CSN Login
Members Online: 3

You are here

2/25

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Today is one year since my last Erbitux treatment. I went in for scans and CEA test on Thursday. CEA is less than 1.0 and scans are all clear.  NED continues! 

Techically I have been in remission for two years now, since 12/5/2014. That is the date of my last surgery. I received monthly Erbitux treatments from February 2015 through February 2016 in hopes of killing off any remaining rogue cancer cells.

I consider myself extremely blessed. Having gone through numerous recurrences and seven surgeries. Wow, yes seven surgeries. And now NED. Thank God. 

Now if I can figure out what to do about the contrast they use for CT scans???  This scan was my second time getting sick from the contrast injection. Bad stuff. I even took anti nausea medication as a preventative measure. I wonder if I'm simply allergic to the chemical? I also wonder how I managed so many other scans without vomiting? I do remember feeling nautious in the past but not to the point of actually vomiting.

Anyway. The point is I am NED!

Happy Day. 

Canadian Sandy's picture
Canadian Sandy
Posts: 641
Joined: Jul 2016

Congratulations! 

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Thank you Sandy.

Trubrit's picture
Trubrit
Posts: 5193
Joined: Jan 2013

May you ever be NED!

I wonder if continued use of the contrast has made you sensitive to it. The body can only take so much. 

TRU

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Thank you Sue. And thanks for the thought. Maybe the continued use has simply caught up with me. 

db8ne1's picture
db8ne1
Posts: 142
Joined: Feb 2013

Happy to hear the great news!

I've never had issues with scans (and I've had many) - until the last one.  When I went to sit up after the scan, I had horrible nausea.  Tech said that happens often.  I hope not.  I'm due again in a few months.

Hope it was a one time thing - for both of us!

J

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Thanks J.

I hope the scans will be fine for both of us going forward.

Bellen
Posts: 281
Joined: Aug 2016

Hi Phil64 - I have a small intestinal stricture which causes partial bowel blockages - very painful spasms that last for hours If I get one. The milky contrast that I usually drank to highlight CT scan says right on it not to have if have bowel blockage - well I was told to drink anyway and it caused a blockage. Ever since this happened, I have been insistent that I not drink this prior. Once they gave me a really terrible solution prior to an upper x-ray. Was sick for a few days - awful stuff. But, this last scan, the hospital said they had a new contrast called Telebrix (I believe it is spelled this way) - very tolerable, big glass mixed with water, and really not much of a taste - not bad at all. Did not get sick or feel bad afterwards. I wrote it down because I wanted to remember it for future scans.

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Thanks Bellen. I will discuss these options with my doctor. 

traci43's picture
traci43
Posts: 775
Joined: Jul 2007

Congratulations, you've been through a lot and it's great to hear you're NED!!!!!  Maybe you have become allergic to the contrast.  Isn't it iodine-based?  If so, that's not that uncommon.  Hope they figure it out.  Traci

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Thanks Traci. Yes I do believe it's iodine based. I sure hope we can explore options. Maybe one might be to skip the injection. 

wolfen's picture
wolfen
Posts: 1325
Joined: Apr 2009

So glad to hear your good news!

Please, please be cautious concerning the contrast dye. It caused kidney failure in my husband. He was diabetic and never should have received it, but it cetainly could have adverse effects on others also.

Luv,

Wolfen

impactzone's picture
impactzone
Posts: 538
Joined: Aug 2006

Congratulations! Always glad to hear good news

 

PamRav's picture
PamRav
Posts: 281
Joined: Jan 2017

Always lovely to heard of another with NED!!!

Gives hope to all of us who are in the midst of this great battle.  

marbleotis's picture
marbleotis
Posts: 706
Joined: Mar 2012

NED, NED and more NED!

nateswife's picture
nateswife
Posts: 65
Joined: Sep 2016

Congrats on being NED for 2 years, Phil! That is an accomplishment to be proud of. I'm sure that it took courage, dogged determination and a lot of FIGHT to get there. 

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

And a few tears, Some sad and some happy, and a lot of support and love.

Not unlike many of my fellow soldiers on this site. 

one soldier influenced me a ton. That would be Craig for those that remember him. A few things he said stuck with me. That this is a marathon, so pace yourself. And he once said "we fight because that is what we do!"

So "just do it!"

 

beaumontdave's picture
beaumontdave
Posts: 1063
Joined: Aug 2013

Congrats Phil, that's great news. Now on to three.....................................Dave

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Hooray Phil!!!! I'm SO happy for you!!

Jan

Easyflip's picture
Easyflip
Posts: 588
Joined: May 2013

and I remember Craig the lion. I'm NED 2 and 1/2 years now and I think we fight in honor of our friends that didn't make it. We need a cure, it can't come soon enoug. Congratulations Phil!

danker
Posts: 1253
Joined: Apr 2012

I'm glad you are still NED.  That contrast is wickrd stuff.  It always gave me diarrhea.  So much for scans.

Subscribe to Comments for "2/25"