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Dilators after radiation

heyall_1983
Posts: 1
Joined: Oct 2017

I was wondering if anyone has gone without using the dilators for some time then able to start again? 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2521
Joined: Mar 2013

heyall - I guess there are some questions back.  How long is "some time"?  How long has it been since radiation? 

Stenosis is real and vagina's will close up and future pelvic exams can be very painful.  I think most of us (I am a visitor from the Uterine board) have been told by doctors 3 times a week.  One woman who I miss terribly had said every day.  I know after almost 5 years I can skip days and go back to it with no problem. Early on after radiation I really couldn't have done that.  

Just my two cents.  

Barlee
Posts: 2
Joined: Feb 2018

Hi,

I have finished chem - internal and external radiation one year ago for Vaginal Cancer (Stage 1).  I use a dilator (small) I cannot use a large one at all and every time I use it I bleed, is this normal.  I go for my three month check ups and I of course, bleed when that is being done.  All tests have come back negative (thank heavens) but is it normal to bleed everytime.  Also, my husband is of course fustrated do to the fact that I cannot have intercourse (will that ever change).  Thanks

 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2521
Joined: Mar 2013

Barlee, I am 5 years out from uterine cancer having had chemo, external, and internal (brachy) radiation and still have 'pink' on my dialator.  I also was worried and had it checked - I was told it was radiation burns.  I understand the worry about the bleeding - the pink still bothers me. 

The brachy therapy given to cervical cancer patients I think is different than uterine.  Ours is just like a wand/tampon - isn't the cervical brachy more of like a 3-pronged device?  My radiologist had showed it to me and my heart cried for you ladies.

I know it is hard - I really struggled when I started using a medium dialator but kept workiing it - every day.  Work that small - use lube - and I hope you can work up to a medium.  Hugs dear one!

Barlee
Posts: 2
Joined: Feb 2018

Thank you for getting back to me - and a hug right back at you.

 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2521
Joined: Mar 2013

Barlee, I saw one of the women on the Uterine board mention they use lidocaine with their dialator as well.  You might want to ask about that. 

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