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Votrient. Done.

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

votrient. done.

~3 year run.

next up: optivo.

stub1969's picture
stub1969
Posts: 864
Joined: Jul 2016

Sorry to hear the news.  Good luck; I'll add you to my prayers for another long run with optivo.

Stub

mrou50
Posts: 389
Joined: Mar 2013

You had a good run with Votrient, I only managed to get 9 months out of it.  Good luck on the Opdivo.

Mark

foroughsh's picture
foroughsh
Posts: 779
Joined: Oct 2014

Sorry for the news but since you had good run with votrient i'm sure you'll have long run with optivo too

Forough

P.S: you're in my thoughts and prayers

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

Wishing you the best outcome with this new drug.

Todd

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

I hope you have as good a time as I had on Opdivo. Virtually no side effects and significant reduction in mets for a good few months.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

you are a responder and will be a responder to many available treatments. Good for you! Nice run on votrient.

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

Thanks everyone for the kind words, thoughts and prayers! I chose Opdivo over Cabo so I could take advantage of the low/no side effects while I am still active and healthy.  Time to start wrenching on my Jeep!

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

ONWARD!!! We'll support you through the next one too!

Hugs, Jan

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

Now get out there and celebrate life!  Best wishes with the optivo.

I'll be praying for you,

Donna~

JerzyGrrl's picture
JerzyGrrl
Posts: 760
Joined: Jun 2016

Hope it's great for you on the optivo and your Jeep greatly appreciates the work. 

saintmont
Posts: 63
Joined: Feb 2013

Hi, I have being on Optivo for 14 months. For me its being the least intrusive. I still work, golf and Gym. Wiped out lungs mets in 6 months. Will keep on treatment for a period of time still have 3 small mets in neck which someone forgot to tell me about for 2 years but the have being stable for about 3 years Radiation didnot work on them.

 All the best saintmont

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

I'll be having a scan early march to see how things are progressing. I dread(foolishly) changing to a drug with side effects. Basically I'm in the same position as you

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Well 3 years is a good run. Now on to the next one. Thinking about you and wishing for the best results possible!

Hugs

Jojo

Jeff Griffith
Posts: 1
Joined: Jan 2017

I'm brand new to this site. I've been on Votrient for30 months since IL-2 didn't work. The side effects suck, as you all know, but the results have been spectacular. 

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

It looks like you're an outlier regarding Votrient's median progression free survival statistics. Nice!

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

Welding required. I broke it during a recent trip into Death Valley. Time to switch back to motorcycles.

Meanwhile, first Opdivo treatment complete.

JerzyGrrl's picture
JerzyGrrl
Posts: 760
Joined: Jun 2016

At least you probably didn't have to put water wings on the jeep when you were there. Looks like they had floods, mud, debris, and bunches of snow this past week. Wouldn't have been motorcycle weather either, for sure. 

AND -- At least you have one treatment done -- Woot!

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Yea! Though I drive in the valley of the shadow of death,  I shall fear no evil for I have a mean damn motorcycle to take its place!

Are you sure you need medication to take on this disease?

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

Got my second dose of Opdivo. So far so good. 

Main side effects are sore muscles, like after a full-body workout at the gym.

All the pain, but no gain.  So I started working out.

JerzyGrrl's picture
JerzyGrrl
Posts: 760
Joined: Jun 2016

Way to go! When life gives you muscle soreness, hit the gym.  I love it, and in fact you win the "First Person to Make Me Laugh Right Out Loud" award today. 

Congrats on both levels!

Abunai's picture
Abunai
Posts: 173
Joined: Oct 2016

After 3 months on Votrient, I was just told today that I have 3 new mets in the bones in my lower exremeties and will be going on Opdivo.

I hope it performs better (at all) than Votrient.

Since you (rhominator) have posted that you have had "two treatments", I'm assuming it's an IV thing? (Oncologist didn't tell me and I didn't think to ask)

 

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

Hi Abunai. Yes, Opdivo is an IV every two weeks. 

It takes one hour for the transfusion, plus ~1 hour for prep, waiting for pharmacy, etc. 

I had a choice of Cabo or Opdivo. I chose Opdivo for two reasons:

  • My proxity to the hospital/transfusion center: < 10 minutes
  • Get the most "bang for the buck" regarding side effects: i.e., leverage the relatively low side effects while I'm still relatively healthy.

There's no moss growing under my feet right now.

mrou50
Posts: 389
Joined: Mar 2013

Sorry you did not get mileage out of Votrient, good luck with Divo

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

Side effects of Votrient are almost all gone. I don't feel compromised; I feel like a "man" again. 

Had a scare due to cluster of complex migranes. Got an brain scan to assert no brain/eye swelling due to Opdivo: all clear.

Once cleared, I started riding my motorcycle again on the 4WD routes of our Nat'l Forests. I got a 2-way satellite communicator so I can message my wife or send SOS. Works even when outside of cell coverage.

Freedom!

Abunai's picture
Abunai
Posts: 173
Joined: Oct 2016

My own break from Votrient felt relatively great, too. The only side effects I had to deal with were those from the pain medications.

Started on Opdivo today, so we'll see how well I tolerate that.

Get our there and ride, Rhominator!

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Dumping votrient is like a little bit of heaven. how I wish I can ride again. Harley is gone as i have lost so much strength from nerve damage. But you might appreciate that I have been rebuilding a 1970 SL 350. Sort of the original real cross over bike. How I hope to ride it this year.

As a side note: I think the nivo is going to allow you to get real healthy. It makes me feel good following your success.

Hd67xlch's picture
Hd67xlch
Posts: 148
Joined: Apr 2016

Way back when I had a 2 stroke purple Yamaha 100 and my best buddy had a Honda SL 100, like 1974 or so, we lived to ride those bikes after high school.  Good luck on the restoration, I do that on the side for a living, right now Im restoring a 1968 HD xlh Sportster. I have a real bad addiction, well I have more than one addiction but since were talking about bikes I wont mention the others, I restore them and cant bring myself to sell them, right now I have a 67xlh, a 67xlch, a 68xlh, a 76 flh and a 2003 xl 1200. The 67 xlch I got for high school graduation present in 1976 from my parents. How time flies. Good luck.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Do you do guitars too? I don't understand people who don't have these sort of hobbies. I really hope to get my vw camper on the road this year too.

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

I play a Gibson Les Paul on a Mesa Boogie Express tube amp.

Fox? Others?

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

acoustic. 3 old Martins.

JerzyGrrl's picture
JerzyGrrl
Posts: 760
Joined: Jun 2016

Martins are special, indeed. I went looking for a vintage jumbo Gibson (except we called vintage stuff used then) when I got my first "real" job, ended up with a Martin instead. Can't say I've ever been disappointed.

BTW, here's a Martin guitar, being taken for a test-drive.  Enjoy -- https://www.youtube.com/watch?v=cBOfm-nj1dU 

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

Looks like it could be a fun bike, fox. Gonna put knobbies on it?

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

have to start with riding around the neighborhood first. I look forward to attending a couple rallies this year. I'll have to camp with my truck but thats ok. I've been telling people that I didn't give up riding, I'm just retired. A lot of years, a lot of miles. So many friends and stories. Right guys?

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

I was about to sell all my bikes when it looked like my arm was gonna fall off from the matastisis.  My wife said no!  So glad I didn't.

Will probably sell my Honda XR400 as I can't risk a major get-off lest I break the weakened arm.   When I get more strength back I may try some two-up riding on the BMW K1200LT. 

My #1 bike as has always been my R1200GS. Love that bike!! A perfect fit. It's been up to the Arctic Circle and offroad through the Mojave desert.

I hope your new ride delivers everything you hope for.  I look forward to progress reports.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

I've had to make is learning to live broke. I could never afford another Harley. Or a new car. Certainly couldn't afford a new Martin.  I've got a'70 D-28, 01 00016, and a '34 0-17. I was back to playing well earlier this winter. I was very excited. but I've lost some motor control in my fretting hand. It is changing my style. I cross pick with emphasis on bass with partial chords and fills. Instead of pounding out tunes, my guitars get a chance to be heard as a Martin should. I'm no star but I can hold my own. Learning to play has been one of my most satisfying accomplishments.

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

Ok guys and gals, I don't build bikes, or anything, but I SING and in harmony!!! HA!

Jan

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

that click and clack were bluegrassers. I don't think anyone else would want that box though. Jan, you sing in harmoney. I'll sing in the shower. I think I mentioned once before that my father said I sang flat. Actually what he said was, "You sing flatter than piss on a rock."

Aptos guy's picture
Aptos guy
Posts: 5
Joined: Mar 2017

Great! Hope the Optivo works well for you. I will be very interested to hear how you do with it, as I have been approved for Optivo when the Inlyta that I am on now fails.

All the best!

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