CSN Login
Members Online: 3

You are here

Update on my clinical trial - good news!

AWK
Posts: 364
Joined: Mar 2013

After two cycle which consist of three treatments each; a platelet transfusion and two blood transfusions and lots of sleep we met with the team to review scans from last week and see if I could continue with the trial.  The scans revealed the met resting on my heart now has "dead" tissue in it and two of my other mets have slightly shrank!  Overall my cancer is considered stable right now which is great.  The treatment is acting exactly how they hoped, killing existing tumors from the inside and cutting off supply to new growth!  It is preliminary but the best news I have had in two years!  

My bone marrow issues are under control and platelet and red/white blood cells are back in the normal, albeit low end, range.  I am cleared to ride at a trot now although cautiously.  I had to share the news especially for those on longer journeys Or starting new journeys.  Things are always changing in this field and I am lucky to be a beneficiary of that.  I know there will be bumps ahead but I am going to celebrate the good news when I get it.  

Hang tough ladies.  hugs to all!  Anne

ConnieSW's picture
ConnieSW
Posts: 1482
Joined: Jun 2012

Wonderful news.  Trot away.

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

That is such great news!  Cisco will be happy!

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2753
Joined: Mar 2013

Thank you, Anne.  We need some great news like this.

 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1659
Joined: Jun 2015

Anne, Thanks for letting us know. We are all celebrating with you!

So so so happy to hear this. Enjoy the great news and hug your horse. Your husband too!  :-)

Love,

Cindi

daylady's picture
daylady
Posts: 122
Joined: Dec 2014

SOOOOOOOO happy for you Anne!  We'll keep hoping things continue in a positive direction!!

ConnieSW's picture
ConnieSW
Posts: 1482
Joined: Jun 2012

How are you doing?

daylady's picture
daylady
Posts: 122
Joined: Dec 2014

Hi Connie, Sorry for the delay in reply.  This last month has been a little crazy.  My fatherinlaw passed away, my soninlaw's lung collapsed on the day of the funeral, and then after those events were stabalized we had to jump in the car and head to So. Calif. for our grandson's baptism.  We have been back for 2 days and leave tomorrow for our 50th high school reunion.  There has been no time for anything.  I have a mammogram next week (a repeat, has me nervous) and a CT scan the following week which will give us some idea who the Avastin treatment is going.  I had labs today, and chemo tomorrow and have decided not to even inquire as to the lab results from today.  They will be done again in another 3 weeks and I just want to go to this reunion and enjoy, not being stressed about some number.  I think things are OK.  I feel good. Have had no significant issues all summer and things have held steady so I'm counting on good news.  The mammogram makes me nervous, but I understand that at my age they do a lot of repeats due to dense breast tissue as we get older.  That's what they told me.  It is inconveivable to me that I could have gone through nearly two straight years of chemo and then suddenly have breast cancer.  But other than that, at the moment, I'm doing fine.  I'll let everyone know how the tests turn out later this month.  Thanks for checking!

pam0422's picture
pam0422
Posts: 25
Joined: Aug 2015

That is the best news I've heard this month. Fantastic! 

Double Whammy's picture
Double Whammy
Posts: 2828
Joined: Jun 2010

So happy for this news for you.  I hope it continues.

Suzanne

debrajo's picture
debrajo
Posts: 1095
Joined: Sep 2011

Clinical trials turn into frontline drugs/treatments thanks to people like you!  Thanks Anne, keep it going!Sealed  Debra(Jo)

Sandy3185's picture
Sandy3185
Posts: 228
Joined: Oct 2013

So happy to hear you good news! I hope this continues into full blown remission. Sandy

Kaleena's picture
Kaleena
Posts: 1981
Joined: Nov 2009

Great news, Anne!   Thanks for sharing with us!

 

Kathy

artist49
Posts: 87
Joined: Oct 2011

It's great to hear that new treatments are coming!

DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

Great to know this Anne!!! YAY!!

HellieC's picture
HellieC
Posts: 524
Joined: Nov 2010

Great news!  You must be delighted with the early scan results.  Having worked in clinical trials for most of my working life, I know it is people like you who are prepared to take a step into the unknown who are at the forefront of new discoveries.  I am so pleased for you and thank you for what you are doing which will help so many others in the future.

Kindest wishes
Helen xxx

survivingsu's picture
survivingsu
Posts: 134
Joined: Apr 2013

That is super news!  Thank you for sharing.  Keep on keeping-on!!!

Abbycat2's picture
Abbycat2
Posts: 644
Joined: Feb 2014

Sometimes on this Board, I find myself wanting to break out into a victory dance! Yah! I want to shout, stomp my feet, let the world know how I feel.  Anne, I am so very happy to hear that you are responding to the treatment! I have been quietly rooting for your success. Free yourself of all worries by taking that much needed ride on your adored horse. I wish I could join you on your ride!

Best to you, my friend,

Cathy

 

pinky104
Posts: 574
Joined: Feb 2013

That's such great news.  Thanks for being a pioneer in these new treatments and giving everyone hope.  Even though my cancer seems to be gone (I'm a 5 year survivor), I can never really be sure.  My mother had breast cancer twice, ten years apart.  It's good to know that if mine ever comes back, there may be new ways to treat it! 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

What great news

AWK
Posts: 364
Joined: Mar 2013

How are you doing?  Sending hugs and keeping you in my prayers - Anne

ConnieSW's picture
ConnieSW
Posts: 1482
Joined: Jun 2012

You are my hero

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

What wonderful news.  i am so excited for you.  Hugs and prayers, Lou Ann

 

 

I think i missed the date on this post and commented twice, but that's ok  I still am so happy that maybe this is working for you.

My sugeon/ gyn-onc didn't want me to wait 6 weeks to rtestart chemo , so my appointment was moved up to this coming Monday.  Don't know what kind it will be.  He was talking about maybe trying to find a way to make the taxol/ Carbo work.  

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1659
Joined: Jun 2015

I hope the next treatment brings you great news. My thoughts and prayers are with you today, tomorrow...

Take care and please keep us posted!

Love,

Cindi

txtrisha55's picture
txtrisha55
Posts: 685
Joined: Apr 2011

This is great news.  Good news for the rest of us as it is a clinical trial that can hopefully help others coming up behind us.

Happy to hear that you are responding to the treatment.  trish

Subscribe to Comments for "Update on my clinical trial - good news!"