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5-year milestone

dl650a
Posts: 37
Joined: Feb 2012

Hello all,

It's been quite awhile since I've posted here.  Yesterday was my 5-year anniversary for my nephrectomy.  I went in for blood tests this morning and go for CT scan in another week.  I'm feeling great (getting tired of the Oregon rain this winter;-)) and doing everything that my artificial knees allow me to do!

Well, for now, it's time to head out and do stuff.

Ed

Bay Area Guy's picture
Bay Area Guy
Posts: 385
Joined: Jun 2016

Congrats on a really big anniversary!

JTgreybeard's picture
JTgreybeard
Posts: 22
Joined: Mar 2017

Congrats great milestone

daisybud's picture
daisybud
Posts: 461
Joined: Jan 2016

That's great! 5 years:)

Kim

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APny
Posts: 1949
Joined: Mar 2014

Congrats! Mine is just 3 years today. Time flies :)

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

My 3 year was in December....Congrats on yours! My oncologist said that a 3 years NED is a biggie for much lower chance of recurrence!

Hugs

Jojo

APny's picture
APny
Posts: 1949
Joined: Mar 2014

Jojo, congrats to you too. Yes, I'm hoping that we both continue our relationship with Uncle NED :) Hugs xo

DAC677's picture
DAC677
Posts: 60
Joined: Feb 2017

Jojo, im sorry i missed this during my hiatus and didnt reply but 3 years is huge!

The experts that I spoke to told me that 3 years is the new window or time frame that most of the stats are tied to. He said if we could make through three years that the odds of reccurrance drop significantly. Congrats!!!

Rickdr89
Posts: 3
Joined: Mar 2017

Congrats! Glad you're doing well.

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JerzyGrrl
Posts: 760
Joined: Jun 2016

Congrats on the 5 years! 

I'm at just over 3 months post-neph, but I'm looking forward to the many months and years ahead of me. Not to mention trying to just appreciate and enjoy the heck out of every today.

Dave S
Posts: 3
Joined: Mar 2017

That's awesome ,I'm just over two years. News like this helps everyone to feel more positive, now go out there and enjoy your life.

Dave S
Posts: 3
Joined: Mar 2017

Just my 2nd post. I read some old posts about people on sunitinib (Sutent) as I am who last there sense of taste or had bad taste after taking Sutent. My taste has mostly disappeared and it makes eating almost a chore. I'm starting to lose weight because of it and I'm not a big person. One post talked about using L glutamine to get your sense of taste back , possibly in as little as 3 days. I have been taking it for 10days with no effect. I was wondering about the dosage, I followed the instructions on the bottle of 5 grams a day. Wondering if anyone has tried this or is aware of a different dosage?

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Jan4you
Posts: 1322
Joined: Oct 2013

Hello and welcome Dave! You are posing an important question. So I would recommend you start a new post for more to answer your question about Sutent. Also, don't forget to go to SmartPatients.com too.

Hugs, Jan

icemantoo's picture
icemantoo
Posts: 3230
Joined: Jan 2010

Ed,

 

May 5 yeas be a good start to bigger numbers ahead.

 

 

Icemantoo

Bellafelice
Posts: 57
Joined: Sep 2008

Major league congratulations on your 5 year anniversary-and wishing you everyday to come a beautiful one.

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Wow. Happy Anniversary! That is a great milestone!

Keep 'em coming!

Hugs

Jojo

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Either this week or last week was 6 years from nephrectomy. Flat broke, but alive and looking forward to year 7.

DrAmit
Posts: 2
Joined: Mar 2017

Hi every one i am a new member here. My name is Amit. I am Final year Surgery Resident. I was diagnosed with Renal cancer in 2012 and underwent radical nephrectomy same year. 

I have not kicked the bucket. and wont kick it till i save a million people as cardiac surgeon.

well i am here to share my story and help any way possible as a surgeon who believes is not giving up.

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stub1969
Posts: 800
Joined: Jul 2016

I love the fact that we have a couple experts as members.   I look forward to you adding as much professional detail and depth as Kate has for us.  Welcome, Doctor.

 

Stub

icemantoo's picture
icemantoo
Posts: 3230
Joined: Jan 2010

DrAmit,

 

Always good to have a new perspective on our board. 

 

 

Icemantoo

Hd67xlch's picture
Hd67xlch
Posts: 144
Joined: Apr 2016

August 13th will be 6 years for me.

PK_Chicago
Posts: 58
Joined: Mar 2012

My 5th year was in January!  New things always on the horizon the longer we can stick around!!!

PK

dl650a
Posts: 37
Joined: Feb 2012

Oh well, the CT scan was moved out a week (still don't know why).  I guess I have to wait another week for NED;-)!

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Welcome Dr. Armit! And congrats Foxy and others on your ever-growing years since diagnosis. Each year gained is a huge win for all of us!

Hugs

Jojo

Deanie0916
Posts: 259
Joined: Nov 2016

Congratulations to you on 5 years and to all the other survivors here!

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foroughsh
Posts: 775
Joined: Oct 2014

Congrats

So happy for you.thanks for sharing your good news with us

Forough

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Rob57
Posts: 25
Joined: Aug 2016

That is great news! May the good news continue well into the future.

donna_lee's picture
donna_lee
Posts: 901
Joined: Feb 2009

It is a milestone and any reason to celebrate is a good reason.

What's with the badmouthing our Oregon Rain and Wind and Snow.  At least the snowpack is looking good for summer, except for the Wallowas.

I used to be able to say no Hurricanes, Tornados, etc., but we've had some really nasty wind storms this winter.

Good Luck,

donna_lee

Bellweather
Posts: 100
Joined: Jun 2013

August 10th 2017 will be 6 years since my nephrectomy.  Glad to see more and more people pushing the envelope.

GregP
Posts: 22
Joined: Mar 2017

So happy to hear good news....it lifts all our spirits and continues to give us all hope.....btw... My surgery is 1 week from today

PS.....does everyone go on a certain drug afterwards?

icemantoo's picture
icemantoo
Posts: 3230
Joined: Jan 2010

Greg,

 

 You asked a question about drugs afterwards. If it is a smaller tumer the surgery alone is often enough. You have not posted anything in your bio about your tumor etc. or with your question so it is a little hard to suggest where you may be on your journey in a vacum. Please start a new forum post with your details so we can help you move forward.

Icemantoo

Jan4you's picture
Jan4you
Posts: 1322
Joined: Oct 2013

Congrats to all for your bravery, perseverance ! Thanks for sharing with us here!

Dr Armit, you'll be an even better surgeon because, well... you know!! Glad you are here!

Hugs to all!! (3 years NED Dec 2016 for me)

Jan

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Darron
Posts: 310
Joined: Jun 2013

Congrats on 5 years. I am a 2012 diagnosis as well. Still alive and kicking (well, skiing, golfing, and enjoying my kids).

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