Does anyone have any experience to share? I'm in month five and am struggling. Glioblastoma grade 4. Craniotomy, radiation, temodar and avastin. Still on decadron and walking is very limited and only with a walker.
My name is Jill. Husband 47 yo has had a Oli for for 20 years. Now upgraded to a GBM. Just finished surgery with some speech and reading deficits. started 6 weeeks of Rt with Tmz. Pending genetic test results.
Joined: Feb 2017
After my mother was diagnosed
After my mother was diagnosed with brain cancer, I found lots of helpful words of wisdom and advice through books. Some of the ones I recommend are:
So Far, So Good: A Memoir of a Brain Tumor Patient and His Caregiver by Kathy Beechem
Chasing Daylight: How My Forthcoming Death Transformed My Life by Eugene & Corinne O'Kelly
Being Mortal: Medicine and What Matters in the End by Atul Gawande (I highly recommend this one the most.)
Pear Shaped by Adam Blain
Joined: Mar 2017
My name is Jill. Husband 47
My name is Jill. Husband 47 yo has had a Oli for for 20 years. Now upgraded to a GBM. Just finished surgery with some speech and reading deficits. started 6 weeeks of Rt with Tmz. Pending genetic test results.
Joined: Jul 2017
Hi Jill. How are things going
Hi Jill. How are things going for you and your husband? My husband battled a GBM 4 for 14 months. Happy to help in any way I can.
Cathy