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No news = good news, right??? X-posted

Jodisgoing180
Posts: 98
Joined: Feb 2016

I posted in Ovarian cancer, but there's not a lot of traffic...

Long story short-- I had/have stage IV ovarian cancer.  I finished front line in June.  I had my first appointment post-cancer appointment in August (near the end of it).  My doctor ordered a PET Scan.  I finally got in on Friday (the machine was broke).  The tech told me that the radiologist would read it on Friday, and the doctor would have results on Monday.  I should hear either way Monday.  No call.  I called the office, and I did not get a return call.  When I was first diagnosed, my doctor called me on a Tuesday night with the biopsy results, so I'm assuming no news, is good news.  Does it normally take this long to get back to a patient?  The wait is absolutely killing me.

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

The time varies, but I had my PET scan done on a Saturday, it was read on Saturday and my doctor let me know all was clear on the following Monday. I would think you would hear something by tomorrow if the radiologist did indeed read it on Friday.  Fingers crossed for good news!

Jodisgoing180
Posts: 98
Joined: Feb 2016

Yeah, my oncologist has always been good about getting back to me, so I really am thinking this means that it's clear.

rcdeman
Posts: 263
Joined: Aug 2016

Welcome. Hoping you are right and that no news means good news!

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Lou Ann M
Posts: 996
Joined: Feb 2015

I hope your wait is over soon and it is all good news.  When I had my one and only PET scan in January 2014. The results were first read at one hospital and then sent to my Gyno-Onc in another city.  The scan was on Monday and the results didn't end up on his desk until the very end of the day On Friday.  He actually called my home on Saturday and left a message on my answering machine that he had them and would review them and call on Monday.  I waited all day Monday at school and didn't hear anything.  Later that night he called and said he didn't want to bother me at school.  In my case, it was not good news.  Doctors can be very caring.

Hugs and prayers, Lou Ann

Jodisgoing180
Posts: 98
Joined: Feb 2016

My scan was in a different city, but it's the same hospital system, and everything is "on-line," so once its read the doctor will get it.

Jodisgoing180
Posts: 98
Joined: Feb 2016

I got a call, and am meeting with my oncologist on Friday.  

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

So sorry to hear that. We were all hoping for good news for you - hang in there!

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1793
Joined: Jun 2015

Jodi - So sorry it is bad news! Darn it!!!  Please let us know what you find out on Friday. There are so many new treatments now that hopefully whatever the news is... they already know what will work for you.

Thinking of you Jodi.

Love and Hugs,

Cindi

Jodisgoing180
Posts: 98
Joined: Feb 2016

I am a younger survivor (40), I feel pretty good (despite the news). I ran 5 miles yesterday. The only bad thing is I feel a tightening/pressure in my lower chest near the same area as my pleural effusion. 

janaes
Posts: 800
Joined: May 2016

Im inspired by your five mile run.

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

I am so very sorry.  I have gone,through getting one of those calls and I do know how you feel.  The one thing I can say is never, never give up hope.

Hugs and prayers, Lou Ann

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

I'm sorry the news wasn't what you had hoped for.  But please come back and let us know how your appointment on Friday goes and what the plan moving forward is.  There are so many more treatment options than there used to be.

Peace and strength,

Chris

Jodisgoing180
Posts: 98
Joined: Feb 2016

Will do.  

If I have to go on chemo I just hope that I don't have to do dose dense.  My husband is in the military and is at school right now.  We are living separately.  

brissance's picture
brissance
Posts: 192
Joined: May 2016

So tough having your husband away right now.  Praying for the best outcome.  

Jodisgoing180
Posts: 98
Joined: Feb 2016

I feel a LOT better today than I did yesterday.  I found out that the doctor calls ALL patients in to give results.  I was also concerned about them doing it on Friday when he normally isn't in the office, but I can understand why he did it-- I told the nurse I was anxious, and he is a survivor himself, so I don't think he wanted me to wait over the weekend.  Also he knows hubby comes home every weekend, and I think he was trying to catch my husband with me.  Either way, I don't have symptoms, I feel really good (except for the nausea, bowel issues from nerves).  I ran 5 miles today.

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

I am glad you are feeling better.  Sounds like very good reasons why he wants you to come in.  Rest easy all.will be good

Hugs and prayers, Lou Ann

Jodisgoing180
Posts: 98
Joined: Feb 2016

The cancer did not respond to initial therapy.  I'm going to MD Anderson Cancer Center in Texas for a clinical trial.  The doctor said I'm a prime candidate and only sends 10 people a year there for treatment.  If that doesn't work he said there are a TON of options.  He was very positive, but with the caveat that I will likely be on some form of treatment for the duration of my life.  So please pray that they find something that will get rid of this beast forever.  I have a 12-year-old son with autism and a 10-year-old.

rcdeman
Posts: 263
Joined: Aug 2016

Adding you to my prayers, Jodi. I pray that this next therapy (clinical trials) will kill that cancer for good.

Love,
Rebecca

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Jodi, I am so sorry to hear that the cancer did not respond to the initial therapy. Please trust what your doctor says about being positive about the many treatment options that are open to you. I read so much now about cancer starting to be treated as if it is a chronic condition like diabetes that there really is hope to live a long, full life, even if you don't get rid of it completely. Wishing you strength and peace for your continuing journey, Kim

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Sometimes just knowing can set your mind at ease a little. So sorry it turned out this way,but it sounds like there are good plans.  I hope everything works out for you and the new treatment works.  One thing, treatments are improving and getting better.  Hopefully the right one will come along soon for all of us.

Hugs and prayers, Lou Ann

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Options is the name of the game.  Sounds like your doctor is in this with you and that can make a world of difference.  We should all have such a positive doctor!

brissance's picture
brissance
Posts: 192
Joined: May 2016

Jodi, I am sorry I wish the results had been totally clear.  One thing I have learned, doctors are morbidly honest and lean towards worse case scenarios when discussing your future and future treatment options.  You should read a lot of positive by your doc thinking there are so many ways to deal with this.  And you can live with cancer, it becomes more of a chronic disease like diabetes etc. Not fun but you have your life and family, pretty neat I would say.  You now know there is a battle brewing but you are fit and on the whole, healthy.  Lots and lots in your favor.  AND you have all of us saying prayers and willing you to be better. God bless you.  

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Soup52
Posts: 906
Joined: Jan 2016

 

I'm saying prayers for you Jodi. Like the rest have said options are still available. I am wishing you the best.

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