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Jeff Anderson treatment update

janderson1964
Posts: 2215
Joined: Oct 2011

So I have a very busy 6 weeks ahead of me as my plan has finally come together.

6/3 I do a trial run of SBRT to be sure everything is programmed right

6/5 I get my fist actual SBRT treatment

6/11 SBRT treatment #2

6/19 SBRT treatment $3

6/26 SBRT treatment and final treatment #4

7/9 back to Baltimore for more cryoablation on the lung nodule, possible rib nodule and maybe to touch up an ablation done in December.

Cathleen Mary
Posts: 827
Joined: May 2011

Wow!  Congrats, Jeff. Prayers for the ablation and pain relief. Summer may be enjoyable after all.

CM

NewHere's picture
NewHere
Posts: 1195
Joined: Feb 2015

That the treatments are done.  Thoughts are with you with the next step.

Helen321's picture
Helen321
Posts: 1409
Joined: May 2012

How did it go?????

Brenda Bricco
Posts: 579
Joined: Aug 2011

Hi Jeff, I began reading your post and was blown away by the way you felt after your first SBRT treatment... my husband had some fatigue but nothing that kept him down; it had to be the combo of the other treatment. I'm so glad you are through the majority of the busy schedule and I pray every thing goes off with out a hitch for the rest. Curious... where did you get the SBRT?  God bless... Brenda

 

Trubrit's picture
Trubrit
Posts: 5181
Joined: Jan 2013

Hope all went well with the cryoablation yesterday. 

Post when you are feeling up to it. 

We're all here, routing for you. 

Sue - Trubrit

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herdizziness
Posts: 3642
Joined: Apr 2010

To hear as well, thinking of you and hoping all is going great for you.

Winter Marie

janderson1964
Posts: 2215
Joined: Oct 2011

Sotty, it's been a while. My ablations's were actually moved up to the 2nd. They were wau more brutal than last time. Firts the good news. The spot on my lung didnt grow but he ablated it anyway. The spot he thought about touvhnig up on my back from December didn't grew so he left that one. In fact as far as he could tell there were no new growths base on a scan without contrast. Now the not so good news. The rib that wasuse/is causing me so mch pain tripled in size. we are dumfounded since the other spots are stable. He deciced to ablate as much as he could. The maximum a body can take in one seccion. He things he got at least 80%. The plan is to rescan in five weeks. They might ablate again right away or wait and see dpending if there is growth on the scan and how fast it is.

I th pain was twice as bas this time. I am scared to go back so soon. I am still recovering. I have some serious swelling in my side the keeps me in constant pain. I just heard back from my IR. Hde said it might be my tumor bed bleeding so he wants to order a scan. A lot of scan then hurry up and wait now.

Sorry I didnt have better news to report.

Trubrit's picture
Trubrit
Posts: 5181
Joined: Jan 2013

We are sorry too, that you don't have better news.

I am happy for your good news, and sad for your not so good news. I am not happy that you are in pain, it pains me to hear that you are. 

Damn that larger tumour. When they got into my liver last year, my tumour was on the border of being too big to ablate, but they went ahead and so far so good, so here's hoping that the 80% is done with, and that the remainder stays stable until your next (and I know you don't want to be thinking about it) try. 

Like I said, its hard to think of yet another surgery, when you are still in the midst of recovering from this one, but soon, the pain you are in now, will be a memory and you will be ready for the next round. A bit like having a baby. If we could even remember half the pain, I dout we'd ever get pregnant again. 

I will pray specifically for your pain to abate, and the swelling reduce and the tumour to stay at the size it is now. 

I know I speak for others when I say that you are in our thoughts (and prayers) and we understand that you may not want to bother posting when all you want to do is concentrate on the pain. So, dear friend; I hope your healing is fast, and that you are back up on your feet soon.

Cyber hugs!

Sue - Trubrit

janderson1964
Posts: 2215
Joined: Oct 2011

Thanks Sue. You are a real sweetheart. I am back on my feet somewhat and I feel I might have turned the corner today finally although my IR wants a scan ASAP to make sure there isn't any bleeding so I might not be out of the woods yet although even if I was out of the woods it would only be temporary. It seem i am going to be spending a lot of my life in the woods LOL.

lp1964's picture
lp1964
Posts: 1240
Joined: Jun 2013

Sounds like you have been through a meat grinder. But you are a tough cookie we all know that. You are right. Take your time and recover. Sometimes when you are trying to do too much the end result suffers. Your body, your immune system and your mind have to be ready for the next battle.

All thr best man,

Laz

Easyflip's picture
Easyflip
Posts: 588
Joined: May 2013

at a time. i like that you're blasting away! Keep it up and hang in there. We all have your back!

Easyflip/Richard

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annalexandria
Posts: 2573
Joined: Oct 2011

I wish you didn't have to go through all of this.  I know I went through my lowest point, with tons of pain and unclear results from surgery, just before I turned the corner, so I hope this will be the same for you.  You just never know when that's going to happen, which is hard on the spirits.

Big hugs~AA

Cathleen Mary
Posts: 827
Joined: May 2011

Oh, Jeff, I am sorry that you have to continue to do this the hard way.  You must be weary of being our inspiration and longing for boredom. Please know that I do pray for you each day and continue to hope for a less complicated course for you.  Courage, my friend.

CM

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Rest up, get better.  I'm so sorry to hear the pain is so bad and the results not the greatest, but in 5 weeks we'll know more?

I do think of you each day and my thoughts and love are with you and your family.  It's a rough road that we're on, but looking at the next plan is what can help keep us going.

Luv and Hugs,

Winter Marie

janderson1964
Posts: 2215
Joined: Oct 2011

Well i am back in the big house. It turns out a lot of the pain was caused by a lung infection. They put a drain tube in my lung last night. I guess I will go home monday with the drain tube in and a PICC so i can give myself iv antibiotics. Its been 8 years since I has a PICC line.

Trubrit's picture
Trubrit
Posts: 5181
Joined: Jan 2013

I know that actually finding out what is causing the pain, is a good thing. I am still sorry that you are going through it, though. 

The antibiotics will work a treat; and the tube, which sounds horrible, but if it works......  and soon you will be back up and running - or riding - 

We've got your back, Jeff. Loads of prayers, good thoughts, vibes. You're our inspiration. 

Cyber hugs!

Sue - Trubrit

- I'm going to play with the Font Family again, cause I'm bored with this font. If it appears all foreign languageee again, just let me know -

janderson1964
Posts: 2215
Joined: Oct 2011

Thanks Sue. I sound like a broken record saying this but you are such a sweet positive lady. You inspire all of us as well. Thanks for taking such a big role in this community. Especially helping all the newcomers which is an area where I have been lacking lately.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

by the time you read this that your pain has been lessened greatly.  Let the antibiotics do their magic!  I imagine the tubing isn't very comfortable so am wishing you a speedy recovery from your infection, but sure glad they found the reason why and that they have put you back on the road to recovery.

hugs,

Winter Marie

Cathleen Mary
Posts: 827
Joined: May 2011

Spending the weekend in the hospital isn't fun but I am very happy that they have identified the source of the problem and have begun treating. Unfortunately, that is the only route to recovery. Feel better soon.

CM

Trubrit's picture
Trubrit
Posts: 5181
Joined: Jan 2013

Its been a while since your last update. I hope that the pain is under control, if not gone. I hope you are home and healing. 

Cyber hugs!

Sue - Trubrit

janderson1964
Posts: 2215
Joined: Oct 2011

Thanks for asking Sue. I have been home for a little over a week. All the pain is gone except for where the cbest tube is and that is only occaisionaly. I had hoped to have the tube out by this weekend but i am still draning too much fluid. So i went and rode my Harley yesterday drain tube bag and all. It was awesome. I am on my stationary bike now and might take the Harley out again later.

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

Keep it up, dude.  All of your physical activity and strength has got to make a difference imo.

janderson1964
Posts: 2215
Joined: Oct 2011

Thanks for asking Sue. I have been home for a little over a week. All the pain is gone except for where the cbest tube is and that is only occaisionaly. I had hoped to have the tube out by this weekend but i am still draning too much fluid. So i went and rode my Harley yesterday drain tube bag and all. It was awesome. I am on my stationary bike now and might take the Harley out again later.

Trubrit's picture
Trubrit
Posts: 5181
Joined: Jan 2013

When you're out on your bike, I know it has to be healing. I am happy to hear it. 

I will pray specifically to God that you are soon able to get the drainage tube removed. 

You're great!

Sue - Trubrit

UncleBuddy
Posts: 1019
Joined: Aug 2013

You're not letting this wicked disease stop you. I hope it works so we can hear that you're NED one day! 

Have fun on the Harley! The hubby keeps saying he wants one. He got rid of his Honda Nighthawk years ago when we had kids. He says his next bike will be a Harley. LOL, we both bought bicycles to try to get some exercise together. I think that's enough for now! Haha!       :)

Lin

janderson1964
Posts: 2215
Joined: Oct 2011

I got my chest tube out today. Yay, what freedom.

Trubrit's picture
Trubrit
Posts: 5181
Joined: Jan 2013

 Go tube! Go! Go! Gone!

 

May this be the end of tubes for you.

Sue - Trubrit

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

glad to hear you got the chest tube out, hope this finds you pain free now?

Winter Marie

BillO60
Posts: 72
Joined: Mar 2015

I'm late as usual but that rarely stops me.  Just read through this thread and wanted to add my congratulations on your progress and your ability to push through some hard times both mentally and physically. However, I am jealous... a Harley? 

My sincere wishes for your continued healing, health, and, of course, good riding weather.

Bill

UncleBuddy
Posts: 1019
Joined: Aug 2013

Greay news!

hippiechicks
Posts: 509
Joined: Sep 2012

Cool Congrats!!!!  That is awesome news!!  I know that liberating feeling so well when your finally disconnected from those constant restraints and reminders of what is really going on.  It is not only physically freeing when those tubes and pumps come off .. but more importantly emotionally! 

I am so happy to hear things are healing and your through the worst ... enjoying the best and many more to come!  Keep on riding my friend... enjoy that wind in your face ... and really?  a Harley?? WOW!!!  Congrats on that! What color?? ENJOY

janderson1964
Posts: 2215
Joined: Oct 2011

Black Softail slim. I have been working on blacking out everything a little at a time. I would post a picture but can't seem to figure out how to do it. I guess the file is too big. Anyway you can see piactures of it on my Facebook page. Just search Jeff Anderson on Facebook.

Trubrit's picture
Trubrit
Posts: 5181
Joined: Jan 2013

Nice looking bike, Jeff. 

I actually sent a friend request, but will not be offended if you don't accept. Its all good!

Sue - Trubrit

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