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Question About IgA and IgM Deficiency

Catism's picture
Catism
Posts: 102
Joined: Sep 2008

I'm an ovarian cancer survivor and am currently fighting Non-Hodgkins B Cell lymphoma.  The lymphoma has been indolent for 13 years from the point of diagnoses but now looks as though it's evolving into leukemia (currently being reaccessed).  Oncologists have been using a 'watch and wait' method, while treating the subsequent issues secondary to the lymphoma.  At the point of diagnoses, it was discovered I have IgA and IgM deficiency as well.

Throughout the passed 13 years, I've consistantly tested deficient in both but according to recent blood work, the IgA is currently low yet within range.
My question is of anyone who might know, since the Iga is currently within range, if it stays that way would I be able to have the immunoglobulin therapy for the IgM deficiency?  Would it be possible to have the IV treatments or would just the fact I've been IgA deficient, still exclude me from the therapy?  Could I have the immunoglobulin therapy during the intervals of IgA being within range?

Thanks in advance!

paella's picture
paella
Posts: 81
Joined: Jun 2012

Hi, Noquisi - Wish I had a clue about how to answer but I'm completely in the dark.  Sounds like you're going through sooo much - many positive thoughts coming your way.  Sorry I can't be of any help.

Paella

Catism's picture
Catism
Posts: 102
Joined: Sep 2008

Hi Paella!  Thanks for responding... that in itself is helpful.  I guess I've asked a tough question, maybe one I should pose to my hematology oncologists.  I did try to ask another question of one of them about the deficiencies but he was busy focusing on the lymphoma itself, which is understandable.  I have two new hematology oncologists so between the two of them, I hope to get some answers. 

Thanks for the positive thoughts!

OO7's picture
OO7
Posts: 282
Joined: Sep 2014

I'm sorry for I don't know the answer to your questions but sympathize with you.  I fear like many of us (if not all) that things will change or morph into a sea of unknown territory.

Personally I feel these are questions for your hemotologist and I wouldn't leave until you get the answers you seek.  Fear and uncertainty feeds the monster so to speak, we need clarity and a sound mind to face each and every battle with vigor.

Blessings, good luck and happy, healthy thoughts coming your way!

Catism's picture
Catism
Posts: 102
Joined: Sep 2008

Thanks for responding, 007.  I think you're correct about asking my hemotologist.  It was an introductory appointment during which I tried to ask one of my hemotologists about the IgA and IgM, so hopefully with the next appointment I can get answers.  I realize they're focusing on attacking the lymphoma and I'm grateful for that but, it would be awesome if I could have the immunological therapy. 

It's to my understanding the therapy would lessen the occurance of infections.  There's currently no known antibiotic I can take, due to allergies and severe adverse reactions.  I developed bad infections after the last three surgeries I've had, and am facing more surgery.

Whatever answers I can get about the IgA and IgM, I'll post here so as to possibly help someone else who may have the same deficiencies (though I understand the IgA deficiency to be rare).

Thanks so much for the blessings and wishes for good luck as well as happy, healthy thoughts.  I wish the same for you!

OO7's picture
OO7
Posts: 282
Joined: Sep 2014

Any ideas,?

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