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We have another NED!

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

I got the all clear! I cannot believe the relief I felt. The doctor told me we can move to scans once a year. I quietly said no. He said "no problem". I am not even 18 months out of surgery - and stage 3. He was great though. I had a few questions written out and I could barely stammer the words. I finally got one question out. Hahaha. I asked about the lymphovascular invasion. He said it was an agressive tumor but they got it all (where have we heard that one before?)

He gave me a couple of big hugs (I think he realized how nervous I was) and said all will be just fine. He asked if there is anything else he can do for me. And then we set up the next appointment.

Laughing

Hugs

Jojo

 

sblairc's picture
sblairc
Posts: 586
Joined: Feb 2014

I knew it! 

Good for you for advocating for what you need. I hope you get to celebrate BIG TIME. Love this news beautiful lady!!!!

Jan4you's picture
Jan4you
Posts: 1317
Joined: Oct 2013

YIPPEEEE!!!!!!

Now will you truly relax?

WE will celebrate with you, if you don't mind!!

Could use some good things to be excited about!

Yay for standing up and advocating for yourself.

Now what will YOU do to celebrate?

Hugs, Jan

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Time to paint the town red!

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Gee, I wasn't nervous at all. But I feel alot better now. You have supported so many others, it is your turn to be the recipient of great news. What goes around, comes around. I am thrilled for you Jojo. FLY!

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

Glad to hear that. And happy to hear you said no on the 1 year scans and he was ok with that too. Stick with 6 month scans to 3 years on a stage 3 higher grade tumor. At least.

Many more to come.

Hugs,

Todd

icemantoo's picture
icemantoo
Posts: 3212
Joined: Jan 2010

Jojo,

I swear when I was at Casino Windsor the other day I saw a NEDmobile heading out on the 401 towards Hamilton.

 

Icemantoo

brea588's picture
brea588
Posts: 240
Joined: Jul 2012

That is wonderful news.  Pray it continues on each and every scan.  I was to go for mine today, but yesterday my knee was swollen and hurting, went to doc and i have blood clot in groin .  I said dang it, I need a break here now.  Was from the hip surgery I suppose 2 months ago.  Now on all these blood thinners and shots.  Pray for me.  My scans are now May 7th. Great news for you.!!!!!

Limelife50's picture
Limelife50
Posts: 476
Joined: Nov 2011

Thumbs Way Up!!!

jason.2835's picture
jason.2835
Posts: 336
Joined: Nov 2014

Great news, Jojo!

- Jay

Dave418's picture
Dave418
Posts: 95
Joined: Aug 2014

Nice!! Lets go, as someone says here, Pizza and Beer!!! Cheers!!

Srashedb
Posts: 482
Joined: Dec 2013

JoJo, I have been checking to see your post! Excellent news and I am so happy for you!

Good job in asking for scans sooner than a year.

Sarah

Srashedb
Posts: 482
Joined: Dec 2013

JoJo, I have been checking to see your post! Excellent news and I am so happy for you!

Good job in asking for scans sooner than a year.

Sarah

marosa's picture
marosa
Posts: 332
Joined: Feb 2015

Im a little new round here... but I do peek-in often and feel a bit like I know you, and I like you tons! 

I've been in here 3 times today  looking and waiting to hear your good news.  So happy for you JoJo!

 

Mary

angec's picture
angec
Posts: 923
Joined: Mar 2012

Go JoJo! Go JoJo!   That is awesome news! So glad to hear it! And yes, smart move on the scans at the very least twice a year. Full body pet / ct scans if they allow it. Always the best to do!  But great news!  I needed some good news today.  

 

Brea, sorry you are going through this with the blood clot. Hopefully it will be temporary and move out quickly.  Praying for you both and all others here on the boards!  XXOO 

Love and hugs,

Angela

Phredswife's picture
Phredswife
Posts: 162
Joined: Apr 2014

Yay. Awesome news!!! Hugs Melissa xox

Smile

Allochka's picture
Allochka
Posts: 866
Joined: Nov 2014

Kisses and hugs !!! :-) :-) :-)

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Thanks so much for everyone's enthusiastic responses. What a great support group! I couldn't ask for more. Smile

Well.....I will ask for more.....that this NED guy is there for everyone here.

Brea, how disappointing for your setback. I hope all goes well for you, dear girl!

Hugs

Jojo

GailN
Posts: 14
Joined: Dec 2013

This is great news!!  I agree with Todd, 6 monthly scans at least for the first 3 years for stage 3. I am at 3 yrs post nephrectomy and I have agreed with my oncologist that my next scan will be at 8 months (due July). I am gradually building up to anuual scans....even though we dread the scans it is hard to let go of them as well!!

RMolinaro414's picture
RMolinaro414
Posts: 43
Joined: Sep 2014

My girl! WOO HOO!! This is the news I've been waiting for. You are always there for me whenever I need someone and I cannot be more thriled for you. I'm making a NED cake with my little guy this afternoon and will add an extra candle to celebrate you. Wishing you a lifetime of NED. xoxo!!!

APny's picture
APny
Posts: 1939
Joined: Mar 2014

I'm so happy for you. That's fantastic news. And good for you for insisting on every six months checkups. Now go celebrate!

Love the NED cake idea, RMolinaro :)

donna_lee's picture
donna_lee
Posts: 894
Joined: Feb 2009

are the words I could say to express my joy for you.  But as you well know, they would be bleeped.  For other reasons, it's been a bit of a downer week, so this is great news to end the week.  Hooray.

Donna

Jan4you's picture
Jan4you
Posts: 1317
Joined: Oct 2013

Oh, Donna, I am having fun figuring out the word choice you WANT to use!

BUT I am sad you are having a bummer week.

Know that I am sending you my care, support and understanding with

A gentle hug,

Jan

foroughsh's picture
foroughsh
Posts: 775
Joined: Oct 2014



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Congratulations beautiful lady. My hubby &I were on adventurous trip to celebrate our second wedding anniversary and I had left my cell phone at home. Last night we came back and the very first thing I did today was to check csn to see your good news. And YES it is. You completed my joy and happiness. Wishing you a lifetime of NED, Forough

 

 

 


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Ree_Maryland's picture
Ree_Maryland
Posts: 157
Joined: May 2014

Hi

I never know what to say but I can say for sure I AM happy you are nerd and you spoke up for a scan earlier that Dr, recommeded , hope and pray all goes well for you .

Shecka1121
Posts: 114
Joined: Apr 2015

Since I am new to this group, I read your story/history.  You are a warrior and I am so happy for your results. You seem like such a special and wonderful person.  God bless your many more wonderful and healthful years.  

aamdsi
Posts: 284
Joined: Apr 2014

Happy happy for you Jojo!

 

Hugs,

Laurie

I am alive
Posts: 316
Joined: Jul 2012

I am thrilled for you, Jojo! And I applaud that you asked for followup tests sooner than a year out. This sneaky beast cannot be given the benefit of the doubt. Enjoy your liberation from worry!

BDS's picture
BDS
Posts: 172
Joined: Aug 2012

 

Jojo, sorry this is late but CONGRATULATIONS! NED IS a beautiful THING!

 

Bonngo's picture
Bonngo
Posts: 79
Joined: May 2012

So happy for you, Jojo!  You are an inspiration!

~Bonnie

Skagway Jack's picture
Skagway Jack
Posts: 221
Joined: Oct 2013

Great news JoJo.   With all you do for others its good to see it coming back to you!  Congrats.

Jack

alice124's picture
alice124
Posts: 898
Joined: Mar 2012

Awesome news Jo, and you deserve it! YES YES YES!!!!

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