Successful treatment with recurrence anyone?

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swood9008
swood9008 Member Posts: 116 Member
in Anal Cancer #1

Just wanted to hear from anyone who had recurrence, what was tre and outcome?

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  • mp327
    mp327 Member Posts: 4,440 Member
    #2
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    swood9008

    I have not experienced a recurrence, but I do know from years of being active on 3 different support sites that there are stories of successful treatment for recurrence.  I hope anyone on this site who has been through that will post and answer your question.

    Martha

  • swood9008
    swood9008 Member Posts: 116 Member
    edited March 2017 #3
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    Thank you Martha! I hope so

    Thank you Martha! I hope so too!

  • sephie
    sephie Member Posts: 650 Member
    edited March 2017 #4
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    i have a friend whose cancer

    i have a friend whose cancer came back at 18 months....she had apr with colostomy and is doing great...it  has been about 3 years since reoccurence for her.....sephie

  • eihtak
    eihtak Member Posts: 1,473 Member
    edited March 2017 #5
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    swood9008....

    Hi, 

    I was what I consider to be successfully treated in 2011 for stage 3b anal cancer and in 2015 had a recurrance of anal cancer mets to my lung. I did have ostomy surgery in 2011 with my first dx, and the recurrance was in a distant organ. My treatment was surgery to remove the lobe of my lung that contained the tumor, followed by chemo. It has been 2 years since that now, and I will be scanned in a couple weeks. Mostly I feel great with a few minor but manageable concerns. I will keep all posted on my upcoming scans when results are in.

    katheryn

  • mp327
    mp327 Member Posts: 4,440 Member
    edited March 2017 #6
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    eihtak said:

    swood9008....

    Hi, 

    I was what I consider to be successfully treated in 2011 for stage 3b anal cancer and in 2015 had a recurrance of anal cancer mets to my lung. I did have ostomy surgery in 2011 with my first dx, and the recurrance was in a distant organ. My treatment was surgery to remove the lobe of my lung that contained the tumor, followed by chemo. It has been 2 years since that now, and I will be scanned in a couple weeks. Mostly I feel great with a few minor but manageable concerns. I will keep all posted on my upcoming scans when results are in.

    katheryn

    katheryn

    I want to wish you all the best with your scans!  I will have fingers and toes crossed and saying prayers that the news will be all good!

    Martha

  • eihtak
    eihtak Member Posts: 1,473 Member
    edited March 2017 #7
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    mp327 said:

    katheryn

    I want to wish you all the best with your scans!  I will have fingers and toes crossed and saying prayers that the news will be all good!

    Martha

    Martha.....

    Thank you for the well wishes. While I am realistic in knowing that the potential for treatment of one sort or another is often there for me, I am very optimistic for a manageable outcome.

    I do still have a mild concern over that previous deep breath issue, but it has gotten better. It was suggested to me that I may have adult onset asthma. I decided to wait until after the scan, and based on that, if still a question, will see a pulmonologist. 

    I much appreciate the prayers and hope to report good news as well!!

    katheryn

  • swood9008
    swood9008 Member Posts: 116 Member
    #8
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    Thabk you so much for the

    Thabk you so much for the response, I will keenyou in my prayers for clear scans! We have some news back today that my moms cat scan was clear for any other location or lymph nodes hoping for pathology on Wednesday or Thursday. She feels a small sigh of relief knowing it's contained 

  • Mollymaude
    Mollymaude Member Posts: 431 Member
    edited March 2017 #9
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    Swood and Katheryn

    Im so glad your mom had good results on her CT scan! And Katheryn I will be sending positive thoughts your way for your upcoming scans! 

  • swood9008
    swood9008 Member Posts: 116 Member
    edited March 2017 #10
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    Moms biopsy is back it is a

    Moms biopsy is back it is a recurrence squmous cell, but oncology was optimistic it's T1 we go to Brigham and women tomorrow for the plan! Not great news by any means but in our favor for the situation. 

  • ASwilpa
    ASwilpa Member Posts: 1
    #11
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    Successful recurrences?

    my first cancer was breast cancer in 2001 and I've been clean since.  In 2011 I was Dx with anal cancer in siti and they were checking me every three months. In three months I was Dx with invasive anal cancer and in 2015 it came back as incurable. I've had cisplatin, mytomician, 5 FU and stereotactic radiation. I was on three trials including Optivo and Tacilitab. Nothing worked.  In fact, the tumor got bigger. I'm now in Hospice Care.  

  • Mollymaude
    Mollymaude Member Posts: 431 Member
    #12
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    Swood

    I'm so glad the oncologists are optimistic! That along with your mom's positive attitude will get her far!!

  • mp327
    mp327 Member Posts: 4,440 Member
    edited March 2017 #13
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    swood9008 said:

    Moms biopsy is back it is a

    Moms biopsy is back it is a recurrence squmous cell, but oncology was optimistic it's T1 we go to Brigham and women tomorrow for the plan! Not great news by any means but in our favor for the situation. 

    swood9008

    I am sending all good thoughts and prayers for successful treatment for your mom.  Please keep us posted as you can.

    Martha

  • Wisteria83
    Wisteria83 Member Posts: 160
    edited March 2017 #14
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    ASwilpa said:

    Successful recurrences?

    my first cancer was breast cancer in 2001 and I've been clean since.  In 2011 I was Dx with anal cancer in siti and they were checking me every three months. In three months I was Dx with invasive anal cancer and in 2015 it came back as incurable. I've had cisplatin, mytomician, 5 FU and stereotactic radiation. I was on three trials including Optivo and Tacilitab. Nothing worked.  In fact, the tumor got bigger. I'm now in Hospice Care.  

    I'm so, so sorry to hear of

    I'm so, so sorry to hear of your struggle.  It sounds like you've been run through the mill.  I have no words, except to say that I admire your strength in the face of adversity.  You have been fighting a hell of a fight.  I wish you peace of mind and grace through this next chapter.

  • Phoebesnow
    Phoebesnow Member Posts: 600 Member
    edited March 2017 #15
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    Aswipai

    Hi, welcome to the site.  Wow, you have been thru a lot, you are a warrior.  I wish I had the words to offer you some comfort.  

  • swood9008
    swood9008 Member Posts: 116 Member
    #16
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    We went to Brigham today

    We went to Brigham today looks like she needs apr colostomy. Said even with that 40% survival is this true 

  • swood9008
    swood9008 Member Posts: 116 Member
    #17
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    ASwilpa said:

    Successful recurrences?

    my first cancer was breast cancer in 2001 and I've been clean since.  In 2011 I was Dx with anal cancer in siti and they were checking me every three months. In three months I was Dx with invasive anal cancer and in 2015 it came back as incurable. I've had cisplatin, mytomician, 5 FU and stereotactic radiation. I was on three trials including Optivo and Tacilitab. Nothing worked.  In fact, the tumor got bigger. I'm now in Hospice Care.  

    So sorry to hear this, you

    So sorry to hear this, you will be in my prayers 

  • mp327
    mp327 Member Posts: 4,440 Member
    edited March 2017 #18
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    swood9008

    I know that survival rate may sound a bit bleak, but hold onto hope that your mom will be in that group.  She is obviously a fighter and with you by her side, I think the odds are quite in her favor!  Sending prayers.

    Martha

  • Mollymaude
    Mollymaude Member Posts: 431 Member
    #19
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    Swood

    Statistics aren't everything. I'm sure your Mom's one in a million, right? Keep the faith. 

  • swood9008
    swood9008 Member Posts: 116 Member
    edited March 2017 #20
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    mp327 said:

    swood9008

    I know that survival rate may sound a bit bleak, but hold onto hope that your mom will be in that group.  She is obviously a fighter and with you by her side, I think the odds are quite in her favor!  Sending prayers.

    Martha

    Thank you Martha, he was the

    Thank you Martha, he was the general surgeon as well so not a cancer specialist but the best for the colostomy. We see her oncologist Tuesday. Looking about a month out for surgery 

  • swood9008
    swood9008 Member Posts: 116 Member
    #21
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    Mollymaude said:

    Swood

    Statistics aren't everything. I'm sure your Mom's one in a million, right? Keep the faith. 

    Thank you, just need to

    Thank you, just need to follow the saying "one day at a time" 

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