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How about "ALL Cancers October"

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2863
Joined: Mar 2013

Alright, I just have to vent.  

I HATE pink October.  I just want to scream - HEY!  WHAT ABOUT OUR CANCER?! I know how many wonderful ladies we have lost and there just doesn't seem to be the money or the research for us - and it is WORSE for the true orphan cancers.  Vulvar cancer?  These women - were do they go?  Who wants to talk about a cancer like that 'down there'?  Of course - we care - but why can't October be for ALL cancers??

I just lost my mother, to a slow growing breast cancer she lived with for almost 12 years.  I get it.  She hated pink.  I hate pink and avoid that color and all the 'pink' products.  

You don't have to agree with me, that's ok.  I respect everyone's opinion and only hope you all respect mine.

Thanks lady.  I get off my platform and go back to my coffee.  

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

So tired of all the Pink adds.  My problem is that I really like the color pink and these support pink people are ruining my love for pink.  When I was small my mother never let me wear anything that was pink.  She said that little red headed girls did not look good in pink.  So now 8 have a lot of pink clothing.  Probably wont wear it much any more.  This summer a rather creepy man dressed in pink came up to me and thanked me for supporting breast cancer.  We do need a support all cancers not just the one.

Lou Ann

mwells1004's picture
mwells1004
Posts: 13
Joined: Jul 2017

I was just pontificating on this topic earlier today. I feel like people are 'aware' of breast cancer at this point but our sisters around the world desperately need more education and awareness about the signs and symptoms of gynecological cancers. Not to mention while the funding for breast cancer research has allowed for massive strides in treatment and survival rates some gyn cancers like mine (MMMT) have not seen marked improvement in survival rates in over 40 years. The money and push for research just isn't there. This is probably all sour grapes from me though.

Amatullah
Posts: 36
Joined: Jun 2017

The only people who will push for research for cancers like MMMT and other more rare cancers, are those of us who have it and those who love us.  We are the someone who should do something about it. DerMaus posted a link for Gyn CarcinoSarcoma yesterday.  I'm going to research it a little and post the link for it on my Facebook and a couple of other places.  I disappeared from Facebook and haven't told many people about having cancer.  The site asks for donations for the research.  And it educates.  Here is the link.   http://gcsproject.org/community/

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Here is another organization to consider looking into regarding advocacy for rare cancers like MMMT, UPSC, Clear Cell, etc.:

https://rarediseases.org/advocate/take-action-locally/join-rare-action-network/

They advocate for ALL rare diseases including cancers. If you would like to get involved and become an advocate for MMMT or other rare cancers, this may be the group for you. :) 

 

ConnieSW
Posts: 1545
Joined: Jun 2012

That's pretty bad when we can't even wear pink without it being assumed we are making a statement. 

pinky104
Posts: 574
Joined: Feb 2013

I agree with you, No Time for Cancer, although like Lou Ann, I love pink.  It's my favorite color.  I was cleaning out my jewelry armoire yesterday and found one of those traitorous pink ribbon pins in there.  Although my mother, grandmother, and cousin all had breast cancer, I wondered how that thing snuck its way in there when I should have a "horse" of a different color. 

I was reminded of when I was in my BJ's store this spring and I asked a woman in line ahead of me at the check-out why she was wearing a peach ribbon, if she had someone with cancer in her family.  She told me it had been part of a give-away at her bank, nothing to do with cancer.  When I told her about mine, she asked me if I would like her to pray for me.  I said "sure."  She actually prayed for me right in line.  I never expected to have that happen as I was waiting to check out.  I guess her prayers worked (along with many other people's) as I was found to be NED today.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1734
Joined: Jun 2015

Pinky - Congrats!!!! That is wonderful news!!!! May you dance with NED forever this time.

Love and Hugs,

Cindi

MAbound
Posts: 1101
Joined: Jun 2016

You've certainly been through a lot recently and I hope it all pays off that you keep getting those NED checkups! Congrats!

EZLiving66's picture
EZLiving66
Posts: 1467
Joined: Oct 2015

Way to go, Pinky!  I am so happy to hear you are NED.  Hopefully, this will be the end of cancer for you!!!

Love,

Eldri

SandyD's picture
SandyD
Posts: 130
Joined: Oct 2015

Congrats Pinky! That is so great!

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

I, with all of you! While i actually like the color, I dread October. As I’ve mentioned before, I am from Peoria, I’ll home of Susan Komen. We are told about breast cancer throughout the year and inOctober it is a daily assault on TV and newspaper!! My best friend had  breast cancer

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

I couldn’t finish for some reason and my friend hates the constant reminders! I am determined to raise awareness about all women’s cancer especially in September next year! 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1734
Joined: Jun 2015

I have mixed feelings about the pink thing. It has gotten so commercialized and much of the business profits most likely don't go to cancer research. I read an article yesterday, though;  about death from breast cancer has gone down significantly. Something like 322K... That is wonderful.  And, I guess it is easier to talk about breasts than the "down there" stuff. So, how do we get our cancer noticed? Just like everything else, the most attention will continue to go with the areas that have the biggest impact. Ovarian cancer is starting to get  more attention and it seems that our cancer has a lot in common; so perhaps we will start to get more attention riding that coattail? 

I also like the color pink.....

Love and Hugs!

Cindi

MAbound
Posts: 1101
Joined: Jun 2016

Why can't pink be for "Women's Cancer Month" ? That should cover gyn cancers as well as breast and then maybe the money for research and education could be shared more equitably. It would certainly expand the fundraising pool, wouldn't it?

Kaleena's picture
Kaleena
Posts: 2053
Joined: Nov 2009

I thought I was the only one who thought this way.  I'm with Cindi about it being too commercialized.   I'm glad you brought this up NoTIme.  I too like the color pink.   However, when I used to go the high school football games and they did the pink think (while I am sitting there recoverying from Uterine cancer), it was depressing.   Why do we have to give it a color?  In fact, I don't even know what color I should be?   I was diagnosed endometrial, treated like ovarian (unable to find a primary).   My husband has pancreatic cancer (he's purple) (Doing very well by the way).

Ok, I got anxiety now.   I need a color!!!!    Just kidding.   But it has gotten out a hand a bit.   All cancers should be supported. No one should feel alone fighting this disease, no matter how rare or how common.  And I don't like when I hear people say to someone - "You got the good cancer".  All cancer is bad and should be supported as such.  

(((Hugs)))

Kathy

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

I plan to do this walk. Let me know if any of you will be there so we can meet up. I plan to go to the educational session the day before, also. It‘s free. 

http://www.foundationforwomenscancer.org/press-release-gynecologic-cancer-foundation-named-one-of-americas-best-100-charities/

 

https://endwomenscancer.org/

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2863
Joined: Mar 2013

CQ - I have done this for several years but with the amount of travel I am doing for work this year I will not be able to makke this one.  You will really like the walk.  It is SO AWESOME to see so many other women with gyn cancers together who 'get it'.  The meeting the day before is also pretty good.  I have done two of them.  Please let me know your thoughts.  There is another wonderful, young woman who I met on the board who I have seen for several years. 

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

Wow I wish I could! Maybe next year....

EZLiving66's picture
EZLiving66
Posts: 1467
Joined: Oct 2015

It kind of annoys me but I try to think on the positive side.  There are breast cancer treatments that are working for US.  In a way, the breast cancer women are the guinea pigs with their new treatments.  It's only been in the last decade that most people would even talk openly about any kind of cancer and I think we have to thank the "breast" people.  I remember my mother telling me that people would not admit they had any kind of cancer because you would be shunned.  

However, that being said, when the Breast Cancer Foundation called me to give money, I told them thanks, but no thanks. I support uterine and thyroid cancer research.

Love,

Eldri

SandyD's picture
SandyD
Posts: 130
Joined: Oct 2015

I admit that I get a bit frustrated (and even annoyed) at times with all the hoopla for breast cancer! I find it frustrating that there's almost an assumption that the only cancer affecting women is breast cancer. Awareness of other cancers affecting women is almost zero. 

Cass83's picture
Cass83
Posts: 151
Joined: Feb 2017

I too thought I was the only one that felt this way! I have had people assume since I am female that my cancer was breast. I have had to tell them, no it was uterine. I have seen pictures on FB that say "Not All Cancer is Pink" and love it!

BTW, our color is Peach. I do not like peach. Who came up with that? Some man? ugh I like pink, but I agree with everyone, wearing it makes people think I had breast cancer.

Our local highschool football just had a Pink out, and "tacke cancer". Ok, so tackle cancer, but wear a different color, or multi color to represent us all.

Thanks so much for posting and saying what so many have thought!

SandyD's picture
SandyD
Posts: 130
Joined: Oct 2015

Cass, I've had the same thing happen!

Peach doesn't flatter me and I don't wear that color.

What I think we need is a multi-colored ribbon that represents cancer more broadly. I would definitely pin it on and wear it! 

Cass83's picture
Cass83
Posts: 151
Joined: Feb 2017

I agree on the multi colored ribbon, I would wear it too!

Apaugh's picture
Apaugh
Posts: 856
Joined: Aug 2016

I guesss I am in the catagory of the pink.  Because of this cancer, I dont even like pink anymore.   I just want to survive and go on with my life. 

HUGS

Annie

ConnieSW
Posts: 1545
Joined: Jun 2012

thanks for stopping by this board. I read your About Me page. You've had a rough time. I'm so greatful that I don't have to deal with lymphedema. Take care. 

Double Whammy's picture
Double Whammy
Posts: 2831
Joined: Jun 2010

Last month was gynecologic cancer awareness month.  We all need to raise awareness about that.  Why don't we?  Thing is, there are not as many people effected as there are with breast cancer and society has made it ok to talk about breasts but not so much about those other lady parts in public.  I agree with everyone, but what all the pink hype has done is make the general public think that having breast cancer is a piece of cake and a good excuse for a boob job.  It is neither.  As a survivor of both breast and endometrial cancers, I posted about gynecologic cancers last month and this month about breast cancer of my Facebook page.   I changed my profile picture to a pink ribbon for October.  Had I found a peach ribbon last month, I would have done that too.  I have done nothing about all of the other cancers - lung, liver, pancreatic, brain, and on and on.  So why not an "all cancer month"?  We never pay any attention to any of it (except Pink October where you can even buy wine with a pink ribbon) unless it effects us.  This is wrong.  And I don't have an answer except that metastatic breast cancer kills far too many and early detection can save lives - before the cancer has a chance to metastasize.  Listen up - get your mammograms!  And yes, Pink October has gotten totally out of hand - too commercialized, and companies capitalize on putting a pink ribbon on just about anything!  I just did a fundraiser for JDRF (Juvenile Diabetes Research Foundation).  There are many many OTHER causes that are worthwhile that and are NOT pink.  And this is all coming from a breast cancer survivor who wears pink proudly in October.  One in eight women you know . . . but I think you have to live under a rock not to know that.

Suzanne

 

Kaleena's picture
Kaleena
Posts: 2053
Joined: Nov 2009

Why not dedicate a month to cancer awareness in general - maybe designate each week for a variety of cancers - that way everyone is included - even those very rare one.    My mom and aunt have breast cancer, my husband pancreatic cancer, and me I have endometrial uterine cancer.

Kathy

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

Good idea Kaleena!

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