy bag) was avoided.  That was about the only stress I had and with it gone, I would expect the vitals  to relax  a bit.  I came through this with no black marks.  It almost seems unfair.  In all honesty, it probably is and why I was blessed with a clean escape I don't know.  I expect to find out soon enough.  Nothing is free and this has a steep price I'm sure.

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

You've provided a fair amount of entertainment for my family this morning but it sounds like you are alright.

I was fluids only the day of surgery and went on unrestricted diet the second day but my body did not feel like eating much. I had, at most, 400 calories - might have been 200 as I don't have my notes handy right now. Then I've eaten a little more each day but I've been under 1,100 calories per day since surgery and that's likely to be the case today. I feel ravenous at times during the day but I don't necessarily feel like eating - difference between mind and body. So I might lose a few pounds or more over the next week but that's okay.

I am the last person to suggest taking it easy but I do think that you should listen to the staff. They might have put you on an unrestricted diet assuming that you wouldn't feel like eating much anyways but the new approach to anesthesia and painkillers might mean that the tamped down desire for the body to eat after surgery is suppressed. They recommended that I start off with easily digestible foods (simple carbs) and then move on to other things. I have the feeling that I can eat more or less anything right now but I'm going to take it step by step.

What happened with me is the routine anesthesia and I figure that it took two days to wear off. So there is a declining level of painkillers over two days. If I wanted more, I could use the painkiller pump to add more. Then it was removed on the third day and they offered Oxy in pill form on-demand. That's quite a different approach from what they did with you. I'm wondering if the drugs in your IV drop off quickly when they are removed (no lag effect). If so, it could be a bigger adjustment.

I understand the guilt as I see a lot of Stage 4 posts that seem in more distress and sometimes it's hard to find some words to write. But there will be people that are better off than us and worse off than us and we have responsibilities to be around for our family, friends and loved ones. Make sure that you get the stoma training down as you might have a relatively short stay.

Canadian Sandy's picture
Canadian Sandy
Posts: 486
Joined: Jul 2016

Glad to hear you got through it okay. Get lots of rest. I really enjoyed your blog.....you are an interesting blogger. Keep the faith Darcher.

airborne72's picture
airborne72
Posts: 275
Joined: Sep 2012

Are you serious?  Immediately after resection and you have no dietary restriction?  Did you really eat a Big Mac?

Find out what type of pain control system they are using.  It sounds very effective.

Don't argue with results.  If I were you I would rejoice in the outcome and be ever so thankful.

Jim

 

darcher's picture
darcher
Posts: 257
Joined: Jun 2017

Yup,   a big mac. That was around 6:30  last night.  The  surgeon is a real miracle worker in my opinion .  His whole team was great for as long as I got to speak to them before I was under.  .   If I recalll right. I was wheeled in to surgery around 8:30    I was taken to my room around 12:30.   I remember something about recovery but nothing specific and was wheeled from there to the room I'm in now.   I texted my son around that time .  I told my wife to bring the Biig mac.  It loooked good but...body said nope, ain't gonna let it sit and tossed it.  I did manage to hold down a nice thick slice of chocolate cake a few hours later.   Now we're on to the second day and sitting around waitiing for something.  Not sure for what but in the mean tiime I  do need to get my blood pressure up a  tad.  I need to drink a lot more water for a while today.,   It's 5 am now so might as well get my early morning coffee run in.    I knowm coffeee doesn't count but they've got one of those single cup brewers that's awsome.  I still don't feel any pain. 

 Last night I even went so far as to ask the nurse to double check what was actually done. I started getting suspicious that maybe there was nothing truly done because nothng hurt.  Thing is, I told the surgeon weeks back that if i need a perm bag to just sew me back up and that's it..   She checked and yup, a resection is what I got so some of me was removed.  Now that I think about it I bet the no restriction on the diet was meant to be "within reason" and not a free for all like I was trying to do.   So today it's oatmeal or things of that nature.  Nice and slow and no need for feeding frenzies.

,If anyone is interested in what the epidural consisted  of.  Reading the label it says,  Hydromorphone hydrochloride 1000 mcg,  bupivacaine hydrochloirde 200 mg, and sodium cholride.200ml.   I'ts in an IV and still going.  Being that it is I bet it's not completely used when it's on a pregnant women.   It has an expiration date (today ) and a couple places for fluid to come out.   That is probably for  multiple women at the same time.  This hospital computer set up is tough to use.   I have to get up and get closer to the TV screen to see what I've typed.   What's kind of cool is I have my own room.  I didn't  ask for it and my insurance is not a 'gold' plan or anything even close.   Luck of the draw I guess,   On with the adventure. 

Trubrit's picture
Trubrit
Posts: 4784
Joined: Jan 2013

I wasn't allowed to eat until I had a bowel movement, and that was like four days post surgery.  I drank beef broth (more salt than anything) until.

I know there are different levels of surgrey, how much is removed, how its removed etc. But still, like Jim, I'm shocked that you have no dietary restrictions. 

And the loss of bowel control is normal. And, for me at least, the bowel movement itself (the poop) was black and tar like. In fact, it was just like Meconium, a newborns bm. That changed after a few days of decent food. 

I mentioned to Mike, that is is so easy to overdo it; especially if we don't see too much outside damage. Try to visualize what they have done to you, inside, and act approprietly. 

It is so good to hear you so chipper. Keep up the walking and the good work, and lay off the Big Macs :)

Tru

beaumontdave's picture
beaumontdave
Posts: 978
Joined: Aug 2013

Amazing how quick you were able the be up and eating normal food. I've had the epidural, of some type, and was alert and in good spirits after surgery, but you're setting records. The one drawback for me was that damned alarm setup, it kept me up all night, scaring me awake everytime I dropped below 50 beats per/min. I was banging fist against chest, like self CPR just because I hated hearing that buzzer. Anyway I'm glad it all went so well for you, the big mac talk has me thinking there's a breakfast burrito out there, calling me. Later....................................Dave

darcher's picture
darcher
Posts: 257
Joined: Jun 2017

I'm not so agressive with the food today. I found a fridge outside the room with stashes of pudding, jello, and similar items.   The stuff we're supposed to eat.   Not like the breakfast burrito I did have this morning.  I'm of the same mindset beaumontdave.  burger to burrito.  It wasn't that good and was kinda little.   It stayed down so that was a plus  I just made it a point to chew a lot and get it into as small pieces as possible before swallowing.   I had some visitors who brought a starbucks.  Normally I avoid SB only because of the silliness (to me)  of paying that much for coffee.

Met the surgeon today and I told him about my big mac incident and he said I need to slow it down.  Jello and stuff like that for a day or so until I can go.  Thta's what I'll stick to.  I noticed my left side is a tad swelled up.   Thats probably where most of the cutting and so forth went on.   Makes sense since the sigmoid comoes down from the left. 

When you had your epidoral beaumontdave how many days did they keep you on it?  Day 2 here and now were down to just that.   Everything else is disconnected.

Mwikoff46
Posts: 40
Joined: Nov 2017

I absolutely love your encouraging blog...I'm new so just joining in on all the for most positive outcome...I just hope when I get the results I can stay positive like you....

beaumontdave's picture
beaumontdave
Posts: 978
Joined: Aug 2013

They took me off the second day, going to Norco which wasn't nearly enough, so day 2 was the toughest, day 3 was when I started walking alot, and I was out by the morning of day 5, having proudly made some kind of black streak on the disposable pad, so I never even got to the solid food diet. I got In and Out[dbl. burger] on the way home........................................Dave

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

Okay, burgers after surgery are now a thing?

Ruthmomto4's picture
Ruthmomto4
Posts: 624
Joined: May 2013

I thought maybe the Big Mac might not have been a good idea! on a good day that might be hard on you. I am so happy it went so well and you are doing so good! Try and be careful! 

Annabelle41415's picture
Annabelle41415
Posts: 6153
Joined: Feb 2009

Sounds like everything went well.  So glad that it did and you might be coming home soon.  Take it easy on the food as it can definitely mess with the system.  Hope you have a fast recovery.

Kim

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

Hope it only gets easier for you.  I also enjoyed your blog; and I think we're all loving the Big Mac story.  Although sorry you threw up.  Not fun.  Am guessing you might just have a small incision for laparascopic.  I had a big incision plus the ostomy.  I am glad you woke up to no bag, BUT know that it's not the end of the world.  Mine has actually changed my life for the better. Never ever thought I'd believe that, but it's true.  

Please keep sharing. Love hearing positive stories as it helps those of us w Stage 4 to know this can be conquered.

darcher's picture
darcher
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Joined: Jun 2017

I don't know that McDonalds could use that for a commercial but looking back on it now, it's kinda funny.   The diet said "no restrictions"  so there it is.  Maybe I should have ordered a take out ribeye.  That would have been worthwhile tasting it as it cqme back up, lol. Then again,  maybe not.    I appreciate the suport here which is one of the few places I get any.   Life is weird and sometimes you get curve balls and have to wonder why they are what they are.  I just don't understand some people.  I nearly didn't do this due to other circumstances but I figured what the hell so here I am.  

 I think two things are responsible for getting me through.  One was doing exactly what the doctors said without question and the other, as silly as it sounds, is not really accepting that I had anything at all.  I was able to pull off that illusion because I never really looked like I had anything and would play it off as such most times.. Holding on to that seemed to help avoid dropping into the pitty hole of cancer.  Hell, I even fooled a couple nurses who said I looked perfectly fine after chemo and radiation. Truth is, this is one ugly disease and by god's will I avoided most of what could have been a huge calamity. 

 I've noticed some nurses are kinda nervous while others aren't  I don't know if it's because of all the mayhem they're exposed to or what. In this area of teh hospital they've been quite good even though I had the colon issue and big mac attack.  The one told me I reminded her of a character named Thomes Shelby in the movie Wanted man.  I haven't seen the movie so I have no idea what he looks like or what his character does.  One other thing is I've pretty much lost all my modesty.  When you have a nurse hold your penis while trying to empty it through a cathader it doesn't leave  much else to hide.  Had a cathader and then it was removed but I was still having a hard time so she did a 5 minute in and out job to get the bladder emptied out. 

Right now all I have left is the epidural connected to me.  My swelling is starting to go down and based on where it is, it makes perfect sense.  On the left tracing the sigmoid colon.  Now, all I have to do is a number 2 and I'm outta here, 

 

 

  

 

Trubrit's picture
Trubrit
Posts: 4784
Joined: Jan 2013

No such word after CRC hits you.  I'd obviously never had a rectal exam, being a woman, and now...... well, I can't count the number of exams or (male) Doctor's who have had their fingers where I'd rather they not be. 

The way I hadle it now is just to think of my body as a whole. One part is no more embarrasing than the other. If you believe in God, then you should look at your body as something to be respected and honoured, and NOT something to be embarrased about. 

Still, I've refused the last four rectal exams. HA!  (I'm all talk and no action)

I'm terribly chuffed that you are doing so well. A sense of humour is an indication of health. Keep it up. 

Tru

NewHere's picture
NewHere
Posts: 1072
Joined: Feb 2015

It went out the window immediately it seemed for me also.  Sure, you need to poke there, have fun.  I did try to keep my butt covered to some degree as much as possible in the wonderful gowns, but did not care too much.  If you got it flaunt it I say.  Not that I have got it. LOL   Before all this I was MORTIFIED about the prospect of being in a gown and what might be seen.  

 

I'm terrinbly chuffed   - Love that phrase. 

Trubrit's picture
Trubrit
Posts: 4784
Joined: Jan 2013

Not too sure how the n got into terribly. HA! 

Good to see you here, New.

Tru

NewHere's picture
NewHere
Posts: 1072
Joined: Feb 2015

I was not making fun of the spelling, I love the phrase and did not even see that.  LOL.  The first time I heard it, to my 'merican ear sound kind of dirty.  ;)

Trubrit's picture
Trubrit
Posts: 4784
Joined: Jan 2013

For many years after moving to America, I used expressions and words that caused much embarrasment. We may all speak English, but not all the words have the same meanings. 

Tru

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

Maybe a twitter post to MacDonalds with your account could get you a coupon for another.

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

Thank God for humor.  Hilarious!!  Heard Chumbawumba on the radio yesterday...(I get knocked down, but I get up again, you're never gonna get me down), started singing to myself and addressing it to my cancer.  Started tearing up.  And then realized how insane!  The absurdity made me laugh.  I need much more laughter.  So important.  

This whole Big Mac thing was awful for darcher, but a little healing for me.  Hahaha. Thank you.

airborne72's picture
airborne72
Posts: 275
Joined: Sep 2012

Tru:

I had to Google the meaning of chuffed.  Never heard it before.  I have learned a new word today.  Thanks.

Jim

Trubrit's picture
Trubrit
Posts: 4784
Joined: Jan 2013

I'm happy to have added to your vocabulary, Jim. 

Tru

darcher's picture
darcher
Posts: 257
Joined: Jun 2017

Doc came in and said YOU MAY LEAVE about 15 minutes ago.  Im packing and wll be gone before they can say boo!

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

Congrats, that was a fast one.

Hope you're not stopping off at Mickey D's on the way home.

You have to take the wheelchair too. No you can't push it.

 

Mwikoff46
Posts: 40
Joined: Nov 2017

So great to read good news....

darcher's picture
darcher
Posts: 257
Joined: Jun 2017

  They said I can walk out since that's all I was doing 90% of the time I was there.  I'll say this, now that it's 3 or what ever ever in the morning, I am feeling it.  That epidoral was worth its weight in gold.  I had 3 bags of that stuff and it sure as hell did the trick keeping the pain away.  Turns out it was a narcotic as much as I wanted to avoid it.  Looked up the ingrediants and its a form of morphine and oxy or something like that. I am in mysery now and as much as I didnt want to take the opioid pain pills I had no choice.  It's the only reason Im able to get out of bed now.   I had to look up chuffed too.   A new word and there will be more.  My sister is engaged to a guy from the UK who happens to be an ER nurse.  I talked to him once a few weeks back and couldn't understand half of what he was saying, lol.  

 McDonalds on the other hand is on my short list of places to avoid.  Their food is one step up from garbage as far as Im concerned.  My body finally got to have its vote counted.  My little ones like the kiddie meals only because of the toys.  They almost never eat what's in it except the hamburger and even then that's only because they think it's a crabby patty from spongebob cartoons. 

  Hoping by daylight there will be some reduction in pain.  I've been to the bathroom 4 times so far and each of them are a good deal different than what I experienced before.  At least now I can hold it to some degree.  On the way home which was an hour+ drive I had the urge about 1/2 there.  Made it without incident where as before, not a chance in helll would I have gone 10 more minutes. .  My weight climbed way up.  I pegged 180 in the gown while I was there.  Prior to I woulda only hit maybe 168 or so.  It must have been all the fluids in the IV that were going non-stop.  It's starting to drop a little.  Im now down to about 177 which is still high and has me feeling porky.

 

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

Sorry for the pain that you have now but you seem to be a guy with a very strong constitution and I think that you'll conquer the pain soon. Maybe even this morning.

My wife grew up in Singapore (originally Malaysia but Singapore was kicked out of the country), and lived in Australia for a while so she has a natural British English accent tinged with Singlish and Australian local terms. It took me a while to pick up the terms too but Americans often find the British English accent delightful.

I stopped going to MacDonalds and Burger King upon learning of my diagnosis. I wasn't a big customer but I just decided to stop completely.

I basically fasted (very light breakfast and skipped lunch) so that I wouldn't have to change the bag along the way. So I understand not wanting to have to deal with bathrooms on the trip home from the hospital. I'd guess that I dropped about 7 or 8 pounds at the hospital and will likely drop more over the next week. There was enough sugar in the IV to get my glucose level to pre-diabetes numbers. I know that they gave me Ringers Lactate as well and I imagine that there are a lot of calories in that. The reason I lost the weight is that I didn't eat much of anything for two days after the surgery.

 

 

NewHere's picture
NewHere
Posts: 1072
Joined: Feb 2015

Sorry Darcher that it has turned a bit for you. I remember those sleepless nights (or 1/2 hour at a time.)  

I had some times where I had spasms, which was really bad, and they gave me Ativan injections.

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