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Update on 9/8/17 PET-CT Scan

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Good news! I was able to see the radiology report of my PET-CT scan from Friday, 9/8/17 and it shows that the mass in my chest remains stable so all indications are still pointing to it being a benign thymic-rebound. My appointment with the gyn-onc is in a week so I'll learn  if my port can be removed at that time. I'll post an update afterwards.

Also, we had no major damage from Hurricane Irma. We're still without power at my home but we have a generator so we've been able to keep the refrigerator and some fans running. It could have been much worse so we consider ourselves very lucky indeed!

CheeseQueen57's picture
CheeseQueen57
Posts: 836
Joined: Feb 2016

God Bless!

derMaus's picture
derMaus
Posts: 561
Joined: Nov 2016

Good news on both counts! Thank you for keeping us posted, and congrats on the generator AND the scan. B

ConnieSW's picture
ConnieSW
Posts: 1456
Joined: Jun 2012

to learn your good news in a time of so much bad. 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

on all accounts.  Much to be thankful for.

Hugs and prayera, Lou Ann

Nellasing
Posts: 529
Joined: Oct 2016

Thank you so much for sharing with us both these pieces of good news Laughing surely needed right now!  (((HUGS)))

henhill's picture
henhill
Posts: 123
Joined: Aug 2016

Congratulations and I hope you will bask in that good news

 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2645
Joined: Mar 2013

Great news!

Jairoldi's picture
Jairoldi
Posts: 219
Joined: May 2017

I do enjoy hearing good news! Thanks for sharing.

Soup52's picture
Soup52
Posts: 902
Joined: Jan 2016

Fantastic!

MAbound
Posts: 906
Joined: Jun 2016

A hurricane and awaiting test results! The past few days couldn't have been easy for you. So glad you've had positive news. Laughing

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Thanks, everyone. Power is back on and I'm looking forward to my gyn-onc appointment next Tuesday to find out if I can be de-ported. ;)

RB773
Posts: 9
Joined: Aug 2017

It's wonderful to hear good news, so happy for you!

Kaleena's picture
Kaleena
Posts: 1979
Joined: Nov 2009

Great news Kvdyson!

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1577
Joined: Jun 2015

Great news! We all celebrate with you.  My power came back last night. And, we just got internet and cable back 10 minutes ago! I have to say the companies did a great job responding to all of the needed repairs. Although, we are spoiled so being without TV for 4 days was tough. And, it was great sleeping in my bed with air conditioning last night. 

I hope you get deported very soon. Not sure if you remember, but I had mine out 6 months post chemo.... Put some lidocaine around the entire area and you won't feel the needles very much when they numb the area.

Keep dancing with NED my friend.

Love and Hugs,

Cindi

 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Hi everyone. I wanted to share some good news that I had my last 3 month follow-up appointment with my gyn-onc on Tuesday, Oct 3rd and have graduated up to every 6 months! My next appointment is in April 2018 - it seems so far away! I'll be getting my port removed ("de-ported") next month.

I'm trying not to jinx myself but it really feels like this whole ordeal is finally starting to come to an end. :)

Jairoldi's picture
Jairoldi
Posts: 219
Joined: May 2017

That is terrific good news!

Kaleena's picture
Kaleena
Posts: 1979
Joined: Nov 2009

Glad to hear the good news!

Hugs!

Kathy

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Do something to celebrate 

Cass83's picture
Cass83
Posts: 151
Joined: Feb 2017

So happy for you! I just started on the 3 month cycle for 2 years, and will have my port until May 2019. I love hearing when others are progressing well like you!

rcdeman
Posts: 257
Joined: Aug 2016

That sounds great! Very happy that everything seems to be going well for you! :) On one hand, it's great news that you've graduated from 3 to 6 month appointments because that means your chances of recurrence are slimmer, but on the other hand, on my part, I would feel anxious and insecure about the further apart appointments too. Maybe it's just me. :) My mom is getting a CT scan plus her checkup in December but I'm already feeling anxious because her last scan was before she even finished her treatment!

Either way, I am glad for you and sincerely wish you the best!

Love,
Rebecca

Amatullah
Posts: 36
Joined: Jun 2017

That's wonderful Kvdyson.  Hope is one of the best tools we have.  So when appointments are every three or six months, does that usually mean a Pet Scan every 3 months too and then six months.  The way I understand it, there is no way to tell if the cancer is gone or progressing with endo carcinosarcoma cancer, except for the pet scan?  

MAbound
Posts: 906
Joined: Jun 2016

Most insurances won't cover periodic PET scans to watch for recurrence (they're more expensive that CATs), so it's more likely that you'll have periodic CAT scans following front line treatment. I think they allow the PET scan before surgery to help the surgeon determine how far he needs to go with what gets removed for testing, but that's where they draw the line.

MY gyn onc has me on an every 3 month check-up schedule the first two years, followed by every 4 months the 3rd year, every 6 months the 4th year and then annually after that. Right now he's alternating CAT scans with Chest Xrays for each check-up besides the lab work. I won't be surprised if he cuts back on the CATs during this 2nd year because they do expose you to a lot more radiation than a chest xray does and if one is going to have a recurrence, odds are that it will show up in the lungs first.

I was asked this week if I wanted my port out, but I'm going to keep it. I'm high risk for recurrence, so I'm not quite confident to take it out yet. I've heard that it's harder to re-insert later because of scar tissue and I'm hardly aware of it, so I'm leaving it in as long as they'll let me. I'm kind of supersticious that taking it out will somehow jinx me! It seems as time progresses I get more and more anxious about a recurrence even though all is going well so far. It's always such a relief for awhile after each good check-up.

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

No, it'll just be a physical exam unless I report symptoms that indicate a scan is necessary. The PET scans I had were only due to the mass in my chest that they've decided is benign.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1577
Joined: Jun 2015

Yeah Kim!!!! Congrats on moving to every 6 months. I can't wait to hit that milestone myself. :-)

Love and Hugs,

Cindi

DottieDean
Posts: 36
Joined: Sep 2017

Great news.  This is the kind of news we all need to hear.

Nellasing
Posts: 529
Joined: Oct 2016

Truly wonderful news!!!  Blessings and (((HUGS))))

MAbound
Posts: 906
Joined: Jun 2016

Gotta have the good news stories to help balance the setbacks! I'm so happy for you!

Soup52's picture
Soup52
Posts: 902
Joined: Jan 2016

 congrats Kim! Celebrate:)

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

So great to hear this!

CheeseQueen57's picture
CheeseQueen57
Posts: 836
Joined: Feb 2016

So happy for you!

namedropper
Posts: 102
Joined: Dec 2014

What great news. I am soooooo happy for you.

EZLiving66's picture
EZLiving66
Posts: 1369
Joined: Oct 2015

That is wonderful news, Kim!!!  I am so happy for you but I bet not as happy as you are - LOL!

Love,

Eldri

cheerful
Posts: 245
Joined: Apr 2011

That is wonderful news Kim. I am happy for you regarding your Pet/CAT Scan. You have to be so relieved, that's for sure.

 Regarding Hurricane Irma, glad to hear that you are getting power, I have family and friends that live in FL.  My friends lost electricity for 1 day. I have a first cousin that lives in Ft. Myers, and luckily she had no serious damage to the condo she lives in. She was able to live with her daughter for a couple of weeks in North Carolina so glad she left FL and was in a much safer place. I have another first cousin in Clermont (near Orlando) she came back East to spend time with one of my other first cousins. 

Cheerful

a/k/a Jane

janaes
Posts: 785
Joined: May 2016

Thanks kim for sharing yuor good news.  My year mark from being done with chemo is some time this month.

hopeful56's picture
hopeful56
Posts: 73
Joined: Jul 2017

Congratulations and many blessings to you!  So happy for you.

Gma1201
Posts: 3
Joined: Oct 2017

Congratulations on your news, gives us all hope!

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