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Chemo #30 started

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

i had the 1st of 5 infusions  Of Topotecan today.  the rest will follow Tues-Friday.  Luckily the infusion is very short with only 1 premed.  Altogether it lasted only 1 hour.  It does effect the blood so I will get the Neulasta patch thing on Friday. 

My CA125 only increased by 4 points from 93-97.  I'll call that good news.

CTscan showed small growth on existing tumors, a return of one in my neck closed to my aorta, and nothing that would make my back hurt.

MRI showed a small stress factor on the left side of my spine near my tail bone.  My back hurts on the right side???.  My doctor is willing to admit that he has no clue what is causing the back pain.  And got me an appointment with an orthopedist next week.  He was happy that ther was no signs that the cancer had metastisized to my bone.  For now I need to change my attitude about pain meds.

Hugs and prayers to all of you,  Lou Ann

EZLiving66's picture
EZLiving66
Posts: 1436
Joined: Oct 2015

Except for being in pain, it sounds like you got some pretty good news.  Hopefully the orthopedist will have some idea why your back hurts and a way to fix it.

I hope your remaining infusions were easy like today and the Neulasta works for you!!

Love,

Eldri

Gardena
Posts: 102
Joined: Jan 2016

I haven't heard of your chemo medicine before - I hope it is smooth sailing for you this week.  Too, I hope the orthopedic doc will have answers for your back pain, and until then, your pain is somewhat abated w meds. 

ConnieSW
Posts: 1506
Joined: Jun 2012

Use them, Lou Ann.  It's a quality of life thing.

Red Corvette
Posts: 112
Joined: Jan 2016

Pain is bad, pain meds are good. Hope you feel better soon.

Red

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2803
Joined: Mar 2013

Lou Ann, you are an inspiration.  It is great to hear the bone is clear but sorry to hear about the fracture!  Please see what it available to help you with the pain.  Hugs  

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1688
Joined: Jun 2015

That is pretty darn good news Lou Ann! So happy there are no mets to your bones. I wonder how you got that fracture though? Maybe the stress from all the chemo? Regardless, I hope the orthopedist can help identify the cause and provide some relief. Sending lots of prayers and positive energy your way for this to be the  "the one" that kicks cancer to the curb for you. I hope the side effects are easier on you.

Love and Hugs,

Cindi

ncg007
Posts: 134
Joined: Nov 2015

Lou Ann...wishing you the best with this weeks treatments and hoping nothing too serious is found with this fracture and you are able to get some pain relief.

Nancy

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Glad to hear that these infusions are short after those marathon ones you were dealing with.  That has to be much easier to deal with.

I do hope the orthopedist can figure out what is going on with your back pain.  I can understand hating to take the pain meds, but at some point, they might be the best thing to do, albeit temporarily.  

Hope everything goes well for you the rest of the week.

Chris

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

I count this board as one of my many blessings.  We all need an outlet were people understand what we are going through, good and bad.  Only here can small gains or even stability be celebrated.  Hugs and prayers to all of you,  Lou Ann

today went well but fatigue is setting in.

molimoli
Posts: 514
Joined: Aug 2014

Lou Ann, I am very sorry you are having such a bumpy ride but I am grateful that you are sharing, how else would I have known the level of your strength? Stay strong, I am wishing hoping and praying that  for you and us all NED is around the bend.Please try a bit of pain meds. it buys more smiles than frowns.Nuff love, Moli admiring your quiet strength.

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

I am starting to use oxicodone.  And the Dr. Gave me a perscription for oxicontin that is supposed to be a time release formula of oxicodone.  Medicare did not approve it and the hospital is fighting it.  If they can't get approve they will give me a perscription for something else.  I am getting some relievewith the Oxicodone.  My Dr. Also said I need to take it when I need too.  Hugs and prayers, Lou Ann

EZLiving66's picture
EZLiving66
Posts: 1436
Joined: Oct 2015

What the h*ll is wrong with Medicare??  Maybe some of those bureaucrats would like to have that kind of pain....or THEIR loves ones?  Every paycheck, I pay 1.45% of my earnings and my employer (me because I own the company) also pays 1.45% into Medicare.  I vote to use my contribution to pay for a pain medication that works for cancer patients - especially Lou Ann, who, I believe, also pays a premium for that coverage!

(((Lou Ann))) gently hugging you so it doesn't hurt.

Love,

Eldri

Donswife48
Posts: 326
Joined: Nov 2015

I agree that Medicare and insurance in general need to start paying more attention to pain.  It is so debilitating to me, and so liberating when it lessens and I can get sleep, so then I feel better.  I am praying that the chemo continues to be tolerable (whatever that means anymore), and most of all that it keeps things at bay.  Hugs Nancy

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