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It was worth it

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Today was lab, doctor visit, and infusion day.  Except for a new phlebotomist who had a lot of trouble accessing my port, it was a really good day.  The tumor in my neck has shrunk down to almost nothing,  so the horror of wearing the mask and being pinned down on a board for radiation was worth it.  My CA125 level dropped from 470 to 410. After two times of going up it was nice to see it come down again.  Also got the news that Merck has approved me for another year of Keytruda under their Patient Assistance Program.

Hugs nd prayers, Lou Ann

beccabtown's picture
beccabtown
Posts: 234
Joined: May 2016

Congratulations!

ncg007
Posts: 136
Joined: Nov 2015

Lou Ann...Excellent news on the good report!  Congratulations!

Nancy

nateandkatesmom
Posts: 40
Joined: Jan 2017

We don't have regular TV but at the dr office today I saw a commercial about Keytruda and commented on it to my husband and thought of you. (he doesn't know I joined/posted here so I didn't tell him why it caught my attention.)

Anyway, that sounds like excellent news. As I have read each of your stories it has really impacted me how generous it is for you to respond to "newbies" when your own battle must be taking so much energy.

Thank you.

Nellasing
Posts: 529
Joined: Oct 2016

That is the best news to hear!!!  So glad that was the outcome!  Also, to be approved for another year of assistance- you deserve it!!!  Thank you SO MUCH for sharing with us.   (((HUGS)))

Sandrine04
Posts: 76
Joined: Nov 2016

Very happy for you 

bluesmama
Posts: 124
Joined: Aug 2014

Fantastic news!

MoeKay
Posts: 333
Joined: Feb 2004

So happy to hear that you received triple good news at your appointment yesterday, Lou Ann! 

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

Great news Lou Ann! I am so happy for you!

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

You are a warrior, Lou Ann! Congratulations on this good news and for sharing your experiences with us. In times of weakness I think of all the amazing ladies on this group and you right are at the top!

Beebster
Posts: 20
Joined: Feb 2017

Every day. Congratulations Lou Ann.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1774
Joined: Jun 2015

Lou Ann - I'm doing a major happy dance for you! Seriously great news all the way around. Who knows?.... You may get to that elusive dance with Mr. Ned yet! Based on what you had previously posted, I'm assuming that the radiation will continue to do its' job and that little bit of left over tumor will go away.

Just think, not only are you benefiting from the Keytruda; you are blazing the trail for the rest of us. You will always be extra special!

Love and Hugs,

Cindi

 

MAbound
Posts: 1124
Joined: Jun 2016

Such good news from you! You've been through so much and set such an example for us all to keep doing what it takes, even when it gets really, really hard to do. You are a true trailblazer and I think a lot of us are very grateful that you keep sharing both the good and bad with us. Thank you!

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

My oncologist is very excited about how this is going.  He believes that this is the future of cancer treatment.  Keytruda has been approved for frontline treatment for one type of cancer now. I believe that it is a type of lung cancer.  Advancements of any kind is good news for all of us.  Of course it is still a work in progress.

Thank you , all my peachy sisters.  Your support means the world to me.

Hugs and prayers, Lou Ann

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

This is just the GREATEST news to hear!  Cheers to you, Lou Ann.  You are amazing!

Chris

Mmpeterson
Posts: 124
Joined: Sep 2016

Very excited that everything is going so well for you.  You give me so much inspiration and hope to look forward to.

Love & hugs, Maryanne

janaes
Posts: 800
Joined: May 2016

Yea!!!!!!  I needed some good news around here.  Thanks so much for sharing.  You are such an insperation. 

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

so happy for you!

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Love the new hair cut. Lou Ann 

MAbound
Posts: 1124
Joined: Jun 2016

Your hair is growing faster than mine which refuses to comb into anything but a spike! Love the new picture but I'm so jealous!!

;-)

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

I previously didn't have curly hair.  It's curly on the sides and towards the nape and pretty straight and thinning towards the crown (it was like that before.).  And I still have my "Aruba."  What is an "Aruba" you say?  Well it was a term coined by the late, great Nora Ephron in her book "I Remember Nothing".   Here is in excerpt from her Aruba chapter:


"I am sorry to report that I have an Aruba.  You don't know what an Aruba is, but you are about to find out.

My Aruba is named after the Caribbean island of Aruba, where the winds are so strong that all the little trees on it are blown side ways in one  direction.  But my Aruba is not an island.  It's the thing that's happening with my hair, on the crown of my head, in the back.  My cowlicks have won, and they are all blown sideways leaving a little base space.  It's not a bald spot exactly.  It's there when I wake up, then I fix my hair and make it go away:  and then, a couple of  hours later, it's back again.  A gust of wind, a short walk, a ride on the subway, or life itself - anything at all can make my hair blow sideways, leaving a spot on the back of my head where my scalp is showing through.

And the thing, is, I can't see it.

Even if I catch a glimpse of myself in a window, it's not visible because it's in the back.  I look fine from the front.  I look as  young as a person can look given how old I am.  But from the back, it looks as if I have either forgotten to comb my hair or as if I am just a little bit bald."

Any people with Aruba's out there?  Even my hairdresser, Harry, knows my Aruba! 


 
 
TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1774
Joined: Jun 2015

Hey Cheese, No Aruba for me. ....  lol

My hair came back really soft and curly. Move forward a year from chemo and now it is back to stick straight. Darn it! I really wanted to keep those curls. Oh well, I have hair. So no complaints from me! :-)

Love and Hugs,

Cindi

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

This time my hair came back curly as usually, but for the longest time it wanted to,stand straight up in a Mahawk.  Now it is laying down and losing its curliness.  Darn,  I likes the curls.  But it is hair and that is a blessin. It is longer now than it has been for 4 1/2 years.  Immunotherapy doesn't take your hair, another plus.

Hugs and prayer, Lou Ann

Nellasing
Posts: 529
Joined: Oct 2016

I have one but my hair is so very short still that you can't really tell what it's doing.... I've also noticed if I comb it down in front and sides it's nice and straight like I want (sorry girls I've had curls all my life- want it straight) the back however with the "aruba" and the mass of bound to be curls, especially at the nape is all about a 1/2 inch but thicker than before it came out I think- very soft.

Have you all noticed how people just walk straight up and put their hands on your head and whoosh whatever hair you have all around?????  I have NEVER even thought about touching someone's head with the exception of my little brother in the summer when mom made him get a buzz cut- that felt so interesting Wink but I did always ask first.... lol

Your hair looks great and I know we are all GLAD to have hair no matter the "aruba's", straight, curly, swoops or unexpected hand muss ups <3

(((HUGS))) to all

janaes
Posts: 800
Joined: May 2016

My hair is straight.  It is pretty short still and cant tell much either.  The thing that I am trying to get used to is the grey.  I had brown hair with a little grey befor chemo.  My wig i bought was all brown and now my hair is all grey.  I feel pretty young now, especially now that treatments are over and am not ready to go all grey.  I have not given up my wig all together yet.  I am waiting for it to get a little longer and then i think I am coloring it.   Love this new topic.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1774
Joined: Jun 2015

Janae, I waited a year to color my hair. Mine came back an odd shade of gray and it really washed me out. I felt a lot more like myself after the color.  I think you will find it will give you a lift as well. :-) So glad you are feeling good again.

Love and Hugs,

Cindi

Anonymous user (not verified)

As much as I try to wet my fingers and coach my hair to lay in a straight line, alas, it does the sideways, bare spot.  And you're right, I can't see it unless I look in a mirror to see in a mirror (you know what I mean).  I've actually had 2 haircuts since chemo, and I hate my hair, although I love that I have hair.  I have tried to convince my new hairdresser to keep it short and spiky (ala Victoria Beckman pixe cut), she says my hair wouldn't do that.  Eagads, I lived with the hairless look, just do what I want!  It was easier to deal with no hair than flat shapeless hair!  My granddaughter graduated from cosmatology school during my chemo and is in a Cost Cutter center about 90 miles from me, I'm ready to drive the distance to have her "do my do"!  Hugs Nancy

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

Yes, I have Aruba. I always have in front, but I also have one on top of my hair. Like another said I want mine straighT. I've had wavy curly hair all my life and have fought it always. Mine came back silver. More than before anyway. I had it colored a couple months ago and that has helped, but I really won't be happy until it grows more and I can look more like myself. That will take a long time unfortunatly. It may seem silly to worry about my hair, but I do:(

ConnieSW
Posts: 1553
Joined: Jun 2012

it's so nice to have happy tears in my eyes for a change.  Cancer better be really afraid of you.

TracyGB
Posts: 8
Joined: Dec 2016

Happy you had good news!  Love the "peachy sisters" --too cute!  I will be using that in the future :).

rcdeman
Posts: 263
Joined: Aug 2016

Awesome news, Lou Ann! Praying for continued success!

Love,
Rebecca

Anonymous user (not verified)

I celebrate your every success!  And applaud your courage, thank you for giving us hope, and thank you for pushing the drug manufacturers to allow clinical trials for drugs that may help many of us.  Love you, Nancy

 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1774
Joined: Jun 2015

Nancy, Happy to see your posts. I hope all is going well for you.

Love and Hugs,

Cindi

derMaus's picture
derMaus
Posts: 561
Joined: Nov 2016

I LOVE the Aruba description! I've had a natural one my whole life, and now I know what to call it -- or perhaps I should say what I *will* call it when I have hair again. This is a great thread, thanks for the smiles.   

p.s. When I had hair, I could never find something to make it stand up properly. I finally found an import brand, Gatsby, at a Japanese supermarket near my house. I used 'Moving Rubber' but there are others; it's a silicon base that hold up like nothing I've ever used. Maybe when chemo's over I'll use it for a faux mohawk during my growing-out phase.

henhill's picture
henhill
Posts: 123
Joined: Aug 2016

....and for everyone who will benefit from what is learned by your new treatment.   Enjoy the moment

 

Double Whammy's picture
Double Whammy
Posts: 2831
Joined: Jun 2010

So happy to read things are going well for you.

Suzanne

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