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Husbands first Chemo today 5hrs came home with Pack for two days stage 4 colon cancer with liver mets

desnee2029's picture
desnee2029
Posts: 28
Joined: Aug 2017
desnee2029's picture
desnee2029
Posts: 28
Joined: Aug 2017

Husband had first Chemo today.  He came home with fu5 pack?  Stage 4 several mets to liver.  It is all new to us.  I'm trying to be strong but emotions all over the place.....liver mets have to shrink 90% to do liver resect?  He has colonostomy.

 

 

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

All of us on this page have very similar cancer albeit at different stages. I go for my 5th treatment of 12 tomorrow (Stage 3C Colon Cancer). Throughout this process, I (like your husband) am going through emotions that are unfamiliar to me, let alone how it is affecting my wife a 2 kids.. My wife, like you, is still trying to wrap her mind around what has happened to me/us. I recommended that she search out help of a professional, to help her be the strong person that she's always been. She has done just that, and I am so proud of her for helping herself through the process, as I am not sure that I would be able to help as well as a professional, while dealing with my own concerns.

Good luck moving ahead; positive energy is much better than negative energy!

Barry

Karry66
Posts: 1
Joined: Dec 2017

Hi Barry,

Like your wife I am having a hard time wrapping my mind around my husband's diagnosis of Stage 4 colon cancer with liver Mets which they say right now doesn't look like it will never be operable unless we get a miracle. He also had a blood clot in his lung which he is being treated for. I am having a hard time staying positive and hopeful. I am going to be seeing a counsellor on Jan 4, 2017. How is your wife dealing with it since she has seen a counseĺor? My husband was diagnosed on November 22, 2017 and he will be starting chemo on January 19, 2017

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

Hi Karry,

I hope that you and your husband are doing better. Your husband will be starting his treatments soon, so be strong for yourself and be there for him.  With regard to your question, my wife really found it very helpful to talk with a professional about her emotional state, about her feelings on my having cancer. She is really doing much better, especially since my treatments have ended. I go back for CT scan in late February, to follow up post treatment. I am the one who is anxious about that appointment, but I know that is to be expected. I am just hoping to hear the words "your clean" after the scan is done. I plan for the future (as I have always done), but live for today!

May 2018 be a better year for your family.

Barry

desnee2029's picture
desnee2029
Posts: 28
Joined: Aug 2017

Husband had first Chemo today.  He came home with fu5 pack?  Stage 4 several mets to liver.  It is all new to us.  I'm trying to be strong but emotions all over the place.....liver mets have to shrink 90% to do liver resect?  He has colonostomy.

 

 

NHMike
Posts: 214
Joined: Jul 2017

My wife told me that what I'm going through has been tough on her - I'd been somewhat self-absorbed going through it all and my emotions were all over the place. I also started chemo yesterday.

This is a good place to learn a lot of things, and to get some emotional support. It's really tough to find out and then to learn what the process is.

Trubrit's picture
Trubrit
Posts: 4891
Joined: Jan 2013

Welcome to the forum. I am sorry for your husband's diagnosis. 

Go with the flow of your emotions. It is common for loved ones to want to be strong, and thats good, but it can backfire in a number of ways.  I personally got the feeling that my husband and children didn't care that much. They were being so 'normal', almost flippant. I find out later that they wanted to be strong for me. Truth is, I needed to see their emotion. 

Allow yourself to feel sad, angry, bewildered, or whatever emotion hits you; just don't let that emotion take control of you.  You are experiencing a loss  of life as you know it. Life changes when there is a diagnosis of Cancer, or any major illness; but, you slip into a new normal, and you'll be surprised how soon that happens. 

Make sure you take care of yourself emotionally and physically, as you take care of your husband. 

We're all here for you. Its colorectal Cancer, after all, so we talk about the nitty gritty stuff that normal society shys away from!

Tru

bobby66
Posts: 69
Joined: May 2017

My husband is going thru the same thing. colon cancer and mets to liver and taking chemo. if you need to talk let me know. it is hard on us.

desnee2029's picture
desnee2029
Posts: 28
Joined: Aug 2017

Tomorrow we take out the Chemo portable pump/needle.  5-FU  We go back in two wks for more chemo.  Have not seen any bad side effects yet.  Tomorrow is day 3 .....unhook pump.

 

bobby66
Posts: 69
Joined: May 2017

my husband is going today. take his pump friday afternoon. this is his 6th treatment.

desnee2029's picture
desnee2029
Posts: 28
Joined: Aug 2017

It went well bobby.  We reread instructions as we/I was doing it.  Got nervous and called our cancer prompt care when taking needle out but, she said I did fine wasn't pulling hard enough.  Hub has some stomach?/liver pain dull but ate well today and went to visit his brother to small engine repair shop.  Where he likes to help.  He found out tonight he can't hold cold things but ate ice cream!  Two wk break until next Chemo.  Surgeon visit tomorrow to check port out.  Still some sleeping/energy issues.  How are you and your hub doing?  Sending prayers and positive energy.......Des

 

bobby66
Posts: 69
Joined: May 2017

he is doing pretty good. We dont pull the pump. He goes back to the office and they remove it. He did very good in this session. Avastin was not good for him so we removed it from the cocktail and they low his dosage of all the other meds. About your husband I'm very surprise he was able to eat ice cream. I'm happy for him. Let me know how everything keeps going.

CyniD's picture
CyniD
Posts: 13
Joined: Sep 2017

My husband had his first chemo today. So nervous about what tomorrow will bring. He is very weak, his BP very low. Please share your story with me.

plsletitrain
Posts: 253
Joined: Jul 2017

Cancer isn't an easy hurdle.  You have to be strong, for yourself and for your husband.  Stay positive and stay happy! Chemo is a part of the healing process and it'll soon be over before you know it.

impactzone's picture
impactzone
Posts: 531
Joined: Aug 2006

Stage 4 guy here who started when kids were 12 and 10. It is now almost 11 years out and I am doing well. Not easy and there were many setbacks but there were also great things. Caregivers really need support. Lots of love and attention given my direction but it was wife and kids who also suffered without lots of help until I made sure that all our relatives/friends spent time with and for her.

All my best and prayers

Chip

Julez
Posts: 9
Joined: Aug 2017

congrats on 11 years! my husband will just start his first treatment on Tuesday its so hard to stsy strong. If you dont mind me asking where was your cancr?

Franb51's picture
Franb51
Posts: 1
Joined: May 2017

Hi Chip!

    Just read your inspiring story of long term survival.  Stories like yours give me a lot of strength and confidence. Bet your family is so happy.  I was diagnosed stage four this past April. Had surgery and went on folfox regimen at sloan kettering .  I never had terrible side effects.  I have 3 more treatments to go.  What really freaks me out is the getting scanned after the chemo is finished. i have a lot of anxiety.  How did you get thru that part?  Keep up the good work 

kind regards, Fran

Trubrit's picture
Trubrit
Posts: 4891
Joined: Jan 2013

Chip pops on every now and again, and hopefully he will see your post. 

What you are describing we fondly call scanxiety.  Wether your scans are every month, three months, year, we're all hit with that awful anxious time of waiting for the results. 

Good luck as you face your fist scans, and pray all is clear and you can say you are NED (no evidence of disease). 

Tru

impactzone's picture
impactzone
Posts: 531
Joined: Aug 2006

I feel for you and the scanxiety.. I did go on an antidepressant for a couple years to level my mood out. There was no easy way for me  early in the treatment as the information made such a difference in my future. I tried to look at it as not a final score but just part of the game... or a lap split time. For me this is a marathon not a sprint... if it was good info...great... if it wasn't then lets do something now. Its acutally wierd now if I don't get scanned as I worry that something is happening that they can not do anything about... You cant win...

all my best

Chip

desnee2029's picture
desnee2029
Posts: 28
Joined: Aug 2017

I am so grateful for everyones reply to my post.  I don't feel so lost and alone.  T omorrow we are supposed to take out the porta Chemo needle and unhook pack.  Kinda scared.  Wish my husband would get on this support group.  Prayers and positive thoughts for everyone

beaumontdave's picture
beaumontdave
Posts: 1003
Joined: Aug 2013

Welcome, this is a marathon you and hubby are on now, and the shock does wear off, with a sense of routine, and many  anxious times moving in, usually built around appointments, procedures, scans and blood panel results. There are people that come here, who have similar initial diagnoses, that have ten years of survival and are still trucking on, you can read their back stories by clicking on their blog name. Tell your hubby even strong, silent types come here to unload stuff they can't tell anyone else. Humans are remarkably adaptable and you will find a new normal, it just takes awhile. In the mean time, read everything here and general info on the internet, just stay away from prognosis and survival estimate stuff as it isn't current and just scares everybody needlessly..................................Dave

desnee2029's picture
desnee2029
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Joined: Aug 2017

You are so right on.........read enough on the internet to make my head spin and not be able to sleep..........but here I feel so much support and hope and I am beginning to understand the new normal.............no words to explain what that means to me.....life goes on thank you

 

queenwarrior
Posts: 9
Joined: Oct 2017

Hello, I am a stage 4 colon patient with met to liver. I have gone through resection and now on my 7th treatment.  I believe the spouses of those with cancer, are the unsung heroes, truly.  It is a scary process but it will get easier and you will be his best advocate. My husband HATED hospitals before this happened still does but he is always looking at what everyone does to make sure they dont hurt me or that im ok lol. He is so cute. I think the hardest part for him personally has been my emotional swings. I do have them but as time goes on im learning to control them and not take my sickness, pain, tiredeness, emotional state out on him.  If you have any questions or just need to vent, feel free to contact me!.  Pretty soon you will be a pro at all of this and then hopefully your husband will carry on with life and this will be something you guys can look back on and say. we made it. HUGS>.

Woodytele
Posts: 163
Joined: Apr 2017

This is a marathon, he may not feel side effects for a few days, usually day five ( 5 days after infusion) is the toughest for me, then you have a week of recovery and trying to bring yourself back. This is a battle. You have to take it day by day. 

desnee2029's picture
desnee2029
Posts: 28
Joined: Aug 2017

Thank you for sharing.  It is all new to us......

 

Bellen
Posts: 281
Joined: Aug 2016

Hello Desnee - I was diagnosed last summer with colon cancer with multiple mets to my liver.  They saw the liver mets first in an ultrasound.  I started folfiri chemo with avastin (same as folfox but irinotecan instead of oxyplatin) and get it every 2 wks.  I have had about 4 "extra week breaks".  That extra week is wonderful and I feel almost "normal".  If you have any questions would be glad to help if I can.  This is a great support group.  We all know what you are going through.  Wishing you and your husband well, and yes it is an emotional and physical roller coaster ride - day to day.  I try to get out whenever I feel good - laughter, friendship, just a chance to feel back to your old self whenever he can.  

desnee2029's picture
desnee2029
Posts: 28
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Just what the Dr. ordered today.  Get out and do life as you feel.  Don't sit in your recliners and get more tied and weak..........i and my dear husband needed to hear that........Thank you are soo very right .

 

PADAVE1's picture
PADAVE1
Posts: 10
Joined: Jan 2018

Hi Bellen - I did 12 rounds of FOLFOX in 2016 - no breaks.  Now I'm on 8th round of FOXFIRI + avast - not sure how many more left /  I'm curious - were your chemo breaks initiated by you [maybe to do a vacation or family stuff] or by the Doctor [to give your body a break].  Best - Dave

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Annabelle41415
Posts: 6242
Joined: Feb 2009

Sorry you have to be here and that your husband is going through this.  He is lucky to have you as you came to these boards to help him out and that is a very good wife to care that much.  It's going to be hard on you and him.  Take a deep breath and exhale.  You are going through a lot along with him.  Come on this board and express your emotions as well.  We are here to help you.  Hope he tolerates the treatments as well as possible.

Kim

Ucimpark
Posts: 23
Joined: Jun 2017

Hi desnee,

Going thru the same here.. this wednesday my husband is back for his chemo and today he will take off the pump and will be back in 2 week.  Are your husbanddidnt get the nausea? 

desnee2029's picture
desnee2029
Posts: 28
Joined: Aug 2017

My dh has not had nausea but neuropathy is his issue and he said three of his fingers felt water logged when he was on chemo pack.  I believe they give him steroids etc before his Chemo treatment.

 

CyniD's picture
CyniD
Posts: 13
Joined: Sep 2017

My poor husband keeps vomiting everything up. He has not even started chemo yet. He had a drip today.?Nothing seems to help. Any ideas?

CyniD's picture
CyniD
Posts: 13
Joined: Sep 2017

Tomorrow he starts folfox. Please pray. He had a partial obstruction. That was the cause of all the vomiting.

Pray he will tolerate this chemo. Surgery is not an option.

vtspa6
Posts: 172
Joined: Aug 2015

Surgery is not an option for my husband either.  He has been on chemo starting his 3rd year.  Please be aware that if your on Folfox for too long (over 6-7 treatments) it can cause nerothopy in your feet and hands.  My husband was on it for at least 9 treatments, finally he went on Folfori/Avastin with pump.  But it was too late, can't feel his feet and hands.  Hang in there!

Makord
Posts: 36
Joined: Oct 2017

What cancer does your husband have and at what stage? my mother has stage 4 rectal cancer with mets in the liver and the lungs and we are now in the process of deciding  what to do. Most probably folfox 4 or 6. Avastin is not recommended due to her vescular problems. Would love any advise and thoughts on Folfox. Thanks and all the very best wishes for your husband and all of you. 

Ucimpark
Posts: 23
Joined: Jun 2017

Hi cyni d , vtspa6

Finally, we figured it out how to control the vomit, obstruction, and the eating.

My husband on his 3rd round of his chemo. First n second chemo put him back in the hospital total over a month with the same issue, the chemo causes obstruction in his small intestine. Finally his surgeon suggested to place PEG tube/ G tube for drain out, so far the tube keep him out from the hospital. And he took this medication 1 hour before the chemo too its really help him with the vomiting (varubi).

LindaSP
Posts: 2
Joined: Oct 2017

My husband was just diagnosed with Stage 4 NSC undifferentiated carcinoma of the lung.  It has metasizided to atleast 6 other locations.  There were no real symptoms.  He had a persistent cough and was slightly more fatigued.  They first started running tests on September 25 and made the diagnosis on October 18th.  He has his first Chemo tomorrow October 26th.  I am scared- really scared.  He seemed fine until last weekend and now it seems the cancer is taking over.  I have no idea what to expect. 

Winny's picture
Winny
Posts: 10
Joined: Oct 2017

my wife recently got diagnosed on sept 28 and she just started her 2nd chemo also, and found out her tumour markers have dropped, hope things are going well and hope your husband is getting thru this on the positive side.  It’s been very emotional for me also and reading everything on net also gets my head spinning, hope you are doing ok.  

impactzone's picture
impactzone
Posts: 531
Joined: Aug 2006

So sorry for all the new people and their loved ones. Lots of advice out and here are some of mine:  be an advocate for yourself, be agressive in treatments, don't worry if you feel bad as that always was a sign that something was working..eat healthy...fall down seven but stand up eight... surround yourself with as much positive as possible... what is written on the internet may or may not help... if religion helps - use it.. change viewing habits to something fun and lighter... ask questions.... a slower infusion time can make side effects less... its never too late...nurses are your best friend... you will wait a lot - bring something to read that matters. Whenever I got feeling really sorry, I walked over to the Lucile Packard Children's Hospital and saw true unfairness, strength, love and hope.

All my best to all

Trubrit's picture
Trubrit
Posts: 4891
Joined: Jan 2013

Great advice!

Tru

Robjoe's picture
Robjoe
Posts: 6
Joined: Feb 2018

my spouse also was diagnosed with stage 4 colon met to liver two weeks ago.  He was set up with folfox +avastin and had a port put in.   First treatment done last Wednesday at roger maris    We had asked for a second opinion, although I think for peace of mind (is there such thing now) to the Mayo clinic, which I was happy about.  Long story short, (right) Mayo can’t do anything as he’s started treatment, and would likely have gone the same route.  We are to go back after treatments done.  His PET scan however, just showed two spots in his bones, one in the pelvic area and another in his shoulder.  I’m doing my best to keep it together because the minute he senses something amiss with me, he will panic.  In reading some of the comments, what hit home was a reference to not being a race.  I guess this is just so hard to wrap my head around but I think this forum is awesome.  One thing makes me panic a bit...are we safe to wait until beginning of April to know where we are at?  I know it’s probably a dumb question, but I’m soooo new and trying to make sense of this new journey.   Thanks in advance for any helpful info.   I appreciate this site!

plsletitrain
Posts: 253
Joined: Jul 2017

The anxiety and worrying is very normal.  I think anyone who says they're all smiles while going through all of this is lying.  As to your question on if it is safe to wait until beginning of April to know where you're at, I guess there's nothing wrong if you bug your doctors to any question.  I think it is your right as a patient or caregiver to be informed of the status of everything.  You just have to talk it over to your doc, anytime.  

Welcome to the site and I hope there's no new members here anymore.  Ugh.

Robjoe's picture
Robjoe
Posts: 6
Joined: Feb 2018

I spoke to the Mayo Clinic personally today and after his 3rd treatment, we go down.  That’s March 21.  I think in reasoning it in my head all night, I’m very ok with that, as in my uninformed mind, it will be the first look at what effect treatment is undertaking.  I think we will be in the right place, confidence wise to understand that we’re somewhere I know is highly respected, and to dig in our heels and plow forward!   So today has been a “up” day!  I’m not naive enough to think that won’t change, but I’m in unfamiliar territory and am great full to have you folks to turn to.    Thank you so much.

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