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Lymph Nodes, How May Taken

DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013
Hi Everyone, If you have a few minutes for this and you are able, would you give me the following data on your cancer? I am most interested in learning about your own experience with regards to cancer type/stage and number of lymph nodes dissected.  I am sending these questions to a few of the discussion boards concerning female cancers. Thank you, jane
  1. Primary tumor location:
  2. Month/year of cancer diagnosis:
  3. Stage determined when cancer first discovered:
  4. Stage determined at time of or after initial debulking surgery:
  5. Grade/Type of tumor:
  6. Quantity of Lymph Nodes Removed:

Here’s mine:

  1. Uterus
  2. May/2013
  3. Stage III
  4. Stage IIIB
  5. Grade 3/MMMT or Carcinosarcoma
  6. 84 lymph nodes
Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

1. Uterus although they first thought it was cervical

2. Aug. 2012

3. II

4. IV

5. Serous Papillary Endometrial Andocarsinoma high grade (never given a number)

6. No lymph nodes, but positive pelvic wash

DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

Thank you so much, Lou Ann.

-jane

 

EZLiving66's picture
EZLiving66
Posts: 1475
Joined: Oct 2015
  1. Primary tumor location: Uterus
  2. Month/year of cancer diagnosis: 8-15
  3. Stage determined when cancer first discovered: I
  4. Stage determined at time of or after initial debulking surgery: II
  5. Grade/Type of tumor: 3 UPSC
  6. Quantity of Lymph Nodes Removed: None - he thought nothing looked like it was worth removing; however, after he found out there were UPSC cells, I think he wished he'd have taken some.

Love,

Eldri

DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

Thank you Eldri.

It's a strange situation we find ourselves in, where little is known and treatment options come at such a price. I hope you are feeling better. I like your photo! Your hair is so cute.

-jane

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

1. Uterus

2. Diagnosed June 2015

3. Stage at Diagnosis: Stage 1

4. Stage after Surgery: Stage IIIc

5. Grade 3, carcinosarcoma or serous carcinoma, depending on which pathologist

6. 22

DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

Thank you Chris.

-jane

ConnieSW
Posts: 1551
Joined: Jun 2012

1  Uterus

2  March 2012

3  Not staged  preop

4  1a

ConnieSW
Posts: 1551
Joined: Jun 2012

5  UPSC

6  five

MAbound
Posts: 1117
Joined: Jun 2016
  1. Primary tumor location: Uterus
  2. Month/year of cancer diagnosis: 4/16
  3. Stage determined when cancer first discovered: Grade 3 from endometrial biopsy; initial physical exam by oncologist had me as a Stage I or II cervical cancer, but that got changed during my surgery.
  4. Stage: Initial pathology during surgery defined me as having endometrial adenocarcinoma rather than cervical with 30% myometrial involvement, but that got increased to 70% when origin was later determined to be at the narrower part of the uterus between the cervix and the fundus. It was ultimately decided that I am Stage 3a.
  5. Grade/Type of tumor: Grade 3
  6. Quantity of Lymph Nodes Removed:15 total: 7 from left pelvis(one positive); 6 from right pelvis (one positive); two para-aortic (both negative); pelvic wash suspicious and so repeated 09/27 after done with chemo (still waiting for results). 1st post-chemo PET/CT negative.
  7. Treatment: 1 cycle Carbo/Taxol; 5 cycles Carbo/Taxotere; EBRT pending 2nd pelvic wash results & my nerve to have it.
DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

I appreciate this. - jane

txtrisha55's picture
txtrisha55
Posts: 690
Joined: Apr 2011

1. Uterus

2.1April 2011

3. No stage given found cancer cells after d&c  crom reg gyn dr she set appt with gyn onc dr for 4 April 11, had surgery 8 April 11

4. After surgery per pathology report - stage 3c1 carcinoma sarcoma in uterus and 2 cells in 1 node

5. Tumor in uterus stage 1a. But 2 cells in 1 node increased it to stage 3c1 / grade 3 cancer.

6 10  total odes removed on both sides and around the pelvic area

7. 6 Rounds of carbo & taxal. No radiation. No recurrencene yet.  5 years NED.

 

DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

Thank you Texas Trisha! Five years NED, WaHOO!!!

beccabtown's picture
beccabtown
Posts: 234
Joined: May 2016

1. Uterus

2. May 2016

3. Not staged

4. IIIc2

5. Grade 3; mixed serous and endometriod adenocarcinoma

6. 38 nodes taken; 25 positive

 

Red Corvette
Posts: 114
Joined: Jan 2016

Mrs. Red's Stats

1 Uterine

2 Dec. 2015

3 not staged

4 1A

5 Grade 3 UPSC

6  37 nodes removed (all clear thank the Lord)

Red

rcdeman
Posts: 263
Joined: Aug 2016

  1. Primary tumor location: Uterus, 33% myometrial invasion
  2. Month/year of cancer diagnosis: August 2016
  3. Stage determined when cancer first discovered: No Stage Determined.
  4. Stage determined at time of or after initial debulking surgery: Doctor thought it was endometrial cancer at Stage 1A, Grade 1-2 contained.
  5. Grade/Type of tumor: Turned out to be UPSC Stage 3C1 (one lymph node involved and positive peritoneal washings), Grade 3.
  6. Quantity of Lymph Nodes Removed: 19 pelvic lymph nodes. Now doctor wants her to go back to remove the para-aortic lymph nodes and omentum to complete staging before going on to chemo treatment, so it will be more.
DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

Thank you Becca, Red and Rebecca!

-jane

takingcontrol58
Posts: 263
Joined: Jan 2016

1) Primary tumor location -    uterus, both ovaries, small tumor on outer rectum

2) Month/year of diagnosis - October 2014

3) Stage at surgery - IIIb

4) Stage 2 mos after surgery (before treatment) - IV (spread to liver, spleen, outer rectum again,
nodes in lungs, kidneys, spleen, outer colon)

5) Grade/Type - Grade 3, endometrioid adenocarcinoma

6) Lymph nodes removed - 11 removed, all negative, but had lymph-vascular invasion
31% myometrial invasion, cervix negative for tumor

7) Treatment - 6 infusions of Taxol/Carbo, no radiation, metformin
(I originally joined a trial that added metformin or a placebo to the Taxol/Carbo-
left trial after 2 infusions and got on the actual drug for remaining 4 infusions- still
on metformin today)

Trish, 5 years NED, that is amazing!

Takingcontrol58

 

DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

Thank you, Takingcontrol58,

-j

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016
  1. Primary tumor location: Uterus
  2. Month/year of cancer diagnosis: Sept 2015
  3. Stage determined when cancer first discovered: None - found during D&C
  4. Stage determined at time of or after initial debulking surgery: 1b
  5. Grade/Type of tumor: Grade 3/Carcinosarcoma (aka MMMT)
  6. Quantity of Lymph Nodes Removed: 14
Nellasing
Posts: 529
Joined: Oct 2016
  1. Primary tumor location: Uterus - lower uterine segment
  2. Month/year of cancer diagnosis: April 2016
  3. Stage determined when cancer first discovered: grade only 2-3
  4. Stage determined at time of or after initial debulking surgery: Stage 3a
  5. Grade/Type of tumor: 3 Endometrial sarcoma- endometrial adenocarcinoma
  6. Quantity of Lymph Nodes Removed: 9- zero malignancy
MAbound
Posts: 1117
Joined: Jun 2016

Welcome to the board, but sorry that you're here. This is absolutely the place to come for conversations with others who "get you".

I just read your My Space and you and I are in very similar places. Finished my chemo Aug. 31 and now wrestling with whether or not to proceed with RT. (see thread "Still Terrified" for some useful information and current discussions). I'm curious why the onc radiologist thinks you were staged wrong when that's determined by pathology from surgery? It will be interesting if he has convincing enough evidence to convince the other doctors on the board. Crossing my fingers, eyes and toes for you!

Nellasing
Posts: 529
Joined: Oct 2016

Yes, I've been reading non stop yesterday and today!  Seems like I'm not the only one in April- Hi Hiker....

I think she thinks I was staged incorrectly because it wasn't all contained in the uterus, as they were exiting the surgery which was supposed to have taken 3 hours but which ended up taking 5 they saw something in the inflammation in the pelvic peritoneal soft tissue and it turned out to be endometrial adenocarcinoma, endometriod type, invading within stroma.  She thinks that kicks it up from 3a to 4 as a m1 instead of m0.

I believe my gyn/onc accounted for it as she did the surgery and said she probably would of staged me 1a grade 3 but for that piece she found- that's if I understood correctly.   The tumor board meets this Thurs. then I see the original Dr. for my first head to toe since I finished chemo and will ask her why they aren't on the same page.

Thank you- I look forward to checking in often and getting to know everyone Innocent prayers for you!  I sent you a PM earlier today

MAbound
Posts: 1117
Joined: Jun 2016

That's the beauty of this board, you never know who's going to be helped by what gets shared! ;-)

DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

Thank you Nella, And welcome to the discussion board!

-jane

SettledSue's picture
SettledSue
Posts: 55
Joined: May 2012

1. Uterus

2. March 2012

3. Stage 1 when discovered

4. Stage 2 determined after surgery

5. Grade 3/clear cell endometrial

6. 33 lymph nodes removed, all negative

Hiker
Posts: 2
Joined: Oct 2016

1. Uterus

2. April 2016

3. No stage pre-op

4. Stage 1a determined at surgery

5. Mixed tumor - UPSC/Grade 3 and Endometrial/Grade 3

6. 21 lymph nodes removed, all negative - 7 para aortic, 9 right & 5 left pelvic

MAbound
Posts: 1117
Joined: Jun 2016

Welcome to you too. So sorry to read about all you had to go through to get diagnosed properly. You are in a good place here for any help and support you may need going forward. 

LindyLu
Posts: 72
Joined: Sep 2016

1. Uterus, endometrial cancer

2. July 2016

3. Stage II, via vaginal ultrasound and biopsy

4. Stage IIIC1, after surgery

5. Grade 3, endometrial adenocarcinoma, with "deep invasion" into cervical stroma 

6. 16 pelvic Lymph nodes, two positive, one on each side, 2 paraaortic lymph nodes examined, both negative

DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

Thank you Lindy.

I hope you are feeling more like yourself with each passing day since your first round of chemo, and are doing all you can to surround yourself with the people in your life who bring you joy and laughter.

-jane

Hiker
Posts: 2
Joined: Oct 2016

Thanks for your kind words, I live in a remote place and not in my own country, so friendly support is welcome! I was due my 4th and last chemo this week but once again it's been delayed due to low wbc, but not the end of the world, could be much worse. 

DSNYC's picture
DSNYC
Posts: 20
Joined: Sep 2016
  1. Primary tumor location
  2. Month/year of cancer diagnosis:
  3. Stage determined when cancer first discovered:
  4. Stage determined at time of or after initial debulking surgery:
  5. Grade/Type of tumor:
  6. Quantity of Lymph Nodes Removed:

Here’s mine:

  1. Uterus
  2. June/2016
  3. Stage 1-2
  4. Stage III (due to lymph node metastases)
  5. Grade : Nuclear grade 2, FIGO grade 1-2, Adenocarcinoma
  6. 4 lymph nodes (3 out 4 positive, one benign)., lymphovascular invastion, identified extensive....i dont know why 3 out 4 is considered extensive???
DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

Hi DS,

Thank you for responding. I don't know how physicians/pathologists evaulate the lymphovascular system. I think that assessment might having something to do with appearance of cancer cells in the blood vessels in the regions of the lymphatic channels and lymph nodes. You should ask your doctor, though.

I don't know if you are in the midst of chemotherapy, or if you have had radiation. Whichever, my heart goes out to you. All of our situations differ in one way or another, but involve a host of shared experiences in trying to address this lethal threat that has so many unknowns.

Hugs to you,

jane

 

 

DSNYC's picture
DSNYC
Posts: 20
Joined: Sep 2016

Hi Jane

I just returned from my post op with my oncologist. The extensive invasion is that excatly....the blood vessels from the uterus were full of cancer cells, hence so were the lymph nodes taken out...so you are correct. Who would have thunk it! That a low grade non agressive tumor could cause so much mayeh. This is worse than if it had attacked my ovaries instead! UGH!! Its a journey :)

Im scheduled to start radiation on the 24th every day with light chemo, Cisplatin every monday for a month before starting full chemo in January.

Thank you for warm thoughts and support

best, diana

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