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Subcutaneous Panniculitis-Like T-Cell Lymphoma

sarahbruton23
Posts: 1
Joined: Aug 2017

I am searching for someone who has the same kind of non hodgkin's as me.  I have Subcutaneous Panniculitis-Like T-cell lymphoma stage 4a.  This is a rare cancer and I have not been able to find much information on this disease let alone anyone who also has this.

 

 

po18guy
Posts: 1011
Joined: Nov 2011

Since this variety (one of 19 T-Cell sub-types) is so rare, you should strongly consider consulting with a nationally known specialist in T-Cell Lymphomas. Have you begun treatment? 

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