Still NED after 4 years
Just went to by gyn onc for 6 month checkup. I was DX on 1 April 2011 with MMMT from a D&C surgery for post menopausal bleeding. Had surgery 8 Apr 2011 had 6 rounds of Carbo/Taxol every 21 days with last chemo 22 Aug 2011. So I am now 4 years NED. I asked if I could now go to yearly checkups and she said no because it was stage 3 C 1 and had spread to 1 lymph node. Oh well, I will take 6 month visits.
I have one more year to go to reach 5 years and when that gets here I am planning on getting a tattoo even though I am scared of needles.
This month I pulled out my Peach Cancer bracelet and I wear it ever day just to support the other female cancers. It is not that I do not support the pink cancer it is just so in your face the month of October.
Oh well, praying for all on this site and for all the women going through this journey. trish
Comments
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YEAH! YEAH! YEAH! YEAH!
YEAH! YEAH! YEAH! YEAH! Trish! I so celebrate you!!!
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Hurray!
Thanks for sharing this wonderful news! I love reading these posts. Congratulations!
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Trish - you are amazing!
Congratulations and thanks for inspiring us! You keep us moving forward and remind us that we can do this. I am so grateful that longer term folks like you check back in and keep us posted. It helps so much! Hugs and prayers and gratitude going your way! Anne
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Congratulations!AWK said:Trish - you are amazing!
Congratulations and thanks for inspiring us! You keep us moving forward and remind us that we can do this. I am so grateful that longer term folks like you check back in and keep us posted. It helps so much! Hugs and prayers and gratitude going your way! Anne
So happy for you.
Suzanne
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Woo Hoo!HellieC said:Congratulations!
Congratulations! That's the news we all love to read. Long may you dance with NED.
Kindest wishes
HelenSo happy for you! (And for all of us!)
Thanks for sharing your great news. It keeps us all inspired to keep on keeping on!
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CongratsTeddyandBears_Mom said:Woo Hoo!
So happy for you! (And for all of us!)
Thanks for sharing your great news. It keeps us all inspired to keep on keeping on!
I'm looking forward to the day I go to 6 months. To think I once dreaded going yearly!
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I wish I could say that I eatCucu me said:So glad for you,
Wish you great health and happiness!
Do you have any advice to us?
Thanks
I wish I could say that I eat healthy, exercise, read all the anti cancer books and do everything that all the women on this site have done to help themselves but I cannot do that. I am not doing anything different than before I was DX, had surgery and went through chemo. I still eat what I want, I do little exercise, so still overweight. I have read several of the books but do not practice what they say to do. I work everyday, sleep at least 6 hours a night, volunteer for my grandson's school, take care of him, runaround on weekends doing everything that I cannot get done during the week. Sunday try to rest but usually running around with family. It is a hectic lifestyle but it works for me and my family. I did talk to my gyn onc dr during the chemo because I found this site and asked her if I should change my whole life style so that the cancer would not come back. She said, if you want to change for yourslef and do all those things then go ahead and do it, but if it makes you miserable to make those changes then do not make the changes. That is not going to guarantee that the cancer will not come back. There are no guarantees on that. So I did not make all the changes. So in my humble advise is do what you think is best for yourself and have a postitive attitude, as I try every day to be postiive about my life and do things that I enjoy to do and be around the people that mean the most to me. I just live everyday the best way I can for me. So I do not have any great advice for people in the cancer journey except to be postiive and live your life to the fullest as there are no guarantees and life is not fair but it is wonderfull if you make it that way. Praying for all. trish
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txtrisha55 said:
I wish I could say that I eat
I wish I could say that I eat healthy, exercise, read all the anti cancer books and do everything that all the women on this site have done to help themselves but I cannot do that. I am not doing anything different than before I was DX, had surgery and went through chemo. I still eat what I want, I do little exercise, so still overweight. I have read several of the books but do not practice what they say to do. I work everyday, sleep at least 6 hours a night, volunteer for my grandson's school, take care of him, runaround on weekends doing everything that I cannot get done during the week. Sunday try to rest but usually running around with family. It is a hectic lifestyle but it works for me and my family. I did talk to my gyn onc dr during the chemo because I found this site and asked her if I should change my whole life style so that the cancer would not come back. She said, if you want to change for yourslef and do all those things then go ahead and do it, but if it makes you miserable to make those changes then do not make the changes. That is not going to guarantee that the cancer will not come back. There are no guarantees on that. So I did not make all the changes. So in my humble advise is do what you think is best for yourself and have a postitive attitude, as I try every day to be postiive about my life and do things that I enjoy to do and be around the people that mean the most to me. I just live everyday the best way I can for me. So I do not have any great advice for people in the cancer journey except to be postiive and live your life to the fullest as there are no guarantees and life is not fair but it is wonderfull if you make it that way. Praying for all. trish
Hi Trish:
I wanted to wish you congratulations on reaching your 4 year mark. You have to feel great - I wish you the best.
I go in another week to see my oncologist I already have reached the 4 1/2 year mark and only have 4 more months to go before I reach my 5 year mark. In case of the newbies looking at my post, I was diagnosed in Feb of 2011 with UPSC (uterine papillary serous carcinoma) Stage 1 so I will keep my fingers crossed that all will continue well for me.
I have made some big changes with my eating habits (I changed for the better and made some changes with eating much healthier and better) after I was diagnosed with the help of my son, and I also have lost a good bit of weight (30 lbs) so I have dropped down an entire dress size which is remarkable. Diet and exercise are the key and I take a 15 minute walk every day around my development which consistes of 90 homes in my area. I feel so much better now each day and have a lot more energy than I used to.
Whatever works for you, by all means continue to do so.
Cheerful
a/k/a Jane
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Congratulations on NEDtxtrisha55 said:I wish I could say that I eat
I wish I could say that I eat healthy, exercise, read all the anti cancer books and do everything that all the women on this site have done to help themselves but I cannot do that. I am not doing anything different than before I was DX, had surgery and went through chemo. I still eat what I want, I do little exercise, so still overweight. I have read several of the books but do not practice what they say to do. I work everyday, sleep at least 6 hours a night, volunteer for my grandson's school, take care of him, runaround on weekends doing everything that I cannot get done during the week. Sunday try to rest but usually running around with family. It is a hectic lifestyle but it works for me and my family. I did talk to my gyn onc dr during the chemo because I found this site and asked her if I should change my whole life style so that the cancer would not come back. She said, if you want to change for yourslef and do all those things then go ahead and do it, but if it makes you miserable to make those changes then do not make the changes. That is not going to guarantee that the cancer will not come back. There are no guarantees on that. So I did not make all the changes. So in my humble advise is do what you think is best for yourself and have a postitive attitude, as I try every day to be postiive about my life and do things that I enjoy to do and be around the people that mean the most to me. I just live everyday the best way I can for me. So I do not have any great advice for people in the cancer journey except to be postiive and live your life to the fullest as there are no guarantees and life is not fair but it is wonderfull if you make it that way. Praying for all. trish
Congratulations on your NED status. i wish that status for all. I wanted to ditto everything you stated about changing lifestyle after diagnosis. i asked my doctor the same thing and he said something similar to your doctor. I liked what you said about all of us have to do what we feel best for us.
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Trish, congratulations!caedmon22 said:woohoo!!!!
that is excellent news
! so happy for you! also, thanks, trish, for your post regarding your approach to how you live your life. lots of wisdom there and i am inspired and encouraged by what you said. big hugs of happiness to you! --caedmonLet's face it, long term survival is a "crap shoot". What cancer has taught me is that two women with the same aggressive uterine cancer and the same stage-DO NOT HAVE the same disease. My gyn onc told me early on- almost two years ago- that some women with aggressive uterine cancer (grade 3) die quickly from an early stage cancer, that is, stage 1 or 2. Yet, some late stage women live a long time, some 6 to 8 years out from surgery with or without recurrance. I keep asking myself what is that about? I suspect that it has everything to do with the extent of genetic cancer mutations a woman has been born with than anything else. I further believe, and perhaps Trish will substantiate, that all the exercise and diet changes will do NADA for any cancer patient with multiple genetic mutations. I doubt if all that effort will matter. When I apply my suspicions to my own life, I am confronted with the fact that I have been a very thin and powerful athlete most of my life - a person who has done EVERYTHING right in terms of exercise, diet and medical care. I enjoyed, another words, vibrant health. And guess what? I developed advanced metastatic aggressive cancer anyway. Well, da€n, WHY? Well, because science and research are not advanced enough in 2015 to tell me the why. Nor can the medical establishment assure me of appropriate and meaningful treatment to cure me of this disease. Right now I am experiencing "disease free survival". Well, I am painfully aware that that may last 3 months or 30 years. It will be what it will be. In the meantime, I plan to live, live, live!!
The best to each of you,
Cathy
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abbycat me tooAbbycat2 said:Trish, congratulations!
Let's face it, long term survival is a "crap shoot". What cancer has taught me is that two women with the same aggressive uterine cancer and the same stage-DO NOT HAVE the same disease. My gyn onc told me early on- almost two years ago- that some women with aggressive uterine cancer (grade 3) die quickly from an early stage cancer, that is, stage 1 or 2. Yet, some late stage women live a long time, some 6 to 8 years out from surgery with or without recurrance. I keep asking myself what is that about? I suspect that it has everything to do with the extent of genetic cancer mutations a woman has been born with than anything else. I further believe, and perhaps Trish will substantiate, that all the exercise and diet changes will do NADA for any cancer patient with multiple genetic mutations. I doubt if all that effort will matter. When I apply my suspicions to my own life, I am confronted with the fact that I have been a very thin and powerful athlete most of my life - a person who has done EVERYTHING right in terms of exercise, diet and medical care. I enjoyed, another words, vibrant health. And guess what? I developed advanced metastatic aggressive cancer anyway. Well, da€n, WHY? Well, because science and research are not advanced enough in 2015 to tell me the why. Nor can the medical establishment assure me of appropriate and meaningful treatment to cure me of this disease. Right now I am experiencing "disease free survival". Well, I am painfully aware that that may last 3 months or 30 years. It will be what it will be. In the meantime, I plan to live, live, live!!
The best to each of you,
Cathy
cathy i so resonate with what you say re diet, exercise, etc. i too was athletic for most of my adult life. kept myself moving. very fit and trim. cross-trained w/swimming, weights, running, hiking, classes etc. fed my body good stuff. if there was a choice between stairs or an elevator? i took stairs. even if it meant carrying my bike -- which i rode 6 miles round trip most days to work. and then i'd do a weights or swim workout on my lunch hour. i wasn't perfect. but i was way more fit than most people i knew and loved moving my body. and i had also worked rigorously to shift my haibtual thought patterns over the years -- needed to. went from catastrophic thinking in my twenties and thirties gradually to almost pathologically optimistist in my forties and fifties and into my sixties
. phyiscally i had ZERO indicators for endoca except a touch of hbp which wasn't even that high. blam. clear cell. and in the aftermath of treatment i'm now dealing with a plethora of emotions i never expected. it has rocked my world at the very foundation. physically i feel great. getting back on the trails and taking long hikes etc. for me it's the emotional journey that's hard right now. just want to let you know you inspired me today. thanks.0 -
I love to read this!
Thanks for putting this on here, Trish! I start chemo on Tuesday and it's so encouraging to see a positive light at the end of the tunnel. I talked to my doctor and he said the same thing - if you change for yourself, good for you. But if you think change will determine your outcome, it most likely won't. I have a wonderful life and this "setback" is not going to change that. I'm looking forward to further reports from you.
Eldri
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