Delicate issue

Options
angelsnls
angelsnls Member Posts: 67
in Kidney Cancer #1

Hi this is a delicate matter, my delicate area is irritated and red (like nappy rash) I am wondering if my body fluids are irritating this area as I am on pazopanib and have been since September so nearly 14 months now. Has anyone else had this happen, what creams did you use, I have tried several nappy rash creams and also a cream from the gp which did help but could only be used for 7 days. Any suggestions gratefully received 

Love to you all

Angela x

Comments

  • Allochka
    Allochka Member Posts: 1,062 Member
    #2
    Options
    Sorry to hear about that! I

    Sorry to hear about that! I haven't been on any medication of that kind (it was my partner who had kidney cancer). But I had similar problems couple of years ago, due to having contact dermatitis (wrong toilet paper). I Visited several docs, most of them prescribed steroid creams which purposfully made the area dry to help. but it didn't work longterm. Finally the only thing that helped was the cream which had the opposite effect - made the area hydrated/damp. I don't know how if you have simlar cream in US. Here it is called Solcoseryl, it is used to treat burns, wounds in oral area... 

    Please do not try to use anything suggested without dicussion with your doc. But in my case it took several docs and out of the box solution which helped. Maybe a dermatologist could help?

    Good luck with your treatment

     

  • foxhd
    foxhd Member Posts: 3,181 Member
    #3
    Options
    Allochka said:

    Sorry to hear about that! I

    Sorry to hear about that! I haven't been on any medication of that kind (it was my partner who had kidney cancer). But I had similar problems couple of years ago, due to having contact dermatitis (wrong toilet paper). I Visited several docs, most of them prescribed steroid creams which purposfully made the area dry to help. but it didn't work longterm. Finally the only thing that helped was the cream which had the opposite effect - made the area hydrated/damp. I don't know how if you have simlar cream in US. Here it is called Solcoseryl, it is used to treat burns, wounds in oral area... 

    Please do not try to use anything suggested without dicussion with your doc. But in my case it took several docs and out of the box solution which helped. Maybe a dermatologist could help?

    Good luck with your treatment

     

    anti-fungal

    Ange you may be getting a "jock rash." Red, raised blotchy and itchey. Try an over the counter cream/spray. If that is what it is, it resolves pretty quickly. I think votrient makes some people susceptible.

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #4
    Options
    foxhd said:

    anti-fungal

    Ange you may be getting a "jock rash." Red, raised blotchy and itchey. Try an over the counter cream/spray. If that is what it is, it resolves pretty quickly. I think votrient makes some people susceptible.

    Yikes so sorry you are going

    Yikes so sorry you are going through this rashy stuff! Does it itch?

    I think Fox may be right and over the counter ointment with hydrocortizone helps.

    Also suggest not wearing underwear but something loose to air that area out.

    Still, I always want to know WHY it happens to prevent it! My gynie said its like

    jock itch but I still wanted to know what was causing it.

    Our diet can contribute AND probiotics helps keep the "good" bacteria working in our favor.

    Let me know, privately if you want, how you are doing. We have DM=direct messaging on this site.

    Hope you FEEL better soon!

    Jan

     

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #5
    Options
    Jan4you said:

    Yikes so sorry you are going

    Yikes so sorry you are going through this rashy stuff! Does it itch?

    I think Fox may be right and over the counter ointment with hydrocortizone helps.

    Also suggest not wearing underwear but something loose to air that area out.

    Still, I always want to know WHY it happens to prevent it! My gynie said its like

    jock itch but I still wanted to know what was causing it.

    Our diet can contribute AND probiotics helps keep the "good" bacteria working in our favor.

    Let me know, privately if you want, how you are doing. We have DM=direct messaging on this site.

    Hope you FEEL better soon!

    Jan

     

    Oh and check your PH levels,

    Oh and check your PH levels, and any external materials, perfumed items, detergents throwing off your PH levels.

    Yeast levels can also get out of control and spread more external eventually.

    Do a search..then an inventory on what you ingest, wear, and use that could irritate it. you'll see.

    MEDICATIONS can throw off your PH levels but my educated guess is that most docs wouldn't even know that much less tell you.

    Even though there may be creams that help, it doesn't get to the problem, right?

    Jan

  • angelsnls
    angelsnls Member Posts: 67
    #6
    Options
    Jan4you said:

    Oh and check your PH levels,

    Oh and check your PH levels, and any external materials, perfumed items, detergents throwing off your PH levels.

    Yeast levels can also get out of control and spread more external eventually.

    Do a search..then an inventory on what you ingest, wear, and use that could irritate it. you'll see.

    MEDICATIONS can throw off your PH levels but my educated guess is that most docs wouldn't even know that much less tell you.

    Even though there may be creams that help, it doesn't get to the problem, right?

    Jan

    Thank you Allochka, Fox and

    Thank you Allochka, Fox and Jan, I am in the UK so wil ask about that cream Alochka, Fox I laughed aloud at your reply my husband had to ask what I wss laughing about so thank you for the laughter, Jan thank you ibwill look into my ph levels and cream effects to see what helps or doesnt at the moment. Thanks again guys love to you all 

    Angela x

  • angelsnls
    angelsnls Member Posts: 67
    #7
    Options
    Jan4you said:

    Yikes so sorry you are going

    Yikes so sorry you are going through this rashy stuff! Does it itch?

    I think Fox may be right and over the counter ointment with hydrocortizone helps.

    Also suggest not wearing underwear but something loose to air that area out.

    Still, I always want to know WHY it happens to prevent it! My gynie said its like

    jock itch but I still wanted to know what was causing it.

    Our diet can contribute AND probiotics helps keep the "good" bacteria working in our favor.

    Let me know, privately if you want, how you are doing. We have DM=direct messaging on this site.

    Hope you FEEL better soon!

    Jan

     

    Jan I think that it is caused

    Jan I think that it is caused with the pazopanib being toxic because when I get hot flushes/sweats my cheeks (on face) feel irritated as well and slightly burning itchy feeling I have a good face cream for this but just cant seem to get one to work at the other end, hydrocortisone cream did work but I was told not to use it for longer than 7 days. 

    Thank you again Jan dont know how to dm

    Love angela x

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #8
    Options
    angelsnls said:

    Jan I think that it is caused

    Jan I think that it is caused with the pazopanib being toxic because when I get hot flushes/sweats my cheeks (on face) feel irritated as well and slightly burning itchy feeling I have a good face cream for this but just cant seem to get one to work at the other end, hydrocortisone cream did work but I was told not to use it for longer than 7 days. 

    Thank you again Jan dont know how to dm

    Love angela x

    Fox knows

    If you ever have a difficult question out there in left field, just ask Fox.

     

    Icemantoo

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #9
    Options
    icemantoo said:

    Fox knows

    If you ever have a difficult question out there in left field, just ask Fox.

     

    Icemantoo

    May I recommend

    Moist towelettes or baby wipes. I swear by them, and swear with pain without them.

  • mrou50
    mrou50 Member Posts: 389 Member
    #10
    Options
    Rash

    Angela I had the same problem but from the male perspective my ONC told me it was the Votrient, which is in the side effect list.  I used Desetin the stuff we give to baby's for diaper rash and it goes away, occasionally it returns so I just apply more.  Hang in there

     

    Mark

  • angelsnls
    angelsnls Member Posts: 67
    #11
    Options
    Footstomper said:

    May I recommend

    Moist towelettes or baby wipes. I swear by them, and swear with pain without them.

    Thank you Footstomper yes

    Thank you Footstomper yes baby wipes are great I use them to.

    Love to you angelax

  • angelsnls
    angelsnls Member Posts: 67
    #12
    Options
    mrou50 said:

    Rash

    Angela I had the same problem but from the male perspective my ONC told me it was the Votrient, which is in the side effect list.  I used Desetin the stuff we give to baby's for diaper rash and it goes away, occasionally it returns so I just apply more.  Hang in there

     

    Mark

    Thank you for your reply I

    Thank you for your reply I have just come back from gp who has given me some canestan hydrocortisone cream to be used for a month then a barrier cream to be used for another few weeks until everything is well again 

    Thank you all for your replies

    Hope everone is well lots of love angela xx

Discussion Boards