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A good news day!

daylady's picture
daylady
Posts: 122
Joined: Dec 2014

Greetings Ladies!  I have held off coming to the Board until after I got the results of my labs and scan yesterday.  Things had been going well, and my labs for trhe last three months have been coming out good, but forwhatever reason that period right before a CT scan seems to surface every fear and doubting cell in my being (maybe something to do with starting my third year of chemo?).  Anyway....I am happy to report that my CA 125 has dropped to 13 (YAY!!!) and my CT Scan came back great!  A nodule on my liver that had shrunk from 9 mm to 4 mm on my last scan is now gone completely, my lymph nodes are all within normal range/stable and there is nothing new or suspicious anywhere!!!  My oncologist and I are having a phone conference later today but during our last two visits, we have started to talk about backing very slowly away from every 3 week chemo to more of a maintenance routine.  Right now I don't know what that looks like, but it is a happier place than where I've been!  They also know that I have been working with a naturopathic oncologist and do not want me to stop ("Whatever you are doing....DON'T STOP!").  It was such a happy joyous way to start the new year so I just wanted to let you know....never, never, never give up hope!  Stage IV UPSC are just words and numbers. Stay positive and resolve to live each day.  You never know what tomorrow will bring, and it just might be good news!!  My thoughts and prayers and encouragement are with all of you for a wonderful 2016!  Fodly, Helen

Anonymous user (not verified)

How great is that!  Enjoy your latest and greatest news. Hugs Nancy

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

What wonderful news.  I am so happy for you.  It gives me hope.  Hugs and prayers, Lou Ann

Gardena
Posts: 102
Joined: Jan 2016

Beautiful news, Helen. Thank you for sharing~

ConnieSW
Posts: 1570
Joined: Jun 2012

but has improved as it went along.  Your fantastic news made me cheer, ALL RIGHT..  Good thing I'm alone right now!

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1795
Joined: Jun 2015

That is incredible news! So happy for you. And, it brings such good vibes to the rest of us.

Here's to a great 2016!

Love and Hugs,

Cindi

EZLiving66's picture
EZLiving66
Posts: 1478
Joined: Oct 2015

This news made me so happy, I cried!!  That is absolutely wonderful news!!!  (((Helen))) - let's do the happy dance!!!

Love,

Eldri

namedropper
Posts: 102
Joined: Dec 2014

That is great news. I am sooooo happy for you.

 

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Thank you so much for sharing this.  You are right, this is a great way to begin the new year!

Chris

Kaleena's picture
Kaleena
Posts: 2064
Joined: Nov 2009

Wonderful news Helen!

daylady's picture
daylady
Posts: 122
Joined: Dec 2014

Just a quick followup.  I did talk with my oncologist this morning and we decided to go for three more months on the 3 week cycle with Avastin and then if the next CT Scan also comes back good we will talk about going to a 6 week cycle and see what happens.  We both feel that backing away very slowly is going to be extremely important, and so does my naturopath.  It's OK by me a I'm having very few side effects with the Avastin and none with the supplements/mistletoe injections.  It's easy to stay with the program when it's working!  Thanks again for all your encouragement! - Helen

Double Whammy's picture
Double Whammy
Posts: 2835
Joined: Jun 2010

Thank you for sharing!  Here's to continued good news!!

Suzanne

Hopeful162's picture
Hopeful162
Posts: 82
Joined: Sep 2014

You really are beating the odds, if there is even any substance to them. Wonderful news after all this time, and I am so happy for you. Keep up the good work.

Cucu me
Posts: 214
Joined: Apr 2015

and you are giving me hope.

Yesterday I had Lab, CT scan and My cancer is back. I finished chemo on October 9 last year.

I'm starting new chemo on February 5.

daylady's picture
daylady
Posts: 122
Joined: Dec 2014

Believe me, I know how discouraging that is.  I highly recommend you get a copy of a book called Radical Remission by Kathleen Turner.  I read the book cover to cover at least a half dozen times in the last year and refer to it all the time.  The recommendations in the book are fabulous ways to help your own recovery.  I put many into practice.  Wishing you much strength and healing.  Hugs! - Helen

EZLiving66's picture
EZLiving66
Posts: 1478
Joined: Oct 2015

I just ordered the book and can't wait to read it!!  Thanks for the recommendation.

Love, 

Eldri

Red Corvette
Posts: 114
Joined: Jan 2016

Way to go! Another brave warrior battling this beast. Keep 'a goin'!

Red

molimoli
Posts: 514
Joined: Aug 2014

Absolutely wonderful news.May you both continue to enjoy your lives to the fullest with continued showers of blessings.Your news is certainly spirit lifting to all.  Nuff Nuff love , Moli

daylady's picture
daylady
Posts: 122
Joined: Dec 2014

Thanks so much Moli.  I have my six month appt. with my surgeon next Friday and I know she will be pleased.  I spoke with my oncologist yesterday and we both agreed not to change anything in my treatment plan for the time being and allow another scan cycle to run through.  What I am doing is causing no serious side effects at all, basically I feel fine.  A few aches and pains but nothing that keeps me from doing anything.  Right now I feel if I were to change anything it would be a little like taking the bullets out of your gun while a grizzley bear is still sleeping on my front porch.  I want to be convined it is bored and has left the area before changing anything.  So I'm hanging in but knowing the news is good news makes a lot easier.  Take good care of you, think of you often!!  Hugs, Helen

molimoli
Posts: 514
Joined: Aug 2014

Bullet stays in the gun my sister,as you'll stay in my prayers. Moli

Gardena
Posts: 102
Joined: Jan 2016

I'm sorry to hear your cancer is back. I think it is everyone's greatest fear. I'm currently going thru my initial treatment,  just had my 5th chemo infusion,  and wonder all the time if it's being eradicated, if it will retufn, if and when I'll he done w this beast.  I hope you are holding up well w this latest development. I'm sending love and light your way. 

SandyD's picture
SandyD
Posts: 130
Joined: Oct 2015

Gardena, I'm also in initial treatment. I've just had my 2nd treatment and that's exactly what I wonder about. With every pain I experience I wonder if it's a sign of recurrence in some part of my body and that rather than killing any remaining cancer cells some have found their way to other organs or systems. I was staged at 1A (carcinosarcoma and papillary serous) although there were some cancer cells present in the pelvic wash. I try to think about those stray cells being demolished by the chemo but it's hard not to worry about any stray cells surviving and traveling to parts of my body.

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