Cluster Bowel Movements

STEVENML
STEVENML Member Posts: 7
in Anal Cancer #1

Hi

I am new to this site i had stage 3 rectal cancer and have compleated  radiation treatment and chemo last year . as of now i am cancer free . had to wait to have ilistomy reversed due to a small leaak at incision.  Doctor fixed leak , just had iliostomy taken down  after 2 years on june 19,2017  my questions are to everybody who had a ilistom taken down .

it has been 7 weeks and having problems with  cluster bowel movements  which last along time and i feel they are violent can these be controled to apoint to where they are not so severe  

last night i spent most of the evening in bathroom till 3:oo AM 

and also there are days where i go 10-15 time and only  small bowel movement ( a small piece ) i am in the construction industry (Tile& Marble ) have to go back to work soon and i am woried about the frequent and severe bowel movements .  what can i take or do to help control this in a manageble way so i may go to work and pay Bills!!

Plesae Help !

Steven 

 

 

Comments

  • STEVENML
    STEVENML Member Posts: 7
    #2
    Cluster bowel movement

    Please Help

  • mp327
    mp327 Member Posts: 4,440 Member
    edited August 2017 #3
    STEVENML

    I'm sorry that I can offer no input, as I've not had an ileostomy, but hopefully, someone here can respond with some helpful information.  I wish you all the best.

  • Mollymaude
    Mollymaude Member Posts: 431 Member
    #4
    Steven

    I only had chemo and radiation- no surgery- so I don't have an answer. I have known people with iliostomy reversals and they seem to have a lot of problems at first and then it gets better but I don't know the details. Have you asked your question on the colorectal cancer site? If your stools are really loose, Immodium might help. I'm very sorry for your situation- it sounds like it is going to be hard to work like that. 

  • eihtak
    eihtak Member Posts: 1,473 Member
    #5
    Steven...

    Hi, and congratulations on completing treatment and your recent reversal. I have a colostomy but for me it is permanent. I am part of an in-person ostomy support group and we do have a couple members who have had reversals though and pop in to update others on how things are going. It seems that your current issues are common for sveral months, but that things do improve in time. Maybe keeping a food journal you may be able to tell what foods trigger these cluster movements for you???? I am also part of an on-line support group and there is a link for "ostomy reversals"...you may find some tips there to help get you back to work with less worry!

     

    https://www.inspire.com/groups/ostomy/

     

    Wishing you luck...and a long life of health ahead!!

    katheryn

  • STEVENML
    STEVENML Member Posts: 7
    #6
    eihtak said:

    Steven...

    Hi, and congratulations on completing treatment and your recent reversal. I have a colostomy but for me it is permanent. I am part of an in-person ostomy support group and we do have a couple members who have had reversals though and pop in to update others on how things are going. It seems that your current issues are common for sveral months, but that things do improve in time. Maybe keeping a food journal you may be able to tell what foods trigger these cluster movements for you???? I am also part of an on-line support group and there is a link for "ostomy reversals"...you may find some tips there to help get you back to work with less worry!

     

    https://www.inspire.com/groups/ostomy/

     

    Wishing you luck...and a long life of health ahead!!

    katheryn

    Thank you for the feedback i

    Thank you Eihtak and other members for the feedback i will check this out 

    best wishes 

    Steven

  • coliemore
    coliemore Member Posts: 1
    #7
    Cluster Problem

    I am in a similar situation in Vancouver. July 29 2016 surgery for rectal tumor after chemo and ileostomy pouch for a year until July 5 2017 reversal surgery. Much clustering and unable really to go out. Trying sacral neural electrical stimulation SNES via a pelvic floor therapist. Suggestions much appreciated on how to reach a reasonable new normal.

  • Bayou2019
    Bayou2019 Member Posts: 2
    edited January 2021 #8
    Cluster Problem

    Had rectal cancer surgery back one year ago and still not really able to leave home. I have no control Or know when it's going to happen. Can you tell me

    what is a sacral neural electrical stimulation SNES. Can someone who had rectal cancer be able to use it.  Is this something you can clean yourself out. Do you

    know?

  • eihtak
    eihtak Member Posts: 1,473 Member
    edited January 2021 #9
    Bayou2019 said:

    Cluster Problem

    Had rectal cancer surgery back one year ago and still not really able to leave home. I have no control Or know when it's going to happen. Can you tell me

    what is a sacral neural electrical stimulation SNES. Can someone who had rectal cancer be able to use it.  Is this something you can clean yourself out. Do you

    know?

    Bayou2019...

    Hi,

    Sorry I can't be of much help but I bet you'll get some better answers if you post your question to the Colorectal site (just a bit further down the list) This is anal cancer and while we share many similarities, treatment is a bit different than for rectal cancer. Good luck though, hang in there...

    katheryn

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