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sick with worry

Dancemom09
Posts: 6
Joined: May 2017

I'm 38 yrs old and went to the doctor for lower back pain and intermittent pain in the pelvic area.  The doctor ordered a pelvic and abdominal ultrasound.  All symptoms pointed to the ovaries. Well, pelvic came back normal but showed an isoechoic lesion in the mid left kidney measuring 3cm and an isoechoic lesion in the left hepatic lobe measuring 4cm.  The raidioligust did note that the kidney lesion may represent an anatomic variance vs a solid renal mass. I have an MRI scheduled to get a better look.  My doctor said it could be nothing and she doesnt think this is anything serious to worry about.  Well, Dr. Google has told me otherwise.  Even reading this forum has me extremely scared,   I'm convinced this lower back pain has something to do with my kidney.  I guess I really don't know what I'm looking for here, maybe for someone to talk me off the ledge? It's consumed my life for the past 2 weeks and I feel like I'm going to lose it :(.  i haven't been feeling well but I'm not sure if that's due to stress.  I did have a blood test and all levels were normal.  Not sure if anything would be off if it were cancer.

Jan4you's picture
Jan4you
Posts: 1322
Joined: Oct 2013

Well glad you found us. I can appreciate your fears, but rest assured you'll get through whatever "this is" and be okay. Just we don't like uncertainty and foreign things in our bodies. So I can appreciate your concerns.

I came to this site first before I met with my Urologist. Turns out the members here were right, a MRI was a waste of time, as the Urologist/surgeon wants a CT scan. He pretty much knew it was Renal cancer, yet small enough, like yours, to only be stage one. The surgery corrected this and once the bugger was out, the cancer left too. 

I had a cyst too, but he showed me the difference on the scan between the cyst and the neoplasm. 

We'll be here for you all the way. Yes, most likely IF it is a mass, you'll have surgery. Hopefully you want a surgeon that does Laproscopic/robatic technique as its less invasive. Again being that your 'thing" is smal you'll be fine after surgery. There is no need for further treatment other than surgery if you are stage I.

Ask any questions you need to. i have had several abdominal surgeries and prefer the Laproscopic if its possible. I am now 3 plus years NED (No Evidence of disease).

Sending you calm, hope and healing...soon enough.

You can also send me an email on this site for further information if you like. We'll be here for you hon.

Hugs, Jan

Kat23502's picture
Kat23502
Posts: 179
Joined: Feb 2016

Hopefully the 3cm area on your kidney is something called a dromedary hump which is abnormal anatomical variant and very common at the mid left kidney. It also appears isoechoic whereas most renal masses don't. That being said, if it is 3cm it is highly curable with surgery so try not to panic. Definitely get your MRI so that the liver lesion can be evaluated also. 

Dancemom09
Posts: 6
Joined: May 2017

Thank you, ladies.  I feel somewhat better.  I guess I wasn't as concerned about the liver as much because it seems like benign tumors or more common in the liver than the kidney.  

Kat23502's picture
Kat23502
Posts: 179
Joined: Feb 2016

There are MANY benign masses in the liver. I just meant be sure to follow-up to be sure. Basically, let's cross the bridge when and if we need to!

Max57's picture
Max57
Posts: 160
Joined: Mar 2015

and your fears....its ok to be  afraid we all when we diagnosed where shocked some of us cried cancer avisitor not welcomed ....so relax wait for all the results it could be nothing  no need to panic 

icemantoo's picture
icemantoo
Posts: 3227
Joined: Jan 2010

Dance,

 

It is either nothig or a litte baby something that may need surgery to get rid of it for goodd. Sounds like what I went thru almost 15 years ago.

 

 

Icemantoo

stub1969's picture
stub1969
Posts: 800
Joined: Jul 2016

Isn't it amazing how much anxiety comes from a google search? It will be difficult to take you of the "ledge" until you get some answers.  Until then, try to focus on the advice that others have given you.  By the way, when is the MRI scheduled for?  And, when is your follow-up with your doctor?  Hopefully it will come soon.  I pray you find peace while you wait.

Stub  

Dancemom09
Posts: 6
Joined: May 2017

I've been OBSESSED with google. The crazy thing is, I know i shouldnt be looking for answers there.  I'm glad I've find this forum.  My MRI is scheduled for Monday.  I don't have a follow up scheduled with my primary yet.  I guess she'll just call me with the results.  

Dancemom09
Posts: 6
Joined: May 2017

The pain in my lower back makes me feel ill.  I've just been blindsided by all of this.  I'm very active (my 8 year old keeps me on my toes), and this is something I'm having a very hard time with.  Thank you all for your support. 

Deanie0916
Posts: 259
Joined: Nov 2016

I know it is very hard to not research via Google, but it just gets too scary. Hope these abnormalities turn out to be nothing at all or at the worst a small one that is easily handled. Love and prayers to you

beemurguia's picture
beemurguia
Posts: 57
Joined: Mar 2017

Thank goodness for low back pain which has lead to many of us having an "incidental finding"...yes the discovery of a mass or cancer....but your stress and anxiety are totally normal and we can all sypathize.  Take it one step at a time. See your Dr for results and an explanation.  I hope that the anomoly is not cancer but if it is the small size is sure to guarantee a full recovery.  My 7 cm mass which grew to 10 cm in 2 months seemed like childs play for my urologist.  He took out my right kidney 10 days ago...it was a gnarly mess getting it out but he just seemed certain and positive that he got it all out.  I mean 10 cm is like a baseball and he isnt concerned???? Ok....I will know more when I get my pathology report this Tuesday....So please breath and find comfort that a lession that size will have a much much better prognosis!  Keep us posted and we are here for you!

-bee

Abunai's picture
Abunai
Posts: 173
Joined: Oct 2016

Bee, If your urologist doesn't recomment it first, step up and ask for full body scans (CT or otherwise) to look for any metasteses in other areas.

I wish you the best for Tuesday's pathology report. Push your docs until YOU feel certain and positive.

NicoleAless
Posts: 10
Joined: May 2017

Any word, Dancemom? I just received word today that I have a mass in my kidney. I have been having flank pain / back pain the last few weeks and was worried because both of my parents passed from RCC. It seems surreal that I could have this. I am much younger than both my parents were. My father lived another 20 years or so after initial diagniosis but my mom only about 10 years. My mom endured so much. I don't know yet if I have cancer, but I could tell my doctor is very concerned. He is sending me for an MRI this week, and I wonder why an MRI versus a CT? I will talk to him about it in the AM. I don't care either way, but I want the most thorough examination. I have a son about to go to college and a 15-year-old daughter. I want to see them grow, marry, etc. I praying that this is some kind of mistake, but the pain is what my mom felt, and now with the mass. I can't sleep and am worried about money and work, etc. Sending best thoughts your way. Keep in touch.

Dancemom09
Posts: 6
Joined: May 2017

Hi Nicole, my MRI is scheduled this morning. They say I could possibly have results today.  I feel like I haven't slept in days. Right now, my daughter is wrapped around me, asleep and like you, all I can think about is seeing her grow up. I'm terrified. Ive been so concerned with the lesion in my kidney, it hit me last night that the lesion in my liver could be related.  What if I have kidney cancer and it's spread to my liver? Am I completely screwed then?

How big is the mass they found in you? I'll be thinking about you and hoping for the best.

NicoleAless
Posts: 10
Joined: May 2017

Thinking of you Dancemom! I am at work today (teaching--kids have a way of getting you to forget your troubles for a bit), the rain is falling, and my pain seems to be pulsing today. I think we have to hope that as Steve says:  "Things are not as bad a they seem."  I do not know yet how big this is, or what it is, but I am certain my doctor is very worried since he ordered an MRI for Wednesday. I am praying I will know things ASAP. This just seemed to start out of nowhere. However, maybe not, maybe it has been there for a while, and now I am just feeling the symptoms. Monday is the 17th anniversary of when my mom was diagnosed (she lived with it for 10 years after diagnosis, and I was fortunate to have her until 40; I will take that right now!) I am thinking she is looking out for me right now. I have to get to my son's graduation on the 14th and that is pressing right now. It's all about my kids now, just as it is for you. We have to be strong for them. It's what we do as mothers. Let me know how it goes. We will help each other through this. --Nicole

Steve.Adam's picture
Steve.Adam
Posts: 460
Joined: Oct 2016

It's really impossible to not be afraid, but talking things over with people here was very helpful for me when I first joined.  For most of us things are not as bad as they first seem.

You can talk about anything here.  

I'm glad to meet you but also sorry that you have to be here... (That is such an odd feeling, like... Welcome but I wish you weren't here.)

Steve.

NicoleAless
Posts: 10
Joined: May 2017

Thanks, Steve. This board is helping me. I am terrified of the MRI tomorrow, but even wish it was sooner. I contacted my mom's cancer doctor and she said she will see me to review imaging and get a plan if need be. One step at a time

Steve.Adam's picture
Steve.Adam
Posts: 460
Joined: Oct 2016

Please give us some more information about your situation. You probably don't know much except for tumour size and location.  Mine was about 4cm and in the right kidney which was removed and all is well now.

Steve.

NicoleAless
Posts: 10
Joined: May 2017

I don't know much right now. I know they found something in the ultrasound. My GP was concerned and indicated that what they saw appeared to be a mass in my left kidney and alluded to my family history, etc., and said I needed an MRI right away. He is sending me for that MRI tomorrow. I have pain in my side, like my mom did, which scares me because hers was larger and had some vein involvement, eventually returning to her liver five years later. I hope the outcome will be positive like so many on this board. I have children who still really depend on me, and there is not a day that goes by that I do not miss my mom. Did they take your whole kidney? Both my parents had their kidneys removed. Thanks for checking in, it helps. 

Steve.Adam's picture
Steve.Adam
Posts: 460
Joined: Oct 2016

Yes, my whole kidney was removed.

A 3cm tumour is not large so I think a good outcome is very likely for you.

When you tell us your news you might want to start a new topic.

Good luck with he scans!

Steve.

NicoleAless
Posts: 10
Joined: May 2017

Hi Steve,

I found out by picking up the ultrasound that mine is 2x3, 2x3, by 2.9 cm and is in the middle of the left kidney.

APny's picture
APny
Posts: 1949
Joined: Mar 2014

I'm so sorry you're going through all this anxiety. Any results from the MRI? I really doubt a 3 cm growth on your kidney would have gone anywhere else so I don't think the liver issue is related. Keeping my fingers crossed for you.

Dancemom09
Posts: 6
Joined: May 2017

I received the MRI results back, no malignant tumors!  The tumor in my liver is a focal nodular hyperplasia.  Benign and probably developed from the use of oral contraceptives.  The spot on my kidney is a dromedary hump, just like Kat had mentioned..  I have a follow up to discuss the pain im experiencing in my back.  So these lesions were incidental findings that ended up being nothing. I'm so relieved.  I was so stressed that I developed hives all over my neck and chest.  Cancer is a scary f#%!?| thing and I hope I never have to go through this again.  Thank you for all your comments and support.  This forum is a really amazing place. 

NicoleAless
Posts: 10
Joined: May 2017

So grateful for your news. I have mine on Wednesday. One day at a time:-)

 

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

Always glad to tell people on this board goodbye for reasons like this.

Great news you don't belong here.

Go away. :)

Todd

Max57's picture
Max57
Posts: 160
Joined: Mar 2015

so happy  for  you great news.....now go party have fun and don't come back hereLaughingLaughingLaughing

Jan4you's picture
Jan4you
Posts: 1322
Joined: Oct 2013

Aww GOOD FOR YOU, Dancemom! WHEW.. I know you are blessed~ continued blessings my dear!

Hugs, Jan

APny's picture
APny
Posts: 1949
Joined: Mar 2014

Great news, Dancemom, and yes, we're happy to see you go :)

NicoleAless
Posts: 10
Joined: May 2017

So while the MRI radiologist thinks it is a large cyst, my doctor wants me to have several doctors confirming this, which is why I like my doctor. I got the MRI film after the procedure and sent it to my mom's oncologist, a top kidney oncologist. There are cystic renal cell carcinomas too. I hope to get an appointment with her. I want to celebrate, but I am guarded. The waiting is so hard, actually exhausting. Everyone in the house is stressed. I have to see a urologist too. Fingers crossed.

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