I feel so lost

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Recently my Dad hasn't been feeling well, lost a lot of weight, and can't eat. He finally went to the er and we found out last night he has pancreatic cancer. I'm shocked. He's always been extremely healthy and we never saw this coming. He just turned 51 a month ago. He's not handling it well and is devastated because he feels he'll miss out on seeing me get married and have kids. My brother is a mess and can't even talk to anyone. He's in the service and is currently stationed in Germany. My dad takes care of my mother who has been bedridden for about 11 years. I used to help him take care of her, but 2 months ago my boyfriend and I moved 13 hours away. I have no idea what to do. My dad's parents live in the same town, but are also struggling with their own health issues. We just settled into our new home and got jobs. I'm also a full time college student.  I feel like I have no other choice, but to go home and take care of everyone. After our recent move I'm not sure how to do this financially. 

I have so many questions, so much confusion, and no idea what my next step is. I can hardly sleep, eat, or stop crying. I just needed to reach out. I'm trying to be stong for my family since they are all struggling with the news. I feel like I have no one to talk  to. 

Comments

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
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    Hold on

    Pancreatic cancer is a devastating diagnosis but you haven't said what the prognosis is.

    Everyone needs to sit down together once the treatment or palliative care plan is outlined by the doctor. Gather all the facts so an intelligent, compassionate decision can be made.

    Let us know-how things go.  Hugs.

  • bonbondidit
    bonbondidit Member Posts: 116
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    We are in the same situation

    Hi Sarah,

    We just found out on Sunday that my husband's dad who was approved for a partial pancreatic removal due to a sudden mass that appeared in there is no longer a candidate for surgery and deemed inoperable at his pre-op appointment. WHAT , how did this happen??!!! It's one week from surgery and poof, I'm sorry but your are terminal was what he was told on Thursday.  However there is a clinical trial that is making great results with shrinking pancreatic tumors. IF IF IF you were do try this and your tumor reacts......it is POSSIBLE that your tumor shrinks enough that we may be able to remove the tumor if we get it small enough to unwrap the tumor from being around your blood supply in the pancreas.  It will kill you instantly if we try now.  He JUST moved here two years ago from out of state. JUST built his brand new home he designed and moved in 3 months ago. NOW WHAT? The home was 400k. The grass isn't even in yet.    His symptoms - One and a hlf months ago he got a huge back ache but does have back problems in general. Goes to neuro for an eval and they ran blood work. Came back super elevated liver enzymes.  He turned highlighter yellow by the next day. He had dropped 25 pounds in one month also. He had an undertone of yellow at this appointment.   Moving forward to now - he has a mass on the inside -side- of the head of his pancreas that has grown around his main blood supply to his organ causing the pancreas to slow down and eventually without treatments will cutt off his function to the organ. So it's the mechanical situation of the tumor that is causing the issue more then it spreading or being mastetistic (which it's not at this time.)  LEt me refrain - it's in his lymph node that is within the organ still. 

    So here we are. Stunned, numb, in pain, freaking out, never good timing.  Did I mention I am a stage three breast cancer patient in remission as of two year ago? Twenty two rounds of chemo and 48 rounds of radiation under my belt and double mastectomy, age 45 now.  My husband JUST DID THIS with me! Now this! His dad is besides himself.  Knowing what I know from my own journey - I reflect:  As a cancer patient myself I know how the ruthless feeling of shock and awe hit my family. You go through a stage where you feel like you're looking over the edge of the Empire State Building and someTHING is pushing you further over your comfort zone onto the ledge.  Then friends and family come together and smack the "edge feeling " away from you once they gather themselves from the news.  Then, all the variables fly at your like the alphabet in a whilwind. But then after you exhaust yourself from scare and WTH's. You land. When you see fear in your loved one. GAME IS ON!  It's not always a CURE type of agenda even though that's the goal. It's about getting from one step to the next as best as you can. Knowledge is power and TIME is of the essense. No matter WHAT ANYONE TELLS YOU - TIME is the most important treatment there is. DO NOT SETTLE with "a month from now we can get him in" type of BS. NO - Make everything a stat conversation and expectation while trying to remain kind with doctors and staff. Cancer spreads, so who wants to waste precious time? 

     

  • bonbondidit
    bonbondidit Member Posts: 116
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    Part 2

    When it comes down to the facts of what do we do now?  Factor this in - where can he get the best treatment? IS it where he lives now? Is it closer to where you live? Can you do both college and care without losing your grades or your mind? What can you live with in your heart and most importantly, what are your dad's wishes?  I know as a parent I wanted my girls who were in their first year of college to stay in and not drop it all. But the reality is, they couldn't focus under the worry wrapped around there hearts. My daughter's took a year off and have zero regrets looking back.  One resumed their classes this past year and the other has since had my first grandson, Ryder. Zero regrets! They dropped it all and helped out to their heart's desire and honestly they needed that for their inner concious.  After those couple months I wanted them to get back into their lives. That was my inner heart's desire.  There are LOTS of home health care that can and will help and be there during times of your absence. It's not heartless to have things you need to do to and to be able to catch your breathe. We as cancer patients desire that for our caregivers and completely insist on it. IT helps us all.  Also, do NOT take this all on yourself. This is a "village" situation. If your village is small , then grow it with requests and other home  health opportunities. I am not sure if your dad has Medicare but they can and will set this up with  you.  Become his medical power of attorney which they can set up at the hospital and or doctor's office. Not even I as a caregiver to MY father who currently is battling prostate cancer and Leukemia could do everything and be everywhere for him.  So I learned over the past 5 years of caregiving and as a survivor it is impossible to do it all. And, it honestly isn't healthy for the outcome to exhaust yourself.  Reach out, ask for help first to healthcare providers who offer assistance and then to family or friends, and CHURCH members if you have them.  Reaching out here is huge too! Don't fofrget the 24 chat room here too. I used it like crazy and it helped.  

    Gentle hugs - you can do this! Set up your village <3

    Bonnie