Round 4 of Immunotherapy

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Lou Ann M
Lou Ann M Member Posts: 996 Member
in Uterine/Endometrial Cancer #1

Monday was round four of the immunotherapy treatments.  My lab work was all good and I am almost not anemic anymore.  Just .2 under normal.  I will have a CT scan in two weeks, but my Onc. Is not sure if it the results will be accurate some growth could be my immune system attacking the tumors.  He says that the way I feel and look are better indicators of how things are going.  So, for now, we are very encouraged.

so far still no side effects and my energy is still returning.  Last week we were able to make a trip to the Oregon coast and spent two days walking in the sand and watching waves.  Six weeks ago I would no have been able to do that.

Hugs and prayers to all and never give up hope.  Lou Ann 

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  • EZLiving66
    EZLiving66 Member Posts: 1,482 Member
    edited September 2016 #2
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    Oh, Lou Ann, I cried when I

    Oh, Lou Ann, I cried when I read this - I am sooooo happy for you!!!  This is such wonderful news.  Finally to find something that works that doesn't have devastating side effects.  So glad to hear you were able to make the trip to the Oregon coast and have a little R&R.

    *~0~* *~0~* *~0~* *~0~* *~0~* *~0~* <-  That's me doing my happy dance just for you, my friend!

    Love,

    Eldri

  • Editgrl
    Editgrl Member Posts: 903 Member
    edited September 2016 #3
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    Lou Ann, so glad to hear that

    Lou Ann, so glad to hear that you were able to make it to the coast.  That is great!  This is all sounding positive and I am so happy that you are feeling much better.

    Hugs to you.

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    edited September 2016 #4
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    I am going to enjoy every

    I am going to enjoy every,minute that I can.  I am a little afraid I will wake up and find it was a dream.

    Love you guys, Lou Ann

  • beccabtown
    beccabtown Member Posts: 234
    edited September 2016 #5
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    So good to hear that, Lou Ann

    So good to hear that, Lou Ann. Glad you're feeling better, too. You give me hope!

  • CheeseQueen57
    CheeseQueen57 Member Posts: 933 Member
    edited September 2016 #6
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    Glad you're feeling better

    wishes for continued good results. You're our trailblazer!

  • Soup52
    Soup52 Member Posts: 908 Member
    #7
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    Fabulous news Lou Ann! 

    Fabulous news Lou Ann! 

  • janaes
    janaes Member Posts: 799 Member
    edited September 2016 #8
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    Lou ann I love your

    Lou ann I love your encouragement.  You are right.  Never give up hope.  I just hope i can do that.

  • rcdeman
    rcdeman Member Posts: 263 Member
    #9
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    I'm happy you are feeling

    I'm happy you are feeling better!

    I will continue to pray for you!
    Rebecca

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member
    edited September 2016 #10
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    Lou Ann,

    Lou Ann,

    What great news you bring to all of us! I'm so happy for you.

    Getting better and feeling better - what a great combo!

    Love you bunches LouAnn.

    Love and Hugs,

    Cindi

  • Kvdyson
    Kvdyson Member Posts: 789
    #11
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    Thank you for sharing your experience

    Lou Ann, thank you so much for sharing your experience with us. It is so great to know that the immunotherapy treatment appears to be working for you! You deserve to enjoy every single minute of this time. Wishing you many more wonderful vacations of walking in the sand and watching the waves!! Kim

  • namedropper
    namedropper Member Posts: 102 Member
    #12
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    Good News

    I am happy for you. I am glad you went on your trip. Walking in the sand sounds wonderful.

  • Diya
    Diya Member Posts: 93
    edited September 2016 #13
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    This is very encouraging news

    This is very encouraging news lou ann. I am very happy for you. Can you please advise what immunotherapy drug you are using?

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    #14
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    Diya said:

    This is very encouraging news

    This is very encouraging news lou ann. I am very happy for you. Can you please advise what immunotherapy drug you are using?

    I am on Keytruda

    I am on Keytruda

  • Diya
    Diya Member Posts: 93
    edited September 2016 #15
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    Thanks. I have registered my

    Thanks. I have registered my mum for an immununotherapy trial as well to commence next month. It will be a new drug similar to keytruda. But i dont know if she will qualify as she may be not be fit enough. Also she is taking dexamethasone which if she cannot stop will disqualify her. Would you be able to ask your oncologist if keytruda can be administered with low dose dexamethasone? We have the option of seeking privately funded treatment on keytruda but i am still looking for an oncologist who would do that. Knowing this would help. Thanks.

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    edited September 2016 #16
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    Diya said:

    Thanks. I have registered my

    Thanks. I have registered my mum for an immununotherapy trial as well to commence next month. It will be a new drug similar to keytruda. But i dont know if she will qualify as she may be not be fit enough. Also she is taking dexamethasone which if she cannot stop will disqualify her. Would you be able to ask your oncologist if keytruda can be administered with low dose dexamethasone? We have the option of seeking privately funded treatment on keytruda but i am still looking for an oncologist who would do that. Knowing this would help. Thanks.

    He already told me that I can

    He already told me that I can't use dexamethosone because it is a steriod and would compromise the treatment.  Sorry.

    Lou Ann

  • Diya
    Diya Member Posts: 93
    #17
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    Thankyou. This is what i

    Thankyou. This is what i thought. I also read if the endometrial cancer has MSI defect it responds very well to immunotherapy compared to non MSI defect.

  • daylady
    daylady Member Posts: 122
    edited September 2016 #18
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    So happy for you!!!

    So happy to know you are doing well.  Keep us posted! - Hugs! - Helen

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #19
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    Keep it up!

    Your news is really exciting.  Thank you for sharing.  Will keep you in my thoughts.

    Suzanne

  • Sandy3185
    Sandy3185 Member Posts: 229 Member
    #20
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    So happy to hear your good news!

    You have been such an inspiration to all of us. I continually admire your strength and courage while enduring treatments, set backs and some God awful side effects! I'm so glad that you are enjoying your restored health and strength and pray for your continued recovery!  Love, Sandy

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