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Bilateral RCC...updates - first surgery complete

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Had been having abdominal pain for some time.  PCP sent me for an abdominal ultrasound.  Nothing of concern discovered in abdomen but a lesion on each kidney was incidentally discovered.   PCP sent me to urologist who sent me for a CT scan and chest x-ray.

I learned yesterday that the CT scans confirmed a “solid mass arising from the lower pole of the right kidney measuring 3.1 x 2.7 x 2.9 cm demonstrating exuberant enhancement.  This is consistent with renal cell carcinoma until proven otherwise.”

Also - "there is a mass on the left kidney measuring 2.0 x 1.4 x 1.9 cm showing less exuberant enhancement, but clearly showing increasing density on post contrast images.  This is also suspicious for renal cell carcinoma, possibly papillary subtype given the low degree of enhancement.”

Blood and urinalysis tests were both completely normal.  Chest x-ray and CT scans show no signs of spread or metastasis.

My urologist wants me to see a leading kidney cancer doc and researcher at the National Cancer Institute in Maryland and is attempting to set that up.  I live in Syracuse, NY.  This will apparently be my second opinion.  

The masses have not been biopsied but the writing is on the wall given their look on scans.  I am 38 years old, in good health and am hoping we caught this early enough.

Your guidance, insights and support as survivors would be greatly appreciated as my head is spinning.    

 

 

 

 

 

JerzyGrrl's picture
JerzyGrrl
Posts: 760
Joined: Jun 2016

"Head spinning"? Yup, put a checkmark in that "NORMAL REACTION" box. That's where most of us were when we heard the word "cancer."

Interesting use of adjectives on the radiologist's part: The Oxford on-line dictionary's first definition for "exuberant" is "Full of energy, excitement, and cheerfulness." Of course, then it goes on to include a definition that fits a tad better, but still.

I'm sure this IS giving you a boat load of excitement, and probably not the good kind.  However, there's definitely some good news here. You're in good health. Your masses are small, a size that's generally just dealt with surgically. Usually, kidney masses that are small don't give you symptoms, so you can thank your stomach pains for doing their part to get you the CT that spotted them. It doesn't appear to have spread. Your physician is looking into options for a specialty / research center (BTW, I was able to get a second SURGICAL opinion, after the urologist, so you might have even more views). It's a great time of year to travel from Syracuse to Maryland. You're in a super area to get excellent health care.

The tendency is NOT to biopsy kidney masses. So, not to worry that it hasn't been done.  Plus, the kidney masses themselves tend to grow slowly, NOT fast like folks from NJ blowing through the EZ Pass lanes on the Thruway upstate.

One thing you definitely should do is take somebody along to your appointments with you. Funny how you can go from having the best memory in the world to having a brain like a sieve with this, even if you're used to medical-speak.

Sorry you're needing to be here, but glad you found the forum. When you have a little time, fill out your profile info. Keep us posted.

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Thanks, JerzyGrrl for taking the time to reply to me...your humor is greatly appreciated!  Laughter is the best medicine.  I am happy to have found this forum.

I am only one day into this diagnosis - already the waiting is the worst part.  Waiting on the doc in Maryland to view my information and scans and connect with my Urologist here.

Agreed that there is some good news around my situation, but not having a solidified "plan" in place for next steps/treatment is tough.  I'm an overall positive person and will take everything in stride, day by day, test by test.

Hopefully more news to share very soon. 

 

icemantoo's picture
icemantoo
Posts: 3210
Joined: Jan 2010

LMC,

 

"My urologist wants me to see a leading kidney cancer doc and researcher at the National Cancer Institute in Maryland and is attempting to set that up.  I live in Syracuse, NY.  This will apparently be my second opinion. "

While both masses are small the fact that you may have bi laterak kidney cancer warrant a referral to a top Kidney Cancer Doc. Sending good karma for a sucessful resolution.

 

 

Icemantoo

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

I think you're right - thanks, Icemantoo.  I appreciate your insight.  My doc here in Syracuse did mention that masses like this on each kidney are not common...hence the second opinion.

Hoping that the experts can put their heads together and help me figure this out.  Happy to have caught it very early.

I'll take all the good karma I can get!  Thanks again!  

 

NewDay's picture
NewDay
Posts: 273
Joined: May 2012

Bilateral tumors and your young age are both strong indicators that you may have a hereditary type of RCC.  I strongly suggest that you follow your doctor's recommendation to go to NCI.  They are top experts in the hereditary types.  It is important to know because it can make a difference in treatment.  I have been there but mine was determined not to be hereditary.  If your doctor runs into any roadblocks trying to get you in, I can give you info on the Genetics counselor that got me in.

I see that you mentioned a chest xray and CT scans.  I hope that one of those scans was a Chest CT.  Chest xrays can miss lung tumors.

Kathy

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Thank you, Kathy - great information and insights.  Much appreciated.  All of my scans and testing information is on its way to the NCI.  Hoping to hear back from them sooner rather than later regarding next steps.  The toughest part for me right now is the waiting and knowing that I'm walking around with this in me...I just want it out.  I understand that it will be a process and I will stay positive but the thoughts can be consuming at times.  Trying to keep busy and living daily life like normal - luckily with lots of support.

There has not been a chest CT done at this point.  I will bring that up to my Doc though.  Thank you!

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

And remember just how lucky you are. No  kidding. You are having an unusual finding that is being caught fairly early looked into by a high caliber specialist. Wow! mouthful. This means your health will be closely monitored this point forward. No casual physicals. All your health needs will be addressed. Except maybe the Hair club for men.

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Thank you, Sir - I do feel very lucky that it was caught early enough.  That is not the case for so many others. 

I'm ready for the road ahead...this is now my journey and I'll beat it!

mrfixit50
Posts: 1
Joined: Oct 2017

i was 41 when I was diagnosed with kidney cancer.  I am now 59.  My mass was 7 cm and still contained in the membrane around the kidney so there was no spread to other areas.  I am an engineer by trade and tend to pay attention to the numbers.  Although it was 18 years ago, diagnoses by CT was 85% accurate and surgical removal was a 90% cure rate.  I had surgery one week after diagnosis.  There were many tests, CT's and mRi's in that week.  There was also opinions by cancer center surgeons given on the phone while driving home from their day at work.  This was done by surgeons at Jefferson in Phila and John Hopkins in Maryland.  In the end I had the surgery done by the local urologist/surgeon because i beleived he cared the most about the outcome and it felt right to me.   As NewDay indicated, K. Cancer spreads to the lungs and brian in the later stages so it will be important to get the lungs checked well.   I know it is a stressful time for you.  Hang in there and things will get better.  Life for me, post cancer, is good.  No limitations.  One thing I am still not used to is being the youngest person in the waiting room waiting to be seen by the urologist, but that is minor thing.

LMCRJB13's picture
LMCRJB13
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Joined: Oct 2017

Thank you for sharing your story, Sir.  It certainly helps to give hope and is appreciated.  I have been the youngest guy in the waiting room at the Urologist during my past two visits...some looks and stares of wonder from others, but I'm okay with that.  Waiting on next steps is the tough part, but I know I come through it and be a better man for it.  Thanks again! 

hardo718's picture
hardo718
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First, that you listened to signals from your body.  Second, your doc listened to you.  Third, these buggers have been caught very early.

Sounds like you've got great docs involved, and more on the horizon.  The head spinning part, yea, normal, very normal and take it from me, the spinning may continue for a bit.  Vertigo & I had a relationship for a while.  I'd like to say that once "Bob the Blob" was evicted my friend veritgo went with him, but I'd be a liar.  It's a process, make no mistake and you will adjust to what lies ahead.  Just stay on top of it all and be patient with yourself.

Best wishes & keep us posted, we're all here for you.

Donna~

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Hi Donna - greatly appreciate your support, insights and optimisim...thank you for that.  I'm committed to stay on top of every piece of the journey ahead!  All i's will be dotted and t's will be crossed! 

I will keep this group posted...so happy to have found you all!

AnnissaP's picture
AnnissaP
Posts: 623
Joined: Sep 2017

So glad they found it early. I am 38 as well and the tumor I have is in the same location and around the same size. I have surgery in 2wks and STILL do not believe it is real. Just waiting for a call from the dr saying he was kidding lol. Best advice I can give is to ask alllll the questions you want!! Our minds tend to wander and wonder so do not be afraid to ask them anything and everything. The good thing is that what they found are still small and thank God they even found them. You will be ok! You are young and healthy. Wishing you all the best. Stay positive and keep laughing (we named my tumor and he seems to be the punchline to most jokes now). LOL.

LMCRJB13's picture
LMCRJB13
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Joined: Oct 2017

Annissa - thank you for taking the time to leave a comment.  I appreciate it.  I'm a very dry humored guy and plan to use that humor to help get me through.  This will make me stronger.  I am freaked mostly because there is a tumor on each kidney, but plan to obtain the best care possible and learn everything that I can.  I just want the damn things out but understand that it's not that simple.  

I wish you much success with your surgery...you're going to do great!  All the best - please keep in touch! 

AnnissaP's picture
AnnissaP
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Joined: Sep 2017

Thank you for the well wishes. I know the waiting sucks, but things will fall into place for you quickly. My concern was that they would just leave me and forget to take care of it. Now that I have had the scans, appts and surgery booked I rarely even think about it. I guess bc I know it is being taken care of. Everything happens so fast you don't even get the chance to sort it all out. Like I said before I still don't believe all of this is real. Glad you are sharing your story and getting input from others. It helps.

APny's picture
APny
Posts: 1934
Joined: Mar 2014

So sorry you have to be here but as everyone has said, it's a good thing they caught it so early. Thank god for your stomach ache that sent you to the doc. Seeing the best specialist is a great option and one I would definitely take, especially if both turn out to be RCC. All the very best to you!

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Thanks, AP!  I appreciate you taking the time to leave a note with your well wishes.  Agreed, that stomach ache is something that will have saved my life...so glad to have listened to my body!

 Now I await a plan to get those damn things out!

 

Jparra48
Posts: 28
Joined: Sep 2017

Hi LMC I am in the same boat as you. Except I’m a tad older :) 

I’m 41 diagnosed with RCC on both kidneys. Definitely keep a binder/book of all your appointments and scans. I started this process in may. And just had surgery in September. I am 4 weeks post op. They did my first surgery to remove the cancer on my left kidney because it was intertwined with my renal artery next surgery for my right kidney is scheduled for nov 28. Long story short I have had a biopsy but I unfortunately bled a lot so the doctor stopped but was still able to confirm RCC. After the biopsy I had lots of pain and the worst headache known to mankind (because of the foam they used to stop the bleedin) I met with 3 surgeons before I finally settled on the one I truly felt comfortable with And I absolutely love him. I also did a geneticist test since cancer runs in my family and it came back negative for the gene. Basically they told me it was environmental. I drove myself crazy researching all I can about RCC before my doctor and I finally came up with a plan. It’s difficult when you don’t have a plan of action but it sounds like you’ll get there. I document my progress. I blog (hands over eyes a tad embarrassed) but it helps document ups and downs and even some mistakes I’ve made along the way and a few humorous events. You’re more than welcome to read it if it helps. Stopcryingdummies.com 

good luck to you! Please keep in touch and let us know what your plan of care will be! 

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Jparra - thank you!  Your post certainly helps to ease my mind a bit as I await next steps. 

Bilateral RCC seems to be far less common...so, I am relieved to read about your success thus far.  Having a growth on each kidney is daunting but clearly can be managed.  Right?  I am hoping that when they run the genetic test/s it also comes back negative.  There is some cancer in my extended family.  I have been also researching like crazy and hopeful that a plan for me falls into place soon.  I am staying as positive as I can during the wait and trying to keep my research to credible sites (there's a lot of negative and depressing stuff out there on the net).  I will definitely read your blog - thank you for sharing the address with me.

Did you find your surgeons on your own?  We're they urologic oncologists?

I wish you much luck and success for your next surgery - let us know how it goes!    

Jparra48
Posts: 28
Joined: Sep 2017

Actually yes I reached out to a few friends and then my regular urologist gave me some referrals. I “interviewed” all 3 of them before I made my final decision. Everyone had an opinion about what I should do or who I should see. I should go to a specific cancer center. I should see this doctor. I really love my doctor he is a urologic oncologis surgeon  and I will admit I didn’t get the support I may havent gotten from other cancer centers. Emotionally speaking but then I found this site and it really helped just reading everyone’s story and their strength and courage and I realized that’s really all I needed to help get me through. I read and share with my husband too. That poor guy has seriously been through the ringer with me. I tried to research as much as I could too but like you I found some really depressing 

Jparra48
Posts: 28
Joined: Sep 2017

Oops sorry yes depressing things! Keep your head up though it gets better!

LMCRJB13's picture
LMCRJB13
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Joined: Oct 2017

Thanks so much for the information and insights!  I started reading your blog - I commend you for sharing your journey as it helps those of us who are just beginning ours.

Be well!

Jan4you's picture
Jan4you
Posts: 1317
Joined: Oct 2013

Well, I can already tell you are a special person: have an open and generous spirit and willing to listen and learn. YESSS, WE will be here for you all the way if you choose us to be in your life. Hope you have outside support. And so glad you are already receiving such wonderful, helpful advice.

Is this your first surgery? 

I can honestly say, after 4 abdominal surgeries, 2 open incision, 2 laproscopic/robatic, I found it easier to recover with Lap/robatic. I also have other medical issues so I was glad my recovery and prognosis was good! Nearly 4 years, NED ( No Evidence of disease). Because my stage I tumor was only 4cm, I still had to have a nephrectomy due to the position of the tumor near the blood supply. 

I can help you with more information regarding what to expect, how to prepare, how to best recover if you like me to. 

But know that I appreciate how wonderful you are, so stay and we'll help you. Trust your surgeon. 

Let us know what you need. Here to help!

Sending you calming vibes of serenity and HOPE for the best recovery!

Hugs, Jan

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Jan - what a wonderful message, thank you!  Your kind words are so nice.  I am a single guy - but have a lot of support from family and friends...I know that they'll help me get over this mountain.  I'm thankful for everyone that's in my corner as I begin this fight.  

So happy that you're 4 years NED...what a great feeling that must be!  Keep being well.  

I am still waiting on next steps and likely a couple of more opinions.  Luckily I am in an area of the country with access to great medicine/care.  Hopefully the plan starts falling into place soon...as I have said before, I just want this crap out!  I'll get there eventually with careful research and planning.  The tumors didn't grow overnight and they won't be removed that way either.

The only other surgery that I've had was a gallbladder removal, two years ago...it was laparoscopic and the recovery was uneventful.  

I welcome any insights and advice that you have.  Thank you, thank you, thank you!  So happy to have found you and others here.

The journey continues...

NewDay's picture
NewDay
Posts: 273
Joined: May 2012

I just want to caution those who google statistics to look at the dates the stats were pulled from.  Many are very old.  There have been 8 new drugs approved for RCC in the last 10 years, half of those in just the last 6 years.  The only statistics I put stock in are recurrence statistics by stage because drugs don't affect that and statistics for specific drugs.  There is a lot of hope now that didn't exist before.

LMCRJB13's picture
LMCRJB13
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Joined: Oct 2017

Thank you - I do pay attention to the dates of studies, findings and statistics that I see...most are quite old, you're right.  I appreciate the word of caution!

Lots of hope out there for sure!

Angie1496's picture
Angie1496
Posts: 154
Joined: Sep 2017

LM,

Welcome to the club no one wants to be in!   Sounds like you are part of an even more exclusive branch that some of us!!  I hope you have good results from your visit to the specialist. I live in a small town so we have to travel a good bit for a research or large facility.  I was lucky to get in with a really good Urologic oncologist.  I’m almost 7 weeks post neph.  This is a great support group with a lot of wonderful people! I’m glad you found us before your surgery. I was so overwhelmed I didn’t even think about support groups until after surgery!  It’s nice to have a place to come where everyone knows what you are thinking and feeing that can offer advice on what to expect etc

 

Angie

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Hi Angie - thank you for dropping by and leaving a note.  The club no one wants to be in - spot on there!  

I am glad that I found this group as well...lots of advice, insights and support.  I'm confident that I can beat this and give back to others like all of you here.  Having bilateral RCC makes the mountain higher...but, I'll get over it.

Much luck for your continued good post-neph recovery!

Angie1496's picture
Angie1496
Posts: 154
Joined: Sep 2017

LM...

With your outlook I KNOW you will do great!  I am praying for your recovery and that your surgery is scheduled very soon!

Angie

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Update - feeling some great relief today...a plan is beginning to fall into place.  I met this afternoon with the chair of urologic oncology at Upstate Medical University who is also a known researcher on genetic cancers.  I emailed him last evening and he got back to me immediately (himself) and got me in to see him today!  Wow, I couldn't believe that.  He completed his fellowship (6 years) working alongside kidney cancer leaders at the National Cancer Institute in MD.  He's performed hundreds of successful kidney surgeries and is current on research and methodologies.  He's right in my backyard at Upstate and has also successfully managed bilateral kidney masses in the past.  I'm feeling good.

It looks like we'll be scheduling a partial neph on the right kidney to remove that 3cm mass first.  The mass will be sent to pathology to determine the plan moving forward for the left kidney mass depending upon the right mass presenting as genetic or environmental (staging, type etc.).  Hoping genetics are not involved.  

The care, concern, compassion and bedside manner the doc emanated was unlike anything that I've received from any other specialist I've ever met with.  The doc spoke in layman’s terms, was very thorough, calming and answered all my questions.  He was confident and made me feel very comfortable.  You know when you just have that "feeling" about someone?  I know this doc and his team are the best for me.  I'm lucky to have found great care, quickly! 

I'm young, we caught it early, no mets and as of now all signs point to success.  I know that there is a long road ahead, but I'm confident that all will be fine in the end.  Get those damn things out of me!

Thanks to all for your continued guidance and support!

Angie1496's picture
Angie1496
Posts: 154
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Awesome news!  I also had that same feeling about my Doc. Nothing like trusting the person that is going to save your life!

BoondockSaint's picture
BoondockSaint
Posts: 240
Joined: Mar 2017

Sounds like things are lining up to get these little demons out and sent straight back to Hell where they belong.

Like I have said in prior posts, it takes a team to beat this mess. I can see an All-star cast is being assembled.

Well wishes and good vibes to you.

APny's picture
APny
Posts: 1934
Joined: Mar 2014

Wow, sounds like you found a gem! I'm so impressed he got back via email right away and you got to see him today. I bet you're feeling so much more relieved. He's certainly a keeper!

stub1969's picture
stub1969
Posts: 792
Joined: Jul 2016

Once things start to fall in place, the process moves pretty quickly.  Sounds like you are in good hands with some excellent surgeons.  

Good luck

Stub

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Things will move quickly from here and that's okay.  I am keeping a journal of the process from the start as to not miss anything.  I'm very pleased with my medical team and have heard nothing but awesome, gold standard comments about my doc.  Heck, he's even Syracuse basketball coach Jim Boeheim's prostate cancer surgeon.  Again, this feels good - this feels right.  

Chest CT has been ordered as my next step with the hopes that the chest x-ray didn't miss anything/mets.

Surgery for right partial neph. now scheduled for 11/13/17.  

Thanks for the continued good vibes, luck and prayers.  I have lots of hope.

Wehavenotimeatall
Posts: 479
Joined: Aug 2017

Many messages of hope and love

Have not replied to you yet as  I have no experience of your particular problem but it looks like you are in the right place with a great team who will be  make your very bumpy road as smooth as possible

 

Wishing you the very very best of the luck as you began  this saga  and looking forward to the day  you are on the road to healing and recovery

 

Annie

Jan4you's picture
Jan4you
Posts: 1317
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WOW so impressed and happy for you! A doctor who emails you and answers ALL your questions is amazing!

Glad you trust that "feel good" connection as that is important to trust your doctor and team.

You are on your way to get that bugger out and to see what the next step is for the Left Kidney.

Keep us posted. We're here for you, all the way!

Sending you HOPE and Serenity!

Hugs, Jan

Jparra48
Posts: 28
Joined: Sep 2017

LMCR good for you! I’ll be praying for you and wishing you a speedy recover. Remember to have lots of help the first few weeks. A pillow over your Belly for when you drive  home...it’s amazing how you seem to feel every little bump in the road..and an ice pack to help you stay Comfortable. Best wishes to you! 

love_of_my_life
Posts: 77
Joined: Jul 2012

Been watching this thread over the past few days.  Good luck on your journey.  You are in our prayers.

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

Glad there is a plan in place.  Keep us posted.

Donna~

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Thanks again to all!  I will continue to keep you in the loop and look forward to coming out on the other side...offering advice, insights and support to others like you all have done for me here.  

My abdominal discomfort remains - pretty much constant...could be RCC related?  The tumors are small so I don't think it's them pressing anywhere, but who knows?  First things first and that's getting these nasty monsters out!

It helps that there are so many success stories here and that we're in it all together!  Best to all dealing with this awful nightmare.

Rachel_Kind
Posts: 4
Joined: Oct 2017

diagnosed this week. I have random bouts of vomiting, and Lower back discomfort. I am concerned (for both me and you) that it is in both kidneys. I joined this thread today. I have a 5.5 by 3.9 mass at the top of the right  kidney not affecting blood flow, and the radiologist noted what looks like a “shunt” on the left. He noted that it is probably a mastitis but the abdominal MRI showed bones bowls and lymph nodes clear. I am a 42 year old Female with a 10 year old girl who I will fight untill I lay down my sword to be there for.

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

Could be lots of reasons.  Your body knows these little bas****s don't belong and is letting you know something is amiss.  Albeit they are small, maybe pressing on a nerve center. The emotional roller coaster....from my perspective, since it's all connected, I get nausea, discomfort etc with all the anticipation that goes with this adventure.

Wishing you the best,

Donna~

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Still waiting for the chest CT appointment - talk about scanticipation, ugh.  The chest x-ray showed NED, but I'm worried about the CT picking up something.  Better sooner than later though, right?  Abdominal CT showed the tumors contained to each kidney with no evidence of mets around them...so, I'm remaining hopeful that there's nothing else.   

sandy23
Posts: 137
Joined: Jan 2017

Chances are very, very good that the chest CT will be clear as well.  Abdominal CT scans actually go pretty high so I think it would have caught anything else or the xray would have.  We definitely learn a lot about what true "waiting" feels like in times like this, don't we?  I will never complain about waiting in the line at the bank, post office, etc. again!!

Rachel_Kind
Posts: 4
Joined: Oct 2017

On August 5 2017 I was involved in an auto accident that caused extensive injuries. I received 8 weeks of chiropractic care but when I still had several painful areas I was sent for MRIs of the shoulder, ankle and lower back. After telling me all the results (torn ligaments etc would require surgical consults) he said and there’s this last thing- they see a “shadow” on your kidney. 3 days later I got an ultrasound of the kidney deemed  inconclusive. Yesterday I went for an MRI of the abdomen with and without contrast at 8am, by 2 pm my chiropractor called and said the report said I have a 5.5 cm rcc on right kidney - probable Clear Cell, and what looks like a mastitis or shunt on my left kidney (I have never had a shunt put  in). I made an appt w my PCP who I have never seen she was just chosen for my insurance card, to get a referral to an oncologist. I’m concerned that my chiro cried his eyes out when he told me- should I be worried? My PCP appt is today with Hopefully an oncologist referral.

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Hi Rachel - I am early along my journey with bilateral RCC.  Best thing to do is seek out the best urologic oncologist you can find...one with expertise managing RCC - potentially bilateral.  

I complete understand the worry and feelings...I'm right there with you. You might want to move your message from just my thread and post it for all to see...there is some great advice, insights and support out there from the awesome people in this forum.

Good luck with everything...hoping for the best possible outcome for you.  Keep us updated with your journey and I'll do the same!

Wehavenotimeatall
Posts: 479
Joined: Aug 2017

Start your own message as LM said.  

You wll do doubt be full of fear and anxiety so your own message will jump out more at the old timers

 

It’s a bit redundant now but confused as this why the ultrasound was inconclusive

Ite important you push to move as fast as you can.  if you end up with  one confirmed mass you have a very good chance of a full and fast recovery although some rough times 

 

Two is obviously more of a a challenge but from reading some of the many stories here still very doable and it sounds like they are unsure about  the left kidney So try not to jump to the worst conclusion.  Easier said than done I understand

 

Speedy action    

 

 I understand how you feel but that little girl will have her Mummy for a long time yet

 

AnnIe.  Sending love and hugs

Rachel_Kind
Posts: 4
Joined: Oct 2017

im new to the thread and can’t tell if I’m posting to the thread or the individual. My second opinion today I was told that they interpreted the radiologists results wrong and the shunt is in the liver, not kidney. Which worries me that there are blunders happening with my care and makes me question which doctor is correct (One is a chiropractor so I’m gonna go out in a limb and say it’s him). The doctor I saw this afternoon referred me to a urologic oncologist that specializes in Kidney Surgery. I am lucky enough to live near Moffit Cancer center in Tampa FL and that my insurance considers them in network. 

 

Im wondering if anyone else experienced headaches? 

Rachel_Kind
Posts: 4
Joined: Oct 2017

How doni start a thread?

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