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Another day another drug

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Goodbye Avastin, Hello Nivomalab. Good luck and may the force be with you. Take down Darth Tumour.

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Well that is very promising! Wishing you the best results, Stomps!

May the force be with you!

Hugs

Jojo

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

anything like me, you are going to be so happy not having to deal with all the crappy side effects from your previous treatments. Good luck!

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Wishing you the best!

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

And I'll be praying for you too.  Think positively....every day this side of the grass is a great day.....right? Smile

Donna~

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

about Darth Tumour any more. I'm just crossing my fingers for the side effects

nancybuck's picture
nancybuck
Posts: 117
Joined: Sep 2015

Wishing you much success with your new treatment.

 

Nancy

grafer
Posts: 20
Joined: Aug 2015

Don't worry Footstomper. Nivo is a walk in the park I have been on it fortnightly for nearly 10 months - the worst side effect I have developed is a small rash and one lousy mouth ulcer which only had the nerve to hang around for 4 days!   Enjoy!

Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 454
Joined: Jul 2014

Best of luck.  Nivomalab just rolls off the tongue so easily. 

Eliezer2
Posts: 85
Joined: Aug 2012

this past summer i did a regamin of opdivo with yervoy.  i had been on sutent for 4 years but it stopped working.  i was in VERY bad shape in summer, lost 15 kg, so weak could not sit up, lungs filled with diseased tissue, hemoglobin at 8, and frankly it looked terminal.  the mixed opdivo-yervoy regimen lasted 3 months, then continued just opdivo.  the opdivo itself has almost no side effects, altho yervoy had some, but not too bad.  bottom line, 6-8 months later, the effectiveness of the treatment has been so remarkable that my case is talk of the town where i am (israel).  lungs almost completely cleared, weight recovered, hemoglobin at 15, i climb hills and stairs.  one drawback - without the yervoy the opdivo does not work as well, but there are risks of doing the yervoy - there is some risk of stroke.  

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

Hey Footstomper.. stomping my foot in your behalf!

Hope this works even better and betterer~

Hugs, Jan

BDS's picture
BDS
Posts: 172
Joined: Aug 2012







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Footstomper, to reiterate what Fox and others have already posted – You are going to love being on at PD-1 drug.  Being on Keytruda, I have not suffered from any side effects at all. - BDS

saintmont
Posts: 63
Joined: Feb 2013

`Hi, I have being on it for nearly 3 months, you will really like it I feel like a "normal person"no side effects. First scans just done my onc rang me to say scan amazing every met shrunk and a few disappeared completely. Hope you find as good as I have.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

 and no more votrient, My hair color is returning. Too bad my hair has already left the building. No upset belly. No diarrhea. And I've gained about 6 pounds.

Hey man, don't bogart that nivo my friend. Pass it over to me....

marosa's picture
marosa
Posts: 333
Joined: Feb 2015

Here cheering for your new treatment success!!!

pamstayner's picture
pamstayner
Posts: 111
Joined: Apr 2014

Had my first infusion on Feb 18th. Was there 3 hrs... first hour and a half was a tour of the infusion center, shown where all the bathrooms were, the patient kitchen where free juice , water, soup crackers, microwave and fridge were, and the full information about Nivo and who, when, and where to call if side effects occur. The infusion is made up fresh in the oncology pharmacy , and fixed according to your at the moment weight. That only was 1 hr start to finish. I took a nap.

as to side effects, I had none, expect none, and am considering selling off my stash of Cottonell moist wipes... Have no need anymore... Woo hoo 

 

 

jason.2835
Posts: 337
Joined: Nov 2014

Young Footstomper... but you are not a NED-I yet... You must learn from Yodamulab... for 800 years trained NED-I has he...

- Jay

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

No side effects, no need for tthe moist towelettes. Still knackered all the time but that might be custom rather than symptom.

Of course I dont know how well its working on Darth Tumour, but the head of NIH has told my wife that if I need a second opinion he is available.

Which is nice.

I raise a glass of Cabernet Sauvignon and wish you all the luck and all the luv you wish me.

Bellweather
Posts: 100
Joined: Jun 2013

Lol!  Just checking in and 

Fox has me cracking up.  

APny's picture
APny
Posts: 1987
Joined: Mar 2014

 

Stupid question. If the side effects are so minimal with Nivo (opdivo) why don’t they start people on them to begin with? Why Votrient and/or Avastin first when the side effects are so horrible for most people?

 

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

for the administration of nivo is that it is to be used after failing a TKI. A tyrosine kinase inhibitor like sutent or votrient. Probably cost related.

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

Seems half the stuff out there is designed to kill us!!  Only the strong survive.  It's like they dangle the carrot, if u can survive that, THEN you can have this.  Never makes any sense to me.  I still say the cure for cancer is out there, but the big money comes from the "treatment"' not the cure.

My 2 cents.....

Donna~

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Thanks, Fox. I think you're right about the cost. It's a shame that's always the primary consideration.

sierra28
Posts: 70
Joined: May 2014

Good luck with your new treatment.  I am still waiting to  start  mine.  Hopefully this week.

Sierra

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

No side effects yet (touches wood) I hope its getting busy on Darth and the Mets

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Hoping this stuff gets real busy on Darth!!

:)

Hugs

Jojo

Allochka's picture
Allochka
Posts: 926
Joined: Nov 2014

It is sure using the Force against Darth, no doubt!

cheatinlil's picture
cheatinlil
Posts: 194
Joined: Jun 2014

Glad to hear it Footstomper.  :) Keep posting.

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