How has breast cancer spoken to you?

Options

Hi guys, 

I was diagnosed with breast cancer four years ago. I had HER positive, hormone negative, stage 1, grade four invasive ductal carcinoma, in the form of Paget's disease of the breast. I underwent a double mastectomy, one round of fertility treatment, 6 rounds of chemo, one year of herception and now that I look back, I can say that I enjoyed the experience. Being diagnosed with cancer changed my life. For me it was a sign that I needed to stop and take a look at myself and my life and I'm glad I did. Breast cancer spoke to me and it said:

  • Prioritize the things that are important in your life
  • That courage isn't something I need to find, I have it inside me and I can pull it up in a second.
  • That if I express my needs clearly, I can be happy
  • That lining up my thoughts and my values is what I strive for
  • That my personal limits are the ones I set for myself.

Four years ago, being diagnosed with breast cancer felt like the most devastating thing that could ever happen to a person. But now that I've been through it, I can truly say that I'm a better person. My brerast cancer spoke to me and I listened. I maintain a positive attitude about life and I hope to be an inspiration to others who feel scared, confused, angry and tired. I want to tell you that you can get through it.

To all the ladies who know what I'm talking about: How has breast cancer spoken to you?

 

Comments

  • peony
    peony Member Posts: 306 Member
    edited August 2016 #2
    Options
    I am still dealing with some

    I am still dealing with some side effects of my chemo, so right now, I'm just trying to see what my new normal will be. Will I be using a cane the rest of my life due to CIPN? Will I have to retire sooner than I had hoped? Am I going to be able to stay in my house or move somewhere more accomodating? I have a lot of questions right now that only time can answer. Cancer has left me feeling weakened and anxious in one way, but stronger in other ways. I know that whatever comes, I can deal with it; I can handle it and it's going to be alright. Best wishes.

  • Happiness Republic
    Happiness Republic Member Posts: 10
    edited August 2016 #3
    Options
    peony said:

    I am still dealing with some

    I am still dealing with some side effects of my chemo, so right now, I'm just trying to see what my new normal will be. Will I be using a cane the rest of my life due to CIPN? Will I have to retire sooner than I had hoped? Am I going to be able to stay in my house or move somewhere more accomodating? I have a lot of questions right now that only time can answer. Cancer has left me feeling weakened and anxious in one way, but stronger in other ways. I know that whatever comes, I can deal with it; I can handle it and it's going to be alright. Best wishes.

    Hi Peony (one of my favourite flowers), 

    I'm glad that you realize that cancer has been able to make you stronger. When I realized that I really embrassed it and that's when changes started happening in my life. I started to become happier. I ended up taking a course in Life coaching and for over a year I've been hummig and hahing about who my clients should be. Since getting breast cancer I've discovered how many women around me had breast cancer and are going on strong. Sometimes different, but stronger than ever. Myself included.

    I want to be able to share my experiences with the hopes of helping others find their strength, their voice, their opportunity and their life. That's why I've chosen to coach women who have been diagnosed with breast cancer to feel less axious and overwhelmed and more in control. I've only just started and I want to make sure I speak about the issues that are really affecting people.

    Do you mind if I ask what top 3 things make you feel the most anxious? Maybe there's a tool, tip or exercise I can give you to help.

    Much Love, 

    Vickie

  • peony
    peony Member Posts: 306 Member
    Options

    Hi Peony (one of my favourite flowers), 

    I'm glad that you realize that cancer has been able to make you stronger. When I realized that I really embrassed it and that's when changes started happening in my life. I started to become happier. I ended up taking a course in Life coaching and for over a year I've been hummig and hahing about who my clients should be. Since getting breast cancer I've discovered how many women around me had breast cancer and are going on strong. Sometimes different, but stronger than ever. Myself included.

    I want to be able to share my experiences with the hopes of helping others find their strength, their voice, their opportunity and their life. That's why I've chosen to coach women who have been diagnosed with breast cancer to feel less axious and overwhelmed and more in control. I've only just started and I want to make sure I speak about the issues that are really affecting people.

    Do you mind if I ask what top 3 things make you feel the most anxious? Maybe there's a tool, tip or exercise I can give you to help.

    Much Love, 

    Vickie

    The 3 questions I listed in

    The 3 questions I listed in my first post are the most threatening to me. The CIPN is getting better, slowly. So I have hope for that. But I have other medical problems that are hampering my movement and lifestyle. I'm trying to fix them, or at least make it better, but it's a slow process. I'm still working full-time and still getting around. Sometimes I tire easily; sometimes I don't. I just keep going. I have a son, 28, working on his second Master's and headed for a PhD. I have to stay strong because there are good things ahead and I want to be a part of them.

    Glad you came to CSN. You're sure to be an asset here.

    Kathy

  • bonbondidit
    bonbondidit Member Posts: 116
    Options
    Hi Happiness

    I love your new call on life and your new direction with helping others. It's so nice when we find our calling.  As for me, I am stage 3a IDC, double mastectomy, 4 kids (twins 22 yr old daughters, 19 yr old son in college, 15 yr son  and a 5 yr old i've co-adopted with my neighbor (his grandson) who's parents are meth addicted.  I was diagnosed in 2014 on June 30th. Sterling was only 3 at the time.   I remember thinking how unfair it was to him that a second mommie was trying to get taken from him. The other three were in college at the time. My daughters stopped dead in their tracks and took a leave of absense to help me out. Some would argue that they should have remained in college during that time, but this was incredibly important to them. I learned to really honor people's eb and flow. I have been a very strong college bound mom for my kids so for us all to put it on the coat rack for a year really taught me about how little those things matter in comparison to need to help sick people, this time is was ME the co-leader of the family arc, the sentinal of the house hub - and I didn't even bat an eye lash when they all came to me to help. They dropped EVERYTHING and came to help - it was in their eyes, in their body language and in their spirit. It was when our beautiful family grew even bigger in strength, in closiness and in courage. I have never been more proud of my kids then through this experience. To humble myself and get centered. On one hand I was as a women going through the motions of the scariest time in my life simultaneously being graced by family's incredible vigilance. I know I am loved. I know their true true hearts. It was incredible and the BEST thing I've ever experienced as a mom. Honestly my family's beautiful and natural way of caring for me completely outshined my depression. It just did.  In the beginning I was angry that two years prior when I asked for the micro calcification cluster to be immedietly removed, I was told now now, lets lets just keep an eye on it- during the doctors mid sentence I blurted NO I want it OFF!  I was talked out of it since the biopsy came back negative for cancer then. Move forward two years from that date and I have stage 3a IDC. Ya know, I am doing just fine now. I did 16 weeks of a/c and 6 weeks of Taxol with 48 rounds of radiation. I went bald and sported my collection of AMAZING earings and wrapped my head in beautiful scarves. It was so chic.  Knowing how much people really care is the strongest chemo their is. Laughter is completely doable and got me through the hardest days. My aunt Shelley told me to think of chemo like pregnancy symptoms but that you are going to give birth to your new life and all the love that comes with that. Honestly the best advice I received. Chemo for me was just like the first trimester of pregnancy. I applied all knowledge from that time to this time. The weakness that finally occured after the third treatment was when it hit me. I've never been a napper but I learned to adapt real quick. 

    I've learned so much about the human body since going through all of this.  I learned baby steps, faith and love are the only ways to win the race.  It will be a season to recieve incredible amounts of attention, so recieve it open armed, which can be hard for mothers who are the ones usually given of themselves.  No college degree in the world could bring me to happy tears in comparison to what I experienced with my family and beautiful friends.

    One of my twins blessed me with a grandchild who is now 7 months old. His name is Ryder and I'm in love all over again.  I am in remission and will take life as it comes while I'm here on earth. Life is amazing!

    My number one anxiousness is : NO ONE SHOULD DO THIS ALONE!  There are people on this site that need friends and to be taken to their appointments.

    I have seen some of the worst in humanity in other patients I shared the chemo lounge with.  A husband who stays home and makes the wife drive herself while she's weak and gagging.  The world needs to stop and help when they see this behavior.  At times I see spouses actually MAD at their family member for "getting" cancer. "This is going to cost us SO MUCH MONEY! Ugh, I just got really good at giving the stink eye, interupting the abuse and intercepting. NEVER would I have done that before. Life is just too short to be in an abusive situation while being on this journey.

    You learn who your "village" is and who isn't a part of that support pretty quick.  Everyone of the ladies and gents on this website are precious commodities to the world around them. I wish everyday that they realize their shine.

     

  • peony
    peony Member Posts: 306 Member
    edited August 2016 #6
    Options
    What a great family you have

    What a great family you have Bonbon! They deserve to be cherished.  And you have what I'm waiting for- a newborn grandchild (not currently in the works).   "You learn who your "village" is and who isn't a part of that support pretty quick."  No truer words have ever been spoken.  Best wishes.

  • Happiness Republic
    Happiness Republic Member Posts: 10
    edited August 2016 #7
    Options

    Hi Happiness

    I love your new call on life and your new direction with helping others. It's so nice when we find our calling.  As for me, I am stage 3a IDC, double mastectomy, 4 kids (twins 22 yr old daughters, 19 yr old son in college, 15 yr son  and a 5 yr old i've co-adopted with my neighbor (his grandson) who's parents are meth addicted.  I was diagnosed in 2014 on June 30th. Sterling was only 3 at the time.   I remember thinking how unfair it was to him that a second mommie was trying to get taken from him. The other three were in college at the time. My daughters stopped dead in their tracks and took a leave of absense to help me out. Some would argue that they should have remained in college during that time, but this was incredibly important to them. I learned to really honor people's eb and flow. I have been a very strong college bound mom for my kids so for us all to put it on the coat rack for a year really taught me about how little those things matter in comparison to need to help sick people, this time is was ME the co-leader of the family arc, the sentinal of the house hub - and I didn't even bat an eye lash when they all came to me to help. They dropped EVERYTHING and came to help - it was in their eyes, in their body language and in their spirit. It was when our beautiful family grew even bigger in strength, in closiness and in courage. I have never been more proud of my kids then through this experience. To humble myself and get centered. On one hand I was as a women going through the motions of the scariest time in my life simultaneously being graced by family's incredible vigilance. I know I am loved. I know their true true hearts. It was incredible and the BEST thing I've ever experienced as a mom. Honestly my family's beautiful and natural way of caring for me completely outshined my depression. It just did.  In the beginning I was angry that two years prior when I asked for the micro calcification cluster to be immedietly removed, I was told now now, lets lets just keep an eye on it- during the doctors mid sentence I blurted NO I want it OFF!  I was talked out of it since the biopsy came back negative for cancer then. Move forward two years from that date and I have stage 3a IDC. Ya know, I am doing just fine now. I did 16 weeks of a/c and 6 weeks of Taxol with 48 rounds of radiation. I went bald and sported my collection of AMAZING earings and wrapped my head in beautiful scarves. It was so chic.  Knowing how much people really care is the strongest chemo their is. Laughter is completely doable and got me through the hardest days. My aunt Shelley told me to think of chemo like pregnancy symptoms but that you are going to give birth to your new life and all the love that comes with that. Honestly the best advice I received. Chemo for me was just like the first trimester of pregnancy. I applied all knowledge from that time to this time. The weakness that finally occured after the third treatment was when it hit me. I've never been a napper but I learned to adapt real quick. 

    I've learned so much about the human body since going through all of this.  I learned baby steps, faith and love are the only ways to win the race.  It will be a season to recieve incredible amounts of attention, so recieve it open armed, which can be hard for mothers who are the ones usually given of themselves.  No college degree in the world could bring me to happy tears in comparison to what I experienced with my family and beautiful friends.

    One of my twins blessed me with a grandchild who is now 7 months old. His name is Ryder and I'm in love all over again.  I am in remission and will take life as it comes while I'm here on earth. Life is amazing!

    My number one anxiousness is : NO ONE SHOULD DO THIS ALONE!  There are people on this site that need friends and to be taken to their appointments.

    I have seen some of the worst in humanity in other patients I shared the chemo lounge with.  A husband who stays home and makes the wife drive herself while she's weak and gagging.  The world needs to stop and help when they see this behavior.  At times I see spouses actually MAD at their family member for "getting" cancer. "This is going to cost us SO MUCH MONEY! Ugh, I just got really good at giving the stink eye, interupting the abuse and intercepting. NEVER would I have done that before. Life is just too short to be in an abusive situation while being on this journey.

    You learn who your "village" is and who isn't a part of that support pretty quick.  Everyone of the ladies and gents on this website are precious commodities to the world around them. I wish everyday that they realize their shine.

     

    BonBondidit, 

    What a fabulous message. I'm glad you found your "village". That's massively important. You need different people for different things so you need to build your team and really rely on them when you need to.

    I'm glad you're positive and mindful of life around you. You're having an effect on the world!

    XOXO

    Vickie

  • desertgirl947
    desertgirl947 Member Posts: 653 Member
    edited September 2016 #8
    Options
    Four years out

    Four years ago I was finishing the final phase of my battle plan (aside from taking tamoxifen now) -- surgery, chemo, radiation.  I found that although there were a few moments, the process for me went better than I thought it would.  One of my best friends lost her battle with bc about a year before I found I had the same disease.  I will say that the initial battle was easier for me than for her.  Her initial battle was about ten years before mine, and there had been a lot of progress.

    • I have learned to enjoy life more.
    • I celebrate my birthday now, seeing each as a milestone, rather than poo-poo it off
    • I try to be open about my experience with women I know so that if any of them find themselves where I did, they will have an idea of what to expect AND see that the battle is do-able.
    • I don't let minor things bother me as much as I used to.
    • I appreciate what I have.

    Cancer changes a person.  I chose to not feel sorry for myself (Stage IIIA) but just deal with it and then get on with life.

  • Happiness Republic
    Options

    Your lessons are beautiful. You're a soldier.

  • Bdonoghue
    Bdonoghue Member Posts: 1
    Options
    How breast cancer spoke to me

    Almost 2 years ago I was diagnosed with stage 2 triple negative ductal caricamoa in my left breast. I was 25 years old and 22 weeks pregnant with my little girl, the week before my diagnosis I found out that my second child was a girl. At that time I felt a level of fear that I never knew could exist. Not for myself but for my husband and my children. Looking back at all we have over came as a family I have learned this,

    God will never take you to a storm to leave, he will go thru it with you, during the process of treatment my family and myself were blessed by so many wonderful people, most of them strangers prior to this 

    Family means everything to me and will always be my second priority 

    Love definitely over comes fear

    Pain is temporary but joy is ever lasting

    And not everyone who you would move a mountain for will return the favor

    All in all breast cancer told me to keep those around who love me for me, not what I can do for them.

    Oh, and to love myself despite how I look or feel I am beautifully and wonderful made

    God bless