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Im back

brea588's picture
brea588
Posts: 240
Joined: Jul 2012

Hi everyone,  I am back once again to check on everyone and see how you are all doing.  Have missed being on here.  Finally got hubby straightened out, I hope.  THe carotid artery surgery has done well.  The other side is still 60 percent blocked, but they are watching and scan again in 2 months.  Now, its me again.  I started losing weight and no appetite, have lost 34 pounds.  done ct scans of adb, chest pelvic, neck and found 1 tumor in thyroid,  Had a ultrasound on neck and found 2 tumors.  One is 1.8 cm and looks cystic the other lays right beside it, is solid mass tumor and is 1.4cm.  Have had throat doc go down in my throat twice now and that does not feel very good at all.  He has decided to wait 5 months and scan again to see how much they have grown.  So genetic testing is being true and its getting scary.  My family doc does not want the wait and see due to my high risk of cancer, so dont know what to do at this point.  I ask throat doc if he had seen RCC in thyroid,, he said he didnt think so. If so not very often.  Imay go for a sceond opinion.  Just keep me in your thoughts and prayers.  Thanks.  Praying for you all.

Allochka's picture
Allochka
Posts: 929
Joined: Nov 2014

Hello,

I'm very sorry to hear about it. Unknown is the worst. Hope that these tumors are benign. If it is thyroid cancer - it is very-very treatable too. 

Getting a second (or even the third) opinion is the best thing, please let us know how it goes. Better to find out sooner and treat it.

Will keep fingers crossed for you, and glad your husband is doing good! Worrying about loved once often is worse than worrying about ourselves...

Alla

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Hi Brea,

I have been thinking about you and glad you posted. It sounds very promising about your husband - what a relief. But there is no breathing space for you, is there, dear girl? Does your growth bother you? Do you have thyroid problems in your family? Have you had a biopsy done of the tumor? If not, I suggest you push for one, rather than wait, given your history. And a second opinion wouldn't hurt either.

Your timing is unbelievable because I have been having some tests done as well. I have a goiter (such a lovely term, isn't it?) and the nodes grew so much they did a biopsy about 4 or 5 years ago. Well I had another ultrasound last week and the doctor called to say they are sending me for a biopsy because 3 nodes have grown so much. Not sure when that will take place yet (I am going to an endocrinologist for this....maybe that is the kind of doctor you should be seeing??). My thyroid is working normally, I believe - haven't heard about those blood tests yet- no weight loss or gain. I have also since noticed a hard lump under my jaw on the same side as my goiter....hoping that is just a swollen gland. And next week (Nov. 12) is my 6 month CT scan....hoping Uncle NED comes to visit!

Take care, Brea!!

Hugs

Jojo

 

APny's picture
APny
Posts: 1988
Joined: Mar 2014

Brea and Jojo, keeping you both in my thoughts and prayers. May Uncle NED drop in for a visit soon! Hugs to you both <3

Allochka's picture
Allochka
Posts: 929
Joined: Nov 2014

This uncle cares not only for kidneys, but also for thyroids. So I'm sure he'll drop by and both organs will be in his agenda :-)

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

Oh dear, JoJo~no wonder YOU've been on my mind of late. I sent you an email, did you get it?

I am praying for you=ENUFF!

Let us know how you are doing and what they are doing for you.

Hugs, Jan

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

BREA..glad you're back but ENUFF!!!!! Gosh the stress youve been under.

Hope you and your hubby get the best care and treatment.

I am sending you healing vibes and offering a compassionate shoulder to lean on.

DM me anytime, k?

Hugs, Jan

donna_lee's picture
donna_lee
Posts: 968
Joined: Feb 2009

My "regular" CT caught the thyroid gland in it's view.  So they put me/and the thyroid thru a series of exams over the following 3 months.  Because the CT dye uses a radioactive isotope, I had to wait 4-6 weeks for it to clear from my body.  Then, they did a Thyroid radioactive iodine uptake exam.  Yep-there were enlarged nodes.  Then an ultrasound-press,press, choke, choke.  And finally a biopsy of the largest 2 nodes.  But they were negative for any mets from thyroid cancer (as it usually doesn't go to the thyroid) and for any new cancer-thyroid.

If you really want answers, check with your onc. to find out why other tests have not been performed to rule out mets or a new cancer.  It sure was a load off my mind when the biopsy came back negative.

It can get better.

Good luck and hugs

Donna

brea588's picture
brea588
Posts: 240
Joined: Jul 2012

 Souunds a lot like me......  I ihave seen Onc 2 times and she continues to send me back to ENT.  I dont think that she is even thinking either lol.  Well I had ct of chest abd, and pelvis and neck .. thank God nothing showed in the other areas.  Ct only picked up on one of the masses the solid mass it didnt.  So just makes you think how much we rely on ct scan but also how much it can miss too.  Oh well thanks for the hugs, and I will pursue something on this issue.  Would just  like some peace and quiet from all this for a little while.  Thanks

brea588's picture
brea588
Posts: 240
Joined: Jul 2012

Thanks Jan for the hugs, I surely need them.  I am hoping the docs will get their mind made up what to do with me.  tired of the ruin around.  I had a lesion that show on ct in cervical 3 spine and it has not been addressed either.  I am thinking about going to the University of KY medical oncology and let them take over my care. I see them already in the breast center, I have a mass in breast that has only grown a little, my tissue is so dense, i ihave tumore markers in it.  But i think I ihave made my mind up to see my primary care doc and just get her to refer me there.  I still have a smile on my face, a hug ready for anyone who needs it, and love in my heart for all.  

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

My dear Brea, not sure how close you are to any MAYO center, but it may be worth it to get THEIR opinion on what to do. They work as a TEAM, consulting and exploring options beyond the regular path most of us go through.

Just sayin...

You are being thought of so fondly and with such care.. please know that we'll walk this journey along side you, k?

Hugs Jan

brea588's picture
brea588
Posts: 240
Joined: Jul 2012

Hope all turns out well for you.  We both come up with masses in neck LOL  imagine that.  I never did like to do anything alone  lol  j/k   yes my voice is getting hoarse, and my neck is swollen.  Im so confused.  Onc said she could feel the lymph nodes swollen on both sides of neck and throat doc said the nodes was not swollen.  Since i had very rare tumors in esophagus way back when  Onc is wanting all that checked again.  Last year EGD I had cell changes on the biopsies.  So I see GI doc next week on 11th and I think he will do colonoscopy and egd.  Im on blood thinner so will have to come off that on go on lovenox inj until all this is done.  The throat doc never mentioned biopsy of tumors, he just said lets wait and see what happens in 5 months, because i would hate to put you through some uncomfortable testing if you  dont need it.  I agree with that but,  i am high risk cancer and told him this.  So hubby is on me to go see family doc and have her send me to someone for 2nd opinion.  But praying for you that your test come out ok.

nancybuck's picture
nancybuck
Posts: 117
Joined: Sep 2015

Keeping you and all members in my thoughts and prayers.

 

Big hugs,

 

Nancy

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Youre a proper ray of sunshine on this site so you deserve it.

foroughsh's picture
foroughsh
Posts: 779
Joined: Oct 2014

Brea  and Jojo, you're both in my thoughts and prayers. Hope for the best to happen

marosa's picture
marosa
Posts: 333
Joined: Feb 2015

Brea and Jojo, sending both good vibes and keeping you in my prayers.  Everyday I become more and more aware of being all a piece of the same puzzle.  I might be turning philosophical but it feels true and I like the feeling.  Be well.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Brea and Jojo. You are two of my favorite people here. All my concern and energy are yours. Sometimes it just sucks. Hang in there. FLY.

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Awwww....thank you so much .... right back at you!

 

And thank you to everyone else here for your support!!

Hugs

Jojo

brea588's picture
brea588
Posts: 240
Joined: Jul 2012

Fox thank you so very much .  That was just so sweet. You make me feel special.  It's nice to feel that way every now and then. But as JoJo said. Right back at you  you are one if my favorites also hope all is going good with you .pray for you all time. It does just suck sometime with. All you have to endure but just have to do it. I love life  love you Fox

Bonngo's picture
Bonngo
Posts: 79
Joined: May 2012

Praying for both of you.

danbren2's picture
danbren2
Posts: 311
Joined: May 2013

Brea and JoJo,

   Wishing only good results for you both! It really is not good waiting for scans or results of any kind, scaniexty has become such a huge word in our lives! Sending love and prayers for you both, my time coming November 23 for brain MRI!

                                 Prayers for good health!

                                 Brenda

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