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Mantle Cell

john1947
Posts: 14
Joined: Nov 2015

I finished 6 R-Chop treatments mid March.  A month later did bone marrow biopsy, pet/ct, colonoscopy and endoscopy.  Got results yesterday.  Complete Response, No Evidence of Disease.  Nothing, all clear.  Start Rituxan Therapy on Monday.

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Rocquie
Posts: 857
Joined: Mar 2013

May you remain NED and may your Rituxan maintenance be smooth.

Blessings,

Rocquie

 

john1947
Posts: 14
Joined: Nov 2015

Rocquie,

Thank you, I was stage 4, enlarged spleen and liver.  High WBC count, low platelets, high LDH and never thought I would get the results I just received.  R Chop was tough but you just have to keep going.  I'm feeling great right now and back to my normal self.

John

illead's picture
illead
Posts: 874
Joined: Aug 2012

My husband also has MCL.  You can click on our picture and get our story.  There is a lot of research going on for MCL with some very dedicated doctors.  Bill was dxd July "11, relapsed 4/14 and is  now in remission again.  We never lose hope.  There are many good things going on, so stay positive and write anytime.  We are always here,

BIll & Becky 

Rocquie's picture
Rocquie
Posts: 857
Joined: Mar 2013

Bill is in relapse again? 

Max Former Hodg...
Posts: 3689
Joined: May 2012

My understand is that Bill is in a sort of holding pattern on maintenance, but that the disease of late does not show progression.

But I may be wrong, and also hope Becky clarifies. Apology in advance for any possible misstatements

max

illead's picture
illead
Posts: 874
Joined: Aug 2012

Bill is in remission, too bad I am in Alzheimers EmbarassedFoot in Mouth.  I just typed in the wrong word.  Thank you for your support though and keeping me on my toes.  And yes Max, that is exactly where we are.  I hope I didn't confuse you John.

Thinking of all of you,

Becky & Bill

PS   I was still able to edit so I changed relapse to remmission. Tongue Out

Jennifer R
Posts: 3
Joined: Apr 2016

Thank you for sharing your good news! Bill and Becky I have enjoyed reading your stories on line and appreciate how honest yet positive you are.  I'm a 52 yo female and was diagnosed w/ MCL 2.2.2016.  I am undergoing R-CHOP & R- DHAP chemo every 3-4 wks and then plan on a SCT this summer.  Per last scan I am in remission, but have two more rounds of chemo to go before I get repeat bone marrow biopsy, PET scan etc.  I am going to a lecture put on by the Lymphoma Society tomorrow night and will post anything learned that is new & that I think will be of interest to MCL pts.  

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