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Flood of clear fluid

SJS
Posts: 10
Joined: Jul 2017

I found this wonderful support system and have a question that I cannot find an answer to.  I am hoping someone might be able to give me some insight.

I am 56 years old and went through menopause late at the age of 54.   About 3 months ago I had some vaginal bleeding and didn't think anything of it until I had my physical with my primary care doctor.  She told me I needed to see my gynocologist. So I did.  On the day of my appointment he said I should have an ultrasound.  It showed a my endometrial lining to be 6.6 so he asked that I come back in for a biopsy.  Last Wednesday morning (the same morning as my scheduled biopsy) I woke up to spotting again.  I took a walk and was getting ready to get into the shower and my dog started barking wanting out.  I turned off the shower took her out and then thought I would sit down for a second to check an email.  I removed my towel and sat on the kitchen chair and suddenly the whole chair was wet.  I stood up and clear liquid was pouring out of my vagina.  Probably atleast 1/3 of a cup.  

My doctor didn't seem too concerned.  I know this is not normal.  He did the biposy and I have not heard back.  Does anyone know what this could be? He did say he could see the clear liquid coming out of my cervix.  

Thank you so much.  Very concerned.

 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2887
Joined: Mar 2013

SJS, I am not a doctor but I believe any of the women here would agree getting it checked out is the best thing you are doing.  I hope it all turns out to be nothing but if it turns out to be serious ask to be referred to a gynecologic oncologist.  They specialize in 'below the belt' cancers.  For now, try not to get too far ahead of yourself.  

I do have a question for you though, did he do an endometrial biopsy?  Don't be afraid to ask him LOTS of questions and push for answers.  You need to be your own advocate.  PLEASE come back and let us know how everything goes. 

SJS
Posts: 10
Joined: Jul 2017

Thank you so much for you advice.  Yes he did do an endometrial biopsy.  Waiting on results this week.

SJS
Posts: 10
Joined: Jul 2017

If the biopsy is positive he said the next step would be a D and C.  To me a hysterectomy makes more since instead of going under twice.  What do you guys think

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

My biopsy was positive, and I went straight to hysterectomy. I don't know why a D&C would be necessary if the biopsy is positive.

dgrdalton's picture
dgrdalton
Posts: 152
Joined: Jun 2017

My Gyn did my biopsies. When they came back positive, he referred me to a gynecologic oncologist. He set me up for a CT scan and said once the results were in, he would do a hysterectomy. I agree that a D & C would seem unnecessary.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1768
Joined: Jun 2015

I agree with the other ladies. I suggest you go straight to a gyn oncologist and let them decide if one is necessary. My guess is they would skip it too!  Good luck as you move forward and please come back and let us know what you find out.

Welcome to our board. You can ask us anything. We are here for you.

Love and Hugs,

Cindi

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

That is exactly what happened to me but at 77, I knew that stream was not normal. Had sonogram, biopsy and surgery scheduled in 2 weeks. Now 8 mos. later only 2 more radiation and I am done with cancer treatment. I was a 1A but did the preventative route. Not easy ay my age but hope it will prove woth it.

Women need to know to have it checked when things appear that should not. Thankfully I had a very savy gyn!!!!

SJS
Posts: 10
Joined: Jul 2017

Hi Donna Faye.  So happy that you are almost done!  So you had a stream... was yours endometrial cancer?

 

SJS
Posts: 10
Joined: Jul 2017

Thank you everyone for your support!  Waiting is hard.

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

SJS my cancer discovery was much the same. One night in bed clear fluid kept flowing out with a little tiny spot of blood. At first I thought I had a urinary tract infection. Like the others have said, I suspect the biopsy will give some answers, but if it isn't conclusive, you may need a d+c. I personally didn't have a biopsy, but had the d+c. As the others have said we aren't doctors, but a gynecologist oncologist can give you answers. Prayers and keep us posted with results.

SJS
Posts: 10
Joined: Jul 2017

Hi, Thank you so much for your response.  Now I know that I am not crazy.  How are you doing today?  I hope all is well.

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

I am doing well. After a year of treatment including hysterectomy, radiation, and chemo, I have been clear for one year. Please keep us posted. Prayers!

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

Yes! UPSC the rare and aggressive type.  Why I chose the chemo route even as a 1A.

henhill's picture
henhill
Posts: 123
Joined: Aug 2016

Unfortunately, I had had several bladder surgeries and thought it was starting to fail again.  I even went through another surgery to correct this, and it cost me 8 months time for discovery and treatment.  Frown  A PAP smear was negative at the time and so I felt safe on that level.

None of my doctors caught it, and months later, I was the one to suspect something else and asked for the biopsy.  Sadly, it turned out to be stage 3 upsc.  I know it's hard, but you can be glad you are on top of whatever it is.

SJS
Posts: 10
Joined: Jul 2017

So sorry yours was not caught.  Hope that you are doing well today!  How are you?

SJS
Posts: 10
Joined: Jul 2017

Thank you to everyone for responding. My biopsy came back normal.  I know something is wrong with me.  Any suggestions of what to do next.  My doctor is out today. Should I get a CT scan?

takingcontrol58
Posts: 263
Joined: Jan 2016

SJS,

It sounds like you have endometrial hyperplasia.  It is an abnormal thickening
of the lining of the uterus.  The lining should be .4cm- are you sure your report
says 6.6? It is thickening. Symptoms are abnormal vaginal bleeding or spotting.

Your hormones may be unbalanced - you may have more estrogen than progesterone.
That is why all your hormones should be tested. Then you can work with your doctor
to get them into balance.  Unbalanced hormones can lead to endometrial cancer. 
My opinion is that  you need to address your issue now so that you don't move to
endometrial cancer.

Cancer has to be a certain size to show up on a scan- so I don't think a CT scan
would help you now, but a D&C would be the next step. Your cells are still probably
at a microscopic level.

Doctors just don't order the proper blood tests so we can learn what is going on inside and
we can then address the problem so we don't get cancer. So you have to ask for them.
I would also test forInsulin,  IGF-1 (insulin growth factor hormone), and ferritin. 
Ferritin levels go up when women are in menopause and is a major driver of cancer.

I would recommend you get the complete panel of blood tests now- then you may better understand
the direction you want to take. A D&C would be a good idea but you need blood test info to see what
your underlying health issues are. 

 I take metformin, which put my cancer in remission.  If your IGF-1 or insulin levels are high or you are pre-diabetic,
you may want to get on metformin.  Those three factors also drive endometrial cancer (they drove mine) and metformin
addresses all three.  If those are what is causing your situation, you can get those markers back in balance
now before they do more damage. You have to address the root cause of your problem. Something is making the
lining of your uterus grow.  So you should be tested for growth factors as I mention above.

The key is keepeing your body in balance. And there are many things you need to consider
to keep your body in balance. Your doctor should be discussing these things with you.

Takingcontrol58

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Don't mean to scare you but often they don't get enough tissue on an endometrial biopsy. Mine came back normal and in fact I had Stage 3c endometrial cancer. I would insist on a D&C. Good luck to you. 

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

My ob/gyn told me at the time that if the biopsy was negative, then she would do a D&C.  Cancer doesn't always show up in the biopsy for the reason CQ provided.

takingcontrol58
Posts: 263
Joined: Jan 2016

My endometrial biopsy was inconclusive- I had a D&C (considered the gold standard for endometrial cancer).
I was diagnosed at Stage 3B, Grade 3 at my surgery.

One other question.  Have you been having regular transvaginal ultrasounds?  Do you know if you have 
fibroids or polyps?  They can also cause bleeding.  

Your thicker endometrial lining can also be a sign of cancer.

You might want to get some blood tests- CA125, HE4, HCG (tests for pregnancy and cancer) and LD (rises with
cell damage) and adiponectin (low levels have been linked to some types of endometrial cancer) .  It is a protein
secreted by fat cells. This will give you some baseline blood marker levels to see what is going on inside. Things
show up in the blood well before a scan.

I would also test for insulin, IGF-1, estrogen and progesterone. Endometrial cancer tends to be either insulin driven
or estrogen driven.

Takingcontrol58

 

 

SJS
Posts: 10
Joined: Jul 2017

Thank you for the above information.  I still have not heard back from my doctor to next steps.  I did receive my CAT 25 results with a score of 8.  Is that a sign of reassurance?

In response to your question taking control...this is my first ultrasound...and no I do not have a history of fibroids that I know of.

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Unfortunately, CA125 is not always a reliable indicator.  Mine has been in the normal range all along, ranging from 8 when I was diagnosed to 17 now.  It's just another tool doctors use.  But if you have to be somewhere in the range, I'd say "normal" is a good place to be at this stage of the game since you and your doctor are still trying to determine what's going on.

SJS
Posts: 10
Joined: Jul 2017

Will a CT scan detect uterine cancer?

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

I agree with some of the others. A d+c would hopefully tell you more.

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