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Cargiving husband with brain cancer

blocke
Posts: 1
Joined: Feb 2017

Does anyone have any experience to share?  I'm in month five and am struggling.  Glioblastoma grade 4.  Craniotomy, radiation, temodar and avastin.  Still on decadron and walking is very limited and only with a walker. 

lthenderson
Posts: 19
Joined: Feb 2017

After my mother was diagnosed with brain cancer, I found lots of helpful words of wisdom and advice through books. Some of the ones I recommend are:

 

So Far, So Good: A Memoir of a Brain Tumor Patient and His Caregiver by Kathy Beechem

Chasing Daylight: How My Forthcoming Death Transformed My Life by Eugene & Corinne O'Kelly

Being Mortal: Medicine and What Matters in the End by Atul Gawande (I highly recommend this one the most.)

Pear Shaped by Adam Blain

 
robinson3
Posts: 1
Joined: Mar 2017

My name is Jill. Husband 47 yo has had a Oli for for 20 years. Now upgraded to a GBM. Just finished surgery with some speech and reading deficits.  started 6 weeeks of Rt with Tmz. Pending genetic test results.

clgoelzer
Posts: 6
Joined: Jul 2017

Hi Jill. How are things going for you and your husband? My husband battled a GBM 4 for 14 months. Happy to help in any way I can.

Cathy

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