Taking back 3 weeks

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MAliceR
MAliceR Member Posts: 98

I got a call this morning from the scheduler to set up my next CT scan for late August. I had already spoken to my oncologist and told her I wanted to wait until after the 15th of September. She said 3 weeks wouldn't be life or death. This isn't a treatment scan. It is my 4 month "is everythig still ok" scan. So when they called today I said to the scheduler. No, I will not be available for scans until after September 15th. I plan to enjoy my 62nd birthday and have our family road trip to Yellowstone and Glacier Nation Parks before I do tests. There was dead silence on the other end of the phone. I guess people never say no to them. She finally says, "well, we only schedule out 6 weeks so I can't make you an appointment that far into September, you will have to call us." I told her OK, I will do that, have a great day. Hung up and took a deep breath. This is the 1st time in nearly 6 years I scheduled on my terms. 

So here is the deal. As you all know, cancer and everything that goes along with it takes total control of your life. You are either in treatment and all that goes along with it, or you are NED (hopefully) but still having dr appointments, tests, waiting for results, worrying about blood work, more dr appointments, etc. At some point you lose control. Everything you do is scheduled around the must do's for cancer. Don't get me wrong, I am grateful for the opportunity to have treatment and regular tests but sometimes you just want to take back a little bit of your life. You just want the new normal to be a little more like the old normal. So today I took back 3 weeks. Those 3 weeks with my family will be enjoyed without tests, the waiting for results and the fear and sleepless nights that go along with them. Those 3 weeks are mine. Cancer can't have them. I feel a little empowered. But also a little guilty if that makes sense. I think many of us become so aware of the cancer in our lives that we are afraid that if we deviate from the plan even a little cancer will win and it will be our fault.  Let's face it, it is life or death and becomes the monkey on our backs. Always there to remind us of what we have to lose. Guess we will see what happens after taking my 3 weeks back. but for me. It is making the life and time I have been blessed to have worth living. 

Blessings,

Mary

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  • Tunadog
    Tunadog Member Posts: 235 Member
    edited July 2017 #2
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    Have a great vacation..

    Cool Yellowstone is my favorite, have a great time.

  • SandiaBuddy
    SandiaBuddy Member Posts: 1,381 Member
    edited July 2017 #3
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    Good for you!

    I hope your trip is truly breathtaking and memorable.  I believe that time spent in nature is healing.  Plus, there is real question about the benefit of intensive follow-up.  I am not yet in that stage, but I still have not decided what approach I will follow.  You may find this article interesting: https://www.journalslibrary.nihr.ac.uk/hta/hta21320#/full-report  It concludes, "The survival benefit from intensive follow-up is unlikely to exceed 4% in absolute terms and harm cannot be absolutely excluded."  So have fun and rest assured you are probably benefitting yourself and there is little chance of medical harm.

  • mozart13
    mozart13 Member Posts: 118
    edited July 2017 #4
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    Vacation it is!!!!!!

    I wouldn't think twice either, enjoy your vacation, post some pics after.

  • plsletitrain
    plsletitrain Member Posts: 252 Member
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    I agree

    I think enjoyment, doing such normal things we do, as a form of leisure and distraction, is beneficial to our health.  Our mental and emotional being plays a key role in healing us.  

  • traci43
    traci43 Member Posts: 773 Member
    edited July 2017 #6
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    Good for you!

    Calling the shots is important and time with family precious.  Good for you to take the time and schedule tests later.  Enjoy your trip!  Traci

    P.S. Once I postponed chemo by a week so I could take my college roommate and her family around Los Angeles.  I figured it was no worse than postponing because my platelets were low. 

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
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    Good for you

    Enjoy every moment of that vacation and things will be great on the scans or they wouldn't let you wait.  Enjoy your life.

    Kim

  • beaumontdave
    beaumontdave Member Posts: 1,280 Member
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    I've done that a few times

    I've done that a few times and got the same reaction down to the six week rule. It's your life and your schedule, and it's not "reckless" to move stuff around to fit your life, it will get done soon enough. So forget all this for awhile and enjoy the trip and family.........................................Dave

  • phuckcancer
    phuckcancer Member Posts: 63 Member
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    I hope you have a wonderful

    I hope you have a wonderful vacation! Yellowstone is amazing ... enjoy every minute of it (((hugs))))

  • bobby66
    bobby66 Member Posts: 69
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    I also took 3 weeks off and

    I also took 3 weeks off and took a vacation to New York. My first time. Felt great. Not to think about chemo, or sickness. Is really helps taking your mind off of everything and feeling totally normal. Great feeling. As soon as I came back next day to get plug in. Back to reality. It was great while it lasted.