Question About IgA and IgM Deficiency

Catism
Catism Member Posts: 92 Member
in Lymphoma (Hodgkin and Non-Hodgkin) #1

I'm an ovarian cancer survivor and am currently fighting Non-Hodgkins B Cell lymphoma.  The lymphoma has been indolent for 13 years from the point of diagnoses but now looks as though it's evolving into leukemia (currently being reaccessed).  Oncologists have been using a 'watch and wait' method, while treating the subsequent issues secondary to the lymphoma.  At the point of diagnoses, it was discovered I have IgA and IgM deficiency as well.

Throughout the passed 13 years, I've consistantly tested deficient in both but according to recent blood work, the IgA is currently low yet within range.
My question is of anyone who might know, since the Iga is currently within range, if it stays that way would I be able to have the immunoglobulin therapy for the IgM deficiency?  Would it be possible to have the IV treatments or would just the fact I've been IgA deficient, still exclude me from the therapy?  Could I have the immunoglobulin therapy during the intervals of IgA being within range?

Thanks in advance!

Comments

  • paella
    paella Member Posts: 81
    #2
    Your questions

    Hi, Noquisi - Wish I had a clue about how to answer but I'm completely in the dark.  Sounds like you're going through sooo much - many positive thoughts coming your way.  Sorry I can't be of any help.

    Paella

  • Catism
    Catism Member Posts: 92 Member
    #3
    paella said:

    Your questions

    Hi, Noquisi - Wish I had a clue about how to answer but I'm completely in the dark.  Sounds like you're going through sooo much - many positive thoughts coming your way.  Sorry I can't be of any help.

    Paella

    Your Response

    Hi Paella!  Thanks for responding... that in itself is helpful.  I guess I've asked a tough question, maybe one I should pose to my hematology oncologists.  I did try to ask another question of one of them about the deficiencies but he was busy focusing on the lymphoma itself, which is understandable.  I have two new hematology oncologists so between the two of them, I hope to get some answers. 

    Thanks for the positive thoughts!

  • OO7
    OO7 Member Posts: 281
    #4
    Catism said:

    Your Response

    Hi Paella!  Thanks for responding... that in itself is helpful.  I guess I've asked a tough question, maybe one I should pose to my hematology oncologists.  I did try to ask another question of one of them about the deficiencies but he was busy focusing on the lymphoma itself, which is understandable.  I have two new hematology oncologists so between the two of them, I hope to get some answers. 

    Thanks for the positive thoughts!

    Demand the answers you seek

    I'm sorry for I don't know the answer to your questions but sympathize with you.  I fear like many of us (if not all) that things will change or morph into a sea of unknown territory.

    Personally I feel these are questions for your hemotologist and I wouldn't leave until you get the answers you seek.  Fear and uncertainty feeds the monster so to speak, we need clarity and a sound mind to face each and every battle with vigor.

    Blessings, good luck and happy, healthy thoughts coming your way!

  • Catism
    Catism Member Posts: 92 Member
    #5
    OO7 said:

    Demand the answers you seek

    I'm sorry for I don't know the answer to your questions but sympathize with you.  I fear like many of us (if not all) that things will change or morph into a sea of unknown territory.

    Personally I feel these are questions for your hemotologist and I wouldn't leave until you get the answers you seek.  Fear and uncertainty feeds the monster so to speak, we need clarity and a sound mind to face each and every battle with vigor.

    Blessings, good luck and happy, healthy thoughts coming your way!

    Thanks for your response

    Thanks for responding, 007.  I think you're correct about asking my hemotologist.  It was an introductory appointment during which I tried to ask one of my hemotologists about the IgA and IgM, so hopefully with the next appointment I can get answers.  I realize they're focusing on attacking the lymphoma and I'm grateful for that but, it would be awesome if I could have the immunological therapy. 

    It's to my understanding the therapy would lessen the occurance of infections.  There's currently no known antibiotic I can take, due to allergies and severe adverse reactions.  I developed bad infections after the last three surgeries I've had, and am facing more surgery.

    Whatever answers I can get about the IgA and IgM, I'll post here so as to possibly help someone else who may have the same deficiencies (though I understand the IgA deficiency to be rare).

    Thanks so much for the blessings and wishes for good luck as well as happy, healthy thoughts.  I wish the same for you!

  • OO7
    OO7 Member Posts: 281
    edited May 2016 #6
    In the same boat....

    Any ideas,?

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