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Lisa_R
Lisa_R CSN Member Posts: 59
in Colorectal Cancer #1

Just wanted to let all the newbies who are out there.. I am a stage 4 colon cancer survivor completely NED for 6 years 9 mths!!!!!! There is hope!!!! Hugs to all!!!!

Lisa _R

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Comments

  • Trubrit
    Trubrit CSN Member Posts: 5,808 Member
    #2
    Thank you! Thank you! Thank you!

    It has been a tough year, with losses and folks having reucurrences.

    How wonderful it is to hear your news. 

    I am thankful for your continued NED and I am thankful to you for posting.

    TRU

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  • nateswife
    nateswife CSN Member Posts: 65 Member
    #3
    Hi Lisa, thanks for the

    Hi Lisa, thanks for the encouragement and good news. I read your profile and see that you had "too many tumors to count." Where were they located? You had a liver resection and I'm wondering how much of your liver was cancerous? Im asking because my liver is 30-40% covered in tumors (last I knew) and I've been told that a resection isn't possible because of the size and location of the tumors. 

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  • danker
    danker CSN Member Posts: 1,276 Member
    #4
    me too

    I was only stage 2 boardering on 3 at age 77.  Now 84 NED for 6 yrs. Obviously there is much hope!!!

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  • Lisa_R
    Lisa_R CSN Member Posts: 59
    #5
    nateswife said:

    Hi Lisa, thanks for the

    Hi Lisa, thanks for the encouragement and good news. I read your profile and see that you had "too many tumors to count." Where were they located? You had a liver resection and I'm wondering how much of your liver was cancerous? Im asking because my liver is 30-40% covered in tumors (last I knew) and I've been told that a resection isn't possible because of the size and location of the tumors. 

    It was explained that my

    It was explained that my liver looked like a spotted leopard . . 1 was 8cm... I did chemo till all but the last one was down to 2 cm... they only took 20% of my liver . . 

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  • NewHere
    NewHere CSN Member Posts: 1,433 Member
    edited November 2016 #6
    Congrats

    6 years 9 months is so great to read....

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  • JanJan63
    JanJan63 CSN Member Posts: 2,478 Member
    edited November 2016 #7
    Hooray! Thanks for the

    Hooray! Thanks for the wonderful update!!

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  • beaumontdave
    beaumontdave CSN Member Posts: 1,303 Member
    edited November 2016 #8
    Thanks for sharing Lisa, we

    Thanks for sharing Lisa, we need to hear stories of battling back and living free of this scourge, it inspires.................................Dave

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  • nateswife
    nateswife CSN Member Posts: 65 Member
    #9
    Lisa_R said:

    It was explained that my

    It was explained that my liver looked like a spotted leopard . . 1 was 8cm... I did chemo till all but the last one was down to 2 cm... they only took 20% of my liver . . 

    Platelets

    Did your platelets ever get in the way of treatment? I had hoped that chemo would shrink all my liver tumors to the point that surgery is possible, but my platelets keep dropping so I've been on less & less chemo and right now have had to stop. Am hoping that they'll come back up.

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  • Micheleamw1
    Micheleamw1 CSN Member Posts: 9
    edited November 2016 #10
    Thank you so much for sharing

    Thank you so much for sharing.  My dad is now stage 4 after being a stage 3c survivor for 13 years.  Best, Michele 

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  • John23
    John23 CSN Member Posts: 2,121 Member
    edited November 2016 #11
    Staging

    For what it's worth.....

    They refer to that condition as "stage 3c with metastasis"; the staging does not change from the original staging.

    Hoping he does well!

    John

     

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  • mokomapa
    mokomapa CSN Member Posts: 24
    edited November 2016 #12
    10 years

    10 years and 7 months!  Never give up!!!

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  • kmygil
    kmygil CSN Member Posts: 876 Member
    edited November 2016 #13
    10 years here

    10 years and 3 months!  Keep trying, always.  

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  • kmygil
    kmygil CSN Member Posts: 876 Member
    edited November 2016 #14
    nateswife said:

    Platelets

    Did your platelets ever get in the way of treatment? I had hoped that chemo would shrink all my liver tumors to the point that surgery is possible, but my platelets keep dropping so I've been on less & less chemo and right now have had to stop. Am hoping that they'll come back up.

    Platelets - finicky little guys

    Yes, platelets, neutrophils, and neuropathy caused me to have to delay treatment more than once.  It's frustrating, but you really want to be optimized as much as possible before each treatment.  It's just another detour on your journey, but you will get there.  Hugs.

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  • byrdstrong
    byrdstrong CSN Member Posts: 3
    #15
    thanks

    THanks for your comment. My husband, 35 year old vegeterian cross country runner was diagnosed a week ago with stage 4 colon cancer. We are just starting the journey and are very scared. (well, I am!)

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  • Colonchick
    Colonchick CSN Member Posts: 36 Member
    edited December 2016 #16
    Hooray! I'm one of the

    Hooray! I'm one of the newbies that need to hear the positive!!! Again, I'm so happy for you!!!!!

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  • Joan M
    Joan M CSN Member Posts: 409 Member
    #17
    So good to hear your story Lisa!

    How long did it take fot the 8cm tumor to shrink so small?  Was the chemo what shrunk it?  I have 20 tumors and have been told they cannot operate on me due to the number and location.  Chemo has been shrinking the tumors, but not even 50% reduction yet.  Have you been on any long term chemo like Avastin or Xeloda?

    Joan

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