CSN Login
Members Online: 2

You are here

Still NED after 4 years

txtrisha55's picture
txtrisha55
Posts: 684
Joined: Apr 2011

Just went to by gyn onc for 6 month checkup.  I was DX on 1 April 2011 with MMMT from a D&C surgery for post menopausal bleeding.  Had surgery 8 Apr 2011 had 6 rounds of Carbo/Taxol every 21 days with last chemo 22 Aug 2011.  So I am now 4 years NED.  I asked if I could now go to yearly checkups and she said no because it was stage 3 C 1 and had spread to 1 lymph node.  Oh well, I will take 6 month visits. 

 

I have one more year to go to reach 5 years and when that gets here I am planning on getting a tattoo even though I am scared of needles.

 

This month I pulled out my Peach Cancer bracelet and I wear it ever day just to support the other female cancers.  It is not that I do not support the pink cancer it is just so in your face the month of October. 

 

 

Oh well, praying for all on this site and for all the women going through this journey.  trish

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2593
Joined: Mar 2013

YEAH! YEAH! YEAH! YEAH!  Trish!  I so celebrate you!!!

StrongerthanIthought's picture
StrongerthanIthought
Posts: 55
Joined: Feb 2014

Thanks for sharing this wonderful news!  I love reading these posts. Congratulations!

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

This is such wonderful news!  I love hearing this, especially since I have MMMT, Stage 3C2.  It can be done and you are doing it!

And with no radiation?  That is awesome.  

Chris

sunflash's picture
sunflash
Posts: 197
Joined: Aug 2011

BIG congrats to you, txtrisha! Keep on this great path!! I know you're feeling a great sense of relief!

Hugs!

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

What Great news

AWK
Posts: 364
Joined: Mar 2013

Congratulations and thanks for inspiring us!  You keep us moving forward and remind us that we can do this.  I am so grateful that longer term folks like you check back in and keep us posted.  It helps so much!  Hugs and prayers and gratitude going your way!  Anne

Double Whammy's picture
Double Whammy
Posts: 2827
Joined: Jun 2010

So happy for you.  

Suzanne

HellieC's picture
HellieC
Posts: 524
Joined: Nov 2010

Congratulations!  That's the news we all love to read.  Long may you dance with NED.

Kindest wishes
Helen

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1554
Joined: Jun 2015

So happy for you! (And for all of us!)

Thanks for sharing your great news. It keeps us all inspired to keep on keeping on!

ConnieSW's picture
ConnieSW
Posts: 1456
Joined: Jun 2012

I'm looking forward to the day I go to 6 months.  To think I once dreaded going yearly! 

Cucu me
Posts: 214
Joined: Apr 2015

Wish you great health and happiness!

Do you have any advice to us?

Thanks

txtrisha55's picture
txtrisha55
Posts: 684
Joined: Apr 2011

I wish I could say that I eat healthy, exercise, read all the anti cancer books and do everything that all the women on this site have done to help themselves but I cannot do that.  I am not doing anything different than before I was DX, had surgery and went through chemo.  I still eat what I want, I do little exercise, so still overweight.  I have read several of the books but do not practice what they say to do.  I work everyday, sleep at least 6 hours a night, volunteer for my grandson's school, take care of him, runaround on weekends doing everything that I cannot get done during the week.  Sunday try to rest but usually running around with family.  It is a hectic lifestyle but it works for me and my family.  I did talk to my gyn onc dr during the chemo because I found this site and asked her if I should change my whole life style so that the cancer would not come back.  She said, if you want to change for yourslef and do all those things then go ahead and do it, but if it makes you miserable to make those changes then do not make the changes. That is not going to guarantee that the cancer will not come back.  There are no guarantees on that.  So I did not make all the changes.  So in my humble advise is do what you think is best for yourself and have a postitive attitude, as I try every day to be postiive about my life and do things that I enjoy to do and be around the people that mean the most to me.  I just live everyday the best way I can for me.  So I do not have any great advice for people in the cancer journey except to be postiive and live your life to the fullest as there are no guarantees and life is not fair but it is wonderfull if you make it that way.  Praying for all. trish

cheerful
Posts: 245
Joined: Apr 2011

Hi Trish:

  I wanted to wish you congratulations on reaching your 4 year mark. You have to feel great - I wish you the best.

  I go in another week to see my oncologist I already have reached the 4 1/2 year mark and only have 4 more months to go before I reach my 5 year mark. In case of the newbies looking at my post, I was diagnosed in Feb of 2011 with UPSC (uterine papillary serous carcinoma) Stage 1 so I will keep my fingers crossed that all will continue well for me.  

  I have made some big changes with my eating habits (I changed for the better and made some changes with eating much healthier and better) after I was diagnosed with the help of my son, and I also have lost a good bit of weight (30 lbs) so I have dropped down an entire dress size which is remarkable. Diet and exercise are the key and I take a 15 minute walk every day around my development which consistes of 90 homes in my area.  I feel so much better now each day and have a lot more energy than I used to.

  Whatever works for you, by all means continue to do so.  

Cheerful

a/k/a Jane

 

 

 

 

 

Virgil90012's picture
Virgil90012
Posts: 34
Joined: Feb 2015

Congratulations on your NED status.  i wish that status for all.  I wanted to ditto everything you stated about changing lifestyle after diagnosis.  i asked my doctor the same thing and he said something similar to your doctor.  I liked what you said about all of us have to do what we feel best for us.

 

molimoli
Posts: 514
Joined: Aug 2014

Life becomes cancer or vice versa after diagnosis, shouldn't be mustn't be, you got it girl. live your life your way.

caedmon22's picture
caedmon22
Posts: 22
Joined: Apr 2015

that is excellent news Laughing! so happy for you! also, thanks, trish, for your post regarding your approach to how you live your life. lots of wisdom there and i am inspired and encouraged by what you said. big hugs of happiness to you! --caedmon

Abbycat2's picture
Abbycat2
Posts: 644
Joined: Feb 2014

Let's face it, long term survival is a "crap shoot". What cancer has taught me is that two women with the same aggressive uterine cancer and the same stage-DO NOT HAVE the same disease. My gyn onc told me early on- almost two years ago- that some women with aggressive uterine cancer (grade 3) die quickly from an early stage cancer, that is, stage 1 or 2. Yet, some late stage women live a long time, some 6 to 8 years out from surgery with or without recurrance. I keep asking myself what is that about? I suspect that it has everything to do with the extent of genetic cancer mutations a woman has been born with than anything else. I further believe, and perhaps Trish will substantiate, that all the exercise and diet changes will do NADA for any cancer patient with multiple genetic mutations. I doubt if all that effort will matter. When I apply my suspicions to my own life, I am confronted with the fact that I have been a very thin and powerful athlete most of my life - a person who has done EVERYTHING right in terms of exercise, diet and medical care. I enjoyed, another words, vibrant health. And guess what? I developed advanced metastatic aggressive cancer anyway. Well, da€n, WHY?  Well, because science and research are not advanced enough in 2015 to tell me the why. Nor can the medical establishment assure me of appropriate and meaningful treatment to cure me of this disease. Right now I am experiencing "disease free survival". Well, I am painfully aware that that may last 3 months or 30 years. It will be what it will be. In the meantime, I plan to live, live, live!!

The best to each of you,

Cathy

caedmon22's picture
caedmon22
Posts: 22
Joined: Apr 2015

cathy i so resonate with what you say re diet, exercise, etc. i too was athletic for most of my adult life. kept myself moving. very fit and trim. cross-trained w/swimming, weights, running, hiking, classes etc. fed my body good stuff. if there was a choice between stairs or an elevator? i took stairs. even if it meant carrying my bike -- which i rode 6 miles round trip most days to work. and then i'd do a weights or swim workout on my lunch hour. i wasn't perfect. but i was way more fit than most people i knew and loved moving my body. and i had also worked rigorously to shift my haibtual thought patterns over the years -- needed to. went from catastrophic thinking in my twenties and thirties gradually to almost pathologically optimistist in my forties and fifties and into my sixties ;). phyiscally i had ZERO indicators for endoca except a touch of hbp which wasn't even that high. blam. clear cell. and in the aftermath of treatment i'm now dealing with a plethora of emotions i never expected. it has rocked my world at the very foundation. physically i feel great. getting back on the trails and taking long hikes etc. for me it's the emotional journey that's hard right now. just want to let you know you inspired me today. thanks.

Pat51
Posts: 130
Joined: Feb 2011

Congrats...great news!!!  I hope that you are doing something special to celebrate!!

Kaleena's picture
Kaleena
Posts: 1976
Joined: Nov 2009

Yea Trish!

That's great news to hear!

Hugs

 

Kathy

EZLiving66's picture
EZLiving66
Posts: 1358
Joined: Oct 2015

Thanks for putting this on here, Trish!  I start chemo on Tuesday and it's so encouraging to see a positive light at the end of the tunnel.  I talked to my doctor and he said the same thing - if you change for yourself, good for you.  But if you think change will determine your outcome, it most likely won't.  I have a wonderful life and this "setback" is not going to change that.  I'm looking forward to further reports from you.

Eldri

apoohneicie's picture
apoohneicie
Posts: 6
Joined: Oct 2014

I am happy you are doing well! Big hugs for another survivor!

ConnieSW's picture
ConnieSW
Posts: 1456
Joined: Jun 2012

I just read your About Me page and it's amazing.  Look quick and you will see me giving you and your team  a standing ovation.  Just WOW!

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1554
Joined: Jun 2015

I just read it too! What a success story!  Apoohneicie, thanks for taking the time to document your journey on your About Me page.

Simply AMAZING.

ConnieSW's picture
ConnieSW
Posts: 1456
Joined: Jun 2012

I would love it if ladies would take some time and put the basics on their pages.  Sometimes I need to refresh my memory ( it was once soooo good) about someone's particulars.

Cucu me
Posts: 214
Joined: Apr 2015

great idea Connie.

We all should do this"about me " page

molimoli
Posts: 514
Joined: Aug 2014

You are our pink haired  little ball of hope  and I am hugging. May your blessings be continuous and plenty,plenty to share with your darling husband. Thumbs up to good men.I am sending 2 hugs only one is yours, you'll know what to do with the other.

Nuff love,Moli

txtrisha55's picture
txtrisha55
Posts: 684
Joined: Apr 2011

Just went over to read your story and it is amazing.  Going through so much, so young and coming out with a great attitude.  You are a true inspiration.  Continue on. trish

Annabella Rose's picture
Annabella Rose
Posts: 59
Joined: Jan 2015

Trish, I am so Happy to hear your good news! God Bless you with a lifetime of neds!

txtrisha55's picture
txtrisha55
Posts: 684
Joined: Apr 2011

Thanks to everyone providing good vibes and feedback to my post.  I appreciate all the good and kind words of encouragement.  This is a battle we all fight together and it helps having a place like this board to come to for sisterhood of hope, love and hugs.  Best to all. trish

SandyD's picture
SandyD
Posts: 130
Joined: Oct 2015

Trish,

It's inspiring to read your news! As I embark on this journey you give me hope that I can get there too! Thank you!

Subscribe to Comments for "Still NED after 4 years"