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Breakfast

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

 

Guess what I had for breakfast? I enjoyed sipping a "Breeza" on an empty stomach. With its splashy label featuring  strawberries, banana, pineapple, kiwi, even calling it a fruit flavored beverage, I always want it to taste like a fresh fruit smoothie.

And each time, I shudder with the first sip--the artificially flavored "fruit" and that terrible cloying sweet taste that coats my teeth. I have been so thirsty this afternoon. 

Yes, I had a CT scan this morning. I have an appointment with my hematologist next week and will try to put it out of my mind until then. I went to the scan alone, like a big girl, but my husband will be with me to get the results.

Cheers, 

Rocquie

po18guy
Posts: 1007
Joined: Nov 2011

I buy those in small boxes of 8 envelopes at Wally's Mart. Dissolve one into a 500ml water bottle and it is easy to hydrate. Real flavor, and the Splenda is not a bad artificial sweetener. Since the steroids I take have produced diabetes, these powdered sugar-free drinks are great. Carried in purse or pocket, all you need is a stantard water bottle and you're good to go. Hawaiian punch, in particular, now comes in something like 5 or 6 flavors. I do like the raspberry tea though - that's Wally's own brand. 

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

Po18guy, the drink I am joking about is iodinated contrast for CT scans, not a beverage for hydration. I guess my humor fell flat. Your clinic must use a different brand. . .

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3309
Joined: May 2012

Roc,

I don't drink anything that has pretty flowers on it (well, without a perscription !), but did have two Busch Lites afterward, and said a prayer for your results to be perfect.

max

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

Thank you for your prayer. Now if they woud just make the contrast beer flavored. . .

po18guy
Posts: 1007
Joined: Nov 2011

My bad! I blame chemo-brain, poor short-term memory, morning fog, pre-coffee blur, general unawareness and I forget the other reasons! As to the lovely concotions for contrast, I contrast them with that which is palatable! We used to get this "berry smoothie" that was neither. Even the name was hypnotic suggestion at the most. Grayish-white gellatenous glop. As I recall, it exited must faster than it entered - a real bonus! Frown Not. Lately, they have a solution that is basically water. Clear, thin - watery. No real taste, but an awful lot of clear thin watery liquid to down in a short time. Why can't it be mixed with dark roasted coffee, for goodness' sake!

 

Signed: needs more sleep, more coffee, or both. 

po18guy
Posts: 1007
Joined: Nov 2011

What if one is color blind or simply blind? Then the visual aspect is a moot point and it is just what it is. Hey, does that fit the bottle cage on a bicycle? On seing it, any other cancer patients could not remain silent! Let's start a contrast solution exchange so that we then know better what each of us is going through! OK, maybe too much coffee this AM...

dana-mihaela's picture
dana-mihaela
Posts: 39
Joined: Sep 2016

I will keep my fingers crossed for you to be good results. I understand that you are "waiting and watching"? Are you following any nutritional diet? 

Good luck,

Dana

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

Thank you for your thoughts. Yes I am watching and waiting after being told of a recurrance about a year and a half ago. I already went through 8 treatments of R-CHOP and 2 years of Rituxan Maintenance. I have always been a healthy eater. I don't eat much meat, love all vegetables and grains. We eat a mostly plant based diet. That didn't keep me from getting cancer, but I am otherwise in good health--my cholesterol is good, my weight is good, my sugar is good, my blood pressure is good. 

I don't take any medications. And I don't want to start unless I have too.

I will report back next week.

Thanks,

Rocquie

 

Evarista
Posts: 266
Joined: May 2017

Ach, Rocquie, you've gone an reminded me that I have to drink contrast next week!  I had completely forgotten...My preferred barium drink is the Cappucino flavor.  But my isotope for the PET gets injected by a robot, which is way fun...

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

Oops, sorry about the reminder. The cappuchino flavor sounds good! I haven't had a PET in a few years, but the tech who administered by IV contrast was a person. 

Good luck next week,

Rocquie

 

GSP2's picture
GSP2
Posts: 103
Joined: Feb 2015

May you fa breeza through your scans !

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

Thanks!

po18guy
Posts: 1007
Joined: Nov 2011

If I had to guess, is that I no longer have scans. After 40+ CTs and probably a dozen PETs, I'm ready for a break. The last word is that after two years without treatment and no sign of either lymphoma, that I may be done with it. OK, reason to celebrate - but I think fighting it was easier than dealing with cGVHD from the transplant. I have exchanged contrast solution for daily prednisone. Fair trade???

Ah, but I have to be alive to have complaints.

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

I'm glad you don't have to have scans any more, but I would rather force that awful drink once or twice a year than take daily prednisone. I have had plenty of it, it is very effective, and I am thankful for it, but those side effects can be tough. 

Best,

Rocquie

 

po18guy
Posts: 1007
Joined: Nov 2011

'Scanticipation' of a clean scan!

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

Thank you for your prayers. I will find out the results tomorrow. And I scanticipate good results.

PBL
Posts: 184
Joined: Jul 2016

I remember having had to down one of those yucky barium drinks about a quarter century ago... Don't think they even bothered to give it any particular flavor back then...

Congrats on being a big girl for that dread breakfast.

Fingers crossed till next week's news!

PBL

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

Thank you and I will report back next week. . .

Sandy Ray's picture
Sandy Ray
Posts: 97
Joined: May 2017

Praying your scan goes well. 

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

Thank you for your prayers.

lindary's picture
lindary
Posts: 657
Joined: Mar 2015

Any time I have to drink that contrast I take the vanilla flavor. Doesn't make it taste better but it does lower my expectations of what it will taste like. 

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

I am given no choice. . .

OO7's picture
OO7
Posts: 282
Joined: Sep 2014

For me I need to drink it cold, I just down it like no tomorrow while never allowing to get warmer than when given to me.  

Best of luck and prayers for a good scan.

I had my Onc appointment  last week.  He said wonderful words like stable, and I'll see you in six months and if all still goes well and  perhaps longer in between the following visit :-)

I can't even imagine....

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

I did refrigerate the Breeza, but couldn't down it! I was instructed to sip it contiously for an hour prior to the scan. 

Congratulations  on your great appointment last week. And thank you for your prayers.

 

illead's picture
illead
Posts: 844
Joined: Aug 2012

Wonderful news 007, I am so happy .  Always thinking about you Roquie and hoping for the best.

OO7's picture
OO7
Posts: 282
Joined: Sep 2014

Rocquie and Illead thank you.  I feel skeptical for some reason like I'm not allowed to feel relief especially when I'm so tired.  The worse part was the excitement was killed by the loneliness of my peculiar circumstances.  Yesterday I went to my mothers house to reveal my secret as I feel she should know especially when I'm doing so well and my health is fine and of course I was reminded again that this is my cross and I just can't burden her.  She has been through enough with cancer with my father and her mother I just can't do it.  Plus I feel guilty for doing so well.

 

So again a great big thank you, I really appreciate it.

 

Becky:  I have been thinking a great deal of you and your husband and hoping all is well for all of us.

 

Sandy Ray's picture
Sandy Ray
Posts: 97
Joined: May 2017

So happy for you! Great group of people on here. Glad we have people to share with who know how we feel. Well at least to some extent.

Sandy Ray

OO7's picture
OO7
Posts: 282
Joined: Sep 2014

Indeed, it's comforting sharing our concerns, victories or simply to ask a question.  Besides there is no better cheerleader than someone who walked in our shoes.  

Best Regards!

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3309
Joined: May 2012

007,

Yes, the cancer experience has to be experienced to be understood in the fullest sense.  While society is more understanding of medical issues today than in earlier decades, one still encounters many of the old reactions, although they are not always spoken, you can sense them: 

The ones I hate the most are the, "So-and-so has cancer; how long 'till he's dead ?" --  as if no cancer is curable

Up until the 1970s, many people would not touch a cancer patient, for fear of "getting it."  I witnessed old aunts decades ago who would not touch a relative dying of cancer, believing it contageous. Fortunately, few are that ignorant any more.

Or, "I'm sorry you're sick, I guess we just have really great genes in my family."  Most cancers, especially blood cancers, are not believed to be genetic.  When I hear that one, I think to myself: "Well, what is genetic is intelligence, and I obviously blew you off the map in that genetic area !"

And my all-time most despised (and the one that remains most acceptable today) is, "I always ate a no-cancer diet, so I guess I'm in the clear....Sorry about you."    There is a close-to-zero link between Lymphoma or Leukemia and diet.  Indeed, both are among the most common childhood cancers, which renders a diet link ridiculous (that is, children have simply not been eating enough years to have a diet-induced cancer, even if these were diet-inked).

I hope this old hit relates to your situation... It has a very 60's sound.  Best listened to with round sunglasses on (think Janis Joplin) and while wearing a few strands of beads ! 

max

 

https://www.youtube.com/watch?v=ofhw0lWpVZc

Evarista
Posts: 266
Joined: May 2017

Max, I though you might enjoy this article:  http://www.slate.com/blogs/the_eye/2015/05/06/empathy_cards_by_emily_mcdowell_are_greeting_cards_designed_for_cancer_patients.html My favorite is "I want you to know that I will never try to sell you some random treatment I read about on the internet."  

OO7's picture
OO7
Posts: 282
Joined: Sep 2014

Groovy, I love music and its ability to transport, heal, romance, make us get up and move or even cry.  Music is my therapy.

You are spot on with the reactions we all face.  I too loath the "so and so has cancer" etc...  I think you can relate when I tell you recently a former friend of mine had a cancer scare.  Thankfully she is fine and never diagnosised.  I kid you not, she is acting like she has or had cancer.  She posted on social media how grateful she was that she caught it early.  Then while out to dinner with a group of friends she went on and on about this and that then looked at me and said "oh well at least mine is not like yours" .  Mine, yes is cancer and yours is not.  I lovingly and politely told her that she is not in this club nor is she welcome here unless she is diagnosed.  She was my dearest friend.  Then my former oncologist was telling my husband of his cancer scare.  With fear and elevated voice exclaimed "can you imagine being told you have cancer".  He was my doctor (friend) and standing arms length away from me.  I bet you can imagine how I felt.  Both of these individuals are oncologist.  I can't even make this stuff up.   Absolute nonsense.  

 

I almost forgot, another friend told me her cancer was her husband.  Marital problems, seriously you can divorce him, I can't divorce cancer :-@

Donning my large circular glasses and turning the volume up, PEACE!

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

I had an appointment with my Hem/Onc yesterday to go over the CT scan I had last week. The findings were excellent. I still have the 2 "stable borderline"  para-aortic lymph nodes but no other "pathologically enlarged or enlarging" lymph nodes. No spenomegaly and at diagnosis my spleen was huge. My doctor said if he saw this report on a person without my lymphoma history, he would think nothing of it. All blood work was good and in normal ranges. 

Doc also pointed out that we are at 5 years from diagnosis and the importance of that milestone. He wants to see me again in 6 months which will be 5 years from completion of my R-CHOP. If all is still well, I won't need to see him for another year. 

Wow! So happy to be here!

Rocquie

 

Evarista
Posts: 266
Joined: May 2017

Great news Rocquie!  Stay well.

OO7's picture
OO7
Posts: 282
Joined: Sep 2014

to be reading this fabulous news.  Congratulations and I hope you did something splendid yesterday, today and everyday after that! Wahoo!

PBL
Posts: 184
Joined: Jul 2016

Time to relax now...

PBL

Sal0101's picture
Sal0101
Posts: 125
Joined: Sep 2015

Great news!!  i am soooooo happy for you! What a Milestone! 

Sandy Ray's picture
Sandy Ray
Posts: 97
Joined: May 2017

Wishing you the best and that many on this forum follow in your footsteps!

Sandy Ray

illead's picture
illead
Posts: 844
Joined: Aug 2012

I couldn't be happier for you, that is one big relief, I agree, hope you had a great celebration or planning one.  As Sandy said, hope all can follow in your footsteps.

Thank you for sharing, you lift my spirits.

Becky

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