CSN Login
Members Online: 2

You are here

Joining the club

Freenc
Posts: 24
Joined: Oct 2015

I just got home from the doctor. I went in for a CT scan for some pain in my "left" side. The results came back to say that a 4.5cm mass was found in my "right" kidney. I have an apppointment with the surgeon tomorrow morning but of course I am scared out of my mind. The dreaded "C" word was a gut punch from out of no where. According to the report I do not have any swollen lymph nodes or any vascular involvment. From what I have read these are all great things...but I still so raw I am focused on the negative. 

A question to the group...if the surgeon says that I can have a partial removal is it still best to get a complete....you know for safety sake? I do not want this to reoccur in the future. 

I apologize for rambling here. I am just so very scared. 

 

Thanks...Tom

 

icemantoo's picture
icemantoo
Posts: 3180
Joined: Jan 2010

Tom,

 

It is like choseing between 2 ugly sisters as to which to take to the prom. When I had mine a lucky 13 years ago they were not yet doing partials. There are pros and cons to each and others will chime in as to their favorite. Be sure to discus this thoroughly with your surgeon. Preferably the surgeon also does partials so you have both choices. Having other kidney issues weighs in favor of a partial. A full neph obviously has less recurrance. Mine was about the size of yours.

 

 

Icemantoo

tkmj914's picture
tkmj914
Posts: 43
Joined: Jul 2015

Hi Tom,

I had a 5.2 cm mass and my surgeon said we should take the entire kidney so it didn't come back. I had my surgery on July 6th laproscopic with hand assist. It was rough for a few days but I am feeling good. Today was actually my first scan (chest x ray) and it came back clear. I was a basket case through all of this but like all these wise vets advised me it does get better. It's true, it does. Best wishes to you on an easy surgery and speedy healing. The people on here are so supportive and kind and really eased my fears.

Freenc
Posts: 24
Joined: Oct 2015

Thanks for the replies guys. Right now I am just a basket case and I just want this kidney out of me before this gets worse. I appreciate both of  your replies and well wishes. I am going to listen to the doctor but my inclinaton is to take the whole thing.

I will let you know what the doctor says.  I just hpe that the removing the cancer is a "cure". I am still so scared.

 

Tom

suzymcdo
Posts: 20
Joined: Sep 2015

My doctor laid out both options and all of the pros and cons associated with each. My tumour is a bit smaller but I opted for the partial as I am still young but have Crohn's disease and so take meds that can be hard on the kidneys. It all depends on what makes you most comfortable and what your doctor recommends. My surgery is this Thursday.

I was / still am very worried but I did feel better after seeing my uro-oncologist and understanding the path forward. Hopefully you too will feel a little better after tomorrow.

Jan4you's picture
Jan4you
Posts: 1308
Joined: Oct 2013

First of all, Tom, I am sorry for the shock of knowing you have the "C" word and need an operation. Your tumor is small enough to have a partial, if the position is safe to do one, which it sounds like it is. I wish I could've had a partial, mine was 4.2, but too near the blood supply. However, no one told me that having the whole kidney out (radical) would mean I could never take an anti-inflammatory again. I also didn't know that the meds (including the anti-inflammatory I took daily) would be affected.

So if you would ever need an anti-inflammatory like Advice or RX ones for injuries, knee or back problems for example, you cannot take them with only one kidney. So for that reason I would've asked if the surgeon could've done a partial on me.

I also had more difficulty with pain meds and coming out of general anesthesia. It all worked out and I feel okay with the decision.

We're here for you to walk this journey, if you want us to. Also we're here to support and answer any questions. WE know the shock and all, but actually it was my easiest operation. I did wear a lumbar wrap used for bad backs. It helped support the sore abdomen AND i put dry ice blocks inside next to the largest incision (not directly on the skin though). That helped keep the swelling down so I didn't need pain meds that long.

I'll keep you in my thoughts and prayers. Most likely they will get it all and you'll be just fine. Besides they will monitor you for awhile.

Trust me, there are worst things in life. Just don't rush this recovery as you do not want to get any internal injuries even though you feel like you can do more. You CANNOT exercise for 30 days, but you can walk.

Good luck! Sending you healing vibes and a HUG!!

Jan

 

Bonngo's picture
Bonngo
Posts: 79
Joined: May 2012

Tom,

I can tell you from my experience that in January, 2012 I had a 5 cm mass in my right kidney growing from the bottom.  Because of location doctor decided on a partial nephrectomy, however, it was done with open procedure (14 inch incision) so that a biopsy could be done of the 12th rib and for ease of getting tumor out completely.  I was told that it was a Stage I with a 5-10% chance of recurrance.  

Fast forward to April, 2015, I ended up with another open surgery to remove the remainder of the kidney because a 3 cm tumor was now there. Based on the premise that kidney tumors grow about a cm per year tells me it just started regrowing after the partial nephrectomy.  It had now grown into the lymph-vascular space and now a Stage III.  I have follow-ups every three months now.  Had testing done yesterday and will get results tomorrow.  I have seen my MRI report and it looks like there is two possible metastatses going on (one in the liver) based on what I read.

So I guess what I am saying is in hindsight I wish they had just taken the entire kideny out three years ago.  The choice was made partly due to my age (50 at the time) and the fact I had less than perfect kidney function.

You and your doctor will weigh out all of your options based on your current health and age.

I wish you well.

~Bonnie 

 

Freenc
Posts: 24
Joined: Oct 2015

Thank you so much everyone for sharing your knowledge and stories. This is one amazing group. Based on my own gut feel and stories like Bonnies I am inclined to go with a full.

I am 45 and in great health otherwise. I have two younger kids that need me and I feel like having the kidney completely gone will give me peace of mind for the future. 

I will let you all know what the surgeon says tomorrow. 

nancybuck's picture
nancybuck
Posts: 117
Joined: Sep 2015

So sorry to hear your news.I am relatively new to this group myself, so I am learning along the way. Sounds like you were given some great advise to take along with you to your doctor's visit tomorrow. Wishing you well and awaiting your decision as to what type of surgery you will be having.

 

Nancy

a_oaklee
Posts: 414
Joined: Nov 2013

Hi Tom.  I'm sorry that you are joining our club, but I am so glad that it was found early.  I certainly can understand the feelings of wanting it out of you, now, and completely.  I agree with the others that your surgeon should go over all of your options with you.  I'm pretty sure that the location of the tumor would be important as to whether a partial can be done.  if my husband had a choice he would have chosen a partial.  it is better to preserve as much functioning kidney as possible.  Who knows what the future holds?  I would not push for a complete nephrectomy if it's an option to have a partial.  I hope your appointment goes well tomorrow, and that you keep in touch with us here.

My husband had a complete nephrectomy due to the location of the tumor.  

Freenc
Posts: 24
Joined: Oct 2015

Well I did not sleep much last night. My mind was racing all night. How did I get this, did I do it to myself somehow, etc. My appointment is in 2.5 hours and it cannot come fast enough. I am going to listen to what the doctor says but after reading about recurrence with partials I just want the whole kidney out. 

From what I am reading a contained 4.5 mass is considered small and stage 1. For that I am grateful. The CT scan of my chest and abdomen did not to find anything else so again I am grateful.

The fear is the biggest thing now. I cannot eat or drink....I feel like anything could have caused this and I don't want to make it worse. 

Sorry again for the rambling on....I just feel like I can talk to everyone here and they will understand.

 

 

APny's picture
APny
Posts: 1903
Joined: Mar 2014

So sorry you have to be here. Every one of us was scared and in shock hearing the C word. You didn't do anything to deserve this. I went through the same self-analysis trying to see why I got this. I don't smoke, I've always been normal weight or under, I exercise, eat healthy, no family history, so how the hell did I get so lucky? As for partial vs. whole, I had a partial at Sloan Kettering and my surgeon/oncologist there recommended always preserving as much kidney as possible. It affects not just kidney function but other functions as well including cardiovascular health. As he explained it, unfortunately recurrence is possible whether you had a radical or a partial neph. Just because it's out doesn't mean it can't recur in the kidney bed. Chance of recurrence depends on stage and grade and a dose of luck. So I would definitely discuss this with your surgeon and then decide. Personally, I would want to preserve most of my kidney because at stage 1 the chance of recurrence is not high. No guarantees of course but I'll take the chance. 

Richgels1's picture
Richgels1
Posts: 26
Joined: Oct 2015

Hi, Good luck today hope it goes well. My comment would be that you didn't do anything to cause this to yourself. Most of it is genetics. So don't be down on yourself whatever you do. Scott

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

This is the worst thing about the disease. We've all been through it. Rest assured that the disease itself is nowhere near as bad as the fear makes it.

Freenc
Posts: 24
Joined: Oct 2015

The doctor said it is a stage 1 and in his words I am going to be cured. He is recommending a total nephrectomy which I am thankful for. The was no involvement with the viens or lymph nodes. He was very hopeful which is great. I just need.to find a way to deal with the anxiety while waiting for surgery.

icemantoo's picture
icemantoo
Posts: 3180
Joined: Jan 2010

Tom,

 

At 4.5 cm it was probably on the upper limits for a partial anyway. Those with larger tumors get to the head of the line and get their surgery faster. You do not want to take cuts in this line. Hopefully in the not to distant future it will just be a bump in the road in your journey thru life.

 

 

Icemantoo

Ree_Maryland's picture
Ree_Maryland
Posts: 157
Joined: May 2014

I also have stage 1b right kidney complete removal of kidney , the surgery was not that bad. I found out i had RCC on March 4th , had surgery April 21st . The anxiety was worse than the actual surgery ,but that has been a yr and a half ago , i feel pretty good ,but wish I could get off coffee cause I think it is not good for my one kidney. HOPE all goes well stay strong , before you know it the surgery will be here and gone. 

Ree_Maryland's picture
Ree_Maryland
Posts: 157
Joined: May 2014

I had a complete nph done in April 2014, I feel pretty good , had  a large tumor that covered my right kidney ,so the whole kidney was taken out. Wish i could of had a parital .but that was  not possiable because of the location of the tumor. 

foroughsh's picture
foroughsh
Posts: 771
Joined: Oct 2014

I think it's a technical subject which you surgeon should make final decision. The place of the tumore plays an important rule in this decision. In some cases they go to the room hopping to be able to to the partial but during the surgery they change their mind based on what they see. I read some papares comparing the reccurance rate between partial and radical which proved there isn't difference. It's important to have a surgeon who knows his job when the option is radical nephrectomy but it is much more important when they want to do  it partially as it's important to have negative margin. Usually other factors such as size,grade,sub type of tumor and stage  are main factors to predict the possibility of reccurance not how they operate it.Good luck. Forough

 

 

Freenc
Posts: 24
Joined: Oct 2015

I am home now. I feel somewhat better that the doctor was positive that I am going to be ok. If I could get these panick attacks to stop I would feel better.  Thanks to everyone for the words of encouragement and well wishes. 

I will keep everyone posted on how I am doing.

 

Tom

Freenc
Posts: 24
Joined: Oct 2015

Forough,

The doctor said due to the location of the mass that a radical was the only choice. I am ok with that. I think that I would feel better knowing there is nothing Ieft that can recur. 

Just need to figure out now how to live with one kidney....I am not sure what if anything do I do differently.

 

Tom

Freenc
Posts: 24
Joined: Oct 2015

Good luck with your surgery on Thursday. I am praying for you. 

foroughsh's picture
foroughsh
Posts: 771
Joined: Oct 2014

I'm happy that you feel good with this decision,my tumor was large so the only option was radical but I'm sure I would think like you if it was small. It might not be scientific but feelings are important,aren't they :) It depends on so many factors, how is  your other kidney working? If not very well, then you should meet a nephrologist, otherwise your surgeon or your oncologist can check you remained kidney's function by blood work. You should also meet nutritionist to ask about necessary changes to your life style. I omitted salt and reduced eating red meat to twice a month. And drink loads of water to help my loyal beautiful left kidney. Kidneys have the ability to grow larger and do the whole job on their own when they loose their partner.  So within months your kidney's function will be better. And if your kidney isn't working well it's best to also meet a cardiologist to check the affect on your heart. But don't worry if the remain kidney is working fine you can live like hundred years with it.Forough

 

tkmj914's picture
tkmj914
Posts: 43
Joined: Jul 2015

Yes, the panic/anxiety is the worst part but know you are one of the lucky ones with such a small mass. My doctor told me yesterday after a clean X-ray "I told you it wouldn't come back" that makes me happy but doesn't stop the fear. You are going to be fine and living with one kidney is no different if you already live a healthy lifestyle except we can't take NSAIDS. I ask my surgeon every time I see him if there are things I should/should not be doing and he laughs and says "still no" prayers your way for an easy surgery and a fast recovery.

Melanie

Freenc
Posts: 24
Joined: Oct 2015

My other kidney looks and is acting "factory fresh" according the doc so that is good news. I just want this nightmare behind me and want to go back mentally to where I was the other day. It is crazy how much this has consumed my every thought.

Melanie, I am so happy to hear that you had a clear xray.

 

Tom 

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

I had my radical neph done almost 5 years ago. My creatinine is always under 1. GFR is alwys over 60. And so am I. Those numbers are as good a s a twenty year old with 2 good kidneys. So, forgetaboutit. You'll be fine.

Freenc
Posts: 24
Joined: Oct 2015

When does the anxiety go away. I keep thinking that this is a bad dream that I will wake up from at any moment. When are you able to just start enjoying life again and forget about this. I am a worrier by nature and right now it feels like I will never be the same again. Ugh, I feel like a big emotional baby. 

I know that I am lucky what I have read , small mass caught early and the doc saying that after surgery I will be cured....but my mind just keeps keeps going to dark places. This just sucks and I feel for every one on this board. 

 

My surgery is scheduled for November 12th...it cannot come fast enough.

 

I will quit rambling now but God Bless everyone here for helping me so much.

 

Tom

 

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Will reduce as you get into the process of treatment and management. As always it is good to be doing something rather than just waiting and worrying. Will the anxiety go away? I honestly doubt it but it will diminish as the days go by. You will be able to cope. If you are stage 1or 2 then probably you will not think about it for weeks or months on end. You will be able to cope. I promise.

tkmj914's picture
tkmj914
Posts: 43
Joined: Jul 2015

Thanks Tom, my nephrectomy was July 6th, I was a nut case every minute of every day before the surgery. I had to take xanax. I already was diagnosed with " situation anxiety" at 29, 49 now. Anyway, if you are freaking out as I was it was torture, maybe ask your dr for something to get you through this time. I can tell you that the anxiety started going away as soon as surgery was done. It has progressively gotten better every day. The week before my X-ray I was calm, didn't think about anything but that it would all be ok And it was. I wish I could take away your fear because I know how bad it is, just know that what you are feeling now is a very temperary thing. You're gonna be fine. Vent your tail off on here, these people gave me so much positive feedback and made a very scary time a lot easier Best wishes. oh yeah, reading posts by Footstomper will make you laugh a bunch too! brilliant!

Melanie

Shecka1121
Posts: 114
Joined: Apr 2015

Tom,

You and I have the same prognosis where the doctors said I was going to be fine as well but I was overcome by so much anxiety.  I am five months out and I am here to tell you that it gets better with time.  I still have moments but I am doing much much better.  

You have to trust your doctor and they see several cases of RCC Stage 1. I also have done tons of research and all articles, studies, etc say the same.

 

Also, I JUST learned that my great aunt had her kidney removed when she was 18 due to an accident.  She lived a healthy long life.  She passed away at 94 years young.  No meds her entire life. I was so glad to hear this story.  I had a partial but for all those of you with a solo kidney, she had no problems at all.  She was a relatively big lady too.

 

All the best and all is going to be ok. 

Freenc
Posts: 24
Joined: Oct 2015

Please keep the good stories coming. They are helping. I just keep telling myself over and over again that once the kidney is gone so is the cancer. Also the stories here about benign tumors gives me hope too.

nancybuck's picture
nancybuck
Posts: 117
Joined: Sep 2015

The beauty of this little club is that we UNDERSTAND!  I find that I spend so much of my day thinking about "having cancer". (I am new to this too). My peace of mind comes when I sit down at night and check up on my friends here on our site.  Even with all the pain and suffering that many are encountering on a daily basis, their compassion for others is incredible. Ramble all you care to, you will not chase us away.

 

As usual, I will be keeping you all in my prayers and thoughts. Thank you all!

 

Nancy

Allochka's picture
Allochka
Posts: 846
Joined: Nov 2014

Fear and anxiety is completely understandable, but this is what we are here for!

I 've read the entire forum several times when my partner was diagnosed with Stage I, it gave me peace of mind. Do the same, read positive stories here. And perhaps some 10 years later yoy'll be coming here too to calm down newbies :-)

Your tumor is small, no spread, , surgery is set - soon you'll understand how lucky you are. Cancers differ. Stage I kidney cancer is not a worst case scenario. Good luck with your surgery!

Freenc
Posts: 24
Joined: Oct 2015

I am scheduled for surgery on November 12 for a 4 cm stage 1 with no spread or involvement with the blood vessels. I see others on here who are in worse straits than I am but I just cannot stop worrying. The doctor has quoted a 95 percent cure rate with my stats and in his words has not had a case of recurrence after a total neph in his 23 years of practice. So with good news like that why can I not stop crying and panicking. Every time I look at my kids aged 9 and 12 I just cry more. I am on Xanax now and that is not helping. 

Can I ask a favor to hear more positive stories from folks with similar stats? I think to hear those experiences would help. 

I just cannot stop panicking.....help.....please.

 

marosa's picture
marosa
Posts: 327
Joined: Feb 2015

Oh I know how you are feeling, believe me.  Take it from one more who has been there and is also a hypocondriac! By diagnosis came out of nowhere even thou I realize now I hadn't been feeling so well ( bit of back pain, bloated stomack, acid reflux).  Diagnosis was mid August last year and my partial was done on September 30.  Everyday waiting was terrible.  I walked around the city and looked at people going about their life and I felt like I was from another planet, removed, not here already...   When the day finally arrived I was feeling so relieved and ready, I even asked the doctors when they took me in the operating room if they had some jazz to hear while they were operating.  They saw my tan lines and figured I loved the beach and said:  Go to your favorite beach now...

I woke up with a smile some hours after!  Then came some difficult days but they were soon gone too and when I went back to the streets again for daily exercise, that feeling of not being in the world had gone!

You will get your life back I promise!  Trust your doctors, trust your body and yourself, read a book, try to meditate or go to a Yoga class if you can.  You will soon have your life back.  This is a scary chapter but you can do it!

icemantoo's picture
icemantoo
Posts: 3180
Joined: Jan 2010

Tom,

 

 

We all were scared and anxious at first. First the C word. That is what older people got. Than the diagnosis of Kidney Cancer. Whoever heard of Kidney Cancer before this. Wasn't that some rare diseae that other people got. Than to top it off they want to do major surgery and yank your kidney out. That is enough to make you and all the rest of us scared sh..less at first. Aren't these wonderful thought to share with others.

 

Concentrate on the fact that you are scheduled for a near 100% total cure. By Thanksgiving you should be ready for a big Turkey Dinner. And of course the football games and the Macy's parade featuring a bunch of famous characters as well as 5 high school bands including one where my grandson is one of the drummers.

 

 

Icemantoo

Freenc
Posts: 24
Joined: Oct 2015

Thanks for the stories and encouragement. Icemantoo I want to be like you.....13 years nef and going strong.

This has been a wake-up call to clean up my diet and get my act together.

Keep the great stories coming.

Two weeks from today and counting!

Allochka's picture
Allochka
Posts: 846
Joined: Nov 2014

When my partner was diagnosed, I was about 4 months pregnant. We came to the first urologist visit together. The doc saw hiw worried I was, and was a bit surprised that I worry SO much about Stage 1 kidney cancer :-) And he said "do not worry, with this diagnosis your kid will have a healthy dad for many-many years to come!"

So your kids will have you for many-many years too :-) you gonnabe alright after the surgery, recurrence chance is very low. It still exists, but bad outcomes exist with any disease. People still die from the flue and its complications sometimes. But that doesn't mean we should be scared every time we get a flue. Of cource, the word cancer is very scary. But cancers are different, not all are deadly When caught in time.

medic1971's picture
medic1971
Posts: 189
Joined: Sep 2015

Once pathology confirms this is cancer you will be sent a secret decoder ring and we will teach you the secret handshake...

Seriously, I was in your exact position back in July and as of today I am 6 days post from a robotic partial nephrectomy.  I'm 43 and have two daughters and I am in good health.  I like you got on Xanax shortly after diagnosis.

 

Here's a couple of things to keep in mind:

1. Unless you are being treated at a major cancer treatment center, please consider a second opinion, if possible.  I know you want it out ASAP but kidney cancer is extremely slow growing. I waited 3 months after my first CT scan before i had surgery. In fact i had another CT scan a few days before surgery and there were absolutely no changes in 3 months. Also find out how many times your doctor has preformed this procedure for kidney cancer. 

2. I've got two friends that only have one kidney. One lost his to cancer and the other donated it to his sister. They both live normal lives with the the exception that they have to drink a bit more water than they did before. 

3. There's a small chance this may not be cancer. There are several benign masses that look like renal cell carcinoma on CT, but until you get a path report back you won't know for sure. 

4. Live your life in the moment and try not to fixate on "what ifs".  For me this has been the hardest, but I'm working on it...  Even if you live to be 500 years old you will never get this time back with your family. Don't let cancer rob you of that.

 5. That pain on your left side may have saved your life.  I think someone is looking out for you...   

 

Hang in there man!

Jason

Freenc
Posts: 24
Joined: Oct 2015

Allochka and Jason,

I really appreciate the comments. This whole thing has scared me sh**less.....like literally. I have gone since I got the news. Of course I have not eaten either so I am sure that has a lot to do with it.

The doctor I am seeing says that he has performed this surgery for 23 years so I feel confident he knows what he is doing. I am just ready to get this cancer out of me so I can start having NED stop by. 

I had a good diet before and exercised but this is a wake up for sure. I vow to do better, love more and worry less. Lastly as Jason said sometimes they are benign and I am praying for that for myself and everyone on here.

 

11 days and counting.

medic1971's picture
medic1971
Posts: 189
Joined: Sep 2015

What type of surgery are you going to have (open or robot assist)?

icemantoo's picture
icemantoo
Posts: 3180
Joined: Jan 2010

While not a surgeon, I believe the 2 procedure tyes are open and laproscopic. Either or both may be done with a robot assistant. Any surgeons out there can correct me if I am wrong.

 

 

Icemantoo

Freenc
Posts: 24
Joined: Oct 2015

My procedure will be a radical via laparoscopic. 

 

I am still having panic attacks which suck so bad. I keep thinking that what happens if it comes back. I guess that is normal but how do you move on with your life. I feel paralysed.

 

Tom

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

I complained to the nurses in hospital that its totally unfair. Hypochondriacs should be excused cancer: the two work together far too well. The nurse asks if youre suffering from a particular symptom and you can only reply "Well, I have now. THANK YOU VERY MUCH!"

Can I point out that it cant come back. Because it hasnt gone yet. Try to worry about today, not the future. It really is enough.

brea588's picture
brea588
Posts: 240
Joined: Jul 2012

When I was first diagnosed with a smaller tumor than yours, of course I was worried and didnt talk to anyone other than my husband about it for a day or so.  Not even my minister.  I had to have my time to come to terms or peace with this.  As a registered nurse, and seen a lot of cancer is my career, I never questioned why me?  I seen so much I lot of times thought , when it is my turn.  Then through my faith In Jesus I learned to lean closer to Him for my comfort.  When days were worse than others I talked to Jesus, my family just anyone to comfort me.  The surgery went fine with robot laparoscopic.  Normal healing time.  Was sore in ribs for quite some time and still tender in that area. I had the kidney sparing  surgery due to I wanted to keep my kidney function if at all possible. I was blessed and that is what happened.  As for your panic attacks, if you are a child of God, turn to him and ask him to help you through these tough days.  Pray about it.  Lean closer to Jesus.  Hope all goes well and I will be praying for you beginning today.  Hugs and warm wishes.

Bonngo's picture
Bonngo
Posts: 79
Joined: May 2012

Tom,

Your decision along with your doctor to do a complete nephrectomy is a wise one.  I was in your position at age 49 four years this December.  It's a tough decision but stay strong and know you are not in this alone.

I'll be right behind you as my next surgeries are scheduled for November 30th.  

Use this time to spend quality time with your family and continue to do the things you love.  Believe it or not, you can find ways that this current challenge will have some positive impact on your life.  For me, it has been being more grateful for the small everyday things and showing others that my faith sustains me, not my own strength.  

I will be praying for your and your family.

~Bonnie

Skagway Jack's picture
Skagway Jack
Posts: 221
Joined: Oct 2013

Tom,    My tumor was 7x5...so in your ball park.  They took the whole kidney(leaving a nine inch gash) , and no second thoughts from me on that.  Bottom line is you will do fine, but it will take a little while to be back to normal.   There are lots of good folks here to bounce your fears off of, but it really boils down to just taking a deep breath trusting in your professionals and putting your healing first and foremost.  The worst part is the waiting.  I waited for a month from the time mine was discovered until surgery.  Healing is incremental,  I was back at work in a month and full speed ahead about 3 months later.  Honestly though I didnt feel 100 percent for nearly a year.  Hang in there.  We are here for you.

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Hi Tom,

What you are going through is initially very scary. Many thoughts and worries. I had a 13 cm tumor and after lots of mumble jumble, it was 2 months later by the time my kidney was removed. I know exactlly how hard the wait is!   But believe me, the surgery is not so bad at all. So use the time before the surgery to be at your best emotionally and in health. Take some deep breaths, and let that anxiety go (easier said than done, I know). We are here to support you through this.

November 12th is a lucky day for you and for me! I have my CT scan and NED report that day! (BTW you may as well learn what NED means - No Evidence of Disease). We have nicknamed it Uncle NED. I am sure Uncle NED will pay you lots of visits!

Hugs

Jojo

APny's picture
APny
Posts: 1903
Joined: Mar 2014

Jojo is right. The surgery isn't really that bad. My anticipation and fears made it much worse than the reality. Not a walk in the park but not horrible either. Soon it'll be behind you and at Stage 1 you can expect visits from Uncle NED. Wishing you the best on the 12th and you too, Jojo!

Freenc
Posts: 24
Joined: Oct 2015

I know how lucky I am that this was found early but I am still terrified. I know that statistics say that at a stage 1a N0M0  with a radical that there is only a 5 percent chance of recurrence but I am terrified. I cannot get this bad feelings out of my head. 

I am broken at this point, I am no longer me. My son just called to say hi and I cried like a baby. 

I need so much help, I thought that I was stronger than this.

I don't want to feel this way any longer.

 

Tom

 

icemantoo's picture
icemantoo
Posts: 3180
Joined: Jan 2010

Tom,

 

You got diagnosed with a not so fun disease where a not so fun surgery gives you a 95% cure for life. The alternative is to let the buggar grow until you get a check out date. This surgery is a no brainer. Mine was just after my 59th birthday and I went water skiing 11 months later. While there is no way to sugar coat a neph, it sure beats the alternative. If you type my name (icemantoo)  under one of the 2 searches under Kidney Cancer at the top of ths post you will see some of the encouraging things I have written to club members over the years.

 

Icemantoo

Pages

Subscribe to Comments for "Joining the club"