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Colon cancer stage 4 2 lung spots

jlg17
Posts: 6
Joined: Jun 2006

I'm scared. They tell me my spots on my lung are from colon cancer that broke they walL of colon. 

Pet scan says it's only in my lungs colon and nodes. Only!!that's funny. I am scared. Don't know jay to do.

Guess they gonna try to cut out piece of colon infected and then start some kinda treats men. What should I be doing.?? Asking!!. ??

im 47. Two young kids. Any way i could beat this and live for a while or do I have  6 months. 

Tunadog's picture
Tunadog
Posts: 235
Joined: Mar 2017

Sorry you are here, welcome. It's a good place for honest information and answers.

Best of Luck on your Journey.

Peace

 

danker
Posts: 1234
Joined: Apr 2012

Your young age is in your favor.  It may be a bumpy ride, but it is doable.   Take it a day at a time, assuming all is going well, and you will be a NED survivor like so many of us.  Good luck to you!!

jlg17
Posts: 6
Joined: Jun 2006

Thank you. I don't know if I have the strength to do it. 

I am so scared. !!

Woodytele
Posts: 163
Joined: Apr 2017

Im in the same boat as you.  Your Doctor should be advising you on what the steps are, but yes usually they will do surgery on the colon, then possibly chemo after that.  If the cancer has spread just to the lungs, then that will be your focus, however it usually spreads to other parts, liver being the most common.  Ask a lot of questions.  No one knows how you will respond to the treatment until it starts. Stay positive. 

tanstaafl's picture
tanstaafl
Posts: 1292
Joined: Oct 2010

There are a lot of treatment possibilities, some standard, some more advanced.  

For metastatic cancer, it's been important for us to get multiple kinds of opinions (bd certified colorectal surgeons, oncology surgeons, oncologists, radiologists, natural medicine) at various points.  The most successful treatments for advanced cancer have tended to be a multimodal approach - multiple segments of surgery, chemo, radiation and/or integrative medicine to regain control of the situation.  

We also immediately used  neoadjuvant (before chemo or surgery) immune building treatments on my wife using off label drugs (cimetidine, celecoxib, baby aspirin) and high potency supplements based on Life Extension Foundation articles and others.   

vtspa6
Posts: 172
Joined: Aug 2015

Surgury was not an option.  He has been doing chemo.  It depends on where the spots are in your lungs to see what options you will have.  My husband's spots were not in a place to do surgery or radiation.  The chemo has been working, got rid of all except 3 very small spots. He had 30 spots in his lungs, some nodes plus the tumor on his colon.  Best wishes for you!

jlg17
Posts: 6
Joined: Jun 2006

thank you for your info and support. I'm very depressed but I'm sure that's normal 

I will look into natural ways as well as surgery and chemo. Thank you. 

Bellen
Posts: 281
Joined: Aug 2016

Vtspa6 - What chemo cocktail is your husband having for the lung mets?  Glad to hear it seems to be working well.  Best to him.

vtspa6
Posts: 172
Joined: Aug 2015

Right now he has been doing Folfori w/Avastin every two weeks along with the pump.  Before that he was on Folfox w/Avastin and pump.  He just finished his 52nd treatment (starting on the third year of chemo).  He can't stop chemo, only thing keeping the cancer from speading.  I asked the Dr. how long a person can stay on chemo, he said approx up to 4 years.  We will see!

impactzone's picture
impactzone
Posts: 534
Joined: Aug 2006

Stage 4 here from 11 yeras ago. I have had 4 thoracic surgeries where they went in and cut out mets to the lungs. All my stuff was done at Stanford and yes it was a hassle being 5 hours away but we felt comfortable there and there are many great large cancer centers around the world. Find one near you, get a thoracic surgeon that has some experience. You will never be younger than now. you can look at my profile but there are many here who have done well for years.

All my best

Chip

vtspa6
Posts: 172
Joined: Aug 2015

Chip, I was wondering where your spot(s) were in your lungs and if they were in just one lobe?  They told my husband that the spots were in all lobes and also kinda in the middle area of the lobes.  They were not near the edge.  And if they could possibly get to one, it wouldn't make sense because they couldn't get to them all.  What was your situation?

Annabelle41415's picture
Annabelle41415
Posts: 6448
Joined: Feb 2009

I'm sorry that you are facing this situation.  You might want to get a second opinion.  It looks like you joined in 2006, is this a recurrence or a new cancer find.  It's scary but if you can get someone that can give you some plan you can work on that.  Wishing you the best.

Kim

impactzone's picture
impactzone
Posts: 534
Joined: Aug 2006

I had spots in different lobes. I had 1 lobectomy and then 3 other opertions that took parts of the lung. Currently I have about .5 lobe on one side and .75 on the other. I understand that location matters a lot but surgeons seem to believe they can get almost anything where oncologists are not as positive. Not all spots were visible at the same time. The reason I had 4 operations were mets popping up over time.

All my best

Chip

vtspa6
Posts: 172
Joined: Aug 2015

Thank you for replying.  Sounds like you have gone thru so much!  We will keep your experience in mind as we go thru this.  My husband is getting a scan tomorrow, hoping his spots have not grown since the last scan.

blessed39's picture
blessed39
Posts: 90
Joined: Dec 2016

Several years ago I was in a similiar situations as yours. They took out 12 inches of my colon.

Then throw in the mix a quadruple bypass open heart surgery. Also the colon cancer spread over behind 

the aorta causing a tumor. I was sixty five at the time the colon cancer was dectected. Let me encorage you to keep the faith.

My complete story "How I Beat Stage Four Colon Cancer" is on my blog. I can't advise you as to medications or any other medical advice,

I can only tell you what worked for me. God bless you, blessed39

Phoenix_66's picture
Phoenix_66
Posts: 118
Joined: Jun 2017

I am 50 and my original colon cancer was in 2006.  It returned in 2013 and again this year.  I have been fighting for 11 years and while it is scary at times, my advice would be to do some research and find a really good oncologist and clinic that you are comfortable with.  Most good oncs will give you options but above all, stay positive.  A positive attitude goes a long way in fighting cancer.  Joshua 1:9

ericliu's picture
ericliu
Posts: 8
Joined: Sep 2017

dont give up , that make you stronger , we will be with you  !

Best wishes from ChinaSmile

eric

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